阐明儿童对臂丛出生损伤的认识。

IF 1.3 4区 医学 Q3 NURSING
Michelle Goldsand, Kathleen Lai, Kristen Davidge, Emily S Ho
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引用次数: 0

摘要

促进儿童了解其医疗状况可以改善健康结果和社会心理健康。为了了解医学信息是如何传递的,我们采用了一种解释性质的方法来探讨儿童对臂丛出生损伤的理解。对臂丛出生损伤儿童(n = 8)及其照顾者(n = 10)进行了单独和作为儿童照顾者的深入访谈。对访谈数据的专题分析发现,儿童主要是通过与受影响肢体的运动和外观有关的功能和心理社会问题的生活经验,而不是通过医疗信息来了解他们的损伤。儿童学习诊断和预后信息的能力受年龄、情绪准备程度和背景知识的影响。在获得有关其医疗状况的信息时,儿童需要更多的支持,以了解其预后及其对其未来的影响。这些叙述表明,在信息传递方法中,解决主要功能和社会心理问题的重要性,以便将医疗信息置于背景中,并确定臂丛出生损伤儿童的情感准备情况。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Elucidating children's understanding of brachial plexus birth injury.

Facilitating children's understanding of their medical condition can improve health outcomes and psychosocial well-being. To inform how medical information is delivered, an interpretive qualitative approach was used to explore children's understanding of their brachial plexus birth injury. In-depth interviews of children with brachial plexus birth injuries (n = 8) and their caregivers (n = 10) were conducted individually and as a child-caregiver dyad. Thematic analysis of interview data found that children primarily understood their injury through lived experiences of functional and psychosocial concerns related to movement and appearance of the affected limb, rather than medical information. Children's ability to learn about diagnostic and prognostic information was influenced by age, emotional readiness, and background knowledge. In receiving information about their medical condition, children needed greater support in understanding their prognosis and its implications on their future. These narratives indicate the importance of addressing the primary functional and psychosocial concerns to contextualize medical information and ascertain the emotional readiness of children with brachial plexus birth injuries in information delivery approaches.

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来源期刊
Journal of Child Health Care
Journal of Child Health Care NURSING-PEDIATRICS
CiteScore
4.10
自引率
15.80%
发文量
60
审稿时长
>12 weeks
期刊介绍: Journal of Child Health Care is a broad ranging, international, professionally-oriented, interdisciplinary and peer reviewed journal. It focuses on issues related to the health and health care of neonates, children, young people and their families, including areas such as illness, disability, complex needs, well-being, quality of life and mental health care in a diverse range of settings. The Journal of Child Health Care publishes original theoretical, empirical and review papers which have application to a wide variety of disciplines.
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