Disability & SocietyPub Date : 2022-03-05eCollection Date: 2022-01-01DOI: 10.1002/dad2.12295
Anna Dittrich, Nicholas J Ashton, Henrik Zetterberg, Kaj Blennow, Joel Simrén, Fiona Geiger, Anna Zettergren, Sara Shams, Alejandra Machado, Eric Westman, Michael Schöll, Ingmar Skoog, Silke Kern
{"title":"Plasma and CSF NfL are differentially associated with biomarker evidence of neurodegeneration in a community-based sample of 70-year-olds.","authors":"Anna Dittrich, Nicholas J Ashton, Henrik Zetterberg, Kaj Blennow, Joel Simrén, Fiona Geiger, Anna Zettergren, Sara Shams, Alejandra Machado, Eric Westman, Michael Schöll, Ingmar Skoog, Silke Kern","doi":"10.1002/dad2.12295","DOIUrl":"10.1002/dad2.12295","url":null,"abstract":"<p><p>Neurofilament light protein (NfL) in cerebrospinal fluid (CSF) and plasma (P) are suggested to be interchangeable markers of neurodegeneration. However, evidence is scarce from community-based samples. NfL was examined in a small-scale sample of 287 individuals from the Gothenburg H70 Birth cohort 1944 study, using linear models in relation to CSF and magnetic resonance imaging (MRI) biomarker evidence of neurodegeneration. CSF-NfL and P-NfL present distinct associations with biomarker evidence of Alzheimer's disease (AD) pathology and neurodegeneration. P-NfL was associated with several markers that are characteristic of AD, including smaller hippocampal volumes, amyloid beta (Aβ)<sub>42</sub>, Aβ<sub>42/40</sub>, and Aβ<sub>42</sub>/t-tau (total tau). CSF-NfL demonstrated associations with measures of synaptic and neurodegeneration, including t-tau, phosphorylated tau (p-tau), and neurogranin. Our findings suggest that P-NfL and CSF-NfL may exert different effects on markers of neurodegeneration in a small-scale community-based sample of 70-year-olds.</p>","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"28 1","pages":"e12295"},"PeriodicalIF":1.9,"publicationDate":"2022-03-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8897823/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81636445","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Ableism versus free speech in Australia: challenging online hate speech toward people with Down syndrome","authors":"Belinda Johnson, Raelene West","doi":"10.1080/09687599.2022.2041402","DOIUrl":"https://doi.org/10.1080/09687599.2022.2041402","url":null,"abstract":"Abstract Negative, ableist discourse challenging the rights of people with Down syndrome to receive support services and even to be born regularly arise on social media. This disability community has retaliated against such hate speech with resistance narratives that promote the value of people with Down syndrome, with few other recourses available. This article explores online free speech versus ableism in Australia through a major case study of 60 Minutes Australia Facebook discussions. Analysis identifies types of ableism expressed, types of harm caused and dimensions of grassroots responses. Using Timothy Garton Ash’s 2016 work Free Speech as a basis for contemporary analysis, we discuss: to what extent should harmful and offensive comments directed at vulnerable populations be tolerated in the name of free speech; might negative, ableist discourse contribute to any social good; and what mechanisms beyond grassroots resistance narratives might effectively respond to harmful, online ableist discourses. Points of interest The article looks at whether the right to free speech is more important than the harmful effects of online hate speech towards people with Down syndrome. We use the ideas in a book on Free Speech by Timothy Garton Ash to think about whether online hate speech should be allowed or silenced. Our analysis is based on a case study of Facebook discussion threads from a 60 Minutes Australia television segment. People in the disability community speaking up to create resistance narratives is the main way that online disability hate speech is challenged. Other ways that could help are laws, government agencies providing support materials, and social media rules.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"77 12","pages":"1711 - 1733"},"PeriodicalIF":2.4,"publicationDate":"2022-02-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41265399","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Women’s experiences of special observations on locked wards","authors":"R. Fish","doi":"10.1080/09687599.2022.2034112","DOIUrl":"https://doi.org/10.1080/09687599.2022.2034112","url":null,"abstract":"Abstract This article discusses ‘special observation’, a practice used in inpatient units and in mental health and learning disability services. I present some perspectives on this practice from women detained on locked wards, and staff members. Despite the many valid criticisms, I show that constant observations can be used as a way to harness engagement and to improve relationships between staff and residents.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"37 1","pages":"528 - 533"},"PeriodicalIF":2.4,"publicationDate":"2022-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46513888","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
T. Jarus, Pamela Liao, A. Battalova, Julia Tikhonova, Samarpita Das, Vera Krejcik, Y. Mayer
