Journal of Pediatric Nursing-Nursing Care of Children & Families最新文献

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The effect of mother's voice and music therapy on pain and physiological parameters during the endotracheal suctioning procedure: A randomized controlled study
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-03-01 DOI: 10.1016/j.pedn.2025.01.030
Fulya Merve Kos , Murat Bektaş , İlknur Bektaş , Dijle Ayar , Sadık Kıvanç Metin
{"title":"The effect of mother's voice and music therapy on pain and physiological parameters during the endotracheal suctioning procedure: A randomized controlled study","authors":"Fulya Merve Kos ,&nbsp;Murat Bektaş ,&nbsp;İlknur Bektaş ,&nbsp;Dijle Ayar ,&nbsp;Sadık Kıvanç Metin","doi":"10.1016/j.pedn.2025.01.030","DOIUrl":"10.1016/j.pedn.2025.01.030","url":null,"abstract":"<div><h3>Objective</h3><div>This study aimed to examine the effects of maternal voice and music therapy on pain and physiological parameters during the endotracheal suctioning process in intubated children.</div></div><div><h3>Design</h3><div>The study was a single-centre, randomized controlled trial.</div></div><div><h3>Setting</h3><div>The Thoracic-Cardiovascular Surgery Intensive Care Unit of a University Hospital in Turkey.</div></div><div><h3>Methods</h3><div>This study involved three groups of 27 children, aged between 2 and 36 months. All three groups, including the control group (CG), received the standard suction protocol before, during, and after each intervention. Additionally, the children in the music therapy (MT) group listened to music titled ‘The Happiest Child’, while the children in the mother's voice (MV) group listened to recordings of their mothers' voices. The variables assessed are pain and physiological parameters.</div></div><div><h3>Results</h3><div>When the pain results of the children were evaluated, the pain score of the children in the control group was found to be significantly higher than children in the mother's voice and music voice group (<em>p</em> &lt; .05). It was determined that the lowest FLACC Pain Scale value was in the mother's voice group (<em>p</em> &lt; .05). When the physiological parameters results were evaluated, it was determined that the physiological measurement values of the children in the experimental group were positively affected (<em>p</em> &lt; .05), there was a significant difference between the control group (p &lt; .05) and the most effective result was in the mother's voice group (p &lt; .05).</div></div><div><h3>Conclusions</h3><div>The application of mother's voice and music therapy to children before, during and after the aspiration procedure reduces the pain of children, positively affects their physiological parameters and improves the quality of nursing care.</div></div><div><h3>Implications for clinical practice</h3><div>This study provides a scientific basis for nursing practices in clinical settings and contributes to clinical practice by shedding light on future evidence-based studies.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages e47-e56"},"PeriodicalIF":2.1,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143416062","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Paediatric pain management: Strengthening child and parent voices and partnership for improved care
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-03-01 DOI: 10.1016/j.pedn.2025.02.003
Elizabeth M. Forster RN PhD , Catherine Kotzur , John S. Gilmour PhD , Julianne Richards PhD
{"title":"Paediatric pain management: Strengthening child and parent voices and partnership for improved care","authors":"Elizabeth M. Forster RN PhD ,&nbsp;Catherine Kotzur ,&nbsp;John S. Gilmour PhD ,&nbsp;Julianne Richards PhD","doi":"10.1016/j.pedn.2025.02.003","DOIUrl":"10.1016/j.pedn.2025.02.003","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages A1-A2"},"PeriodicalIF":2.1,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143477221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Translational research – Parent and family support needs and the challenges of caregiving of children with chronic conditions
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-03-01 DOI: 10.1016/j.pedn.2025.03.009
Becky J. Christian PhD, RN, FNAP, FAAN
