Ethnicity & Disease最新文献

{"title":"A Community-Engaged Process for Adapting a Cardiovascular Health Intervention for Persons with Serious Mental Illness.","authors":"Christina T Yuan, Gail L Daumit, Lisa A Cooper, Courtney Cook, Casey Corches, Arlene T Dalcin, Benjamin Eidman, Tyler Fink, Joseph Gennusa, Stacy Goldsholl, Celeste Liebrecht, Eva Minahan, Brianna Osorio, Shawna N Smith, Nae-Yuh Wang, Emily Woltmann, Amy M Kilbourne","doi":"10.18865/ed.DECIPHeR.27","DOIUrl":"10.18865/ed.DECIPHeR.27","url":null,"abstract":"<p><strong>Introduction: </strong>People with serious mental illness experience grave disparities in cardiovascular disease risk factors. To promote scale-up of effective cardiovascular disease risk reduction interventions from clinical trials, it is important to involve end-users in adapting interventions to fit the needs of community-based settings.</p><p><strong>Objective: </strong>We describe a novel, theory-informed process of garnering community input to adapt IDEAL Goals, an evidence-based intervention for improving cardiovascular disease risk factors in persons with serious mental illness.</p><p><strong>Setting: </strong>Outpatient community mental health programs in Maryland and Michigan implementing behavioral health homes, which provide enhanced support to people living with both physical and mental illnesses.</p><p><strong>Participants: </strong>Clinicians, frontline staff, and administrators from community mental health organizations and persons with serious mental illness.</p><p><strong>Methods: </strong>Our approach to community engagement is based on the Replicating Effective Programs (REP) framework. During the REP preimplementation phase, we used 2 community engagement activities: (1) a \"needs assessment\" to identify anticipated implementation barriers and facilitators, and (2) \"community working groups\" to collaboratively engage with end-users in adapting the intervention and implementation strategies.</p><p><strong>Main findings: </strong>We used the Stakeholder Engagement Reporting Questionnaire to describe our processes for conducting a needs assessment, involving site-level surveys (N=26) and individual interviews (N=94), and convening a series of community working groups with clinicians and staff (mean, 24 per meeting) and persons with serious mental illness (mean, 8 per meeting).</p><p><strong>Conclusions: </strong>By specifying the nature and extent of our community engagement activities, we aim to contribute to the evidence base of how to better integrate and measure community-engaged processes in the adaptation of evidence-based interventions.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":"DECIPHeR Spec","pages":"27-34"},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099524/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Deciphering Disparities: The NHLBI Program on Disparities Elimination through Coordinated Interventions to Prevent and Control Heart and Lung Disease Risk (DECIPHeR).","authors":"George A Mensah, David M Murray","doi":"10.18865/ed.DECIPHeR.1","DOIUrl":"10.18865/ed.DECIPHeR.1","url":null,"abstract":"<p><p>Despite several ambitious national health initiatives to eliminate health disparities, spanning more than 4 decades, health disparities remain pervasive in the United States. In an attempt to bend the curve in disparities elimination, the National Heart, Lung, and Blood Institute (NHLBI) issued a funding opportunity on <i>Disparities Elimination through Coordinated Interventions to Prevent and Control Heart and Lung Disease Risk (DECIPHeR)</i> in March 2019. Seven implementation research centers and 1 research coordinating center were funded in September 2020 to plan, develop, and test effective implementation strategies for eliminating disparities in heart and lung disease risk. In the 16 articles presented in this issue of <i>Ethnicity & Disease</i>, the DECIPHeR Alliance investigators and their NHLBI program staff address the work accomplished in the first phase of this biphasic research endeavor. Included in the collection are an article on important lessons learned during technical assistance sessions designed to ensure scientific rigor in clinical study designs, and 2 examples of clinical study process articles. Several articles show the diversity of clinical and public health settings addressed including schools, faith-based settings, federally qualified health centers, and other safety net clinics. All strategies for eliminating disparities tackle a cardiovascular or pulmonary disease and related risk factors. In an additional article, NHLBI program staff address expectations in phase 2 of the DECIPHeR program, strategies to ensure feasibility of scaling and spreading promising strategies identified, and opportunities for translating the DECIPHeR research model to other chronic diseases for the elimination of related health disparities.