Best Practice & Research in Clinical Rheumatology最新文献_第8页

The communication GAP between patients and clinicians and the importance of patient reported outcomes in Systemic Lupus Erythematosus 系统性红斑狼疮患者与临床医生之间的沟通差距以及患者报告结果的重要性。

IF 4.5 2区医学

Best Practice & Research in Clinical Rheumatology Pub Date : 2023-12-01 DOI: 10.1016/j.berh.2024.101939

Elena Elefante , Alain Cornet , Jeanette Andersen , Amy Somers , Marta Mosca

{"title":"The communication GAP between patients and clinicians and the importance of patient reported outcomes in Systemic Lupus Erythematosus","authors":"Elena Elefante , Alain Cornet , Jeanette Andersen , Amy Somers , Marta Mosca","doi":"10.1016/j.berh.2024.101939","DOIUrl":"10.1016/j.berh.2024.101939","url":null,"abstract":"<div><div>Systemic Lupus Erythematosus (SLE) imposes a great burden on the lives of patients. Patients' and physicians' concerns about the disease diverge considerably. Physicians focus on controlling disease activity to prevent damage accrual, while patients focus on symptoms that impact on Health-Related Quality of Life (HRQoL). We explored the physicians' and patients' perspective and the potential role of Patient Reported Outcomes (PROs). Physicians are aware of the theoretical usefulness of PROs to collect information deriving from the patients' perspective. However, they often do not know how to interpret and use these questionnaires in a real shared therapeutic strategy.</div><div>For the patients, it’s important to be seen as a whole person with a true consideration of how they feel and function. Strategies to help bridge the communication gap could include: better use of time during visits, preparing for the consultation, a more understandable lay language used by the doctor, a dedicated nurse.</div></div>","PeriodicalId":50983,"journal":{"name":"Best Practice & Research in Clinical Rheumatology","volume":"37 4","pages":"Article 101939"},"PeriodicalIF":4.5,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140133186","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Pregnancy in systemic lupus erythematosus 系统性红斑狼疮患者的妊娠。

IF 4.5 2区医学

Best Practice & Research in Clinical Rheumatology Pub Date : 2023-12-01 DOI: 10.1016/j.berh.2023.101860

Dina Zucchi , Rebecca Fischer-Betz , Chiara Tani

引用次数: 0

Systemic lupus erythematosus and glucocorticoids: A never-ending story? 系统性红斑狼疮和糖皮质激素:一个永无止境的故事?

IF 4.5 2区医学

Best Practice & Research in Clinical Rheumatology Pub Date : 2023-12-01 DOI: 10.1016/j.berh.2023.101873

Diana Paredes-Ruiz , Guillermo Ruiz-Irastorza , Zahir Amoura

{"title":"Systemic lupus erythematosus and glucocorticoids: A never-ending story?","authors":"Diana Paredes-Ruiz , Guillermo Ruiz-Irastorza , Zahir Amoura","doi":"10.1016/j.berh.2023.101873","DOIUrl":"10.1016/j.berh.2023.101873","url":null,"abstract":"<div><div>Glucocorticoids<span><span><span> (GCs) continue to be essential agents for the management of systemic lupus erythematosus<span>, since there are no other drugs able to active remission of active disease so rapidly. However, their potential for causing irreversible damage greatly limit their use. Fortunately, some strategies may help take advantage of their huge anti-inflammatory power while limiting GC-induced side effects. This article reviews the pharmacological basis of GC action and their translation into the clinical ground. We also offer the practical approach for the use of GC in induction and maintenance therapy as well as the strategies for GC withdrawal of the respective practice of the authors. The three main basic principles are a) using methyl-prednisolone pulses to induce remission not only in severe disease; b) limiting initial doses of </span></span>prednisone to ≤30 mg/d, with rapid tapering to ≤5 mg/d, which should be the dose for maintenance therapy; and c) individualizing the decision and the strategy to withdraw GCs. Long-term therapy with </span>HCQ<span> and the early introduction of immunosuppressive treatment would help achieve these objectives.</span></span></div></div>","PeriodicalId":50983,"journal":{"name":"Best Practice & Research in Clinical Rheumatology","volume":"37 4","pages":"Article 101873"},"PeriodicalIF":4.5,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"92157242","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Clash of the titans: Current CT and CT-like imaging modalities in sacroiliitis in spondyloarthritis 泰坦之战:脊柱炎伴骶髂炎的CT及CT样成像方式。

IF 5.2 2区医学

Best Practice & Research in Clinical Rheumatology Pub Date : 2023-09-01 DOI: 10.1016/j.berh.2023.101876

