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Current Problems in Pediatric and Adolescent Health Care最新文献

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Shared decision-making in pediatric palliative care 儿科姑息关怀中的共同决策。
IF 1.6 4区 医学
Current Problems in Pediatric and Adolescent Health Care Pub Date : 2024-01-01 DOI: 10.1016/j.cppeds.2023.101551
John T. Stroh MD , Brian S. Carter MD
{"title":"Shared decision-making in pediatric palliative care","authors":"John T. Stroh MD ,&nbsp;Brian S. Carter MD","doi":"10.1016/j.cppeds.2023.101551","DOIUrl":"10.1016/j.cppeds.2023.101551","url":null,"abstract":"<div><p><span>Shared decision-making (SDM) with parents and adolescents is normative in pediatric practice in North America. In this article we discuss how it is applicable to the practice of </span>pediatric palliative care (PPC). As PPC itself is exemplary of patient-and-family-centered care, it often uses a SDM approach in clarifying patient and family preferences, goals, and values. This often occurs in an iterative process and across care environments, wherein the patient and family narrative is elaborated. Decisions are then made incorporating both evidence-based medical practice and the unique attributes and considerations of the patient and family.</p></div>","PeriodicalId":49086,"journal":{"name":"Current Problems in Pediatric and Adolescent Health Care","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139049632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pediatric palliative care across continents: Communication and shared-decision-making 跨大洲的儿科姑息关怀：沟通与共同决策。
IF 1.6 4区 医学
Current Problems in Pediatric and Adolescent Health Care Pub Date : 2024-01-01 DOI: 10.1016/j.cppeds.2023.101552
Chantal Y. Joren , Judith L. Aris-Meijer , A.A. Eduard Verhagen , John Lantos
{"title":"Pediatric palliative care across continents: Communication and shared-decision-making","authors":"Chantal Y. Joren ,&nbsp;Judith L. Aris-Meijer ,&nbsp;A.A. Eduard Verhagen ,&nbsp;John Lantos","doi":"10.1016/j.cppeds.2023.101552","DOIUrl":"10.1016/j.cppeds.2023.101552","url":null,"abstract":"<div><p>Despite the significant growth and development of pediatric palliative care worldwide, significant challenges remain. One of those challenges is shared decision-making, by which parents, families and professionals all work together to develop a plan of care that reflects both the medical facts and the patient’s family’s values. Shared decision-making about palliative care and about death and dying may mean different things in different cultures and countries. It is therefore important to learn and compare practices around the world.</p></div>","PeriodicalId":49086,"journal":{"name":"Current Problems in Pediatric and Adolescent Health Care","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S1538544223002018/pdfft?md5=fc5dadd4e0a416b528d7973117933460&pid=1-s2.0-S1538544223002018-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139058904","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
International perspectives on pediatric palliative care: Argentina 儿科姑息关怀的国际视角：阿根廷
IF 1.6 4区 医学
Current Problems in Pediatric and Adolescent Health Care Pub Date : 2024-01-01 DOI: 10.1016/j.cppeds.2023.101488
Rut Kiman
{"title":"International perspectives on pediatric palliative care: Argentina","authors":"Rut Kiman","doi":"10.1016/j.cppeds.2023.101488","DOIUrl":"10.1016/j.cppeds.2023.101488","url":null,"abstract":"<div><p><span>Since the 1980s, there has been a growing recognition of the importance of palliative care for children with life-limiting and life-threatening conditions. Collaboration, regulatory frameworks, educational initiatives and a patient-centered approach have contributed to the advancement of </span>PPC<span> services for children with life-limiting conditions. In spite of this progress, pediatric palliative care in Argentina is not yet fully integrated into our health care system.</span></p></div>","PeriodicalId":49086,"journal":{"name":"Current Problems in Pediatric and Adolescent Health Care","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138576335","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Editorial Board Page 编辑委员会页面
IF 1.6 4区 医学
Current Problems in Pediatric and Adolescent Health Care Pub Date : 2024-01-01 DOI: 10.1016/S1538-5442(24)00007-5
