Journal of Social Work in End-of-Life & Palliative Care最新文献

{"title":"Advocacy Needed for Young Adult Patients of Color from Clinicians' Racial Lens","authors":"Kimberly Hong","doi":"10.1080/15524256.2022.2046237","DOIUrl":"https://doi.org/10.1080/15524256.2022.2046237","url":null,"abstract":"In the field of social work, one of the first lessons we learn is to place the client first. Awareness of our own countertransference is key in identifying and working with our clients. We make sure that we are aware of our emo-tional responses and do not allow these feelings to influence how we may treat our clients. Both transference and countertransference are defined by automatic reactions clinicians may feel toward their patients based on potentially similar experiences, and patients may also feel toward their healthcare team, again based on prior experiences. At certain times, transference can be a positive thing as it allows natural empathy to ensue within clinicians as they work with patients, providing great and empathetic care. On the other hand, it can also be negative, if clinicians are unable to con-trol these reactions and respond in a way that hurts their work or even relationships with respective patients.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"38 1","pages":"125 - 128"},"PeriodicalIF":1.6,"publicationDate":"2022-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80100114","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"African American Family Caregivers Share How they Prepared for the Death of an Older Adult with Dementia: A Pilot Study of Hospice Care in A Nursing Home","authors":"Cynthia A. Hovland, Kimberly A. Fuller","doi":"10.1080/15524256.2022.2042458","DOIUrl":"https://doi.org/10.1080/15524256.2022.2042458","url":null,"abstract":"Abstract The focus of this pilot study was to ascertain how bereaved African American caregivers prepared for the death of an older family member who died from a dementia-related diagnosis and the role of hospice care; an area with little research to date. Because African American older adults in the United States are at greater risk than Caucasian older adults for dementia-related health problems though less likely to be diagnosed, treated, or to enroll in hospice services, this exploratory study asked questions of the family caregivers’ experiences in preparing for the death. Purposive criterion sampling was used to identify six African American bereaved caregivers whose family member lived in a nursing home (five who were enrolled in hospice services) who were extensively interviewed, with the use of conventional content analysis of the transcripts to identify the findings. Because of the limited sample size, themes identified were considered preliminary and may help guide ongoing and further research. Five primary themes revealed ways caregivers prepared: accepting reality; “I just kind of knew;” person with dementia “was ready;” “spending time;” and, getting your “business in order.” All caregivers believed it was important to be prepared for the death, with the five who received hospice services reporting that they were prepared. Further research is needed to explore these preliminary findings of African American caregivers of family members with dementia at end-of-life to further inform social work and hospice team care.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"13 1","pages":"129 - 145"},"PeriodicalIF":1.6,"publicationDate":"2022-02-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83197935","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Elderly Helping Other Elderly: A Comparative Study of Family Caregiver Burden Between Patients With Dementia or Cancer at the End of Life","authors":"R. Spatuzzi, A. Vespa, P. Fabbietti, M. Ricciuti, G. Rosati, Lorella Guariniello, Maria Antonietta Flavia Verrastro, L. Attademo, M. Giulietti","doi":"10.1080/15524256.2022.2042459","DOIUrl":"https://doi.org/10.1080/15524256.2022.2042459","url":null,"abstract":"Abstract A new reality is being observed around the world as the population ages: family caregivers, who are themselves older adults helping their ill older relatives. The aim of this study is to assess the burden of the older family caregiver assisting older patients in his or her end-of-life who are suffering from dementia or cancer. In this context, the elderly person is involved in the dual role of patient and caregiver. In this comparative study, a total of 87 older family caregivers (age ≥ 65 years) completed the Caregiver Burden Inventory (CBI) measurement. The sample was divided into 2 subgroups based on the individuals’ advanced disease: Alzheimer’s disease (AD) or cancer. Compared to cancer caregivers, the AD subgroup reported significantly higher scores in the CBI-emotional subscale (P = 0.006), confirmed by the evaluation of the generalized linear model (multivariate). There were no significant differences in the other CBI subscales and overall scores. According to the findings of this study, elderly who help elderly with AD are at a higher risk of experiencing an emotional burden than cancer caregivers. This data could be considered in designing interventions to reduce the caregiver burden of older family caregivers as they provide informal end-of-life care.