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":"DECIPHeR Spec","pages":"1-5"},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099529/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285208","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Applications of Mobile Health Technologies to Address Cardiometabolic Health Disparities in the United States: A Systematic Review.","authors":"Marisol S Cora-Cruz, Elena M Wilson, Grecia B Vargas, Valerie Thompson, Ikechukwu Enenmoh, Chelsea Goffe, Aqueasha M Martin-Hammond, Tanjala S Purnell","doi":"10.18865/ed.33.4.180","DOIUrl":"10.18865/ed.33.4.180","url":null,"abstract":"<p><strong>Introduction: </strong>Black and Hispanic adults are disproportionately burdened by cardiometabolic disorders. The aim of this systematic review was to examine the effectiveness of mobile health technologies to promote disease prevention and self-management among US adults in diverse communities.</p><p><strong>Methods: </strong>Potential studies were identified using a comprehensive search of the PubMed and EMBASE databases for recent studies published from December 2018 through 2021. Keywords and search strategies were established to focus on health disparity populations and the application of mobile health technology for cardiovascular disease risk reduction. Titles and abstracts were assessed and, if a study was eligible, 2 independent reviewers completed a full-length review with extraction in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines.</p><p><strong>Results: </strong>A total of 13 studies met our inclusion criteria. Study sample sizes ranged from 8 to 533 baseline participants. Studies were conducted in diverse communities (eg, North Carolina and California). Most studies used mobile applications (n=11) and a majority used accelerometers or similar technologies (eg, smartwatches) to assess changes in dietary behavior, blood pressure control, and physical activity. Overall, studies reported positive associations between mobile technology use and risk factor reduction actions and behaviors. Long-term adherence varied across studies. Those that prioritized culturally tailored approaches reported more significant impacts than those that did not.</p><p><strong>Conclusions: </strong>Evidence suggests that mobile technology may be useful in promoting disease self-management and risk reduction among populations at higher risk of cardiometabolic diseases. The use of mobile health technologies, particularly when tailored to target populations, may be a practical approach to advancing population health equity.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":"33 4","pages":"180-193"},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11155620/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141297160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Black Feminism and Womanism: A Narrative Review of the Weight Loss Literature.","authors":"Loneke T Blackman Carr, Jameta Nicole Barlow","doi":"10.18865/ed.33.4.170","DOIUrl":"10.18865/ed.33.4.170","url":null,"abstract":"<p><strong>Objective: </strong>Black Feminism and Womanism offers an interdisciplinary lens and practice to center Black women's health, engage relevant health, and create Black women-informed solutions to address obesity. The purpose of this review article is to employ Black Feminism and Womanism to examine approaches and results of Black women-centered behavioral weight loss interventions.</p><p><strong>Methods: </strong>A narrative review of Black women-centered behavioral weight loss interventions was conducted. To be included, articles met the following criteria: published between 2012 and 2022, standard behavioral treatment for weight loss, randomized design, weight loss outcomes stratified by race and gender, sample size of at least 75 individuals, adults at least 18 years of age, and at least 51% Black women in the sample.</p><p><strong>Results: </strong>Eight studies met the inclusion criteria for a Black women-centered behavioral weight loss intervention and were evaluated. Findings indicate that weight loss among Black women was mostly low, below the clinical target of 5 to 10% weight loss. Intervention designs ranged widely in their approach to respond to the context of Black women's lives, with little consistency between designs.</p><p><strong>Conclusions: </strong>To make meaningful improvement in the effectiveness of behavioral weight loss interventions for Black women, new approaches are critical. Approaches grounded in Black Feminism and Womanism can provide the essential foundation to generate new knowledge, novel hypotheses, and intervention designs that fully attend to the lived context of Black women, including consideration of the potential health effects of gendered racism.