Journal of Disability Policy Studies最新文献

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Mapping of Financial Support Programs for Children With Neurodisabilities Across Canada: Barriers and Discrepancies Within a Patchwork System 加拿大全国神经残疾儿童财政支持计划的映射:补丁系统中的障碍和差异
IF 1.6 4区 医学
Journal of Disability Policy Studies Pub Date : 2022-01-05 DOI: 10.1177/10442073211066776
Caitlin Salvino, Connor Spencer, A. Filipe, L. Lach
{"title":"Mapping of Financial Support Programs for Children With Neurodisabilities Across Canada: Barriers and Discrepancies Within a Patchwork System","authors":"Caitlin Salvino, Connor Spencer, A. Filipe, L. Lach","doi":"10.1177/10442073211066776","DOIUrl":"https://doi.org/10.1177/10442073211066776","url":null,"abstract":"A cross-jurisdictional pan-Canadian environmental scan was conducted to identify provincial, territorial, and federal financial supports available to families with children living with neurodisabilities. In partnership with the organization Childhood Disability LINK, flowchart-styled pathway documents were developed for each financial support identified, mapping out the processes required to access each support. A critical analysis was completed as it relates to structural barriers, accessibility of program information, and geographic discrepancies. The results revealed that, despite almost universal availability of programs to support families of children living with neurodisabilities, significant barriers and inequity remain. This included considerable variation in access to financial support based on geographic and jurisdictional discrepancies, absence of adequate and accurate information about programs, and minimal support provided to families in the application process. We argue that the barriers and discrepancies identified were an inherent result of the Canadian federalist fragmentation of the delivery of social care and financial support programs for children living with neurodisabilities. A more unified response by Canadian provincial, territorial, and federal governments is clearly needed to take positive steps to address the consequences of federalist fragmentation and respond to the structural barriers and geographic discrepancies identified by this study.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":"33 1","pages":"168 - 177"},"PeriodicalIF":1.6,"publicationDate":"2022-01-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46940771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
Leadership as an Implementation Driver: Identifying Best Practices to Support Organizational Change 作为实施驱动者的领导力:识别支持组织变革的最佳实践
IF 1.6 4区 医学
Journal of Disability Policy Studies Pub Date : 2021-12-29 DOI: 10.1177/10442073211066793
Stephanie Lancet, L. McKittrick, Lauren Morando Rhim
{"title":"Leadership as an Implementation Driver: Identifying Best Practices to Support Organizational Change","authors":"Stephanie Lancet, L. McKittrick, Lauren Morando Rhim","doi":"10.1177/10442073211066793","DOIUrl":"https://doi.org/10.1177/10442073211066793","url":null,"abstract":"This article explores implementation science with a focus on the strategies leaders use to address organizational challenges. Using part of a larger study, we employed a qualitative multiple case study design of 20 charter schools to contribute to an evidence base about how leadership at the charter school and charter management organization levels can influence their school communities regarding commitment to students with disabilities. From our exploratory research, key themes emerged that align with effective leadership strategies for implementation, demonstrating the positive influence of leaders who prioritize students with disabilities by maintaining a clear vision and strong sense of purpose, creating a safe environment where diversity of perspectives is encouraged, and making sure all voices are heard and valued. Public schools across the nation can leverage lessons learned from the charter sector, as leaders work to ensure that their school practices and policies support success for students with disabilities. By ensuring that school leaders are trained and supported to use effective leadership strategies, policymakers, and schools of higher education can influence the adoption and advancement of innovative and effective practices.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":"34 1","pages":"115 - 126"},"PeriodicalIF":1.6,"publicationDate":"2021-12-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43465270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Reforming Teacher and Leader Preparation to Improve Instruction and Schooling for Students With Disabilities: The CEEDAR Way 改革教师和领导准备以改善残疾学生的教学和学校教育:CEEDAR方法
IF 1.6 4区 医学
Journal of Disability Policy Studies Pub Date : 2021-12-29 DOI: 10.1177/10442073211066794