Kelly Di Dier , Dominik Deppe , Torsten Diekhoff , Nele Herregods , Lennart Jans

{"title":"Clash of the titans: Current CT and CT-like imaging modalities in sacroiliitis in spondyloarthritis","authors":"Kelly Di Dier , Dominik Deppe , Torsten Diekhoff , Nele Herregods , Lennart Jans","doi":"10.1016/j.berh.2023.101876","DOIUrl":"10.1016/j.berh.2023.101876","url":null,"abstract":"<div><p><span>Sacroiliitis is characterised by active and structural changes of the joint. While the Assessment of </span>Spondyloarthritis<span><span> international Society (ASAS) classification criteria stress the importance of bone marrow inflammation, recent reports suggest that osteitis can occur in various diseases, mechanical conditions and healthy individuals. Thus, structural lesions such as joint surface erosion and </span>ankylosis<span> are important factors for differential diagnosis. Various imaging modalities are available to examine these changes. However, computed tomography (CT) is generally considered the reference standard. Nonetheless, recent advances in magnetic resonance imaging (MRI) allow for direct bone imaging and the reconstruction of CT-like images that can provide similar information. This way, the ability of MRI to detect and measure structural lesions is strengthened. The aim of this review is to provide an overview of the pros and cons of CT and CT-like imaging modalities in sacroiliitis.</span></span></p></div>","PeriodicalId":50983,"journal":{"name":"Best Practice & Research in Clinical Rheumatology","volume":"37 3","pages":"Article 101876"},"PeriodicalIF":5.2,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89720450","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Peripheral spondyloarthritis: What have we learned? 外周脊柱关节炎：我们学到了什么？

IF 5.2 2区医学

Best Practice & Research in Clinical Rheumatology Pub Date : 2023-09-01 DOI: 10.1016/j.berh.2023.101862

María Ángeles Puche-Larrubia , Clementina López-Medina , Nelly Ziadé

引用次数: 0

Impact of sex and gender on axSpA diagnosis and outcomes 性别和性别对axSpA诊断和结局的影响。

IF 5.2 2区医学

Best Practice & Research in Clinical Rheumatology Pub Date : 2023-09-01 DOI: 10.1016/j.berh.2023.101875

Samantha O. Kohn , Abeera Azam , Lauren E. Hamilton , Stephanie R. Harrison , Elizabeth R. Graef , Kristen J. Young , Helena Marzo-Ortega , Jean W. Liew

{"title":"Impact of sex and gender on axSpA diagnosis and outcomes","authors":"Samantha O. Kohn , Abeera Azam , Lauren E. Hamilton , Stephanie R. Harrison , Elizabeth R. Graef , Kristen J. Young , Helena Marzo-Ortega , Jean W. Liew","doi":"10.1016/j.berh.2023.101875","DOIUrl":"10.1016/j.berh.2023.101875","url":null,"abstract":"<div><p><span>Axial spondyloarthritis<span> (axSpA) was historically considered a disease of men, largely due to the recognition of a more severe, progressive phenotype, ankylosing spondylitis (AS; or radiographic axSpA, r-axSpA) aiding the clinical diagnosis [</span></span><span>[1]</span>, <span>[2]</span><span>]. Data demonstrating the near equal prevalence of axSpA in women only started to emerge in the last decades, highlighting intrinsic differences in disease phenotype, and clinical and imaging characteristics between sexes, which partly explain the issue of underdiagnosis in women. Similar to the evolving understanding of spondyloarthritis and the diseases that term describes, the concepts of gender and sex<span> also warrant further clarification to accurately assess their potential role in disease pathophysiology and phenotypic expression. This narrative review delves into the most recent evidence from the literature on the true prevalence of sex differences in axSpA, and the impact of sex and gender on diagnosis, disease characteristics and treatment response in this, still underserved, chronic disease.</span></span></p></div>","PeriodicalId":50983,"journal":{"name":"Best Practice & Research in Clinical Rheumatology","volume":"37 3","pages":"Article 101875"},"PeriodicalIF":5.2,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138441657","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Pathophysiology and immunolgical basis of axial spondyloarthritis 轴性脊柱炎的病理生理学和免疫学基础。

IF 5.2 2区医学

Best Practice & Research in Clinical Rheumatology Pub Date : 2023-09-01 DOI: 10.1016/j.berh.2023.101897

Marleen G.H. van de Sande , Dirk Elewaut

引用次数: 0

Magnetic resonance imaging in spondyloarthritis: Friend or Foe? 脊柱性关节炎的磁共振成像:是友还是敌?

IF 5.2 2区医学

Best Practice & Research in Clinical Rheumatology Pub Date : 2023-09-01 DOI: 10.1016/j.berh.2023.101874

Manouk de Hooge , Torsten Diekhoff , Denis Poddubnyy

引用次数: 0

Treatment overview of axial spondyloarthritis in 2023 2023 年轴性脊柱关节炎治疗概述

IF 5.2 2区医学

Best Practice & Research in Clinical Rheumatology Pub Date : 2023-09-01 DOI: 10.1016/j.berh.2023.101858

X. Baraliakos , U. Kiltz , I. Kononenko , A. Ciurea

引用次数: 0

Advances in axial spondyloarthritis: Learning from the leaders 轴性脊柱炎的研究进展:向领导者学习。

IF 5.2 2区医学

Best Practice & Research in Clinical Rheumatology Pub Date : 2023-09-01 DOI: 10.1016/j.berh.2023.101877

Sofia Ramiro, Nigil Haroon

引用次数: 0