Deborah Tan, Grace Yong, Vivian Wong, Benjamin Hooi, Eng Koon Ong
{"title":"An Interdisciplinary Approach to Legacy Work for a Young Cancer patient - A Case Illustration.","authors":"Deborah Tan, Grace Yong, Vivian Wong, Benjamin Hooi, Eng Koon Ong","doi":"10.1080/15524256.2025.2492023","DOIUrl":"10.1080/15524256.2025.2492023","url":null,"abstract":"<p><p>An interdisciplinary approach to care is essential and crucial in the practice of end-of-life and hospice care. However, there is a lack of data on how social workers and art therapists may work together to provide psychosocial-spiritual interventions. This case study illustrates how the home hospice medical social worker and art therapist employed complementary methods to fulfill the wish of a young adult with advanced cancer through legacy work. Similar team approaches in practice may benefit other patients with similar needs. Further research is needed to investigate patient care outcomes and formulate guidelines to inform and encourage the use of similar complementary team practices.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"107-114"},"PeriodicalIF":1.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144019988","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Editor's Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2025.2517507","DOIUrl":"https://doi.org/10.1080/15524256.2025.2517507","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"21 2","pages":"95-96"},"PeriodicalIF":1.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144295098","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Balma Soraya Hernández Moscoso, Josep Maria Torralba Roselló
{"title":"\"What about Your Social Worker?\" Professionals and Families' Perceptions of Pediatric Palliative Care Social Work: A Qualitative Study.","authors":"Balma Soraya Hernández Moscoso, Josep Maria Torralba Roselló","doi":"10.1080/15524256.2025.2499514","DOIUrl":"10.1080/15524256.2025.2499514","url":null,"abstract":"<p><p>This article offers an in-depth examination of the social worker's role in pediatric palliative care, focusing on their skills and scope of intervention. This study was conducted to understand perceptions of the social worker's contributions within a multidisciplinary palliative care team. A qualitative design with healthcare professionals and families at a major hospital in Catalonia (Spain) was used to gather data. Semi-structured interviews and focus group discussions were used to collect insights into the social worker's diverse roles, including emotional support, family guidance, child protection, and their unique position in connecting healthcare with social, cultural, and relational factors. Findings show that social workers were perceived to be crucial in addressing psychosocial needs, promoting family autonomy, and providing guidance on resources. However, their integration into teams is often hindered by structural and hierarchical barriers. The study highlighted the importance of recognizing and reinforcing the social worker's role through policy changes that ensure their consistent involvement in all aspects of pediatric palliative care. Further studies are needed to develop strong support systems that prioritize the social and emotional needs of families in end-of-life care, ultimately aiming to enhance the quality of pediatric palliative services.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"132-149"},"PeriodicalIF":1.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143985865","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Munch's: '<i>Death and the Child</i>'.","authors":"Steve Marshall","doi":"10.1080/15524256.2025.2483681","DOIUrl":"10.1080/15524256.2025.2483681","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"104-106"},"PeriodicalIF":1.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143701345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Eureka.","authors":"Zhaohui Su","doi":"10.1080/15524256.2024.2445055","DOIUrl":"https://doi.org/10.1080/15524256.2024.2445055","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2025-01-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142933110","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"How Tangible is an Advance Care Planning Document in Reality?","authors":"See Mieng Tan","doi":"10.1080/15524256.2024.2417183","DOIUrl":"10.1080/15524256.2024.2417183","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"3-5"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2025.2472446","DOIUrl":"10.1080/15524256.2025.2472446","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143587694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"<i>Hiding in Plain Sight</i>: A Narrative Review of Non-Parental Relatives' Perinatal Grief.","authors":"Rennie Bimman, Nancy Graham","doi":"10.1080/15524256.2024.2443152","DOIUrl":"10.1080/15524256.2024.2443152","url":null,"abstract":"<p><p>Perinatal loss is often immensely painful for families, yet remains unrecognized despite its ubiquity. Perinatal loss frequently leads to disenfranchised grief, and members of family systems less proximate to the loss are at risk for additional disenfranchisement. Grandparents and siblings are especially vulnerable to complications in perinatal grief due to intersecting and disenfranchising factors of identity, including age, role within family, and type of loss. The purpose of this narrative review was to examine their experiences in order to provide informed support. Medline via OVID was searched using specific terms to identify articles for inclusion. Content from each article was screened, synthesized, and codified according to salient themes. Evidence found attested to the uniquely complex grief experiences these populations face as a result of their confluent disenfranchisement, and their overwhelming lack of support and recognition. New insights uncovered may inform clinicians as they assess needs and provide support to these oft-ignored grievers. Significant research gaps remain in this subtopic, such as firsthand perspectives of nonparental grievers, data on other extended family members, and the effect of additional psychosocial stressors on nonparental perinatal grief. As recent legal restrictions curtail reproductive healthcare access, the need for support and research is especially salient.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"30-57"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651244","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Granting Permission: Toward Embracing Grief.","authors":"Rennie Bimman","doi":"10.1080/15524256.2024.2447313","DOIUrl":"10.1080/15524256.2024.2447313","url":null,"abstract":"<p><p>Grief, unavoidable and often excruciating, is rarely sufficiently acknowledged or supported in Western society. It is not granted <i>permission</i> to exist without barriers. By considering and evaluating grief experiences through the lens of their access to <i>permission</i>, clinicians can collectively imagine and promote inclusivity in grief. <i>Permission</i> is presented as a conceptual framework and clinical tool, with broader micro- and macro-level applications for both professional and layperson engagement, offering a foundation for further implementation and research.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"8-29"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142972585","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Chains.","authors":"James Seymour Huntley","doi":"10.1080/15524256.2024.2430970","DOIUrl":"10.1080/15524256.2024.2430970","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"6"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142733261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}