Journal of Bioethical Inquiry最新文献_第2页

An Ethical Project: The Journal of Bioethical Inquiry After Twenty Years. 伦理项目：二十年后的《生物伦理探索杂志》。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-12-01 DOI: 10.1007/s11673-024-10402-7

Paul A Komesaroff

引用次数: 0

Twenty Years of the Journal of Bioethical Inquiry and Democracy Trumps Bioethics?

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-12-01 DOI: 10.1007/s11673-025-10430-x

Michael A Ashby

引用次数: 0

Ethical Stakes for Past, Present, and Prospective Tuberculosis Isolate Research Towards a Multicultural Data Sovereignty Model for Isolate Samples in Research. 过去、现在和未来肺结核隔离病例研究的伦理利害关系逐步建立隔离病例研究的多元文化数据主权模式。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-12-01 Epub Date: 2024-05-27 DOI: 10.1007/s11673-023-10334-8

A Anderson, M Meher, Z Maroof, S Malua, C Tahapeehi, J Littleton, V Arcus, J Wade, J Park

{"title":"Ethical Stakes for Past, Present, and Prospective Tuberculosis Isolate Research Towards a Multicultural Data Sovereignty Model for Isolate Samples in Research.","authors":"A Anderson, M Meher, Z Maroof, S Malua, C Tahapeehi, J Littleton, V Arcus, J Wade, J Park","doi":"10.1007/s11673-023-10334-8","DOIUrl":"10.1007/s11673-023-10334-8","url":null,"abstract":"Tuberculosis (TB) is a potentially fatal infectious disease that, in Aotearoa New Zealand (NZ), inequitably affects Asian, Pacific, Middle Eastern, Latin American, and African (MELAA), and Māori people. Medical research involving genome sequencing of TB samples enables more nuanced understanding of disease strains and their transmission. This could inform highly specific health interventions. However, the collection and management of TB isolate samples for research are currently informed by monocultural biomedical models often lacking key ethical considerations. Drawing on a qualitative kaupapa Māori-consistent study, this paper reports on preliminary discussions with groups of Māori, Pacific, and Afghan people in NZ, whose communities have been harmed by TB and TB stigma. Participants' discussions highlight key concerns and meanings that ought to inform the development of guidelines and a more robust consultative process for the governance of how TB isolate samples are collected and used both retrospectively and in future research. We argue for ethical processes to be culturally nuanced and community-generated, flexible and meaningful, and situated in relation to the physical and symbolic effects of TB. We discuss the significance of Indigenous data sovereignty, rights, and kāwanatanga (governorship) in shaping a multicultural data sovereignty model.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"683-694"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11882608/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141155754","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Procreating in an Overpopulated World: Role Moralities and a Climate Crisis. 在人口过剩的世界中生育：角色道德与气候危机》。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-12-01 Epub Date: 2024-03-21 DOI: 10.1007/s11673-024-10338-y

Craig Stanbury

{"title":"Procreating in an Overpopulated World: Role Moralities and a Climate Crisis.","authors":"Craig Stanbury","doi":"10.1007/s11673-024-10338-y","DOIUrl":"10.1007/s11673-024-10338-y","url":null,"abstract":"It is an open question when procreation is justified. Antinatalists argue that bringing a new individual into the world is morally wrong, whereas pronatalists say that creating new life is morally good. In between these positions lie attempts to provide conditions for when taking an anti or pronatal stance is appropriate. This paper is concerned with developing one of these attempts, which can be called qualified pronatalism. Qualified pronatalism typically claims that while procreation can be morally permissible, there are constraints on when it is justified. These constraints often concern whether an individual is motivated to procreate for the right reasons. For instance, if someone is not sufficiently concerned with the child's future welfare, the qualified pronatalist will say that procreation is not justified. Moreover, David Wasserman says that this concern forms a role-based duty. That is, prospective parents have special duties to be concerned for the child's future welfare by virtue of the role they occupy. In this paper, I argue that a proper examination of a prospective parent's role-based duties entails that more is needed to justify procreation. Bringing a new person into the world leaves fewer resources for people who already need them, and the current size of the human population is unsustainable from a planetary point of view. Therefore, even if there is nothing wrong with procreation per se, the external condition of overpopulation, and its ensuing public health issues, plausibly gives rise to a role-based duty that prospective parents must account for when deciding whether to procreate.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"611-623"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11882675/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140186229","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Proxies of Trustworthiness: A Novel Framework to Support the Performance of Trust in Human Health Research. 可信度的代用指标：支持人类健康研究中信任表现的新框架》。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-12-01 Epub Date: 2024-03-29 DOI: 10.1007/s11673-024-10335-1

