Journal of Social Work in End-of-Life & Palliative Care最新文献

{"title":"A Palliative Care Social Worker's Reflection on Visiting Restrictions During the COVID-19 Pandemic.","authors":"Emma Rathjen","doi":"10.1080/15524256.2022.2105473","DOIUrl":"https://doi.org/10.1080/15524256.2022.2105473","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 4","pages":"296-297"},"PeriodicalIF":1.6,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10476351","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Searching for the 'Aha Moments': Healthcare Social Workers' Experiences of Hope and Meaning-Making during COVID-19.","authors":"Jennifer Currin-McCulloch,&nbsp;Juliana Borrego,&nbsp;Shivani Kaushik,&nbsp;Qi Chen,&nbsp;Barbara Jones","doi":"10.1080/15524256.2022.2139337","DOIUrl":"https://doi.org/10.1080/15524256.2022.2139337","url":null,"abstract":"<p><p>While serving as the leading mental health providers in healthcare systems during COVID-19, social workers have faced numerous career-defining moments, both negative and positive; however, limited research highlights how healthcare social workers process these pivotal professional and personal encounters to find hope and meaning. The purpose of this study was to gather a deeper understanding of how healthcare social workers navigated oppressive healthcare systems, social injustice, and their personal and professional caregiving roles to sustain hope, meaning, and purpose during COVID-19. Participants were recruited through healthcare social work professional organizations from October to December 2020. Participants (<i>N</i> = 54) completed an individual interview over Zoom or telephone. The study incorporated feminist phenomenology to understand how the predominantly female (96%) sample sustained hope amidst institutional, societal, and personal despair. Five themes emerged from social workers' responses: <i>withstanding existential dread; reclaiming family time and community; embracing \"aha moments\"; answering the call to action; and yearning for normalcy while balancing personal risk.</i> Findings from this study highlight how social workers confronted oppressive systems and gendered social roles to find hope and meaning in the care that they provided for their clients, families, and communities.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 4","pages":"325-344"},"PeriodicalIF":1.6,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10761640","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Editor Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2022.2156069","DOIUrl":"https://doi.org/10.1080/15524256.2022.2156069","url":null,"abstract":"As we bring the year and the volume to a close, I want to first begin by thanking the editorial board members for their careful and thoughtful manuscript reviews as well as assistance in steering the direction of the journal. Thanks also to coeditors, Practice concepts and Innovations section coeditors, Karen Bullock (retiring from this role) and Vickie Leff and well as Reflections editor Stacy Orloff who provide their unique perspectives in those area. The journal can only survive with gracious professionals and academics who serve on the board and those who submit manuscripts describing their experiences, practice, and research. This issue is again devoted to experiences and practice of social work during the height of the COVID-19 pandemic but with a focus on how it affected social workers and palliative care teams. Beginning this spotlight are three reflections on working through the pandemic. In the first article, McCool and colleagues describe the stresses, increased demands and restrictions placed on palliative care social workers and palliative team members. To address team members’ reactions to stress, the palliative care team in one hospital developed an intervention and evaluated the feasibility of a ‘buddy system’. Authors described the intervention and examined resilience of the team members after implementation of the intervention. Team members reported that, in this small sample, it was successful in easing mitigating personal distress and compassion fatigue experienced. The program was found to strengthen the connection and perceived support among team members. Next, Currin-McCulloch and colleagues also examined challenges faced by social workers in health care during the COVID-19 pandemic. Through a phenomenological approach, these researchers endeavored to gain an understanding of how health care social workers were able to maintain hope and develop meaning from their professional experiences at that time. Feminist theory served as a basis from which to examine the results. Responses from 54 social workers revealed five common themes that further revealed how they found meaning and, in essence, resilience. In an article describing research conducted in India, authors examined well-being of palliative care workers in different work settings (hospital and community) during the height of the COVID-19 pandemic. Administration of the WHO well-being index found a generally good level of well-being. Several aspects of the work, including years of experience and number of clients who died in the previous month, were found to be associated with well-being. I hope everyone finds time for reflection, self-care and rejuvenation over the upcoming holiday season!","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 4","pages":"293-294"},"PeriodicalIF":1.6,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10424002","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Effects of Bereavement Time on the Relationship Between Coping Strategies and Psychological Distress.","authors":"Tomohiro Uchida,&nbsp;Noriaki Satake,&nbsp;Chiin Takayama,&nbsp;Akari Uno,&nbsp;Toshimichi Nakaho,&nbsp;Akira Inoue,&nbsp;Hidemitsu Saito","doi":"10.1080/15524256.2022.2093315","DOIUrl":"https://doi.org/10.1080/15524256.2022.2093315","url":null,"abstract":"<p><p>The purpose of this study was to investigate the relationship between bereaved individuals' coping patterns, mental health, and time post-loss. A questionnaire using the Coping with Bereavement Scale (CBS) and the Kessler Psychological Distress Scale (K6) was completed by 173 family members of individuals who died from cancer between August 2013 and March 2016. Confirmatory factor analysis revealed a three-factor solution for the CBS comprised of \"life orientation,\" \"avoidance,\" and \"retaining ties\" with the deceased. Scores on retaining ties were significantly but weakly correlated with K6 scores; however, the intensity of this relationship increased with more time post-bereavement, and individuals who retained strong ties with the deceased for two years or more demonstrated poorer mental health. Although retaining ties with the deceased might be an adaptive psychological process following bereavement, in this study, long-term persistence with that coping strategy was associated with greater overall psychological distress. Further research is needed to identify optimal coping methods to address evolving needs during the bereavement process.