{"title":"Editorial Board Page","authors":"","doi":"10.1016/S1538-5442(24)00007-5","DOIUrl":"https://doi.org/10.1016/S1538-5442(24)00007-5","url":null,"abstract":"","PeriodicalId":49086,"journal":{"name":"Current Problems in Pediatric and Adolescent Health Care","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S1538544224000075/pdfft?md5=45a125ae1791adad45658f307ba0e697&pid=1-s2.0-S1538544224000075-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139985077","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The slow, necessary growth of pediatric palliative care 儿科姑息关怀缓慢而必要的发展。
IF 1.6 4区 医学
Current Problems in Pediatric and Adolescent Health Care Pub Date : 2024-01-01 DOI: 10.1016/j.cppeds.2024.101570
John D. Lantos MD
{"title":"The slow, necessary growth of pediatric palliative care","authors":"John D. Lantos MD","doi":"10.1016/j.cppeds.2024.101570","DOIUrl":"10.1016/j.cppeds.2024.101570","url":null,"abstract":"","PeriodicalId":49086,"journal":{"name":"Current Problems in Pediatric and Adolescent Health Care","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139933700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Silent suffering: Status of pediatric palliative care services in Pakistan 无声的痛苦:巴基斯坦儿童姑息治疗服务的现状。
IF 1.6 4区 医学
Current Problems in Pediatric and Adolescent Health Care Pub Date : 2024-01-01 DOI: 10.1016/j.cppeds.2023.101456
Sarosh Saleem MBBS, MBeth
{"title":"Silent suffering: Status of pediatric palliative care services in Pakistan","authors":"Sarosh Saleem MBBS, MBeth","doi":"10.1016/j.cppeds.2023.101456","DOIUrl":"10.1016/j.cppeds.2023.101456","url":null,"abstract":"<div><p>This article sheds light on Pakistan's challenging healthcare landscape, focusing on the underdeveloped state of pediatric palliative care (PPC). Despite being the fifth most populous country, Pakistan allocates minimal resources to its healthcare system, resulting in severe shortages of healthcare professionals. The scarcity of PPC services, exacerbated by cultural, social, and financial factors, poses substantial challenges to providing quality end-of-life care to children. However, the article also offers a glimpse of hope, highlighting the growing awareness among healthcare providers and ongoing efforts to bridge the gaps in PPC services, ultimately aiming to improve the quality of life for those in need.</p></div>","PeriodicalId":49086,"journal":{"name":"Current Problems in Pediatric and Adolescent Health Care","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138300436","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
International perspectives on pediatric palliative care: Mexico 儿科姑息关怀的国际视角：墨西哥
IF 1.6 4区 医学
Current Problems in Pediatric and Adolescent Health Care Pub Date : 2024-01-01 DOI: 10.1016/j.cppeds.2023.101550
Yuriko Nakashima-Paniagua MD
{"title":"International perspectives on pediatric palliative care: Mexico","authors":"Yuriko Nakashima-Paniagua MD","doi":"10.1016/j.cppeds.2023.101550","DOIUrl":"10.1016/j.cppeds.2023.101550","url":null,"abstract":"<div><p>The safe keeping of children and families that require Pediatric Palliative Care (PPC), presents a challenge to the healthcare professionals and systems, particularly in countries like Mexico. This is due to social inequities, the cultural diversity, the geo-regional position that determine specific social dynamics and nowadays the huge immigration issues that we are facing.</p><p>The combination of all these factors, requires a vast knowledge from PPC providers about the necessary tools to properly provide the support needed in the most effective and efficient way, based on compassion. Knowing how to accurately understand the needs of children and their families requiring PPC and how to best assist them during the decision-making process is extremely important.</p><p>At the same time, all PPC team members require expertise in addressing pediatric<span> pathophysiology and bioethical issues that apply to diverse and heterogeneous age groups.</span></p></div>","PeriodicalId":49086,"journal":{"name":"Current Problems in Pediatric and Adolescent Health Care","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139092561","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Service and emotional support animals in pediatrics 小儿科的服务和情感支持动物。
IF 1.6 4区 医学
Current Problems in Pediatric and Adolescent Health Care Pub Date : 2023-12-01 DOI: 10.1016/j.cppeds.2023.101503
Anita Narayanan MD , Linda Solamen MD , Chioma Torres MD
