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Journal of Family Nursing最新文献

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Grandparents' Experiences of Childhood Cancer: A Qualitative Study. 祖父母的童年癌症经历:一项定性研究。
IF 3.1 3区 医学
Journal of Family Nursing Pub Date : 2024-02-01 Epub Date: 2023-11-28 DOI: 10.1177/10748407231213862
Jenny Davies, Moira O'Connor, Georgia K B Halkett, Lauren Kelada, Nicholas G Gottardo
{"title":"Grandparents' Experiences of Childhood Cancer: A Qualitative Study.","authors":"Jenny Davies, Moira O'Connor, Georgia K B Halkett, Lauren Kelada, Nicholas G Gottardo","doi":"10.1177/10748407231213862","DOIUrl":"10.1177/10748407231213862","url":null,"abstract":"<p><p>A child's cancer diagnosis has a significant impact on the lives of grandparents. Grandparents experience the stress of worrying about both their adult children and their grandchildren. Our study aimed to explore the lived experience of grandparents of children diagnosed with cancer. A qualitative design involving semi-structured interviews was used and data were analyzed using reflexive thematic analysis. Twenty grandparents aged 41 to 77 years were interviewed. Six themes were identified: (a) Diagnosis: changing everything; (b) Aspects of treatment: A different world; (c) Sandwich generation; (d) Family: Worrying about everyone; (e) Balancing work; and (f) It's like suddenly a door opens. Our study demonstrates the life-changing impact of having a grandchild diagnosed with cancer. It expands on existing knowledge and shows that, due to an aging population and demographic changes, some grandparents must juggle the demands of caring for aging family members and working while supporting adult children and grandchildren.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"30-40"},"PeriodicalIF":3.1,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10788041/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138446875","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Lived Experience of the Dyad and Their Relationships Following a Fetal Death: A Hermeneutic Phenomenological Study. 胎儿死亡后二联体的生活经验及其关系:解释学现象学研究。
IF 3.1 3区 医学
Journal of Family Nursing Pub Date : 2024-02-01 Epub Date: 2023-11-28 DOI: 10.1177/10748407231213085
Mary Rose McDonough, Danielle Leone-Sheehan
{"title":"Lived Experience of the Dyad and Their Relationships Following a Fetal Death: A Hermeneutic Phenomenological Study.","authors":"Mary Rose McDonough, Danielle Leone-Sheehan","doi":"10.1177/10748407231213085","DOIUrl":"10.1177/10748407231213085","url":null,"abstract":"<p><p>Little is known about the lived experience of the dyad following a fetal death and the impact on relationships. The purpose of this paper is to explore the dyadic relationship between partners, with health care providers, and with the baby's memory after birth. This qualitative study utilized hermeneutic phenomenology. The sample included 10 heterosexual dyads from the United States and Canada. All experienced a fetal death between 6 months and 7 years prior to their interviews. The data revealed three themes: (a) The Dyad Relationship: Moving Through the Experience Together; (b) Keeping the Memory Alive: Memorializing the Baby; and (c) Relationships With Health Care Providers: A Spectrum of Caring. The findings from this study provide the beginning knowledge needed to improve the care of dyads who have experienced a fetal death and for future studies to improve care delivery for dyads as their relationships change after fetal death.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"41-49"},"PeriodicalIF":3.1,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138446876","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Use of Digital Health Resources by Sexual and Gender Minority Caregivers of Older Adults: Findings From the 2020 Caregiving in the U.S. Survey. 性少数群体和性别少数群体老年人护理者使用数字健康资源的情况：美国 2020 年护理调查的结果》。
IF 3.1 3区 医学
Journal of Family Nursing Pub Date : 2024-02-01 Epub Date: 2023-12-14 DOI: 10.1177/10748407231218000
Joel G Anderson, Jennifer M Jabson Tree, Jason D Flatt, Jennifer L Smith, Katherine H Morgan, Lora H Beebe, Karen M Rose