{"title":"Policies as barriers for disabled medical learners: exploratory study of learners’ perspectives","authors":"T. Jarus, Pamela Liao, A. Battalova, Julia Tikhonova, Samarpita Das, Vera Krejcik, Y. Mayer","doi":"10.1080/09687599.2022.2041403","DOIUrl":"https://doi.org/10.1080/09687599.2022.2041403","url":null,"abstract":"Abstract Disabled medical learners have unique accommodation needs, given their diverse and changing learning environments and direct contact with patient-care. However, there are very limited policies and resources available in Canada to inform medical learners and educators about what accommodations are available to them, and little is known about the usefulness of existing policies. This study explored the perspectives of disabled medical learners on existing policies in medical schools. We conducted interviews with eight disabled medical learners, focusing on their experiences with their institutions’ disability-related policies. Interviews were thematically analyzed. The analysis demonstrated that there are gaps in services for medical learners. Participants did not feel that pre-existing policies were helpful in addressing the existing barriers. In addition, participants felt that the responsibility for navigating the system falls primarily on them. This study addresses some needed changes to create more inclusive environments in medical education. Points of interest Disabled medical learners have unique accommodation needs. In Canada there are limited policies and resources available to inform medical learners and educators about what accommodations are available. This study focuses on what disabled medical learners think about existing policies in medical schools. Services and procedures for supporting disabled learners are complex and inconsistent. The support system and attitudinal barriers are challenging to navigate. Negative perceptions of disability in medicine are persistent. Attitudinal changes, simplified services and procedures, and an inclusive learning environment can improve the experiences of disabled medical learners.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"1 1","pages":""},"PeriodicalIF":2.4,"publicationDate":"2022-02-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47097314","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Beyond binaries: complex roles and identities in critical mental health research","authors":"E. Tseris, Scarlett Franks, Eva Bright Hart","doi":"10.1080/09687599.2022.2034111","DOIUrl":"https://doi.org/10.1080/09687599.2022.2034111","url":null,"abstract":"Abstract In this article, we discuss our experiences on a project that is exploring gendered harms experienced by women during involuntary mental health treatment. We outline our journey towards a more complex understanding of our roles in the project, by considering the aspects of our identities that are hidden when situating ourselves only in terms of survivor or non-survivor researchers. In addition, we discuss expectations that are often present in research projects for survivor researchers to publicly disclose highly personal experiences, while non-survivor researchers face no such demands, and the myth of a homogenous survivor researcher identity. We discuss how critiquing binary identities, while still acknowledging power and difference, may open up new ideas about creative and strategic approaches to challenging and resisting psy-oppression.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"37 1","pages":"718 - 723"},"PeriodicalIF":2.4,"publicationDate":"2022-02-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48781639","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Unearthing and addressing bias: understanding the connection between teacher dispositions and disproportionality","authors":"Adam Aloi, Christa S. Bialka","doi":"10.1080/09687599.2022.2041401","DOIUrl":"https://doi.org/10.1080/09687599.2022.2041401","url":null,"abstract":"Abstract Given the subjective nature of some disability diagnoses, one way to mitigate the disproportionate referral of students of color for Special Education in the United States is by unearthing teachers’ deep-seated biases regarding race and ability. Drawing on Freire’s (1970) theory of critical consciousness, we unpack the role that teacher dispositions play in upholding racism and ableism, and we offer strategies aimed to address teacher bias and ableist/racist practices. We use the Individuals with Disabilities Education Act as an example of institutional racism and ableism in the United States and consider how teacher dispositions can fuel disproportionality. Because of the importance of teacher training as an entry point into one’s career in education, we specifically focus on the teacher preparation period as a time and space where pre-service teachers (PSTs) can engage with their dispositions and offer concrete strategies that teacher educators can employ with PSTs.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"1689 - 1710"},"PeriodicalIF":2.4,"publicationDate":"2022-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44081444","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The transformative dilemma of disabled students’ participation in the NCEE: moving toward inclusion or integration?","authors":"Yuanyuan Niu, Yuying Liu","doi":"10.1080/09687599.2022.2034600","DOIUrl":"https://doi.org/10.1080/09687599.2022.2034600","url":null,"abstract":"Abstract A crucial component of the United Nations’ Conventions on the Rights of Persons with Disabilities (CRPD) is to promote ‘inclusive education’ for the disabled population. As a member of the CRPD, China has made transformative efforts to promote inclusive education for disabled students in the past decades, including policy changes in the National College Entrance Examination (NCEE). Through reviewing Chinese disabled students’ participation in the NCEE, this article concluded three historical stages – Exclusion, Specialization, and Integration –of China’s disability higher education. Although the past few decades have seen significantly increased access to higher education for disabled students due to legal, institutional, and social changes, the goal of ‘inclusive education’ is yet to come true. The NCEE Physical Examination Criteria shed light on the fundamental limitations in China’s current education system predisposed by the state’s political lens predicated upon managerialism and productivism. Considering China’s present conditions, we outline three ways of promoting disabled students’ right to higher education in reference to the CRPD.