Journal of Child and Family Studies最新文献

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Do Virtual Reality Relaxation Experiences Alleviate Stress in Parents of Children with Autism? A Pilot Study 虚拟现实放松体验能减轻自闭症儿童家长的压力吗?一项试点研究
IF 2.1 3区 心理学
Journal of Child and Family Studies Pub Date : 2024-06-27 DOI: 10.1007/s10826-024-02876-1
Brian Lovell, Mark A. Wetherell
{"title":"Do Virtual Reality Relaxation Experiences Alleviate Stress in Parents of Children with Autism? A Pilot Study","authors":"Brian Lovell, Mark A. Wetherell","doi":"10.1007/s10826-024-02876-1","DOIUrl":"https://doi.org/10.1007/s10826-024-02876-1","url":null,"abstract":"<p>Psychotherapeutic interventions such as cognitive training and psychoeducation tend to be effective for alleviating stress in caregivers of children with autism. However, these interventions are often time consuming and take place outside the home, posing challenges for accessibility. Technology, especially virtual reality (VR) technology, can be used to support a range of digital interventions at home. VR headsets, when used to simulate relaxing experiences, have already been linked with stress relieving effects for some caregiving groups. This study builds on this, exploring whether VR simulated relaxing environments engender positive psychological changes for caregivers of children with autism. A total of 18 caregivers were exposed to VR simulated natural environments (e.g., beach, forest) for 15 min in a single session. State mood, captured with POMS, was measured at baseline and immediately post intervention. Perceived stress (PSS) was captured at baseline and, to explore intervention effectiveness, at three- and seven-days post intervention. POMS scores for tension, anger, depression, fatigue and confusion were lower, and scores for vigour higher, immediately post intervention. PSS scores at three-and seven-days post intervention, while comparable with one another, were lower compared with baseline. Interacting with simulated natural environments in VR seems effective for improving caregivers’ state mood and reducing their perceived stress for up to seven days. Future research should aim to consolidate and expand on these findings with larger samples and longer follow up periods.</p>","PeriodicalId":48362,"journal":{"name":"Journal of Child and Family Studies","volume":"4 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-06-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141509774","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
System Experiences of Mothers Who Have Limited English Proficiency and Preschoolers with Autism 英语水平有限的母亲和自闭症学龄前儿童的系统体验
IF 2.1 3区 心理学
Journal of Child and Family Studies Pub Date : 2024-06-27 DOI: 10.1007/s10826-024-02882-3
Sara Imanpour
{"title":"System Experiences of Mothers Who Have Limited English Proficiency and Preschoolers with Autism","authors":"Sara Imanpour","doi":"10.1007/s10826-024-02882-3","DOIUrl":"https://doi.org/10.1007/s10826-024-02882-3","url":null,"abstract":"<p>This study was conducted to understand the experiences of mothers with limited English proficiency (LEP) and their children with autism during diagnosis and receiving services for their children with autism. A qualitative approach and the health disparity framework were adopted to answer the research questions. Using grounded theory methodology, 16 mothers with LEP and their preschool-aged children with autism were interviewed. Lack of communication during clinical encounters was the main category that arose from the data. Mothers with LEP have difficulties navigating the US healthcare system and autism-related institutions. Patient factors (no support system, stigma around autism, awareness about autism) affected their interactions with autism service providers. Providers of autism diagnosis and services were out of reach, especially because of communication barriers. The health system played a major role in widening the disparities for mothers with LEP and their children with autism with long wait times for diagnoses and services, lack of insurance coverage for services, culturally incompetent staff, and existing complicity in the system. Mothers with LEP felt abandoned by the US healthcare system in receiving diagnoses and services for their children with autism. In the United States, mothers who have LEP encounter significant barriers in accessing diagnosis and early intervention services for their preschool-aged children with autism. The objectives of Healthy People 2030 will not be achieved without addressing the needs of an understudied population of people with LEP.</p>","PeriodicalId":48362,"journal":{"name":"Journal of Child and Family Studies","volume":"17 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-06-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141517348","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An Exploratory Study: Racial Socialization Practices and Dilemmas of Caregivers Nurturing Young BIPOC Children 一项探索性研究:种族社会化实践与照顾黑人、双性恋和变性人儿童的照顾者的困境