{"title":"Use of Digital Health Resources by Sexual and Gender Minority Caregivers of Older Adults: Findings From the 2020 <i>Caregiving in the U.S.</i> Survey.","authors":"Joel G Anderson, Jennifer M Jabson Tree, Jason D Flatt, Jennifer L Smith, Katherine H Morgan, Lora H Beebe, Karen M Rose","doi":"10.1177/10748407231218000","DOIUrl":"10.1177/10748407231218000","url":null,"abstract":"<p><p>We applied Andersen's Behavioral Model of Health Services Use to investigate the health needs and use of digital health resources among sexual and/or gender minority (SGM) caregivers. Data were from the <i>Caregiving in the U.S.</i> 2020 survey. Regression analyses were used to describe associations between predisposing, enabling, and need factors and usage of digital health resources. SGM caregivers provided more hours of care per week, reported higher levels of care intensity, and reported higher physical, emotional, and financial strain compared with non-SGM caregivers. Regression analyses indicated SGM status was a significant predictor of overall use of digital health resources. Younger caregivers, racial minority caregivers, those providing higher levels of care, and those reporting a poorer health status were more likely to use digital health resources. Digital health resources may be useful tools for SGM caregivers of older adults. More research is needed to investigate the reasons SGM caregivers use these resources.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"68-80"},"PeriodicalIF":3.1,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138812399","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Translation, Cultural Adaptation, and Psychometric Validation of the European Portuguese Version of the Iceland-Expressive Family Functioning Questionnaire (ICE-EFFQ). 欧洲葡萄牙语版冰岛表达性家庭功能问卷(ICE-EFFQ)的翻译、文化适应和心理测量验证。
IF 3.1 3区 医学
Journal of Family Nursing Pub Date : 2024-02-01 Epub Date: 2023-12-01 DOI: 10.1177/10748407231205038
Maria do Carmo Lemos Vieira Gouveia, Eydis Kristin Sveinbjarnardottir, Maria João Barreira Rodrigues, Rita Maria Lemos Baptista Silva, Márcia Sílvia Baptista, Maria Adriana Pereira Henriques
{"title":"Translation, Cultural Adaptation, and Psychometric Validation of the European Portuguese Version of the Iceland-Expressive Family Functioning Questionnaire (ICE-EFFQ).","authors":"Maria do Carmo Lemos Vieira Gouveia, Eydis Kristin Sveinbjarnardottir, Maria João Barreira Rodrigues, Rita Maria Lemos Baptista Silva, Márcia Sílvia Baptista, Maria Adriana Pereira Henriques","doi":"10.1177/10748407231205038","DOIUrl":"10.1177/10748407231205038","url":null,"abstract":"<p><p>A family's experience of mental illness can change the family's functioning. In clinical contexts, valid and reliable instruments that assess family functioning, therapeutic changes, and the effects of family nursing interventions are needed. This study focuses on the linguistic and cultural adaptation of the Iceland-Expressive Family Functioning Questionnaire (ICE-EFFQ) to European Portuguese and examines the psychometric properties of this instrument. A non-random sample of 121 Portuguese depressed patients and their relatives completed the questionnaire. Principal components analysis extracted 4 factors, explaining 55.58% of the total variance. Confirmatory factor analysis revealed acceptable adjustment quality indices. Cronbach's alpha coefficient was adequate for the global scale <i>α</i> = .86 and for the 4 subscales: communication <i>α</i> = .79, expression of emotions <i>α</i> = .68, problem-solving <i>α</i> = .71, and cooperation <i>α</i> = .61. The Portuguese version of ICE-EFFQ is a sensitive, valid, and reliable instrument for use with Portuguese families with adult members with depression and can be valuable in assessing these families' expressive functioning, before and after intervention.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"7-29"},"PeriodicalIF":3.1,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10788046/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Empowering Support for Family Members of Brain Injury Patients in the Acute Phase of Hospital Care: A Mixed-Methods Systematic Review. 医院护理急性期脑损伤患者家属的赋权支持：混合方法系统综述》。
IF 3.1 3区 医学
Journal of Family Nursing Pub Date : 2024-02-01 Epub Date: 2023-05-16 DOI: 10.1177/10748407231171933
Julia Lindlöf, Hannele Turunen, Tarja Välimäki, Justiina Huhtakangas, Sofie Verhaeghe, Kirsi Coco
{"title":"Empowering Support for Family Members of Brain Injury Patients in the Acute Phase of Hospital Care: A Mixed-Methods Systematic Review.","authors":"Julia Lindlöf, Hannele Turunen, Tarja Välimäki, Justiina Huhtakangas, Sofie Verhaeghe, Kirsi Coco","doi":"10.1177/10748407231171933","DOIUrl":"10.1177/10748407231171933","url":null,"abstract":"<p><p>This review aimed to identify and synthesize empowering support for the family members of patients in the acute phase of traumatic brain injury hospital treatment. CINAHL, PubMed, Scopus, and Medic databases were searched from 2010 to 2021. Twenty studies met the inclusion criteria. Each article was critically appraised using the Joanna Briggs Institute Critical Appraisals Tools. Following a thematic analysis, four main themes were identified about the process of empowering traumatic brain injury patients' family members in the acute phases of hospital care: (a) needs-based informational, (b) participatory, (c) competent and interprofessional, and (d) community support. This review of findings may be utilized in future studies focusing on designing, implementing, and evaluating an empowerment support model for the traumatic brain injury patient's family members in the acute care hospitalization to strengthen the current knowledge and develop nursing practices.