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"235-251"},"PeriodicalIF":1.6,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40463559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Consequences of COVID-19: Limitations to the Quality of Palliative Care and Social Work Intervention.","authors":"Inês Casquilho-Martins","doi":"10.1080/15524256.2022.2050338","DOIUrl":"https://doi.org/10.1080/15524256.2022.2050338","url":null,"abstract":"Political action to fight the pandemic: urgent but insufficient This reflective essay aims to describe the consequences of COVID-19 on palliative care in Portugal, with an emphasis on social work interventions. As a social worker and researcher, I consider it essential to reflect on the changes that have occurred, signaling limitations that cur-rently require greater involvement and attention from policy makers and professionals.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"195-198"},"PeriodicalIF":1.6,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40328169","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"End-of-Life Preparedness Among Japanese Americans: A Community Survey.","authors":"Kayoko C Nakao-Hayashizaka","doi":"10.1080/15524256.2022.2093312","DOIUrl":"https://doi.org/10.1080/15524256.2022.2093312","url":null,"abstract":"<p><p>The purpose of this study was to investigate the level of preparedness among Japanese American older adults for life's end by examining their knowledge, preferences, and arrangements for end-of-life issues. A total of 248 community dwelling Japanese Americans aged 50 and older participated in the study. The cross-sectional survey results indicated that participants believed they were well-informed about end-of-life issues and well-prepared for their lives' end. While most participants were in favor of making end-of-life arrangements, particularly with regard to making a <i>will/living trust</i>, creating an <i>advance health care directive</i>, appointing a <i>health care agent</i>, and <i>funeral planning</i>, relatively few favored <i>life-prolonging treatment</i> or planning for <i>organ donation</i>. They placed a high value on natural death and family-centered decision-making processes. These findings highlight the importance of awareness and cultural humility for social workers when providing culturally informed services at life's end to diverse Americans, including Japanese American older adults and their families.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"216-234"},"PeriodicalIF":1.6,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40492079","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Editor Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2022.2126156","DOIUrl":"https://doi.org/10.1080/15524256.2022.2126156","url":null,"abstract":"This issue holds articles of widely varying topics. And once again, shows the diversity of issues faced by palliative social workers around the world. This issue begins with a practice concepts/innovations entry that shares a new intervention implemented in a Singapore hospice during the time of severe restrictions of in person contact in hospices. At the beginning and during the height of the COVID19 pandemic, hospice volunteer activities were considered “non-essential” and in person visits by volunteers were halted. Research does indicate that volunteers however can be an important source of support for hospice patients and families. In place of in person visits, Kong describes a telehealth virtual animal-assisted activity through two case studies. These examples show that it was a non-intimidating way to provide comfort with the use of animals, even virtually. Using virtual volunteering may be a good supplement going forward to in person visits. In the first of the research articles, Nakao-Hayashizaka and colleagues describe a study of preparation for end of life among Japanese Americans. Cultural differences and similarities were revealed in the results of this study. Family-centered decision making was a important aspect near the end of life. The priority for Japanese Americans is to have a natural death which would be achievable with expression of the desire not to have life-prolonging treatment. The wish not to plan for organ donations also seems consistent with this notion. While everyone is an individual, the results may provide some guidance for practitioners as to what questions to ask Japanese Americans near the end of life. In the next article, Uchida and colleagues investigated coping strategies and distress among bereaved individuals at different points in the bereavement process (over years). One coping strategy of “retaining ties with the deceased” showed a relationship with distress. While early in the bereavement process, this coping mechanism may be protective against complicated bereavement or distress. However, bereaved individuals had poorer mental health the longer this persisted as the coping mechanism used. Further investigation is recommended to define coping needs and therapeutic responses during varying time of bereavement. The practice of hospice social work can be very different depending on the context and geographic location. Curd and colleagues conducted qualitative interviews with rural hospice social workers to explore their unique experiences in practice in this environment. They spoke about the rural