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"37 1","pages":"711 - 717"},"PeriodicalIF":2.4,"publicationDate":"2022-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47426537","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Participatory video and diagramming with disabled people in Burkina Faso","authors":"L. Bezzina","doi":"10.1080/09687599.2022.2034599","DOIUrl":"https://doi.org/10.1080/09687599.2022.2034599","url":null,"abstract":"Abstract Disability research has made vast progress since Oliver’s (1992) call for it to challenge disabled people’s oppression. In Global South contexts such as Burkina Faso–where the research on which this paper is based was facilitated by the author–participatory diagramming and video are useful in creating spaces where disabled people can be heard. Nonetheless, these voices do not necessarily represent those of all disabled people. This paper tackles critiques of participatory methods, issues of representation, as well as power and positionality concerns arising from the involvement of western, non-disabled researchers. It ‘concludes’ that while participatory research might respond to the need for ethical research methods exploring disability in Global South contexts, the importance of reflexivity and of striving towards enabling and supporting research whose agenda is set by disabled persons from the Global South, should be at the fore. Points of Interest For the most part, research on disability and the lives of disabled persons takes place in Europe, North America and other similar contexts, and does not take into account the experiences of persons with disabilities in sub-Saharan Africa. Research which involves participants as researchers themselves aims to support disabled persons in fighting against the discrimination they encounter. Such research can involve different research methods, such as disabled persons creating their own film where they can make their voices heard. Methods like these are more ethical than traditional research methods like interviews, and help make visible the lives and experiences of persons with disabilities in countries like Burkina Faso. However, such participatory methods also have their drawbacks, some of which are discussed in this paper in order to reflect on the way forward for disability research in sub-Saharan Africa.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"1511 - 1533"},"PeriodicalIF":2.4,"publicationDate":"2022-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49350546","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Disability on Arab screens: cripping class, religion, and gender in Syria, Egypt, and Lebanon","authors":"E. O’Dell","doi":"10.1080/09687599.2021.1997715","DOIUrl":"https://doi.org/10.1080/09687599.2021.1997715","url":null,"abstract":"Abstract Arab cinema has not featured many protagonists with disabilities, but over the past two decades differently abled characters have appeared on movie and television screens in the Middle East and North Africa. From feature films to Ramadan serials, characters with Hansen’s Disease, Down Syndrome, autism, visual impairments, dwarfism, and missing limbs have emerged in films and television shows from Egypt, Syria, and Lebanon. Characters with disabilities in Yomeddine (Egypt), Behind the Sun (Syria), and Tale of Amal (Lebanon) challenge disability stigma in Arab cultures and highlight the toll of caregiving. While these portrayals, which all incorporate religious interpretations of disability and feature poor characters living on the margins, attempt to correct the absence of disability representations and discourse in Arab societies, they fall into familiar tropes of disability objectification by employing the ‘prosthetic’ of a disability narrative to explore other marginalized social issues like abortion, gender, race, and religious differences. Points of interest There is hardly any research on how disability is portrayed in film and television in Syria, Egypt, and Lebanon The research sheds important light on how disability and poverty intersect in Arab popular culture This paper discusses how religion (Islam in particular) is used to understand, interpret, and manage disability in Arab societies This research shows how Arab filmmakers are using film and television to advocate for more awareness and compassion for people with disabilities in Arab societies. This paper covers taboo subjects related to disability such as abortion, religious minorities, sexuality, and gender marginalization","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"1410 - 1434"},"PeriodicalIF":2.4,"publicationDate":"2022-02-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49204501","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}