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":"33 4","pages":"170-179"},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11155623/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141297161","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Community and Healthcare Perspectives on Implementing Hypertension Interventions for a Multiethnic Safety-Net Population.","authors":"Utpal N Sandesara, Savanna L Carson, Alex Dopp, Lilian G Perez, Atkia Sadia, Soma Wali, Nina J Park, Alejandra Casillas, Gloria Kim, Maria G Morales, Ejiro Ntekume, Sarah Song, Priya Gandhi, Tony Wafford, Arleen F Brown","doi":"10.18865/ed.DECIPHeR.68","DOIUrl":"10.18865/ed.DECIPHeR.68","url":null,"abstract":"<p><strong>Objective: </strong>To synthesize community and healthcare informants' perspectives on contextual considerations and tailoring recommendations for high-quality, sustainable implementation of evidence-based practices (EBPs) for managing hypertension (HTN) in a multiethnic safety-net population.</p><p><strong>Design: </strong>Structured focus-group discussions and semistructured qualitative interviews.</p><p><strong>Background: </strong>High-quality, sustainable implementation of HTN-related EBPs can promote equitable care. Implementation challenges extend beyond individual patients to span multiple levels of context. Few studies have systematically engaged community and healthcare perspectives to inform the design of HTN intervention trials.</p><p><strong>Setting: </strong>A large safety-net healthcare system.</p><p><strong>Participants/methods: </strong>We conducted four structured discussions with each of five race- or ethnicity-specific community action boards (CABs) to understand community members' HTN-related norms, assets, needs, and experiences across local healthcare systems. We interviewed 41 personnel with diverse roles in our partnered healthcare system to understand the system's HTN-related strengths and needs. We solicited EBP tailoring recommendations from both groups. We summarized the findings using rapid content analysis.</p><p><strong>Results: </strong>Participants identified contextual considerations spanning seven themes: social determinants, healthcare engagement, clinical interaction, system operations, standardization, patient education, and partnerships and funding. They offered tailoring recommendations spanning nine themes: addressing complex contexts, addressing social needs, system operations, healthcare system training and resources, linguistic and cultural tailoring, behavioral engagement, relational engagement, illness-course engagement, and community partnerships.</p><p><strong>Conclusions: </strong>Engaging community and healthcare informants can ground implementation in the policy, community, healthcare system, clinical, and interpersonal contexts surrounding diverse patients at risk for disparities. Such grounding can reframe inequitable implementation as a multilevel social problem facing communities and healthcare systems, rather than individuals.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":"DECIPHeR Spec","pages":"68-80"},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099525/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285206","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Community Engagement in Implementation Science: the Impact of Community Engagement Activities in the DECIPHeR Alliance.","authors":"Claire Cooper, Karriem Watson, Flor Alvarado, Allison J Carroll, Savanna L Carson, Geri Donenberg, Keith C Ferdinand, Nadia Islam, Rebecca Johnson, Jodie Laurent, Phoenix Matthews, Arthur McFarlane, Sarah D Mills, Maihan B Vu, India S Washington, Christina T Yuan, Paris Davis","doi":"10.18865/ed.DECIPHeR.52","DOIUrl":"10.18865/ed.DECIPHeR.52","url":null,"abstract":"<p><strong>Background: </strong>The translation of evidence-based interventions into practice settings remains challenging. Implementation science aims to bridge the evidence-to-practice gap by understanding multilevel contexts and tailoring evidence-based interventions accordingly. Engaging community partners who possess timely, local knowledge is crucial for this process to be successful. The Disparities Elimination through Coordinated Interventions to Prevent and Control Heart and Lung Disease Risk (DECIPHeR) Alliance aims to address cardiopulmonary health disparities by engaging diverse community partners to improve the implementation of evidence-based interventions. The goal of the Community Engagement Subcommittee is to strengthen community engagement practice across DECIPHeR. This paper presents the subcommittee's \"Why We Engage Communities\" statement that outlines why community engagement is critical for implementation science. The paper also provides case examples of DECIPHeR community engagement activities.</p><p><strong>Methods: </strong>To develop the \"Why We Engage Communities\" statement, we conducted a literature review, surveyed subcommittee members to assess the importance of community engagement in their work, and integrated community partner feedback. We synthesize the findings into three key themes and present examples of community engagement activities and their impact across DECIPHeR projects.