IF 2.1 3区 心理学
Journal of Child and Family Studies Pub Date : 2024-06-27 DOI: 10.1007/s10826-024-02874-3
Flóra Faragó
{"title":"An Exploratory Study: Racial Socialization Practices and Dilemmas of Caregivers Nurturing Young BIPOC Children","authors":"Flóra Faragó","doi":"10.1007/s10826-024-02874-3","DOIUrl":"https://doi.org/10.1007/s10826-024-02874-3","url":null,"abstract":"<p>This study on the racial socialization practices and dilemmas of caregivers of 0–8 year-old BIPOC children utilized an open-ended online survey, with a mixed-methods approach to data analysis. The study included 173 caregivers (i.e., 59% white; 41% BIPOC; 94.2% female) in the U.S. who held a variety of roles (e.g., 33.5% parents/relatives; 28.3% early childhood educators; 12.1% mental health/health professionals). Caregivers were prompted with a message about joy and resilience in BIPOC children. Analysis of open-ended data revealed practices such as the use of books, adult education, talking, preparation for bias or acknowledgment of racism, stereotyping, privilege, anti-bias/anti-racist education, art, music, dance, home language, and miscellaneous topics. Caregivers highlighted the following: (a) Nurturing a positive racial identity and pride in children’s own heritage; (b) Nurturing love and knowledge about racial diversity; (c) Preparation for bias; and, (d) Racial socialization network: Adult-to-adult practices. Regarding racial socialization dilemmas, caregivers highlighted challenges with nurturing a positive racial identity/pride in children’s heritage; nurturing love and knowledge about racial diversity; preparation for bias; and, adult education. Dilemmas were reported about nurturing self-love in a racist world, whiteness, others’ biases, relationships, representation, multiracial families, own biases, age appropriateness, and colorism. Chi-square analyses confirmed that there were no statistically significant differences between white and BIPOC, and familial and non-familial, caregivers’ racial socialization practices and dilemmas. Descriptive results revealed some differences in racial socialization dilemmas by race and role of caregivers.</p>","PeriodicalId":48362,"journal":{"name":"Journal of Child and Family Studies","volume":"16 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-06-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141517349","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Roles of Mother-Perceived Coparenting and Child Routines on Children’s Social–Emotional Competence During the COVID-19 Pandemic 在 COVID-19 大流行期间,母亲认为的共同养育和儿童日常活动对儿童社会情感能力的影响
IF 2.1 3区 心理学
Journal of Child and Family Studies Pub Date : 2024-06-26 DOI: 10.1007/s10826-024-02870-7
Şevval Nur Sezer, İbrahim H. Acar
{"title":"The Roles of Mother-Perceived Coparenting and Child Routines on Children’s Social–Emotional Competence During the COVID-19 Pandemic","authors":"Şevval Nur Sezer, İbrahim H. Acar","doi":"10.1007/s10826-024-02870-7","DOIUrl":"https://doi.org/10.1007/s10826-024-02870-7","url":null,"abstract":"<p>The purpose of the current study was to examine the contributions of coparenting quality and child routines to children’s social–emotional competence during COVID-19. Further, we investigated the indirect effects of coparenting quality on children’s social–emotional competence via child routines. The participants were 403 mothers of children between 23 and 102 months old (<i>M</i> = 59.23, <i>SD</i> = 10.92). Mothers reported their children’s social–emotional competence, coparenting quality, and children’s routines as main variables and the COVID-19 pandemic effects (financial, resources, psychological, and within-family interaction effects). Results from the structural equation model showed that higher levels of coparenting quality and consistency in child routines were positively related to children’s social–emotional competence. In addition, there was an indirect effect of coparenting on children’s social–emotional competence through child routines. In detail, higher parental coparenting quality was associated with more consistent child routines, and, in turn, more consistent child routines were associated with higher levels of social–emotional competence. These findings suggest that coparenting and child routines may play a crucial role in children’s social–emotional competence. Results are discussed, considering their functioning during the COVID-19 pandemic.</p>","PeriodicalId":48362,"journal":{"name":"Journal of Child and Family Studies","volume":"131 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141517430","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychometric Properties of the Modified Parenting Attitudes Measure Among African American Adolescents in Public Housing 修改后的公共住房非裔美国青少年养育态度量表的心理计量特性