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"50-67"},"PeriodicalIF":3.1,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10788044/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9577593","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Cross-Cultural Adaptation and Psychometric Testing of the Portuguese Version of the Iceland-Family Illness Beliefs Questionnaire. 冰岛-家庭疾病信念问卷葡萄牙语版的跨文化改编和心理测试
IF 3.1 3区 医学
Journal of Family Nursing Pub Date : 2024-01-29 DOI: 10.1177/10748407241226955
Sara Lemos, Luísa Andrade, Lígia Lima, Teresa Martins, Erla Kolbrún Svavarsdottir, Maria Do Céu Barbieri-Figueiredo
{"title":"Cross-Cultural Adaptation and Psychometric Testing of the Portuguese Version of the Iceland-Family Illness Beliefs Questionnaire.","authors":"Sara Lemos, Luísa Andrade, Lígia Lima, Teresa Martins, Erla Kolbrún Svavarsdottir, Maria Do Céu Barbieri-Figueiredo","doi":"10.1177/10748407241226955","DOIUrl":"https://doi.org/10.1177/10748407241226955","url":null,"abstract":"<p><p>Illness beliefs have a role in the adaptation, coping, well-being, healing, and recovery in families of children/adolescents with chronic illness. The assessment of family illness beliefs can support family nursing interventions that address the suffering of family members when illness arises. The purpose of this study was to translate, cross-culturally adapt, and psychometrically test the Portuguese version of the Iceland-Family Illness Beliefs Questionnaire. A sample of 237 parents of children/adolescents who experienced chronic health conditions completed the online questionnaire. The original factor model was tested through confirmatory factorial analysis. The results showed satisfactory model fit indices (χ<sup>2</sup>/gl = 3.004; comparative fit index [CFI] = 0.90; root mean square error of approximation [RMSEA] = 0.092) and internal consistency (Cronbach's α = 0.74). The instrument showed good psychometric characteristics of validity and reliability, suggesting it may be useful in the assessment of illness beliefs in families experiencing a pediatric chronic illness.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"10748407241226955"},"PeriodicalIF":3.1,"publicationDate":"2024-01-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139572004","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Construction and Validation of a Simulation Scenario for Teaching Family-Focused Care in Pediatric Oncology. 儿科肿瘤学中以家庭为中心的护理教学模拟情景的构建和验证。
IF 3.1 3区 医学
Journal of Family Nursing Pub Date : 2024-01-19 DOI: 10.1177/10748407231223768
Adriana Maria Duarte, Carla Maria Cerqueira da Silva, Maria do Céu Barbieri-Figueiredo
{"title":"Construction and Validation of a Simulation Scenario for Teaching Family-Focused Care in Pediatric Oncology.","authors":"Adriana Maria Duarte, Carla Maria Cerqueira da Silva, Maria do Céu Barbieri-Figueiredo","doi":"10.1177/10748407231223768","DOIUrl":"https://doi.org/10.1177/10748407231223768","url":null,"abstract":"<p><p>Clinical simulation can be a promising teaching strategy to help nurses develop behaviors that improve family care actions, promoting safe and high-quality care. The objective of this study was to build, validate, and test a simulation scenario in pediatric oncology family-focused care (FFC) following an initial diagnosis of cancer. It is a six-step methodological study based on the philosophy of Family-Centered Care (FCC), with a user-centered design. The evaluators established a Content Validity Index (CVI) > 0.8 for validation. Pilot testing included the Simulation Design Scale. The data were analyzed by descriptive statistics. A total of 35 experts participated in this study. All 19 items in the scenario were validated and considered relevant, in a single round, with the item-level CVI ranging between 0.8 and 1 and a scale-level CVI of 0.92. The high-fidelity developed and validated clinical simulation scenario is a consistent tool for the education of advanced practice nurses.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"10748407231223768"},"PeriodicalIF":3.1,"publicationDate":"2024-01-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139492587","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Duty to Care: Male Perspectives on the Caregiver Role for Persons With Alzheimer's or Dementia. 照顾的责任：男性对阿尔茨海默氏症或痴呆症患者照顾者角色的看法。