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"28 1","pages":"96 - 108"},"PeriodicalIF":1.6,"publicationDate":"2022-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88737248","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"My Reflection and Interpretation of Challenges Faced by the Most Vulnerable Palliative Care Patients durIng COVID-19 in Soweto, South Africa.","authors":"Penelope Mathe","doi":"10.1080/15524256.2021.2002234","DOIUrl":"https://doi.org/10.1080/15524256.2021.2002234","url":null,"abstract":"I am a palliative care social worker working for Hospice Wits in Soweto, South Africa. The impact of the COVID-19 pandemic was a daunting experience in my everyday work with people living with life threatening illnesses. Providing palliative care to patients and families in Soweto has always been difficult. This pandemic has greatly increased the challenges. Soweto is an urban township situated southwest of Johannesburg. The population for 2021 is estimated at 1,895,921 (Statistics South Africa, 2020). Soweto is piece I work reside in They are there is overcrowding, noted that challenges are associated with a range of ill-health outcomes which affect patients ’ quality of life and can also accelerate the spread of the coronavirus.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 1","pages":"8-11"},"PeriodicalIF":1.6,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39886608","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Connecting the Dots Between Theoretical Knowledge and Clinical Practice: A Palliative Care Social Worker Process Improvement Project in an Acute Hospital Setting.","authors":"Brittany Fuentes,&nbsp;Marissa Pietrus","doi":"10.1080/15524256.2021.1984368","DOIUrl":"https://doi.org/10.1080/15524256.2021.1984368","url":null,"abstract":"<p><p>For palliative care social workers, utilizing clinical practice theories in an acute hospital setting can be challenging but important. This article describes a process improvement project designed to increase intentionality in the implementation and documentation of social work interventions. It details the process of identifying major social work domains, interventions deployed and how the interventions specifically connect back to clinical practice theory.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 1","pages":"22-33"},"PeriodicalIF":1.6,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39510826","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"End of Life Care at Home for an Elderly Man with Glioblastoma multiforme.","authors":"Rajnish Kumar,&nbsp;Nishant Sahay,&nbsp;Shagufta Naaz,&nbsp;Umesh Kumar Bhadani","doi":"10.1080/15524256.2021.1990820","DOIUrl":"https://doi.org/10.1080/15524256.2021.1990820","url":null,"abstract":"In India just about 2% of people have access to palliative care and a vast majority of the palliative care services are located in the state of Kerala (Khosla et al., 2012). Conditions in other states, including Bihar, leaves much to be desired. In most parts of urban India, end of life care is hospital based. In the rural setting there is more acceptance of dying at home. Palliative care needs an inter-disciplinary team approach of doctors, nurses, counselors, social workers, physiotherapists and volunteers to take care of patients. Home care is not well developed in Bihar. It is difficult to arrange home care if desired and needed. This case report will describe our experience successfully providing home based palliative care by training family members.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 1","pages":"17-21"},"PeriodicalIF":1.6,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39566031","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Editor Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2022.2051809","DOIUrl":"https://doi.org/10.1080/15524256.2022.2051809","url":null,"abstract":"Welcome to a new volume of the Journal! In this volume we hope to add much to the discourse in palliative social work practice and research. We look forward to the next issue and examining ‘racism and its challenges in palliative social work’ in a special section devoted to this topic. This issue begins with a continuing examination of the challenges encountered through the COVID-19 pandemic in several reflections entries that help us to understand the experiences of social workers and seriously ill individuals from a global perspective. The practice concepts and innovations in the issue include a look at how social workers can and should be involved in continually improving the process of practice, specifically documentation of interventions in an acute care hospital. Further, Fuentes & Pietrus importantly demonstrate how the interventions are linked with clinical practice theory. Social workers can best show their value when effectiveness in practice can be related to the rest of the health care team and administration. Also relative to health care systems, Potter and colleagues provide an example of a proactive approach to advance care planning that is used in both inpatient and outpatient settings. To ensure that individuals’ wishes are followed when they lose decision-making capacity, it must be done in advance of a serious illness and hospitalization. Next, Sinding and colleagues conducted a qualitative analysis of experiences with restricted visitation in one hospital due to COVID-19 pandemic. Fewer opportunities to speak with families and observe their interactions with the ill individuals limited assessment and hampered treatment planning. lt forced professional to utilize a variety of forms of communication to replace traditional methods. The study participants revealed these challenges and discussed how they adapted in these circumstances. Poppe and colleagues, next help us to understand that caregivers of individuals with ALS need support throughout the experience of care, including bereavement. Because of the intense