Biosocieties最新文献_第5页

Chemical species: the art and politics of living with(out) drugs after addiction. 化学物种:成瘾后与毒品共存的艺术和政治

IF 1.6 4区医学

Biosocieties Pub Date : 2023-01-01 Epub Date: 2022-09-27 DOI: 10.1057/s41292-022-00281-9

Fay Dennis

{"title":"Chemical species: the art and politics of living with(out) drugs after addiction.","authors":"Fay Dennis","doi":"10.1057/s41292-022-00281-9","DOIUrl":"10.1057/s41292-022-00281-9","url":null,"abstract":"We live within and are made up of ever-changing chemical flows. Witnessing a \"chemical turn\" in the social sciences, this article asks what a chemical reading of drugs and bodies can offer an understanding of drug dependency and recovery. Where chemicals render bodies \"molecular\" (Deleuze and Guattari, 1987), they open them up to more intimate forms of connection that extend our understanding of drug-body relationships beyond limiting categories such as addiction. Rather than a chemical drug entering a biological body, there are chemical interactions that expand the boundaries of where one ends and the other begins. While chemicals have long been a preoccupation in neurological models of addiction, they are seldom taken up in sociological studies of these concerns. Drawing on a series of body-mapping workshops with people in drug recovery/treatment in London, UK, to track these chemical bodies, this article explores the art of living a chemically transformed life. This is an art that thinks with Isabelle Stengers' (in Stengers and Savransky, 2018) notion of the word to include \"not paying attention\" as a mode of \"paying attention to what may lurk\" in living with the ongoing effects of drugs in unequally entangled worlds.","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"18 1","pages":"545-566"},"PeriodicalIF":1.6,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11116112/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45969226","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reprowebs: a conceptual approach to elasticity and change in the global assisted reproduction industry. Reprowebs: a conceptual approach to elasticity and change in the global assisted reproduction industry.

IF 1.3 4区医学

Biosocieties Pub Date : 2023-01-01 Epub Date: 2021-10-09 DOI: 10.1057/s41292-021-00260-6

Anika König, Heather Jacobson

引用次数: 0

Entrepreneurial treatment activism for undone science: mannitol and Parkinson's disease. 未完成科学的创业治疗行动主义:甘露醇和帕金森病。

IF 1.6 4区医学

Biosocieties Pub Date : 2023-01-01 DOI: 10.1057/s41292-021-00258-0

Shlomo Guzmen-Carmeli, David A Rier

{"title":"Entrepreneurial treatment activism for undone science: mannitol and Parkinson's disease.","authors":"Shlomo Guzmen-Carmeli, David A Rier","doi":"10.1057/s41292-021-00258-0","DOIUrl":"https://doi.org/10.1057/s41292-021-00258-0","url":null,"abstract":"This paper describes CliniCrowd, a patient-designed, entrepreneurial, crowd-sourced citizen-science approach to evaluating mannitol-essentially, an orphan drug-as a Parkinson's disease treatment. As such, CliniCrowd addresses 'undone science', and our paper contributes to the sociological literature thereon. Based on 38 qualitative interviews, fieldwork, and content analyses (2017-2020), we trace CliniCrowd's background and rationale. We: discuss undone science and its wider contexts; present earlier iterations of citizen-science and treatment activism; examine CliniCrowd's application of crowd-sourced citizen-science to address undone science around 'orphan drug' treatment for Parkinson's disease; explore how CliniCrowd has evolved, and re-framed its work, since its founding; ponder its future; and consider whether their approach can guide future citizen-science treatment research. Our paper contributes to the existing literature in four ways. First, we focus on medical treatment issues, an under-studied area of undone science. Second, we highlight orphan drugs as both major source of, and fruitful area for research on, undone science. Third, we describe CliniCrowd's pragmatic, entrepreneurial-rather than the more common activist-citizen-science approach to addressing undone treatment science. Finally, from our data on CliniCrowd we distil a preliminary model for future treatment activism around undone science.","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"18 1","pages":"128-155"},"PeriodicalIF":1.6,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8536910/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9157741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

The life and death of confidentiality: a historical analysis of the flows of patient information. 保密的生与死：对患者信息流的历史分析。

IF 1.6 4区医学

Biosocieties Pub Date : 2023-01-01 Epub Date: 2022-01-29 DOI: 10.1057/s41292-021-00269-x