{"title":"Translational research – Parent and family support needs and the challenges of caregiving of children with chronic conditions","authors":"Becky J. Christian PhD, RN, FNAP, FAAN","doi":"10.1016/j.pedn.2025.03.009","DOIUrl":"10.1016/j.pedn.2025.03.009","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages 208-210"},"PeriodicalIF":2.1,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143684840","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Effect of White Noise and Recorded Lullaby during Breastfeeding on Newborn Stress, Mother's Breastfeeding Success, and Comfort: A Randomized Controlled Trial 母乳喂养过程中白噪音和录制的摇篮曲对新生儿压力、母亲母乳喂养成功和舒适度的影响:一项随机对照试验。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-03-01 DOI: 10.1016/j.pedn.2025.01.008
Aslı Karakuş Selçuk , Duygu Karaarslan , Eda Ergin , Emine Salğin
{"title":"The Effect of White Noise and Recorded Lullaby during Breastfeeding on Newborn Stress, Mother's Breastfeeding Success, and Comfort: A Randomized Controlled Trial","authors":"Aslı Karakuş Selçuk ,&nbsp;Duygu Karaarslan ,&nbsp;Eda Ergin ,&nbsp;Emine Salğin","doi":"10.1016/j.pedn.2025.01.008","DOIUrl":"10.1016/j.pedn.2025.01.008","url":null,"abstract":"<div><h3>Purpose</h3><div>The study was aimed at determining the effect of exposure to white noise and recorded lullaby during breastfeeding on newborn stress, mother's breastfeeding success, and comfort.</div></div><div><h3>Design and methods</h3><div>This single-blinded and three-parallel group randomized controlled study consisted of mothers who had given birth and whose newborns were at a hospital in Turkey. Seventy-five participants completed the study. They were assigned to white noise, lullaby, and control groups in equal numbers. Each group included 25 women. The questionnaires included descriptive characteristics of mothers, the LATCH Breastfeeding Assessment Tool, the Newborn Stress Scale, and the Visual Analog Scale. During the breastfeeding process, the newborn and mother listened to white noise and lullaby for approximately 15 min. The newborn stress and mothers' level of comfort were assessed before and after the interventions. The breastfeeding success of the mother assessed with the LATCH was completed within the first 15 min of breastfeeding.</div></div><div><h3>Results</h3><div>The mean scores obtained from the Newborn Stress Scale by the mothers in the lullaby group and white noise group decreased significantly after the intervention. A significant difference was also observed in the control group. There were also significant differences between the changes in the mothers' comfort level of all groups. There were significant differences between the changes in the LATCH scores of the groups.</div></div><div><h3>Conclusion</h3><div>Both white noise and recorded lullaby significantly reduced newborn stress, and increased mother's comfort in the early postpartum period.</div></div><div><h3>Practice implications</h3><div>Music should be used as a nonpharmacological method to improve breastfeeding success in newborns.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages e16-e23"},"PeriodicalIF":2.1,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014335","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Increasing child involvement by understanding emotional expression during needle procedures: A video-observational intervention study
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-03-01 DOI: 10.1016/j.pedn.2025.01.026
I. Kleye , L. Hedén , A. J Sundler , L. Darcy , S. van Dulmen , K. Karlsson
{"title":"Increasing child involvement by understanding emotional expression during needle procedures: A video-observational intervention study","authors":"I. Kleye ,&nbsp;L. Hedén ,&nbsp;A. J Sundler ,&nbsp;L. Darcy ,&nbsp;S. van Dulmen ,&nbsp;K. Karlsson","doi":"10.1016/j.pedn.2025.01.026","DOIUrl":"10.1016/j.pedn.2025.01.026","url":null,"abstract":"<div><h3>Aim</h3><div>To evaluate child-nurse emotional communication during needle procedures using a child-centered intervention versus a control group.</div></div><div><h3>Methods</h3><div>A controlled, video-observational study, incorporating 66 children and seven nurses was conducted. Data were collected using video-recordings of child-nurse communication during needle procedures when receiving standard care (control group) or standard care plus the i Can Choose intervention (intervention group).</div></div><div><h3>Findings</h3><div>Children expressed their unpleasant emotions mostly non-verbally. Compared to children in the intervention group, those in the control group more often expressed vague or unspecified words to describe an emotion (χ<sup>2</sup>(1) = 14.4, <em>p</em> &lt; 0.001). The nurses' focus and overall communication style varied between the groups. When using i Can Choose, nurses provided more space to children's communication preferences. This seemed to increase children's involvement during the needle procedure.</div></div><div><h3>Conclusion</h3><div>Communicating <em>with</em> the child, the so-called communicative interaction, instead of <em>to</em> the child, can play a critical role in children's handling of fear and pain related to needle procedures.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages e24-e30"},"PeriodicalIF":2.1,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143371135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Relationship of caregiving burden and adaptive behaviors in mothers of children with chronic diseases