IF 3.1 3区 医学
Journal of Family Nursing Pub Date : 2024-01-11 DOI: 10.1177/10748407231222291
Michael V Bueno
{"title":"A Duty to Care: Male Perspectives on the Caregiver Role for Persons With Alzheimer's or Dementia.","authors":"Michael V Bueno","doi":"10.1177/10748407231222291","DOIUrl":"https://doi.org/10.1177/10748407231222291","url":null,"abstract":"<p><p>The population of family caregivers (FCGs) of persons with Alzheimer's disease and related dementias (ADRD) is growing, as is the proportion of males taking on this traditionally female role. Caregiving research has centered around women due to historic roles, resulting in a knowledge gap regarding male caregiving experiences. The purpose of this qualitative descriptive study was to explore the experiences of male FCGs of people with ADRD. Eleven male caregivers were recruited and interviewed by telephone or Zoom/videoconferencing. Data were analyzed using thematic analysis. Four major themes emerged highlighting males' struggles with the unfamiliar caregiving role and changing identity; their acknowledgment of personal growth and discovery through caregiving; their challenges in finding the \"right\" kind of support; and their perceived reshaping of masculinity through the caregiving role. Male caregivers expressed unique experiences as FCGs. Findings indicate the need for researchers and clinicians to develop tailored support to address their needs.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"10748407231222291"},"PeriodicalIF":3.1,"publicationDate":"2024-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139418391","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Advancing Family Science Through Synthesis Research. 通过综合研究推进家庭科学。
IF 3.1 3区 医学
Journal of Family Nursing Pub Date : 2023-11-01 Epub Date: 2023-10-21 DOI: 10.1177/10748407231202834
Kathleen Knafl, Veronica Swallow
{"title":"Advancing Family Science Through Synthesis Research.","authors":"Kathleen Knafl,&nbsp;Veronica Swallow","doi":"10.1177/10748407231202834","DOIUrl":"10.1177/10748407231202834","url":null,"abstract":"","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"319-323"},"PeriodicalIF":3.1,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49684402","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the Use of Arts-Based Interventions and Research Methods in Families of Seriously Ill Children: A Scoping Review. 探索在重病儿童家庭中使用基于艺术的干预和研究方法:范围综述。
IF 2.6 3区 医学
Journal of Family Nursing Pub Date : 2023-11-01 Epub Date: 2023-05-02 DOI: 10.1177/10748407231165119
Jill M G Bally, Meridith Burles, Shelley Spurr, Jessica McGrath
{"title":"Exploring the Use of Arts-Based Interventions and Research Methods in Families of Seriously Ill Children: A Scoping Review.","authors":"Jill M G Bally, Meridith Burles, Shelley Spurr, Jessica McGrath","doi":"10.1177/10748407231165119","DOIUrl":"10.1177/10748407231165119","url":null,"abstract":"<p><p>Family care is essential to pediatric nursing practice, as the entire family is affected by childhood illness. However, little is known about art making for therapeutic purposes and how art is used to better understand families' experiences. Our purpose was to examine the nature of arts-based interventions and research methods used with, and the experiences of families of children facing life-limiting and life-threatening illnesses, and those families who are bereaved. Academic peer-reviewed sources published between January 1999 and May 2022 were retrieved via four databases using key search terms. Twenty-five articles were analyzed, resulting in three multifaceted categories including Social, Emotional, and Family Health. Critical strengths and limitations were also identified. Art making has been incorporated into interventions and research studies due to its benefits for family well-being. Understanding the potential of art making can inspire nurses to implement such activities to enhance family nursing practice and research.</p>","PeriodicalId":50193,"journal":{"name":"Journal of Family Nursing","volume":" ","pages":"395-416"},"PeriodicalIF":2.6,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10629247/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9395284","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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