Sarah Wadmann, Mette Hartlev, Klaus Hoeyer

{"title":"The life and death of confidentiality: a historical analysis of the flows of patient information.","authors":"Sarah Wadmann, Mette Hartlev, Klaus Hoeyer","doi":"10.1057/s41292-021-00269-x","DOIUrl":"10.1057/s41292-021-00269-x","url":null,"abstract":"Health data can contain sensitive information. People who consult a doctor seek help on issues that matter to them: they typically expect some form of confidentiality. However, the notion and practices of confidentiality have changed dramatically over time. In this article, we trace the history of confidentiality in the Danish healthcare system, which has one of the world's most integrated patient information infrastructures. Building on an analysis of legal and political documents dating back to the late seventeenth century, we show that confidentiality originated as a social phenomenon that helped build trust in healthcare professionals and gradually developed into an idiom of citizens rights. Lately, confidentiality has given way to more technocratic forms of data protection. As the political, legal and technological reality, which the idea of confidentiality once referred to, has radically changed, we argue that confidentiality has become what Ulrik Beck has called a 'zombie category'-a notion that lives on even if its content has passed away. If confidentiality has become a zombie concept, we suggest it is time to discuss what may take its place so that patient interests are protected in the current political economy of health data.","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"18 2","pages":"282-307"},"PeriodicalIF":1.6,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8799987/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9508091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

“It gives me time, but does it give me freedom?”: a contextual understanding of anticipatory decision-making in social egg freezing “这给了我时间，但它给了我自由吗？”：对社会卵子冷冻中预期决策的语境理解

IF 1.6 4区医学

Biosocieties Pub Date : 2022-12-31 DOI: 10.1057/s41292-022-00297-1

M. De Proost, G. Coene

引用次数: 0

Epistemology of the side effect: anecdote and evidence in the digital age 副作用的认识论:数字时代的轶事和证据

IF 1.6 4区医学

Biosocieties Pub Date : 2022-12-22 DOI: 10.1057/s41292-022-00293-5

A. Lentacker

引用次数: 0

The normal is pathological: semi-conscious brains, mindless habits, and the paradoxical science of mindfulness 正常是病态的：半意识的大脑、无意识的习惯和自相矛盾的正念科学

IF 1.6 4区医学

Biosocieties Pub Date : 2022-12-19 DOI: 10.1057/s41292-022-00292-6

Nedim Karakayali

引用次数: 0

Psychedelic innovations and the crisis of psychopharmacology 迷幻药创新与精神药理学危机

IF 1.6 4区医学

Biosocieties Pub Date : 2022-12-15 DOI: 10.1057/s41292-022-00294-4

N. Langlitz

引用次数: 3

“Black race”, “Schwarze Hautfarbe”, “Origine africaine”, or “Etnia nera”? The absent presence of race in European pharmaceutical regulation “黑人种族”、“Schwarze Hautfarbe”、“起源非洲”或“Etnia nera”？欧洲药品监管中不存在种族问题

IF 1.6 4区医学

Biosocieties Pub Date : 2022-12-14 DOI: 10.1057/s41292-022-00291-7

S. Mulinari, Anna Bredström

引用次数: 1

"The elephant in the room": social responsibility in the production of sociogenomics research. "房间里的大象"：社会基因组学研究成果中的社会责任。

IF 1.3 4区医学

Biosocieties Pub Date : 2022-12-01 Epub Date: 2021-07-03 DOI: 10.1057/s41292-021-00239-3

Daphne Oluwaseun Martschenko

{"title":"\"The elephant in the room\": social responsibility in the production of sociogenomics research.","authors":"Daphne Oluwaseun Martschenko","doi":"10.1057/s41292-021-00239-3","DOIUrl":"10.1057/s41292-021-00239-3","url":null,"abstract":"Sociogenomics examines the extent to which genetic differences between individuals relate to differences in social and economic behaviors and outcomes. The field evokes mixed reactions. For some, sociogenomics runs the risk of normalizing eugenic attitudes and legitimizing social inequalities. For others, sociogenomics brings the promise of more robust and nuanced understandings of human behavior. Regardless, a history of misuse and misapplication of genetics raises important questions about researchers' social responsibilities. This paper draws on semi-structured interviews with sociogenomics researchers who investigate intelligence and educational attainment. It does so to understand how researcher's motivations for engaging in a historically burdened field connect to their views on social responsibility and the challenges that come with it. In interviews, researchers highlighted the trade-off between engaging in socially contested research and the potential benefits their work poses to the social sciences and clinical research. They also highlighted the dilemmas of engaging with the public, including the existence of multiple publics. Finally, researchers elucidated uncertainties over what social responsibility is in practice and whether protecting against the misuse and misinterpretation of their research is wholly possible. This paper concludes by offering ways to address some of the challenges of social responsibility in the production of knowledge.","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"17 4","pages":"713-731"},"PeriodicalIF":1.3,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9754080/pdf/nihms-1775552.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10400989","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0