照顾的责任:男性对阿尔茨海默氏症或痴呆症患者照顾者角色的看法。

IF 2.6 3区 医学 Q1 FAMILY STUDIES
Michael V Bueno
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引用次数: 0

摘要

阿尔茨海默病及相关痴呆症(ADRD)患者的家庭照顾者(FCGs)人数在不断增加,而承担这一传统女性角色的男性比例也在不断增加。由于历史角色的原因,护理研究一直以女性为中心,导致男性护理经验方面的知识空白。这项定性描述性研究的目的是探索 ADRD 患者的男性 FCG 的经验。研究人员招募了 11 名男性护理人员,并通过电话或 Zoom/ 视频会议对他们进行了访谈。研究采用主题分析法对数据进行了分析。访谈中出现了四大主题,突出了男性在陌生的护理角色和身份变化中的挣扎;他们对通过护理实现个人成长和发现的认可;他们在寻找 "正确 "支持方面的挑战;以及他们认为通过护理角色重塑了男性气质。男性护理者表达了作为家庭护理者的独特经历。研究结果表明,研究人员和临床医生需要为他们提供量身定制的支持,以满足他们的需求。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A Duty to Care: Male Perspectives on the Caregiver Role for Persons With Alzheimer's or Dementia.

The population of family caregivers (FCGs) of persons with Alzheimer's disease and related dementias (ADRD) is growing, as is the proportion of males taking on this traditionally female role. Caregiving research has centered around women due to historic roles, resulting in a knowledge gap regarding male caregiving experiences. The purpose of this qualitative descriptive study was to explore the experiences of male FCGs of people with ADRD. Eleven male caregivers were recruited and interviewed by telephone or Zoom/videoconferencing. Data were analyzed using thematic analysis. Four major themes emerged highlighting males' struggles with the unfamiliar caregiving role and changing identity; their acknowledgment of personal growth and discovery through caregiving; their challenges in finding the "right" kind of support; and their perceived reshaping of masculinity through the caregiving role. Male caregivers expressed unique experiences as FCGs. Findings indicate the need for researchers and clinicians to develop tailored support to address their needs.

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来源期刊
CiteScore
4.00
自引率
9.70%
发文量
40
审稿时长
>12 weeks
期刊介绍: Journal of Family Nursing (JFN) is a peer-reviewed, quarterly journal of nursing research, practice, education, and policy issues, as well as empirical and theoretical analyses on the subject of family health. Its interdisciplinary, international, and collaborative perspectives examine cultural diversity and families across the life cycle. This journal is a member of the Committee on Publication Ethics (COPE).
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