nature of care and the debilitating aspects of ALS, these caregivers may experience complicated grief and need assistance in finding support. This was one of the themes identified by bereaved ALS informal caregivers. Professionals’ responses were complementary in that they focused on trying to identify gaps and find support for these caregivers. The authors argue for proactive interventions to help caregivers adjust to their new way of life without the individual. COPD has a complex illness trajectory which may seem more acute when older adults are living alone with this illness. This is exactly the reason that advance care planning is necessary. Hirakawa and colleagues conducted a study with health care professionals working with older adults living alone with COPD to identify barriers to ACP completion in this population. The authors believe that social workers can intervene to encourage completion of ACP having this u","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40314986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Bereavement and Support Experiences of Informal Caregivers of Persons with Amyotrophic Lateral Sclerosis: A Qualitative Study.","authors":"Christopher Poppe,&nbsp;Luzia M Iseli,&nbsp;Martine Verwey,&nbsp;Tenzin Wangmo","doi":"10.1080/15524256.2021.1976352","DOIUrl":"https://doi.org/10.1080/15524256.2021.1976352","url":null,"abstract":"<p><p>Informal caregivers provide the major part of care for persons with amyotrophic lateral sclerosis (ALS), a terminal neurodegenerative disease. Apart from providing care, informal caregivers are themselves in need of support to fulfill the task of daily caregiving and to reduce their burden of caregiving. This need for support does not end with the death of the person cared for. In this study, we explore the themes of bereavement and support experience of informal caregivers of persons with ALS from interviews conducted with bereaved informal caregivers (<i>n</i> = 14) in Switzerland. Three key themes were salient in our data: <i>Reacting to bereavement, finding support</i>, and <i>adjusting to life without the person with ALS.</i> These themes are contrasted with themes from interviews (<i>n</i> = 11) with healthcare professionals (nurses, therapists, physicians) who care for patients and families with ALS. The themes described were <i>offering support</i> and <i>identifying gaps in the support</i>. We discuss support after bereavement for informal caregivers of persons with ALS in the established public health model of bereavement support. Bereavement support needs to be proactive from healthcare professionals; however, it requires the goodness of fit to address those in need and not those who are adequately supported by informal sources of support.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 1","pages":"63-79"},"PeriodicalIF":1.6,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39483363","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Reflections on the COVID-19 Pandemic: Experiences of a Brazilian Cancer Center.","authors":"Daniel Paixão Pequeno,&nbsp;Gina Colombo Feijó de Souza,&nbsp;Carmen Silvia Passos Lima,&nbsp;Gustavo Jacob Lourenço","doi":"10.1080/15524256.2022.2042460","DOIUrl":"https://doi.org/10.1080/15524256.2022.2042460","url":null,"abstract":"Demonstrating the value of palliative care, including the positive impact on quality of life and hope and dignity is still a huge challenge; even more in a developing country such as Brazil.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 1","pages":"12-16"},"PeriodicalIF":1.6,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39835669","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Contemporary Issues and Practicalities in Completing Advance Care Planning for Patients With Severe COPD Living Alone: A Qualitative Study.","authors":"Yoshihisa Hirakawa,&nbsp;Kaoruko Aita,&nbsp;Mitsunori Nishikawa,&nbsp;Hidenori Arai,&nbsp;Hisayuki Miura","doi":"10.1080/15524256.2021.1976353","DOIUrl":"https://doi.org/10.1080/15524256.2021.1976353","url":null,"abstract":"<p><p>Health care professionals working with older people living alone with chronic obstructive pulmonary disease (COPD) to complete advance care planning (ACP) often encounter the double burden of social isolation and acute exacerbations in this planning. The study explored clinicians' perceptions regarding factors influencing the completion of ACP for older people with COPD living alone. Individual interviews were conducted with 18 health care professionals using the video meeting platform in 2020. A semi-structured interview guide included: (a) behavior and lifestyle related to decision-making, (b) desired place to die, and (c) facilitators and barriers to autonomy in patients with severe COPD who live alone. Five main themes were identified: information sharing among team members, patient readiness, desired place of death, economic constraints, and care at the time of and after death. Partly due to the heterogeneity and complexity of clinical courses and treatment responses of COPD, a wide range of social issues of a person's life were related to practicality in the completion of ACP for older people with COPD living alone. Social work knowledge and skills such as in-depth interviewing, outreach finance and welfare support, and holistic perspective play an essential role in completing ACP for COPD patients living alone.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 1","pages":"80-95"},"PeriodicalIF":1.6,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39483365","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}