Cleft Palate-Craniofacial Journal最新文献

{"title":"Non-Nutritive Suck and Parent Report of Feeding Skills in Infants Born With Cleft Lip and/or Palate.","authors":"Alaina Martens, Carolyn R Rogers-Vizena, Emily Zimmerman","doi":"10.1177/10556656241299915","DOIUrl":"10.1177/10556656241299915","url":null,"abstract":"<p><p>ObjectiveTo compare non-nutritive sucking (NNS) and caregiver-reported feeding skills in infants with cleft lip and/or palate (CL/P) to a control group of typically developing infants without CL/P. To examine differences in NNS patterns and feeding behavior between cleft phenotypes.DesignProspective, cross-sectional study comparing infants born with CL/P to an age-matched control group with no congenital anomalies.SettingUrban, academic, tertiary care children's hospital and academic department of speech-language pathology.Patients, ParticipantsForty-two infants (21 with CL/P; 21 without CL/P), 6 months of age and younger were included. Infants with syndromes or who underwent cleft repair were excluded.Main Outcome MeasuresA 5min NNS sample was collected from the infant sucking on the lab's custom research pacifier. The infant's caregiver completed the Neonatal Eating Assessment Tool (NeoEAT) bottle-feeding section about their infant's feeding behaviors.ResultsInfants with CL/P demonstrated slower NNS frequency (<i>P </i>= .04) and reduced suck amplitude (<i>P </i>= .04) compared to the control group. Caregivers of infants with CL/P reported a higher incidence of gastrointestinal symptoms (<i>P </i>= .04) and overall feeding difficulties (<i>P </i>= .03) relative to the control group. There were no significant differences between CL/P phenotypes for NNS or caregiver reported outcomes.ConclusionsInfants with CL/P demonstrate differences in NNS physiology and caregiver report measures of feeding compared to age-matched controls. These findings support the need for interventions to optimize sucking and feeding skill development in infants with CL/P.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"241-249"},"PeriodicalIF":1.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142649453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Deep Learning-Based Assessment of Lip Symmetry for Patients With Repaired Cleft Lip.","authors":"Karen Rosero, Ali N Salman, Lucas M Harrison, Alex A Kane, Carlos Busso, Rami R Hallac","doi":"10.1177/10556656241312730","DOIUrl":"10.1177/10556656241312730","url":null,"abstract":"<p><p>ObjectivePost-surgical lip symmetry assessment is a key indicator of cleft repair success. Traditional methods rely on distances between anatomical landmarks, which are impractical for video analysis and overlook texture and appearance. We propose an artificial intelligence (AI) approach to automate this process, analyzing lateral lip morphology for a quantitative symmetry evaluation.DesignWe utilize contrastive learning to quantify lip symmetry by measuring the similarity between the representations of the sides, which is subsequently used to classify the severity of asymmetry. Our model does not require patient images for training. Instead, we introduce dissimilarities in face images from open datasets using two methods: temporal misalignment for video frames and face transformations to simulate lip asymmetry observed in the target population. The model differentiates the left and right image representations to assess asymmetry. We evaluated our model on 146 images of patients with repaired cleft lip.ResultsThe deep learning model trained with face transformations categorized patient images into five asymmetry levels, achieving a weighted accuracy of 75% and a Pearson correlation of 0.31 with medical expert human evaluations. The model utilizing temporal misalignment achieved a weighted accuracy of 69% and a Pearson correlation of 0.27 for the same classification task.ConclusionsWe propose an automated approach for assessing lip asymmetry in patients with repaired cleft lip by transforming facial images of control subjects to train a deep learning model, eliminating manual anatomical landmarks. Our promising results provide a more efficient and objective tool for evaluating surgical outcomes.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"289-299"},"PeriodicalIF":1.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11909766/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014714","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Spanish Terms for Cleft Lip Within the United States.","authors":"John H Munday, Robert Brinton Fujiki, Susan L Thibeault","doi":"10.1177/10556656241292232","DOIUrl":"10.1177/10556656241292232","url":null,"abstract":"<p><p><i>Objective</i>To examine Spanish terms used for \"cleft lip\" within the United States. Perceived acceptability of these terms was also considered.<i>Design</i>An online survey was distributed to Spanish-speaking medical interpreters, clinicians, and parents of children with cleft lip. Survey questions probed demographics, language use, preferred term for \"cleft lip,\" and perceived acceptability of terms for cleft lip.