</p><p><strong>Results: </strong>The statement presents three themes that illustrate why community engagement increases the impact of implementation and health equity research. Community engagement (1) engages local knowledge and expertise, (2) promotes authentic relationships, and (3) builds community and researcher capacity. The statement provides a guiding framework for strengthening DECIPHeR research and enhancing community partnerships.</p><p><strong>Conclusion: </strong>Community engagement can improve the implementation of evidence-based interventions across diverse settings, improving intervention effectiveness in underserved communities and furthering health equity.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":"DECIPHeR Spec","pages":"52-59"},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099526/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285207","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Physical and Psychological Burden among Caregivers of Latinx Older Adults with Stroke and Multimorbidity.","authors":"Shilpa Krishnan, Haobin Tony Chen, Sarah Caston, Seunghwa Rho","doi":"10.18865/ed.33.4.156","DOIUrl":"10.18865/ed.33.4.156","url":null,"abstract":"<p><strong>Objective: </strong>To investigate the association between Latinx older adults' stroke, multimorbidity, and caregiver burden.</p><p><strong>Methods: </strong>For this retrospective cohort study, we used the Hispanic Established Populations for the Epidemiologic Study of the Elderly (H-EPESE) Wave-7 data set. The caregiver's physical burden was defined by using the Level of Burden Index. The caregiver's psychological burden was measured by using the Perceived Stress Scale (PSS-4). Multimorbidity was defined as the presence of 3 or more chronic conditions.</p><p><strong>Results: </strong>The average age of the Latinx adults was 86 years, and the caregivers were 56 years. Latinx older adults and caregivers were more likely to be females (66% and 75%). Most caregivers were children (71%). Twelve percent of Latinx older adults presented with stroke, and 50% presented with multimorbidity. Caregiver physical burden was stratified into 3 levels: low (43%), medium (17%), and high (40%) burden. The cumulative logit model revealed that caregivers caring for those with stroke or multimorbidity had a high physical burden. Family caregivers and caregivers with a higher household income had a low physical burden. Caregivers with multimorbidity had a higher psychological burden. Caregivers who were interviewed in Spanish and those with higher household incomes had decreased psychological burden.</p><p><strong>Conclusion: </strong>This study revealed that caregivers had a higher physical burden among caregivers of Latinx adults with stroke or multimorbidity. Future studies must investigate the relationship between Latinx adults' stroke and caregiver psychological health, and build culturally tailored policies and community interventions to support caregivers susceptible to high stress and burden.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":"33 4","pages":"156-162"},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11155624/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141297200","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Use of Navigators to Increase Patient Portal Enrollment among Patients in a Federally Qualified Health Care System.","authors":"Alicia K Matthews, Alana D Steffen, Larisa A Burke, Geri Donenberg, Cherdsak Duangchan, Jennifer Akufo, Hope Opuada, Damilola Oyaluade, Brittany Harris Vilona, Hilda Diaz, Darcy Dodd","doi":"10.18865/ed.DECIPHeR.117","DOIUrl":"10.18865/ed.DECIPHeR.117","url":null,"abstract":"<p><strong>Purpose: </strong>To describe the training, preliminary results, and lessons learned from using patient navigators to increase the enrollment of low-income patients in a health system-supported and electronic health record-linked patient portal.</p><p><strong>Methods: </strong>Patient navigators (n=4) were trained to assist patients in a federally qualified health center to enroll in and use patient portals. Patient navigators were stationed at 3 clinic locations. Data from the electronic health record system (Epic) were used to compare MyChart patient portal activation rates and use among patients for the 8 months before and after patient navigation services were offered.</p><p><strong>Results: </strong>Navigators offered 83% of eligible patients with activation assistance. Sixty-four percent of the patients (n=1062) offered MyChart enrollment assistance accepted help. Seventy-four percent of assisted patients with no prior MyChart enrollment activated their accounts during that clinic visit. The primary reason for declining MyChart assistance was a lack of access to or comfort with technology. Patient portal activation increased during the 8 months when navigators were at the clinics (51%) compared to the previous 8 months (44%). Most new users viewed lab results and read a message [χ²(1)=49.3, p<.001], with significant increases evident for African Americans [44% before, 49% during; χ²(1)=40.4, p<.001] and Latinx patients [52% before, 60% during; χ²(1)=6.15, p=.013].