Mary T. Brownell, L. Holdheide, Laura Kuchle, Margaret Kamman, L. Perkinson
{"title":"Reforming Teacher and Leader Preparation to Improve Instruction and Schooling for Students With Disabilities: The CEEDAR Way","authors":"Mary T. Brownell, L. Holdheide, Laura Kuchle, Margaret Kamman, L. Perkinson","doi":"10.1177/10442073211066794","DOIUrl":"https://doi.org/10.1177/10442073211066794","url":null,"abstract":"Effective preparation systems are critical for preparing teachers and school leaders who have the knowledge and skills to educate students with disabilities to achieve college and career ready standards. These systems must provide teachers and leaders with effective practice-based opportunities to learn about evidence-based and high-leverage practices in their initial preparation and throughout their careers. Creating such systems, however, depends on comprehensive systems change in which aligned research-based policy and preparation/induction practices are implemented in higher education and k-12 schools. This article describes the ingredients of effective systems change, and how the CEEDAR Center Technical Assistance approach is informed by implementation drivers, as articulated by the U.S. National Implementation Research Network. The outcomes achieved by the center thus far are also articulated as are challenges encountered.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":"34 1","pages":"149 - 161"},"PeriodicalIF":1.6,"publicationDate":"2021-12-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48219711","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
From Substitute to Supported Decision-Making: Participatory Action Research on the Convention on the Rights of Persons With Disabilities 从替代决策到辅助决策:《残疾人权利公约》参与式行动研究
IF 1.6 4区 医学
Journal of Disability Policy Studies Pub Date : 2021-10-28 DOI: 10.1177/10442073211055478
B. Eyraud, I. Taran
{"title":"From Substitute to Supported Decision-Making: Participatory Action Research on the Convention on the Rights of Persons With Disabilities","authors":"B. Eyraud, I. Taran","doi":"10.1177/10442073211055478","DOIUrl":"https://doi.org/10.1177/10442073211055478","url":null,"abstract":"In this article, we present findings from a participatory action-research program in France on the exercise of human rights and supported and substitute decision-making, inspired by the United Nations Convention on the Rights of Persons with Disabilities (“CRPD”). Bringing together persons with the lived experience of disability; academics; and health, social care, and support professionals, the project used the method of “experience-based construction of public problem” to transform experience into collective expertise. This enabled the exploration of support that people in vulnerable situations, whose capacity to exercise their human rights has weakened, need to make decisions in their lives and participate meaningfully in public debate. The relationship between the awareness of rights and exercise of rights is discussed. We argue for the need to balance out the positions of different contributors in participatory action research, in a reasoned manner, by recognizing the scientific and citizen-based participation of all partners.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":"34 1","pages":"39 - 48"},"PeriodicalIF":1.6,"publicationDate":"2021-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42408738","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
“So Glad to Be Home”: Experiences of Money Follows the Person Participants After Transitioning Out of an Institution “很高兴回家”:从机构转型后,参与者的金钱体验随之而来
IF 1.6 4区 医学
Journal of Disability Policy Studies Pub Date : 2021-09-14 DOI: 10.1177/10442073211043519
Kathy Kellett, K. Ligus, J. Robison
{"title":"“So Glad to Be Home”: Experiences of Money Follows the Person Participants After Transitioning Out of an Institution","authors":"Kathy Kellett, K. Ligus, J. Robison","doi":"10.1177/10442073211043519","DOIUrl":"https://doi.org/10.1177/10442073211043519","url":null,"abstract":"This study examined qualitative data from participants who transitioned from institutional to community living through the Money Follows the Person (MFP) Rebalancing Demonstration in Connecticut. As part of the MFP quality of life survey, 1,566 participants provided qualitative feedback about their experiences at 6-, 12-, and 24-month time points after transition. Maslow’s Hierarchy of Needs serves as a thematic framework to analyze the data. In their open-ended comments, many participants underscored the efficacy of the program and offered constructive feedback; some people also reported barriers and challenges to community living. While MFP participants generally report high satisfaction with the program, both in Connecticut and nationally, some participants identified areas of unmet need, including housing, transportation, and workforce issues. Findings have the potential to expand stakeholders’ understanding of participants’ needs and facilitate policies to improve services and supports for older adults and people living with disabilities who return to community living following institutionalization.