Biosocieties最新文献_第6页

Indentured clinical labor? An indigenist standpoint view of ‘forced surrogacy’ and reproductive governance in India 契约临床分娩？印度“强迫代孕”与生殖治理的本土主义观点

IF 1.6 4区医学

Biosocieties Pub Date : 2022-10-19 DOI: 10.1057/s41292-022-00284-6

Sanghamitra Das

引用次数: 0

Agri-food tech’s building block: narrating protein, agnostic of source, in the face of crisis 农业食品技术的基石:叙述蛋白质，来源不可知论，面对危机

IF 1.6 4区医学

Biosocieties Pub Date : 2022-10-19 DOI: 10.1057/s41292-022-00287-3

J. Guthman, Charlotte Biltekoff

引用次数: 2

Epigenetic citizenship and political claims-making: the ethics of molecularizing structural racism. 表观遗传公民权与政治诉求：结构性种族主义分子化的伦理。

IF 1.3 4区医学

Biosocieties Pub Date : 2022-10-19 DOI: 10.1057/s41292-022-00286-4

Jessica P Cerdeña

引用次数: 0

The emergence of multimorbidity as a matter of concern: a critical review 多发性疾病的出现是一个值得关注的问题：一项批判性的综述

IF 1.6 4区医学

Biosocieties Pub Date : 2022-09-24 DOI: 10.1057/s41292-022-00285-5

Esca van Blarikom, N. Fudge, D. Swinglehurst

引用次数: 5

Core values of genomic citizen science: results from a qualitative interview study. 基因组公民科学的核心价值:一项定性访谈研究的结果。

IF 1.6 4区医学

Biosocieties Pub Date : 2022-06-01 DOI: 10.1057/s41292-020-00208-2

Christi J Guerrini, Meredith Trejo, Isabel Canfield, Amy L McGuire

引用次数: 10

Device activism and material participation in healthcare: retracing forms of engagement in the #WeAreNotWaiting movement for open-source closed-loop systems in type 1 diabetes self-care. 医疗保健中的设备行动主义和物质参与：追溯 1 型糖尿病自我护理开源闭环系统 #WeAreNotWaiting 运动中的参与形式。

IF 1.6 4区医学

Biosocieties Pub Date : 2022-04-22 DOI: 10.1057/s41292-022-00278-4

Bianca Jansky, Henriette Langstrup

{"title":"Device activism and material participation in healthcare: retracing forms of engagement in the #WeAreNotWaiting movement for open-source closed-loop systems in type 1 diabetes self-care.","authors":"Bianca Jansky, Henriette Langstrup","doi":"10.1057/s41292-022-00278-4","DOIUrl":"10.1057/s41292-022-00278-4","url":null,"abstract":"The #WeAreNotWaiting movement is a global digital health phenomenon in which people with diabetes, mainly type 1 diabetes (T1D), engage in the development and usage of open-source closed-loop technology for the improvement of their \"chronic living\" (Wahlberg et al. 2021). The characteristics of a digitally enabled and technologically engaged global activist patient collective feed into existing narratives of user-led and open-source innovation. They also call for more exploration of what it actually means to be locally involved in this kind of technologically mediated and global form of patient engagement. Building on empirical research conducted in the German healthcare context, we explore the different forms of material participation encountered among a group of people with T1D (who describe themselves as loopers), who are engaged in the development and usage of this open-source technology. Introducing the concept of device activism, we retrace three different device-centered narratives that show how a globally shared concern and political participation through technology use varies with local practices. Hereby we stress that the engagement in the #WeAreNotWaiting movement is both shaped by and is shaping the matters of concerns: devices in, on, and with bodies.","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":" ","pages":"1-25"},"PeriodicalIF":1.6,"publicationDate":"2022-04-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9024066/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10621514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Correction to: The other face of medical globalization? Pharmaceutical data, prescribing trends, and the social localization of psychostimulants 更正：医疗全球化的另一面？药物数据、处方趋势和精神刺激药物的社会定位

IF 1.6 4区医学

Biosocieties Pub Date : 2022-04-16 DOI: 10.1057/s41292-022-00280-w

A. Filipe

引用次数: 0

Value-creation in the health data domain: a typology of what health data help us do. 健康数据领域的价值创造:健康数据帮助我们做什么的类型学

IF 1.6 4区医学

Biosocieties Pub Date : 2022-04-12 DOI: 10.1057/s41292-022-00276-6

Amelia Fiske, Alexander Degelsegger-Márquez, Brigitte Marsteurer, Barbara Prainsack

{"title":"Value-creation in the health data domain: a typology of what health data help us do.","authors":"Amelia Fiske, Alexander Degelsegger-Márquez, Brigitte Marsteurer, Barbara Prainsack","doi":"10.1057/s41292-022-00276-6","DOIUrl":"10.1057/s41292-022-00276-6","url":null,"abstract":"It has become a trope to speak of the increasing value of health data in our societies. Such rhetoric is highly performative: it creates expectations, channels and justifies investments in data technologies and infrastructures, and portrays deliberations on political and legal issues as obstacles to the flow of data. Yet, important epistemic and political questions remain unexamined, such as how the value of data is created, what data journeys are envisioned by policies and regulation, and for whom data types are (intended to be) valuable. Drawing on two empirical cases, (a) interviews with physicians on the topic of digital selfcare, and (b) expectations of stakeholders on the use of Real-World Data in clinical trials, as well as existing literature, we propose a typology of what health data help us to do. This typology is intended to foster reflection about the different roles and values that data use unfolds. We conclude by discussing how regulation can better accommodate practices of valuation in the health data domain, with a particular focus on identifying regulatory challenges and opportunities for EU-level policy makers, and how Covid-19 has shed light on new aspects of each case.","PeriodicalId":46976,"journal":{"name":"Biosocieties","volume":"1 1","pages":"1-25"},"PeriodicalIF":1.6,"publicationDate":"2022-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9002030/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45130289","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Ectogenesis, inequality, and coercion: a reproductive justice-informed analysis of the impact of artificial wombs 胚胎发育、不平等和胁迫：人工子宫影响的生殖正义分析

IF 1.6 4区医学

Biosocieties Pub Date : 2022-04-10 DOI: 10.1057/s41292-022-00279-3

C. Horn

引用次数: 2

Diversity via datafication? Digital patient records and citizenship for sexuality and gender diverse people 通过数据化实现多样性？性和性别多样化人群的数字患者记录和公民身份

IF 1.6 4区医学

Biosocieties Pub Date : 2022-04-05 DOI: 10.1057/s41292-022-00277-5

M. Davis, A. Schermuly, Anthony K. J. Smith, Christy E. Newman

引用次数: 3