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-03-01 DOI: 10.1016/j.pedn.2025.02.007
Zahra Hosseini Chirani , Moluk Pouralizadeh , Yasaman Yaghobi , Ehsan Kazemnejad Leili
{"title":"Relationship of caregiving burden and adaptive behaviors in mothers of children with chronic diseases","authors":"Zahra Hosseini Chirani ,&nbsp;Moluk Pouralizadeh ,&nbsp;Yasaman Yaghobi ,&nbsp;Ehsan Kazemnejad Leili","doi":"10.1016/j.pedn.2025.02.007","DOIUrl":"10.1016/j.pedn.2025.02.007","url":null,"abstract":"<div><h3>Introduction</h3><div>Mothers of children with chronic diseases, as the main caregivers, face the care burden. The care burden of mothers can affect their adaptive behaviors and lead to the use of inappropriate adaptive behaviors. This study was conducted to determine the relationship between the caregiving burden and adaptive behaviors of mothers of children with chronic diseases.</div></div><div><h3>Methods</h3><div>In this descriptive-analytical cross-sectional study, 238 mothers of children with chronic diseases participated by the convenience sampling method. Data collection tools included a demographic information questionnaire, a zarit care burden questionnaire, and a health matching questionnaire for parents. Data were analyzed using descriptive statistics, <em>t</em>-test, ANOVA, and Pearson analysis in SPSS software version 26.</div></div><div><h3>Results</h3><div>The majority of mothers had a mean age of 34.6 ± 7.6 years. The caregiving burden on the mothers of children with chronic diseases was high (21.95 ± 7.76) and most of the mothers had favorable adaptive behaviors in facing their child's illness (95.14 ± 17.15). The most intensity of the significant correlation was in the pattern of “family integrity and optimization of the situation” (<em>P</em> &lt; 0.001, <em>r</em> = −0.434). The mother's illness (<em>P</em> = 0.009, β = 2.874), care of the child with chronic disease only by the mother (<em>P</em> = 0.008, β = 3.142), and immunodeficiency disease of the child (<em>P</em> = 0.021, β = 4.456) positively predicted the caregiving burden.</div></div><div><h3>Conclusion</h3><div>These findings help healthcare systems plan supportive and educational programs for decreasing the caregiving burden and increasing adaptive behaviors in mothers of children with chronic diseases.</div></div><div><h3>Lay summary</h3><div>A cross-sectional study was conducted to determine care burden and adaptive behaviors in mothers with chronically ill children. The results showed that mothers' care burden was high and significantly related to their behavior and adaptation. Mothers had favorable adaptive behaviors.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages e113-e120"},"PeriodicalIF":2.1,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143450608","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effect of game-based asthma management interventions on pediatric asthma control, knowledge, attitudes, hospitalizations, and emergency visits: A systematic review and meta-analysis 基于游戏的哮喘管理干预对小儿哮喘控制、知识、态度、住院和急诊就诊的影响:系统回顾与荟萃分析。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-03-01 DOI: 10.1016/j.pedn.2024.12.009
Aylin Akca Sumengen BSN, RN, MSc, PhD , Damla Ozcevik Subasi BSN, RN, MSc, PhD , Remziye Semerci RN, MSc, PhD , Gokce Naz Cakir BSN, MSc
{"title":"Effect of game-based asthma management interventions on pediatric asthma control, knowledge, attitudes, hospitalizations, and emergency visits: A systematic review and meta-analysis","authors":"Aylin Akca Sumengen BSN, RN, MSc, PhD ,&nbsp;Damla Ozcevik Subasi BSN, RN, MSc, PhD ,&nbsp;Remziye Semerci RN, MSc, PhD ,&nbsp;Gokce Naz Cakir BSN, MSc","doi":"10.1016/j.pedn.2024.12.009","DOIUrl":"10.1016/j.pedn.2024.12.009","url":null,"abstract":"<div><h3>Purpose</h3><div>Many studies have used game-based interventions to educate children about asthma. The study aims to determine the effectiveness of these games in improving asthma control and related outcomes in children.