IF 2.1 3区 心理学
Journal of Child and Family Studies Pub Date : 2024-06-26 DOI: 10.1007/s10826-024-02871-6
Melissa L. Villodas, Andrew Foell, Lisa C. Smith, Mansoo Yu, Henrika McCoy, Yibin Yang, Ngozi V. Enelamah, Margaret Lombe, Von Nebbitt
{"title":"Psychometric Properties of the Modified Parenting Attitudes Measure Among African American Adolescents in Public Housing","authors":"Melissa L. Villodas, Andrew Foell, Lisa C. Smith, Mansoo Yu, Henrika McCoy, Yibin Yang, Ngozi V. Enelamah, Margaret Lombe, Von Nebbitt","doi":"10.1007/s10826-024-02871-6","DOIUrl":"https://doi.org/10.1007/s10826-024-02871-6","url":null,"abstract":"<p>Valid and reliable measurements reflecting how perceived maternal and paternal parenting practices are similar, different, complementary, or additive in studying youth outcomes are critical for building knowledge on supportive parenting practices for African American youth living in public housing. We examined the psychometric properties of the Parental Attitudes Measure (PAM) which focuses on youths’ attitudes on parenting practices. Data was collected from the perspective of 660 African American youth living in urban public housing across three cities in the northeast and mid-Atlantic region in the United States. Youth reported on their attitudes about maternal and paternal caregivers. Reliability was determined using Cronbach alpha (α) for internal consistency. An exploratory factor analysis (EFA) was used to examine the dimensions and loading of the construct with this population. A confirmatory factor analysis (CFA) examined the validity of the measure using four goodness-of-fit indices. Pearson correlations were used to test construct validity among the sample and across parent status (birth or non-birth parent) and residence in the household. The EFA indicated a two-factor structure with strong reliability for both maternal (α = 0.86, 0.84) and paternal (α = 93, 0.92) encouragement and supervision. The CFA supported a 2-factor model for both maternal and paternal PAM. Findings demonstrate high internal consistency of the PAM for use in examining maternal and paternal attitudes among African American youth living in public housing, generally, as well as by gender and across cities. The measure had good construct validity with maternal caregivers but only partially with paternal caregivers.</p>","PeriodicalId":48362,"journal":{"name":"Journal of Child and Family Studies","volume":"33 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141509776","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Gaining Knowledge of a New and Contested Diagnosis – A Qualitative Examination of Swedish Parents of Children with Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) 了解一个有争议的新诊断--瑞典儿科急发神经精神综合征(PANS)患儿家长的定性研究
IF 2.1 3区 心理学
Journal of Child and Family Studies Pub Date : 2024-06-22 DOI: 10.1007/s10826-024-02875-2
Noam Ringer, Ulla-Karin Schön
{"title":"Gaining Knowledge of a New and Contested Diagnosis – A Qualitative Examination of Swedish Parents of Children with Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS)","authors":"Noam Ringer, Ulla-Karin Schön","doi":"10.1007/s10826-024-02875-2","DOIUrl":"https://doi.org/10.1007/s10826-024-02875-2","url":null,"abstract":"<p>Background: Pediatric acute-onset neuropsychiatric syndrome (PANS) is a symptom-based and clinically heterogeneous condition characterized by an abrupt and dramatic onset of symptoms such as loss of motoric and cognitive abilities, anxiety, compulsion, tics, and eating disorders. PANS is a new diagnosis and the condition has gathered controversy in research and clinical practice. Aim: We aimed to investigate the process by which parents of children with PANS acquire knowledge about the condition; the causes that lead parents to search for knowledge; the ways in which they search for knowledge; and the manner in which this knowledge is received by medical care professionals. Method: The study employed in-depth semi-structured, individual interviews with 13 parents of children diagnosed with PANS. An inductive qualitative thematic analysis was used as a guide for analyzing the data. Results: Challenges to understand their child’s illness and receive effective care led the parents to search for knowledge about PANS and provide an explanation for their child’s symptoms. They used personal and social resources to search for knowledge. They felt trusted and encouraged when clinicians endorsed their knowledge. On the other hand, when they were dismissed as a source of knowledge, they experienced a lack of trust towards professionals. Conclusions: A driving force for parents’ search for knowledge is a perceived incapacity to give meaning to their experiences. Another reason is mistrust of healthcare staff’s existing knowledge.