environment as a strength in the closeness and the support of communities. Also challenges revealed in meeting the resource needs of hospice patients. Lastly, Bravo explored Canadian social workers’ attitudes toward medical assistance in dying (MAID) for persons with dementia. MAID is allowed in Canada for those decisionally capable of making this choice. The current debate is about allowing it for persons who ar","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"193-194"},"PeriodicalIF":1.6,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40375459","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"We Are All Just Walking Each Other Home\": Exploring the Lived Experiences of Rural Hospice Social Workers in \"Companioning\" the Dying.","authors":"Jessica Curd,&nbsp;Michin Hong","doi":"10.1080/15524256.2022.2093313","DOIUrl":"https://doi.org/10.1080/15524256.2022.2093313","url":null,"abstract":"<p><p>Social workers play a critical role on the hospice team including assessing risk and safety, advocacy, grief counseling, referral and connection to resources and providing guidance through advance care planning and advance directives. However, the voice of the rural hospice social worker is often absent from research. To address this gap in the literature, this study aimed to explore lived experiences of rural hospice social workers to better understand their role and challenges. Non-experimental qualitative research design was used for this study. Data was collected through in-depth qualitative interviews. A total of 19 rural hospice social workers participated in the study. We used a phenomenological approach focusing on the common lived experiences of rural hospice social workers and thus interviews were unstructured. Field notes and data were collected until data saturation was achieved. Five main themes were identified: (1) meaning of hospice social work, (2) role of hospice social workers, (3) vulnerability and realness, (4) self-care, and (5) rural culture. Based on these findings, we identified recommendations for hospice social work practice, research and policy, in general, as well as for rural hospice social work specifically. Future research could explore lived experiences of hospice professionals or of the dying and could also explore social worker experience of resource barriers.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"252-272"},"PeriodicalIF":1.6,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40470414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Virtual volunteering during the COVID-19 pandemic: case studies of virtual animal-assisted activities in a Singapore hospice.","authors":"Clara Kong,&nbsp;Shu Min Camellia Soon","doi":"10.1080/15524256.2022.2105472","DOIUrl":"https://doi.org/10.1080/15524256.2022.2105472","url":null,"abstract":"<p><p>The COVID-19 pandemic has impacted the healthcare sector in many ways. Social safety measures in hospices in Singapore include cessation of non-essential services such as volunteering. Literature shows that volunteers are valuable in enhancing the quality of life of patients in receiving hospice services. They provide patients with needed companionship, and meaningful activities such as bringing their pets into the wards in animal-assisted activities. The rise of telehealth during the COVID-19 pandemic brought an increasing interest in virtual volunteering such as virtual animal-assisted activities (VAAA). However, there is currently a lack of literature on virtual volunteering as its increased demand is a recent trend. Virtual volunteering in a hospice in Singapore is described through two retrospective case studies of VAAA. These case studies showed that a therapeutic alliance can be effectively built via virtual platforms. Benefits of virtual volunteering include enabling continued service delivery and increased comfort for some patients as virtual interactions can be less intimidating as compared to interacting with an animal in real life. Virtual volunteering may be considered to complement face-to-face volunteering in end-of-life care as part of normal practice.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"203-215"},"PeriodicalIF":1.6,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40575986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social Workers' Attitudes Toward Medical Assistance in Dying for Persons With Dementia: Findings From a Survey Conducted in Quebec, Canada.","authors":"Gina Bravo,&nbsp;Nathalie Delli-Colli,&nbsp;Isabelle Dumont,&nbsp;Marie-Eve Bouthillier,&nbsp;Marianne Rochette,&nbsp;Lise Trottier","doi":"10.1080/15524256.2022.2093314","DOIUrl":"https://doi.org/10.1080/15524256.2022.2093314","url":null,"abstract":"<p><p>Canada has legalized medical assistance in dying (MAID) for mentally competent persons who satisfy the legal requirements. Debate is ongoing as to whether MAID should be accessible to no-longer-competent persons through an advance request. We conducted an anonymous vignette-based survey among 367 social workers from Quebec to (1) elicit their attitudes toward MAID in the context of dementia; (2) assess their underlying values and beliefs; and (3) compare their attitudes to those of nurses (<i>n</i> = 291) and physicians (<i>n</i> = 136). Acceptability of MAID among social workers ranges from 42% in the case where the person depicted in the vignette was still competent to request MAID herself, to 92% in that where she was incompetent, had requested MAID in writing before losing capacity, showed signs of severe distress, and was close to death. Acceptability tends to be higher among social workers than among nurses and physicians. Forty-one per cent of social workers dread the prospect of participating in the MAID process for a person lacking decisional capacity. Nonetheless, 83% would agree to be involved. Should MAID become accessible to persons lacking decisional capacity, social workers willing to be involved will need to be educated and trained in participating in this emotionally-charged process.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"273-292"},"PeriodicalIF":1.6,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40475592","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}