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":"33 1","pages":"122 - 132"},"PeriodicalIF":1.6,"publicationDate":"2021-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43299124","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Extra Costs Associated With Living With a Disability in the United States 美国残疾人生活的额外费用
IF 1.6 4区 医学
Journal of Disability Policy Studies Pub Date : 2021-09-09 DOI: 10.1177/10442073211043521
Zachary A. Morris, S. McGarity, Nan Goodman, A. Zaidi
{"title":"The Extra Costs Associated With Living With a Disability in the United States","authors":"Zachary A. Morris, S. McGarity, Nan Goodman, A. Zaidi","doi":"10.1177/10442073211043521","DOIUrl":"https://doi.org/10.1177/10442073211043521","url":null,"abstract":"People with disabilities encounter many financial expenses that those without disabilities do not incur. In this article, we provide estimates of the extra costs associated with living with a disability in the United States. Drawing on four nationally representative surveys, we estimate that a household containing an adult with a work disability requires, on average, 29% more income (or an additional $18,322 a year for a household at the median income level) to obtain the same standard of living as a comparable household without a member with a disability. Single adults with disabilities are estimated to have higher costs than those with disabilities who are married, and adults with cognitive impairments are estimated to have higher costs compared to those with other kinds of impairments. We further calculate the federal poverty rate for households that include adults with disabilities adjusted for the direct additional costs of disability. The rate rises from 24% to 35% after adjusting for the extra costs of disability, which would result in an estimated 2.2 million more people with disabilities counted as poor. This suggests that the official poverty measure in the United States substantially underestimates the degree of deprivation experienced by people with disabilities.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":"33 1","pages":"158 - 167"},"PeriodicalIF":1.6,"publicationDate":"2021-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41792189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 16
Rethinking Management Information Systems for Scaling up Employment Outcomes 重新思考管理信息系统扩大就业成果
IF 1.6 4区 医学
Journal of Disability Policy Studies Pub Date : 2021-09-06 DOI: 10.1177/10442073211043518
A. Migliore, J. Butterworth, Kelly M. Nye-Lengerman
{"title":"Rethinking Management Information Systems for Scaling up Employment Outcomes","authors":"A. Migliore, J. Butterworth, Kelly M. Nye-Lengerman","doi":"10.1177/10442073211043518","DOIUrl":"https://doi.org/10.1177/10442073211043518","url":null,"abstract":"People with intellectual disability, autism, and other developmental disabilities have successfully demonstrated their ability to work in the general labor market. Yet, their employment rate remains substantially lower compared with the general population without disabilities. Scaling up the employment outcomes of this population requires improving the effectiveness and efficiency of employment support systems. To this end, this article recommends supporting employment providers rethink how they use their management information systems (MIS): from primary tools that automate billing and compliance to tools that track metrics for continuous quality improvement. As federal and state funding policies are the main factors shaping how MIS are currently used, this article recommends that federal and state policy guidelines be issued that enable employment providers to leverage their MIS to improve effectiveness and efficiency, and thus scale up employment outcomes of job seekers.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":"33 1","pages":"133 - 142"},"PeriodicalIF":1.6,"publicationDate":"2021-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47964218","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Estimating the Impact of Design Standards on the Rigor of a Subset of Single-Case Research 估计设计标准对单案例研究子集的正确性的影响
IF 1.6 4区 医学
Journal of Disability Policy Studies Pub Date : 2021-09-01 DOI: 10.1177/1044207320934048
Collin Shepley, Kathleen N. Zimmerman, K. Ayres