</p><p><strong>Conclusion: </strong>Study results suggest that using patient navigators is feasible and beneficial for increasing patient enrollment in the Federally Qualified Health Centers context. However, patient-, clinic-, and system-level factors were identified as barriers and should be addressed in future research studies.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":"DECIPHeR Spec","pages":"117-125"},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099523/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285271","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding Core Community Needs for School-Based Asthma Programming: A Qualitative Assessment in Colorado Communities.","authors":"Sarah E Brewer, Julia Reedy, Danielle Maestas, Lisa Ross DeCamp, Anowara Begum, Michaela Brtnikova, Lisa Cicutto, Stanley J Szefler, Amy Huebschmann","doi":"10.18865/ed.DECIPHeR.35","DOIUrl":"10.18865/ed.DECIPHeR.35","url":null,"abstract":"<p><strong>Objectives: </strong>Asthma is one of the most prevalent chronic conditions affecting approximately 8.5% of children in Colorado. Our school-based asthma program (SBAP) has effectively improved asthma control and reduced asthma disparities among children but has been largely limited to the Denver area. We interviewed community stakeholders in 5 regions of Colorado to understand community needs for broader dissemination of SBAPs.</p><p><strong>Methods: </strong>In-depth, semistructured key informant interviews were conducted with school nurses, parents, pediatric healthcare providers, public health professionals, and community resource organization representatives. Inductive and deductive analyses were informed by the practical, robust, implementation, and sustainability model, an implementation science framework.</p><p><strong>Results: </strong>Participants (n=52) identified 6 types of needs for successful future implementation of our SBAP: (1) buy-in from stakeholders; (2) asthma prioritization; (3) improved relationships, communication, and coordination among school nurses, healthcare providers, and community organizations that address social determinants of health (SDOH) and children/families; (4) resources to address healthcare and SDOH needs and awareness of existing resources; (5) asthma education for children/families, school staff, and community members; and (6) improved coordination for School Asthma Care Plan completion. These needs mapped to a 3-tiered, progressive structure of foundational, relational, and functional needs for implementation success.</p><p><strong>Conclusion: </strong>These 6 types of needs illuminate factors that will allow this SBAP to work well and program delivery approaches and implementation strategies that may need modification to be successful. Next steps should include tailoring implementation strategies to variations in local context to support fit, effectiveness, and sustainment.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":"DECIPHeR Spec","pages":"35-43"},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099527/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285250","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Notes From the Field: Diverse Partner Perspectives Improve the Usability and Equity Focus of Implementation Guides.","authors":"Amy G Huebschmann, Melanie Gleason, Rachel Armstrong, Amy Sheridan, Ana Kim, Christy Haas-Howard, Nichole Bobo, Nicole M Wagner, Anowara Begum","doi":"10.18865/ed.DECIPHeR.132","DOIUrl":"10.18865/ed.DECIPHeR.132","url":null,"abstract":"<p><strong>Context: </strong>School-based asthma programs (SBAPs) have improved health and educational disparities among youth with asthma.</p><p><strong>Design: </strong>To support scaling out effective SBAPs, our school partners identified a need for online implementation guides that are \"always available,\" to meet the needs of school nurses' demanding schedules. School nurses play a key role in the adoption and implementation of SBAPs, so it is important to ensure the implementation guide would be highly usable and acceptable to them.</p><p><strong>Objective: </strong>Accordingly, our research team collaborated with human-centered design experts to identify the \"user journeys\" of school nurses and co-created our online implementation guide as a public-facing website with input from local and national school nurse partners.</p><p><strong>Main results: </strong>In this perspectives article, our school nurse implementation partners and human-centered design experts reflect on challenges overcome in this process of developing a tailored implementation guide to school nurses and offer lessons from the field to others seeking to co-create implementation guides with community partners.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":"DECIPHeR Spec","pages":"132-134"},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099516/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285266","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}