The primary care providers role in high-risk pediatric cancer care

Abstract

Pediatric oncology has seen significant advancements in survival rates over the past decade, yet cancer remains the leading cause of disease-related mortality in children in the United States. In 2024, an estimated 15,000 new pediatric cancer cases were expected, with approximately 10% resulting in death. High-risk cancers, including high-grade gliomas and metastatic solid tumors, present ongoing challenges in treatment and care. This article emphasizes the critical role of primary care providers (PCPs) in the pediatric cancer continuum, particularly in supporting families through initial diagnosis, treatment, and bereavement.

PCPs often serve as the first point of contact for families, making their role in disclosing a cancer diagnosis pivotal. Effective communication strategies are essential to help families navigate the emotional landscape of a cancer diagnosis and to outline subsequent steps in care. The impact of childhood cancer extends beyond the patient, significantly affecting siblings who may experience emotional distress and unmet informational needs.

A pediatric cancer diagnosis has significant psychosocial implications for families and PCPs play a key role by providing a supportive environment for open discussions about cancer and its effects on family dynamics. If curative treatment is no longer possible and there is a shift toward palliative care, it can be helpful for PCPs to maintain continuity of care and support during end-of-life scenarios.

By fostering strong therapeutic relationships and remaining engaged throughout the cancer journey, PCPs can play a vital role in enhancing the overall well-being of pediatric cancer patients and their families, ultimately bridging the gap between specialized oncology care and the medical home.