<i>Results</i>There were 158 respondents. Significant differences were observed with profession (<i>P</i> < .001) as 62.5% of medical providers used labio hendido, while 71.8% of interpreters preferred labio leporino. Perceived acceptability of terms was consistent with the term use patterns reported by respondent groups. Significant differences were also observed with geographical region (<i>P</i> = .001) as 90% of respondents from the Northeast United States employed labio leporino, compared to 60% to 70% of respondents from other regions.<i>Conclusions</i>Selection and perception of Spanish terms for \"cleft lip\" may differ across regions and professions. Cleft teams should invite stakeholders to discuss what terms best suit their community.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"274-281"},"PeriodicalIF":1.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11913565/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142478878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Preliminary Study of Hearing Loss in Children With Craniosynostosis.","authors":"Eric Min, John Munday, Josh Bricker, Ursula Findlen, Adriane L Baylis, Lindsey Asti, Gregory Pearson","doi":"10.1177/10556656241312002","DOIUrl":"10.1177/10556656241312002","url":null,"abstract":"<p><p><i>Objective</i>To describe the frequency and types of hearing loss in children with syndromic and non-syndromic craniosynostosis.<i>Design</i>Retrospective cohort study.<i>Setting</i>Large tertiary pediatric hospital.<i>Patients</i>Children with craniosynostosis that underwent at least one audiological evaluation between the years of 2010 and 2021 at a single institution. Hearing loss was defined as conductive or permanent (sensorineural or mixed).<i>Results</i>Of 130 total children examined, 107 (82.3%) had non-syndromic craniosynostosis and 23 (17.7%) had syndromic craniosynostosis. Within the non-syndromic cohort, 77 (72%) had normal hearing and 30 (28%) had hearing loss, of which 21/30 (70%) had conductive hearing loss and 9/30 (30%) had permanent hearing loss. Within the syndromic cohort, two (9.5%) had normal hearing and 21 (90.5%) had hearing loss, of which 16/21 (76.2%) had conductive hearing loss and 5/21 (23.8%) had permanent hearing loss. Multivariable analysis involving syndromic status, anatomical type of craniosynostosis, and medical complexity revealed that patients with syndromic craniosynostosis had higher odds for conductive and permanent hearing loss (49.80 OR, <i>P</i> = .002 and 34.91 OR, <i>P</i> < .05, respectively). Patients with unicoronal craniosynostosis and those with significant medical comorbidities had higher odds for permanent hearing loss (19.50 OR, <i>P</i> = .03 and 23.36 OR, <i>P</i> < .05, respectively).<i>Conclusions</i>Children with craniosynostosis had high rates of hearing loss, especially those with syndromic or unicoronal craniosynostosis and those with significant medical comorbidities. Twenty-eight percent of patients with non-syndromic craniosynostosis also had hearing loss. Larger prospective studies are necessary to more precisely estimate hearing loss associated with non-syndromic craniosynostosis.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"263-273"},"PeriodicalIF":1.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014294","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Modified Mucosal Reconstruction in Unilateral Complete Cleft of Lip and Primary Palate: Surgical Technique and Practical Strategies.","authors":"Rafael Denadai, Lun-Jou Lo","doi":"10.1177/10556656231212264","DOIUrl":"10.1177/10556656231212264","url":null,"abstract":"<p><p>BackgroundThe nasal floor and intraoral lining reconstruction of unilateral complete cleft of lip and primary palate has sparsely been reported. Solution: This article combines the previously-described C-flap mucosal flap and inferior turbinate flap with the newly-described lateral nasal mucosal flap for the mucosal repair of this uncommon subtype of deformity. Valuable practical strategies are offered to optimize the surgical execution within a limited pediatric intranasal surgical access, targeting to minimize tissue trauma and bleeding.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"342-346"},"PeriodicalIF":1.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138446719","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mitigating Infectious Complications of Injection Pharyngoplasty with Calcium Hydroxyapatite for Velopharyngeal Insufficiency: Retropharyngeal Abscess and Osteomyelitis.","authors":"Michaele Francesco Corbisiero, Anthony Smyth, Jordan Stellern, Steven Leoniak, Melissa M Raines, Brandi Axford, Allison M Dobbie","doi":"10.1177/10556656231207468","DOIUrl":"10.1177/10556656231207468","url":null,"abstract":"<p><p>Velopharyngeal insufficiency is a complex condition with various treatment options. In this case, a patient with a cleft palate who was treated for velopharyngeal insufficiency with calcium hydroxyapatite injection pharyngoplasty developed persistent cervical pain on postoperative day 6. CT imaging showed a hypodense structure in the right retropharyngeal tissue, and cultures tested positive for <i>Streptococcus intermedius</i> and <i>Staphylococcus aureus</i>. An MRI later revealed skull base osteomyelitis. The infection was controlled via surgical intervention and antibiotics. This case highlights potential severe complications from injection pharyngoplasty and it underscores the importance of early recognition and management of infectious complications.