Disability & Society最新文献_第8页

IF 2.4 2区社会学

Disability & Society Pub Date : 2022-06-21 DOI: 10.1080/09687599.2022.2088104

引用次数: 0

Progress on deinstitutionalisation and the development of community living for persons with disabilities in Europe: Are we nearly there? 欧洲残疾人去机构化和社区生活发展的进展:我们快到了吗?

IF 2.4 2区社会学

Disability & Society Pub Date : 2022-05-30 DOI: 10.1080/09687599.2022.2071676

Jan Šiška, J. Beadle‐Brown

{"title":"Progress on deinstitutionalisation and the development of community living for persons with disabilities in Europe: Are we nearly there?","authors":"Jan Šiška, J. Beadle‐Brown","doi":"10.1080/09687599.2022.2071676","DOIUrl":"https://doi.org/10.1080/09687599.2022.2071676","url":null,"abstract":"Abstract Following the publication of the UN Convention on the Rights of Persons with a Disability, the rights and situation of people with disabilities have once again become a focus of national, European and international policy and advocacy. Mansell et al., (2007) identified that there were over 1million people with disabilities in Europe living in institutions of over 30 places in size and almost 1.4 million in some form of residential care. This paper reports findings from a review of national and international sources of data on living situation for 27 European countries as of 2019. Although there had been some changes, especially for children and especially in countries where EU structural funds had been used, there were still 1.4 million people living in residential care, with many still for more than 30 people. People with intellectual and developmental disabilities were those who were most likely to still be in residential services. We consider some of the potential reasons for these findings and discuss what might be needed to really advance deinstitutionalisation. Point of interest People with disabilities have the same rights as everyone else to live in the community. This paper looks at where people with disabilities live and how this has changed over time. We found that many people with disabilities still live in institutions and that the number had not changed much since 2007. There have been more changes for children than adults. Fewer children now live in institutions. People with intellectual disabilities are most likely to still live in institutions and least likely to be living and participating in the community. Many countries in Europe still do not have good information about where people with disabilities live and whether they have choice and control or are active citizens. There was more change in countries which had received money from the European Union. However, in many countries, there were no plans for how to help more people to live in the community.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"38 1","pages":"1476 - 1495"},"PeriodicalIF":2.4,"publicationDate":"2022-05-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46733122","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 5

Announcement of doctoral theses 博士论文公告

IF 2.4 2区社会学

Disability & Society Pub Date : 2022-05-28 DOI: 10.1080/09687599.2022.2072586

引用次数: 0

‘… they had interpreted “disability” as referring to a patently visible disability’: experience of a patient group with NICE “……他们把‘残疾’解释为明显可见的残疾:NICE患者群体的经历。

IF 2.4 2区社会学

Disability & Society Pub Date : 2022-05-04 DOI: 10.1080/09687599.2022.2060804

J. Barman-Aksözen, F. Granata, M. Aksözen, Cornelia Dechant, R. Falchetto

{"title":"‘… they had interpreted “disability” as referring to a patently visible disability’: experience of a patient group with NICE","authors":"J. Barman-Aksözen, F. Granata, M. Aksözen, Cornelia Dechant, R. Falchetto","doi":"10.1080/09687599.2022.2060804","DOIUrl":"https://doi.org/10.1080/09687599.2022.2060804","url":null,"abstract":"Abstract Erythropoietic protoporphyria (EPP) is an ultra-rare genetic disorder characterised by intolerance to visible light. Starting in early childhood, people with EPP suffer from social isolation, impaired educational and occupational opportunities, and low quality of life. Afamelanotide is the only effective and approved therapy for EPP. In England, its cost-effectiveness is currently assessed by the National Institute for Health and Care Excellence (NICE), which in 2018 issued a negative recommendation for funding. Stakeholder organisations, including our patient organisation, submitted appeals against the recommendation, which were upheld in all possible grounds. Moreover, the appeal panel expressed concerns about whether the evaluating committee discriminated against people with EPP and suggested that it seek guidance regarding the Equality Act 2010. However, three years later, the identified issues have not been addressed and patients in England remain without treatment. Afamelanotide represents another example for the trend towards a loss of fairness in NICE decisions.","PeriodicalId":48208,"journal":{"name":"Disability & Society","volume":"37 1","pages":"1239 - 1245"},"PeriodicalIF":2.4,"publicationDate":"2022-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42974803","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Poverty alleviation for people with disabilities in China: policy, practice, exclusionary effects, and ways forward 中国残疾人扶贫：政策、实践、排斥效应和前进道路

IF 2.4 2区社会学

Disability & Society Pub Date : 2022-04-25 DOI: 10.1080/09687599.2022.2065464

Yuan Wang, C. Qi, Yu-hong Zhu

引用次数: 4

Volunteering and the response to COVID-19 in the UK 英国的志愿服务和应对COVID-19

IF 2.4 2区社会学

Disability & Society Pub Date : 2022-04-24 DOI: 10.1080/09687599.2022.2067469

R. Fish, R. Hibbin, Cheryl Simmill-Binning

引用次数: 1

Livestreaming: exploring the obstacles and possibilities of digital usage for people with disabilities 直播：探索残疾人数字使用的障碍和可能性