</div></div><div><h3>Methods</h3><div>Seven databases were searched: PubMed, Cochrane Library, Scopus, CINAHL, Embase, Web of Science, and PsycINFO’. All research papers published until June 2023 were included. MeSH terms and keywords were used in the literature search. The Joanna Briggs Institute Meta-Analysis of Statistics Assessment and Review Instruments was used to assess the risk of bias.</div></div><div><h3>Results</h3><div>This systematic review and meta-analysis included nine studies with a total sample size of 694 children. The effect size for hospitalization rates was not statistically significant (<em>p</em> &gt; 0.05), although the association was significant (<em>p</em> = 0.004). Conversely, a statistically significant reduction in emergency visits was observed (<em>p</em> &lt; 0.05), with an effect size estimate of 0.376. The analysis also revealed a significant improvement in asthma knowledge (<em>p</em> &lt; 0.05), with an effect size estimate of 0.677 (95 % CI: 0.240 to 1.114, <em>p</em> = 0.002), and an increase in asthma control (<em>p</em> &lt; 0.05), although the association was not statistically significant (<em>p</em> = 0.120) with an effect size estimate of 0.169 (95 % CI: −0.044 to 0.381). Conversely, no statistically significant effect was observed for asthma attitude (<em>p</em> &gt; 0.05).</div></div><div><h3>Conclusion</h3><div>Game-based interventions have shown promise in improving asthma management in children by enhancing knowledge and control and reducing emergency visits. This approach is increasingly recommended in clinical settings, though there is notable heterogeneity in study design and participant demographics.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages 183-199"},"PeriodicalIF":2.1,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142915612","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effect of social support provided to poor children on their emotional state and hope levels
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-03-01 DOI: 10.1016/j.pedn.2025.01.034
Semra Söngüt , Gamze Gözübüyük
{"title":"The effect of social support provided to poor children on their emotional state and hope levels","authors":"Semra Söngüt ,&nbsp;Gamze Gözübüyük","doi":"10.1016/j.pedn.2025.01.034","DOIUrl":"10.1016/j.pedn.2025.01.034","url":null,"abstract":"<div><h3>Introduction</h3><div>The aim of the study is to determine the effect of social support provided to children living in poverty aged 8–12 on their emotional states and levels of hope.</div></div><div><h3>Methods</h3><div>This quasi-experimental study compares data obtained from the children in the “first encounter”, “first month” and “third month”. Data were collected in person through the “Introductory Information Form”, “Multidimensional Scale of Perceived Social Support”, “Children's Emotion Regulation Scale” and “Children's Hope Scale”. <em>p</em> &lt; 0.05 was considered statistically significant.</div></div><div><h3>Results</h3><div>Statistically, the comparison of the total mean scores of the children on the “Multidimensional Scale of Perceived Social Support” was highly significant (<em>p</em> ≤0.001). The comparison of the total mean scores of the “Children's Emotion Regulation Scale” was statistically significant (<em>p</em> ≤0.021). The comparison of the total average scores of the children's “Child Hope Scale” was statistically highly significant (<em>p</em> ≤0.001). A positive relationship was found between the children's hope levels and emotional states and the average scores obtained in the 3rd month (<em>p</em> = 0.044).</div></div><div><h3>Conclusion</h3><div>The children's average scores on the scales increased after the first encounter. Providing social support positively affected children living in poverty.</div></div><div><h3>Implications to practice</h3><div>Implications to practice: Providing social support to children in poverty positively impacts their emotional states and hope levels, emphasizing the crucial role of healthcare professionals, particularly pediatric nurses, in addressing the needs of vulnerable populations. These findings align with global health goals, such as “No Poverty” and “Good Health and Well-Being.”</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages e65-e71"},"PeriodicalIF":2.1,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143371156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effect of intolerance of uncertainty, sleep quality, and social support on caregiver burden in parents of children with chronic diseases: A cross-sectional study
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-03-01 DOI: 10.1016/j.pedn.2025.02.006