</p>","PeriodicalId":48362,"journal":{"name":"Journal of Child and Family Studies","volume":"197 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-06-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141509775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pillar Mothers: Perspective on the Adaptation Process of Mothers of Autistic Children 支柱母亲:透视自闭症儿童母亲的适应过程
IF 2.1 3区 心理学
Journal of Child and Family Studies Pub Date : 2024-06-01 DOI: 10.1007/s10826-024-02863-6
Delphine Périard-Larivée, Élisabeth Godbout, Jean-Yves Bégin, Diane St-Laurent, Amélie de Serres-Lafontaine, Sarah De Pauw, Eve-Line Bussières
{"title":"Pillar Mothers: Perspective on the Adaptation Process of Mothers of Autistic Children","authors":"Delphine Périard-Larivée, Élisabeth Godbout, Jean-Yves Bégin, Diane St-Laurent, Amélie de Serres-Lafontaine, Sarah De Pauw, Eve-Line Bussières","doi":"10.1007/s10826-024-02863-6","DOIUrl":"https://doi.org/10.1007/s10826-024-02863-6","url":null,"abstract":"<p>Mothers of autistic children encounter numerous daily challenges that can affect their adaptation. While many studies have documented the impact on mothers of having an autistic child and factors contributing to their adaptation and their experiences of motherhood, few have examined how mothers of autistic children perceive their overall adaptation. We investigated with a qualitative design how mothers of autistic children perceive stressors, facilitators (resources, coping strategies, and contexts), and outcomes of adaptation in various life domains. Participants included 17 mothers of autistic children ranging from 2 to 8 years old. Mothers participated in a phone interview about their perception of their successes, challenges, and adaptation as mothers of their children. A thematic analysis was conducted on interview transcripts using inductive and deductive coding. A cross-case analysis was subsequently used to identify themes and subthemes. Results highlight the complexity of the maternal adaptation process in the context of autism, which starts before the child’s diagnosis. Stressors, facilitators, and outcomes were described as overlapping in the psychological, social, professional, marital, and parental life domains. The accumulation of stressors was identified as mothers of autistic children’s main source of stress and almost impossible to reduce. Participants explained having difficulties accessing effective facilitators. While outcomes of adaptation vary across mothers and life domains, indicators of distress were identified for all participants. Implications are discussed regarding how service providers and society could better support mothers of autistic children by considering their complex reality and by providing more resources and information.</p>","PeriodicalId":48362,"journal":{"name":"Journal of Child and Family Studies","volume":"145 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141197750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Preparation for Bias Decisions and Conversations with Young Children Following the Murder of George Floyd 乔治-弗洛伊德遇害后,为做出偏见决定和与幼儿对话做准备
IF 2.1 3区 心理学
Journal of Child and Family Studies Pub Date : 2024-06-01 DOI: 10.1007/s10826-024-02849-4
Erica E. Coates, Ar’Reon Watson, Alison McLeod, Rebecca de Heer, Lauren Edwards, Brooke Smith
{"title":"Preparation for Bias Decisions and Conversations with Young Children Following the Murder of George Floyd","authors":"Erica E. Coates, Ar’Reon Watson, Alison McLeod, Rebecca de Heer, Lauren Edwards, Brooke Smith","doi":"10.1007/s10826-024-02849-4","DOIUrl":"https://doi.org/10.1007/s10826-024-02849-4","url":null,"abstract":"<p>Although research on racial socialization is well established, few studies have examined the influence of specific, highly publicized racialized events. We sought to gain a deeper understanding of Black parents’ preparation for bias with young children following the murder of George Floyd and other high-profile anti-Black murders during the pandemic. Researchers generated the following themes from parents’ responses using reflexive thematic analysis: determining their child’s readiness for the talk, reasons to delay the talk, initiating the talk, and recommendations for beginning the talk. The majority of parents of children age six and younger did not engage in preparation for bias following the murder of George Floyd due to perceptions of children’s inability to understand racism as well as desires to preserve children’s “innocence” and positive perceptions of police.</p>","PeriodicalId":48362,"journal":{"name":"Journal of Child and Family Studies","volume":"23 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141197627","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Affective Themes Related to Parenting Among Mothers in Treatment for Opioid Use Disorder 接受阿片类药物使用障碍治疗的母亲中与养育子女有关的情感主题