Kate Harvey, Graeme Laurie

{"title":"Proxies of Trustworthiness: A Novel Framework to Support the Performance of Trust in Human Health Research.","authors":"Kate Harvey, Graeme Laurie","doi":"10.1007/s11673-024-10335-1","DOIUrl":"10.1007/s11673-024-10335-1","url":null,"abstract":"Without trust there is no credible human health research (HHR). This article accepts this truism and addresses a crucial question that arises: how can trust continually be promoted in an ever-changing and uncertain HHR environment? The article analyses long-standing mechanisms that are designed to elicit trust-such as consent, anonymization, and transparency-and argues that these are best understood as trust represented by proxies of trustworthiness, i.e., regulatory attempts to convey the trustworthiness of the HHR system and/or its actors. Often, such proxies are assumed to operate as markers that trust exists or, at least, has not been lost. But, since trust can neither be \"built\" nor \"secured,\" this is a precarious assumption. Worryingly, there is no existing theoretical account of how to understand and evaluate these proxies of trustworthiness as part of a trusted HHR ecosystem. To remedy this, the paper argues for a radical reimagining of trust and trustworthiness as performative acts that ought to be understood in relation to each other and by reference to the common values at stake. It is shown that proxies of trustworthiness are the operational tools used to perform trustworthiness. It advocates for a values-based approach to understanding the relationship between trust and trustworthiness. This establishes a strong basis for an evaluative framework for proxies of trustworthiness, i.e., to determine how to perform trustworthiness well. Five common proxies in HHR are scrutinized from a values perspective. The contribution is to provide a far-reaching normative and practical framework by which existing and future proxies of trustworthiness can be identified, assessed, maintained, or replaced in rapidly changing HHR regulatory ecosystems where trust itself is crucial to the success of the entire HHR enterprise.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"625-645"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11882638/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140327346","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Human Brain Organoid Research and Applications: Where and How to Meet Legal Challenges? 人脑类器官的研究与应用：在哪里以及如何应对法律挑战？

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-12-01 Epub Date: 2024-07-05 DOI: 10.1007/s11673-024-10349-9

M Kataoka, T-L Lee, T Sawai

引用次数: 0

The Wrong of Eugenic Sterilization. 优生绝育的错误。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-12-01 Epub Date: 2024-07-05 DOI: 10.1007/s11673-024-10350-2

Aleksy Tarasenko-Struc

引用次数: 0

What Is A Family? A Constitutive-Affirmative Account. 什么是家庭？一种构成-肯定的说法。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-12-01 Epub Date: 2024-03-26 DOI: 10.1007/s11673-024-10339-x

J Y Lee, R Bentzon, E Di Nucci

引用次数: 0

Developments in Advance Care Planning in Australia: Potential Opportunities and Roadblocks for an Increasingly Digital World. 澳大利亚预先护理规划的发展：澳大利亚预先护理规划的发展：日益数字化世界的潜在机遇与障碍》。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-12-01 Epub Date: 2024-10-23 DOI: 10.1007/s11673-024-10396-2

Casey M Haining

引用次数: 0

Surrogacy and Adoption: An Empirical Investigation of Public Moral Attitudes. 代孕和收养：公众道德态度的实证调查》。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-12-01 Epub Date: 2024-03-29 DOI: 10.1007/s11673-024-10343-1

T Baron, E Svingen, R Leyva

{"title":"Surrogacy and Adoption: An Empirical Investigation of Public Moral Attitudes.","authors":"T Baron, E Svingen, R Leyva","doi":"10.1007/s11673-024-10343-1","DOIUrl":"10.1007/s11673-024-10343-1","url":null,"abstract":"Surrogacy and adoption are both family-making measures subject to extensive domestic and international regulation. In this nationally representative survey study (N = 1552), we explore public attitudes to various forms of surrogacy and adoption in the United Kingdom, in response to an early proposal to allow \"double donor\" surrogacy as part of the ongoing legal reform project. We sought to both gauge public moral support for adoption and surrogacy generally, the effect that prospective parents' fertility had on this support, and the extent to which the public would find equivalencies between \"double donor\" surrogacy (DDS) and planned private adoption (PPA) to be morally significant. Our findings indicate that whilst there is broad baseline support for all forms of adoption and surrogacy, this support increases significantly when one or both prospective parents are infertile. These findings also suggest that the language in which a family-making arrangement is characterized has a greater influence on moral support for the arrangement than practical features such as the biological relationship (or absence thereof) between one/both parents and the child.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"671-681"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11882719/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140327347","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0