Furkan Doğaner , Raziye Celen
{"title":"The effect of intolerance of uncertainty, sleep quality, and social support on caregiver burden in parents of children with chronic diseases: A cross-sectional study","authors":"Furkan Doğaner ,&nbsp;Raziye Celen","doi":"10.1016/j.pedn.2025.02.006","DOIUrl":"10.1016/j.pedn.2025.02.006","url":null,"abstract":"<div><h3>Aim</h3><div>This study aims to determine the effect of intolerance of uncertainty, sleep quality, and social support on caregiver burden among parents of children with chronic diseases.</div></div><div><h3>Methods</h3><div>This cross-sectional study was carried out on parents of children with chronic illnesses (<em>n</em> = 144), who were admitted to a medical faculty hospital in Turkey from June 2023 until June 2024. The data collection was conducted using the “Family Information Form,” the “Pittsburgh Sleep Quality Index,” the “Multidimensional Scale of Perceived Social Support,” the “Intolerance of Uncertainty Scale,” and the “Caregiver Burden Scale”. Data were analyzed using Student's <em>t</em>-test, one-way ANOVA, and multiple linear regression analysis.</div></div><div><h3>Results</h3><div>Participants' mean scores were found to be 37.5 ± 14.43 on the Caregiver Burden scale, 8.37 ± 3.25 on the Pittsburgh Sleep Quality Index, 66.06 ± 13.87 on the Multidimensional Scale of Perceived Social Support, and 38.97 ± 10.25 on the Intolerance of Uncertainty Scale. Income level (β = 0.252), level of intolerance of uncertainty (β = 0.200), and the number of the child's hospitalizations in the past year (β = 0.266) were significant predictors affecting the caregiver burden.</div></div><div><h3>Conclusion</h3><div>This study revealed that parental caregiver burden was related with intolerance of uncertainty, income status, and the number of the child's hospitalizations.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages e106-e112"},"PeriodicalIF":2.1,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143450611","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Living with the delusion of autism recovery: A grounded theory study on the experiences of mothers
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-03-01 DOI: 10.1016/j.pedn.2025.02.004
A. Elif Işık-Uslu PhD , Zeynep Çetin PhD
{"title":"Living with the delusion of autism recovery: A grounded theory study on the experiences of mothers","authors":"A. Elif Işık-Uslu PhD ,&nbsp;Zeynep Çetin PhD","doi":"10.1016/j.pedn.2025.02.004","DOIUrl":"10.1016/j.pedn.2025.02.004","url":null,"abstract":"<div><h3>Purpose</h3><div>This study employs Charmaz's (2014) constructivist Grounded Theory (GT) approach to explore and construct a theory about the experiences of mothers raising children diagnosed with autism spectrum disorder (ASD).</div></div><div><h3>Methods</h3><div>Data were collected over 1.5 years from online forum posts written by 10 mothers and in-depth qualitative interviews conducted with nine mothers. During the theoretical sampling phase, an additional four mothers were interviewed face-to-face. The analysis adhered to Charmaz's constructivist GT methodology, encompassing initial coding, focused coding, and theoretical coding.</div></div><div><h3>Results</h3><div>The study introduces the grounded theory, “Living with the Delusion of Autism Recovery,” which encapsulates mothers' oscillation between hope and despair as they navigate their children's developmental journeys. This longitudinal analysis traces mothers' experiences from the pre-diagnosis phase through special education, addressing a significant gap in the literature by examining the progression of experiences rather than isolated moments.</div></div><div><h3>Conclusions</h3><div>The findings underscore the urgent need for timely interventions and robust support systems. Delays in diagnosis, driven by healthcare professionals' reluctance to diagnose early and the lack of a formal early intervention system, exacerbate developmental challenges. This research provides a unique contribution to the literature by centering on the experiences of Turkish mothers, shedding light on cultural nuances and the dynamic nature of parenting a child with ASD in Türkiye. It is notable as the first study of its kind in Türkiye, offering invaluable insights into the evolving experiences of these mothers.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages e81-e95"},"PeriodicalIF":2.1,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143469737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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