{"title":"Service and emotional support animals in pediatrics","authors":"Anita Narayanan MD ,&nbsp;Linda Solamen MD ,&nbsp;Chioma Torres MD","doi":"10.1016/j.cppeds.2023.101503","DOIUrl":"10.1016/j.cppeds.2023.101503","url":null,"abstract":"<div><p><span>There is a growing body of evidence of the positive psychological and social impacts animals can have on individuals with chronic conditions and disabilities. Service animals have been used primarily in the adult population. Recently they have become more prevalent in pediatric care to improve the </span>quality of life and emotional well-being of children with physical and mental health challenges. Studies have shown that both service animals and emotional support animals (ESAs) improve physical, psychological, and social health of children with chronic medical conditions and neurodevelopmental disabilities. Due to the increasing use of service animals and ESAs in pediatrics, providers need to be aware of which children may benefit from having a service animal or ESA, the process to obtain them and recognize the practical, financial, and ethical considerations or challenges children and their families may encounter. This article aims to provide guidance on the differences between service and emotional support animals and considerations for their use in pediatric care.</p></div>","PeriodicalId":49086,"journal":{"name":"Current Problems in Pediatric and Adolescent Health Care","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Foreword: The role of animals in pediatric health 前言:动物在儿科健康中的作用。
IF 1.6 4区 医学
Current Problems in Pediatric and Adolescent Health Care Pub Date : 2023-12-01 DOI: 10.1016/j.cppeds.2023.101505
Arthur H. Fierman M.D. (Editor-in-Chief)
{"title":"Foreword: The role of animals in pediatric health","authors":"Arthur H. Fierman M.D. (Editor-in-Chief)","doi":"10.1016/j.cppeds.2023.101505","DOIUrl":"10.1016/j.cppeds.2023.101505","url":null,"abstract":"","PeriodicalId":49086,"journal":{"name":"Current Problems in Pediatric and Adolescent Health Care","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138479043","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The ethical perspectives of using animals in pediatric health 在儿童健康中使用动物的伦理观点。
IF 1.6 4区 医学
Current Problems in Pediatric and Adolescent Health Care Pub Date : 2023-12-01 DOI: 10.1016/j.cppeds.2023.101489
Brittany Sullivan , Emily Carroll MD , Neelkamal Soares MD
{"title":"The ethical perspectives of using animals in pediatric health","authors":"Brittany Sullivan ,&nbsp;Emily Carroll MD ,&nbsp;Neelkamal Soares MD","doi":"10.1016/j.cppeds.2023.101489","DOIUrl":"10.1016/j.cppeds.2023.101489","url":null,"abstract":"<div><p><span>While there are ethical standards for human biomedical research, animals have historically not benefitted from the same levels of protection. Cultural shifts in response to studies demonstrating animal capacity to suffer have resulted in laws defining minimum ethical standards for the </span>treatment of various animal populations. However, none of these pertain to service or therapy animals nor do they define ethical considerations regarding training, placement, environment, and duty limitations specific to this population. The potential for harm and inability to provide consent should raise ethical questions of animal assisted interventions (AAI), including how to best balance the risk: benefit ratio for both animal and human participants.</p><p>While service animals have specific definitions, therapy and emotional support animals are much less clearly defined and therefore have far less standardized practices regarding their training, certification, and process for matching to handlers. This can lead to animals being inadequately trained to cope with the stresses of their jobs or being placed in incompatible environments. Meanwhile, service animals’ duties are constant, and the animal has little ability to consent to or withdraw from participation, leading to overwork, without the opportunity to engage in activities that align with the animals’ natural preferences. Emotional support animals are the least defined of these populations, receive no formal training, and are at increased risk of inadequate care, unstable housing, and abuse from handlers who may also be poorly prepared to properly handle their needs.</p><p>To uphold our moral obligations to the animals that serve to improve our own mental wellness and physical independence, urgent actions are needed to improve the protections in place for these populations.</p></div>","PeriodicalId":49086,"journal":{"name":"Current Problems in Pediatric and Adolescent Health Care","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138471122","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
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