{"title":"Estimating the Impact of Design Standards on the Rigor of a Subset of Single-Case Research","authors":"Collin Shepley, Kathleen N. Zimmerman, K. Ayres","doi":"10.1177/1044207320934048","DOIUrl":"https://doi.org/10.1177/1044207320934048","url":null,"abstract":"The implementation of research-based practices by teachers in public school classrooms is required under federal law as expressed in the Individuals With Disabilities Education Improvement Act of 2004. To aid teachers in identifying such practices, researchers conduct systematic reviews of the educational literature. Although recent attention has been given to changes in the quality of these reviews, there has been minimal discussion about changes in the quality of the studies that comprise them. Specifically, to what extent have educational policies leading to the creation of experimental design standards resulted in a change in the rigor of educational research? Using a subset of the single-case literature commonly published in special education journals, we estimate the impact of What Works Clearinghouse single-case design standards on the trend in the rigor of single-case studies using a comparative interrupted time series framework. Within this subset of single-case studies, our estimation strategy did not detect a change in the trend of the rigor of single-case research following the establishment of What Works Clearinghouse single-case design standards. Implications are discussed for practitioners and researchers.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":"32 1","pages":"108 - 118"},"PeriodicalIF":1.6,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1044207320934048","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45315716","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 6
Litigation on Accommodating Teachers With Disabilities 安置残疾教师诉讼
IF 1.6 4区 医学
Journal of Disability Policy Studies Pub Date : 2021-08-18 DOI: 10.1177/10442073211036899
Paula E. Chan, Alexandria Hakala, Antonis Katsiyannis, Jennifer Counts, Alex Carlson
{"title":"Litigation on Accommodating Teachers With Disabilities","authors":"Paula E. Chan, Alexandria Hakala, Antonis Katsiyannis, Jennifer Counts, Alex Carlson","doi":"10.1177/10442073211036899","DOIUrl":"https://doi.org/10.1177/10442073211036899","url":null,"abstract":"Qualified employees with disabilities are entitled to reasonable accommodations under Title I of the Americans with Disabilities Act. The demanding nature of the teaching profession presents a particularly challenging context for accommodations; therefore, the purpose of this study was to examine litigation on accommodating teachers with disabilities. Authors searched Lexis+ to identify case law on accommodations claims by teachers with disabilities. Results indicated plaintiffs were primarily female. Depression represented the most common disability, followed by respiratory issues and post-traumatic stress disorders. Accommodation claims were adjudicated under the broad categories of failure to meet the essential functions of the position, failure to engage in the interactive process, and undue hardship. Implications for research and practice are also discussed.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":"33 1","pages":"112 - 121"},"PeriodicalIF":1.6,"publicationDate":"2021-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47266087","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
On the Importance of the Americans With Disabilities Act at 30 论30岁时《美国残疾人法案》的重要性
IF 1.6 4区 医学
Journal of Disability Policy Studies Pub Date : 2021-08-11 DOI: 10.1177/10442073211036900
P. Blanck
{"title":"On the Importance of the Americans With Disabilities Act at 30","authors":"P. Blanck","doi":"10.1177/10442073211036900","DOIUrl":"https://doi.org/10.1177/10442073211036900","url":null,"abstract":"This article offers a glimpse of the Americans with Disabilities Act (“ADA”) of 1990, as amended by the ADA Amendments Act of 2008 (“ADAAA”), at its 30th anniversary. It considers current issues before the courts, primarily legal cases from 2020 and 2021, and new questions in light of the COVID-19 pandemic, such the latitude of the ADA’s antidiscrimination protections and its definition of disability. It provides a quick primer on the basics of the ADA: employment discrimination under Title I, antidiscrimination mandates for state and local governments under Title II, and commands to places of accommodation offering services to the public under Title III. The ADA at 30 remains a beacon for a future in which all people, regardless of individual difference, will be welcomed as full and equal members of society.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2021-08-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45519977","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 6
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