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"347-350"},"PeriodicalIF":1.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41240192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Anatomical and Physiological Changes Following Primary Palatoplasty Using \"The Buccal Flap Approach\".","authors":"Abigail E Haenssler, Robert Mann, Imani R Gilbert, Taylor Snodgrass, Samuel Mann, Andy Kampfshulte, Jamie L Perry","doi":"10.1177/10556656231215141","DOIUrl":"10.1177/10556656231215141","url":null,"abstract":"<p><p>ObjectiveThe purpose of this study was to determine the anatomical differences among selected individuals with a cleft palate repaired using \"The Buccal Flap Approach\" during primary palatoplasty compared to aged-matched participants without cleft palate.DesignObservational, prospective.SettingTwo regional hospitals.ParticipantsA total of 30 adult males consisting of 15 adults born with cleft palate who received the Double Opposing Z-Plasty plus Buccal Flaps (DOZP  +  BF) repair at the time of primary palatoplasty and no history of secondary speech surgery or orthognathic surgery and 15 adults without a history of cleft palate.InterventionsAll participants underwent MRI to visualize anatomy.Main Outcome MeasuresTen velopharyngeal and craniofacial anatomical measures.ResultsNo statistically significant differences between groups were observed for velar thickness, velar length, pharyngeal depth, NSBa angle, SNB angle, or levator veli palatini length. Individuals with the DOZP  +  BF presented with a greater effective velar length (p < .001), greater effective VP ratio (p < .001), smaller SNA angle (p < .001), and smaller maximal velar stretch (p < .001) compared to the control participants.ConclusionsThis study suggests that adult males who received the DOZP  +  BF repair at the time of primary palatoplasty and no history of secondary speech surgery or orthognathic surgery present with a longer effective velar length and larger effective VP ratio in comparison to the non-cleft group. Future research is needed to compare patients with and without favorable outcomes from multiple surgical types to fully understand how surgical techniques alter the anatomy.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"316-325"},"PeriodicalIF":1.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138463929","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Lives of Irish Adolescents Who Were Born With a Cleft (LIA-Cleft).","authors":"Catherine de Blacam, Bridget Geoghegan, Elizabeth Nixon, Anne Nolan","doi":"10.1177/10556656241311045","DOIUrl":"10.1177/10556656241311045","url":null,"abstract":"<p><p>ObjectiveThe objective was to describe the lives of adolescents, who were born with cleft lip and palate (CL/P), in comparison to the general population as recorded in Growing up in Ireland (GUI), the national longitudinal study of children and youth.DesignThis was a cross-sectional study.<i>Setting:</i> The study was performed in a cleft center at a university teaching hospital.<i>Participants:</i> Adolescents born with CL/P in the years 2007 to 2009.<i>Interventions:</i> Growing up in Ireland questionnaires, which assessed demographics, health and experience of friendship, school, leisure, and social life, were adapted and administered to adolescents and their parents/guardians, who were identified from a prospectively maintained cleft database. Data were compared to that of GUI Cohort '08.<i>Main Outcome Measures:</i> Outcome measures comprised primary caregiver and young person self-report items. Mental health and psychological well-being were assessed using validated instruments including the Strengths and Difficulties Questionnaire.ResultsThirty adolescents (10 female, 20 male) participated in the LIA-Cleft group. LIA-Cleft respondents indicated poorer ratings of both medical and dental health than the GUI group. Responses to questions regarding friendship, bullying, physical activity, social media, and screen time were similar in the GUI and LIA-Cleft groups. The LIA-Cleft group were less satisfied with their lives and exhibited lower self-esteem than the GUI group, but did not differ in measures of mental health and well-being or socioemotional well-being.ConclusionsIn spite of reporting poorer medical and dental health, young people who were born with CL/P in Ireland lead lives that are broadly similar to their peers in the general population.