IF 2.1 3区 心理学
Journal of Child and Family Studies Pub Date : 2024-05-31 DOI: 10.1007/s10826-024-02829-8
Anna L. Herriott, Brooke Davis, Sydney L. Hans
{"title":"Affective Themes Related to Parenting Among Mothers in Treatment for Opioid Use Disorder","authors":"Anna L. Herriott, Brooke Davis, Sydney L. Hans","doi":"10.1007/s10826-024-02829-8","DOIUrl":"https://doi.org/10.1007/s10826-024-02829-8","url":null,"abstract":"<p>This study examines the thematic content of four negative affective tones—frustration, anger, anxiety and guilt—expressed by mothers in treatment for opioid use disorder (OUD) as they describe their relationships with their preschool-aged children. The sample included 150 African American women with children between 36 and 63 months of age (M = 48.5, SD = 7.4). The Working Model of the Child Interview was used to generate mothers’ narratives of their children and of themselves as parents. Transcripts were rated on the degree to which specific affective tones were present. Follow-up thematic analysis was conducted on transcripts where high levels of four affects were expressed: frustration (<i>n</i> = 13); anger (<i>n</i> = 6); guilt (<i>n</i> = 9); and anxiety (<i>n</i> = 7), with frustration and anger combined in the final analysis given overlap in content themes. The findings, which included mothers’ anger/frustration about their child’s challenging behavior; guilt about the impact of their substance misuse on the child; and anxiety about the child getting hurt or becoming ill, reflected mothers’ desires to be good parents. Some themes cut across multiple negative emotions, including managing child behavior, the consequences of substance misuse, and co-parenting with family members. Also underlying all the affective tones was a sense of powerlessness. The findings underscore the importance of providing supports for parents who are in treatment for SUD that center parents’ emotions.</p>","PeriodicalId":48362,"journal":{"name":"Journal of Child and Family Studies","volume":"63 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141197747","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Parenting a Child with a Functionally Univentricular Heart: Mothers’ Experiences of Role and Identity 养育功能性单心室儿童:母亲的角色和身份体验
IF 2.1 3区 心理学
Journal of Child and Family Studies Pub Date : 2024-05-31 DOI: 10.1007/s10826-024-02865-4
Shannon Dandy, Anja Wittkowski, Craig Murray
{"title":"Parenting a Child with a Functionally Univentricular Heart: Mothers’ Experiences of Role and Identity","authors":"Shannon Dandy, Anja Wittkowski, Craig Murray","doi":"10.1007/s10826-024-02865-4","DOIUrl":"https://doi.org/10.1007/s10826-024-02865-4","url":null,"abstract":"<p>This qualitative study aimed to explore how having a child with a functionally univentricular heart (FUH) affected mothers’ experiences of their parental role and identity. Eight mothers whose children had undergone the Fontan surgical procedure were recruited via social media. Interviews were completed using Microsoft Teams and audio-recorded, then transcribed and analysed using Interpretative Phenomenological Analysis. Four themes were identified: (1) being a “heart mum”, (2) managing competing roles: “you have to wear lots of different hats all at the same time”, with subthemes (a) promoting normality vs. protecting the child and (b) mothering vs. nursing roles, (3) loss and regaining of identity and (4) relinquishing control and letting go of caring roles. Parenting children and young people (CYP) with FUH presented significant challenges to mothers’ parental role and identity, which they managed in various ways. There are implications for health services to support mothers with their psychological wellbeing, managing nursing roles and their child’s transition to adulthood.</p>","PeriodicalId":48362,"journal":{"name":"Journal of Child and Family Studies","volume":"19 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141197947","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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