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"188-200"},"PeriodicalIF":1.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014811","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessment of Multiple Dimensions of Psychological Well-Being in Swiss Youth Born with a Unilateral Cleft Lip and Palate.","authors":"Solène Lecommandeur, Anthony de Buys Roessingh, Lisa Dumont, Lucia Camenzind, Stéphanie Habersaat, Daniel S Schechter, Christelle Jung, Josée Despars, Sébastien Urben, Mathilde Morisod Harari","doi":"10.1177/10556656231219418","DOIUrl":"10.1177/10556656231219418","url":null,"abstract":"<p><p>ObjectiveThis study examines the psychological well-being of Swiss youths born with a unilateral cleft lip and palate (UCLP), in a multi-dimensional and clinical perspective.DesignRetrospective cross-sectional study.SettingSelf-report questionnaires completed by youths born with UCLP, followed at a specialized cleft clinic in Switzerland, and by peers without UCLP, recruited in schools of the Vaud county, Switzerland.ParticipantsYouths aged 7.5 to 16, born with UCLP (clinical group, n = 41, 29.2% female) or without UCLP (control group, n = 56, 49.0% female).Outcome measuresAdverse life events (ALE; <i>Adverse Life Events</i>), behavioral and emotional symptoms (<i>Strengths and Difficulties Questionnaire</i> and <i>Post-Traumatic Checklist Scale</i>), bodily self-esteem (<i>Body Esteem Scale</i>), quality of life (<i>Kidscreen-27</i>), emotion regulation (<i>Cognitive Emotion Regulation Questionnaire</i>), social support (<i>Sarason's Social Support Questionnaire</i>).ResultsMost outcomes showed no significant group-difference. Compared to matched peers, youths with UCLP reported lower psychological quality of life and social support satisfaction, along with positive factors of fewer ALE and lower non-adaptive emotion regulation. In youths with UCLP, higher scores for ALE were associated with higher total scores for behavioral and emotional symptoms. Higher scores for bodily self-esteem were associated with higher scores for satisfaction of social support and adaptive emotion regulation.ConclusionsYouths with UCLP show globally similar psychological well-being as matched peers. We observed some vulnerabilities but also protective factors, which support the need for psychological perspective within multidisciplinary care. The relationships between dimensions suggest specific targets that may have an impact in context of intervention.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"326-336"},"PeriodicalIF":1.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11909769/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138811910","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"CleftTok: An Analysis of Cleft-Related Content on TikTok.","authors":"Ethan Richlak, Avery Pope, Mariana Arroyo, Hailey Umbaugh, Canice E Crerand","doi":"10.1177/10556656241297557","DOIUrl":"10.1177/10556656241297557","url":null,"abstract":"<p><p><i>Objective</i>To analyze the content and sources of TikTok posts regarding cleft conditions; to examine the quality and reliability of educational content related to cleft conditions.<i>Design</i>Cross-sectional, observational study of cleft-related TikTok content.<i>Setting</i>N/A<i>Participants</i>N/A<i>Interventions</i>N/A <i>Main Outcome Measure(s)</i>Frequencies of TikTok post likes, views, comments, shares, and saves; engagement rate; post themes; and post educational content accuracy, quality, and reliability (assessed with the Patient Education Materials Assessment Tool and modified DISCERN [mDISCERN] rating scales).<i>Results</i>A total of 252 cleft-related TikTok posts were reviewed. Most posts were created by family members of patients (n = 193, 76.59%), while posts from plastic surgeons were underrepresented (n = 11, 4.37%). Positive Messages were the most common video theme (n = 80; 31.75%), and 24 (9.52%) of the TikTok posts were classified as providing educational content. Plastic surgeons had the highest mDISCERN score (2.75) among all content creator categories, indicating more accurate and reliable educational content. When content creator categories were stratified by physician versus nonphysician creators, physician posts had significantly higher mDISCERN scores (<i>P</i> = .001). Despite objectively better educational content, plastic surgeons had the lowest engagement rate (1.82%), while family members had the highest engagement rate (7.04%).<i>Conclusions</i>Cleft teams should anticipate that patients and their caregivers will most likely access social media to learn more about cleft conditions and seek support. Patients and caregivers should be urged to stay cautious of the information they find online and ideally be offered reputable sources of information and support.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"281-288"},"PeriodicalIF":1.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142878091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}