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Journal of Social Work in End-of-Life & Palliative Care最新文献

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Chains. 链条
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-11-27 DOI: 10.1080/15524256.2024.2430970
James Seymour Huntley
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引用次数: 0
A Phenomenological Study of Clinical Stillbirth Management for Grieving Mothers. 为悲伤的母亲进行死产临床管理的现象学研究。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-11-05 DOI: 10.1080/15524256.2024.2420186
Sahar Al-Shuqerat, Zaid Al-Hamdan, Hala Bawadi
{"title":"A Phenomenological Study of Clinical Stillbirth Management for Grieving Mothers.","authors":"Sahar Al-Shuqerat, Zaid Al-Hamdan, Hala Bawadi","doi":"10.1080/15524256.2024.2420186","DOIUrl":"https://doi.org/10.1080/15524256.2024.2420186","url":null,"abstract":"<p><p>For any expectant mother, the worst possible outcome of pregnancy is for the baby to die. The experience can lead to various forms of physical and psychosocial morbidity. The purpose of this study was to gain in-depth understanding of the experiences of mothers who suffered stillbirth with a view to improving the clinical management of stillbirth. Semi-structured qualitative interviews were conducted with ten women who had experienced stillbirths within one year prior to the interview. The interviews were recorded and transcribed verbatim. The data were analyzed using Smith's interpretative phenomenological analysis (IPA) model and ATLAS.ti 8 software. Healthcare professionals identified three main themes: clinical management for stillbirth and bereaved mothers across various roles; public hospitals; and the Jordanian Ministry of Health Policies and Guidelines. The study findings underscore the devastating impact of insensitive and poor-quality care on bereaved mothers, highlighting how it exacerbates their grief and sorrow. These findings emphasize the need for training healthcare providers in perinatal loss and bereavement care, as well as the importance of adopting new policies and guidelines to improve the quality of care provided to bereaved mothers.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-16"},"PeriodicalIF":1.6,"publicationDate":"2024-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142577025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How Tangible is an Advance Care Planning Document in Reality? 预先护理规划文件在现实中到底有多具体？
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-10-18 DOI: 10.1080/15524256.2024.2417183
See Mieng Tan
{"title":"How Tangible is an Advance Care Planning Document in Reality?","authors":"See Mieng Tan","doi":"10.1080/15524256.2024.2417183","DOIUrl":"https://doi.org/10.1080/15524256.2024.2417183","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-3"},"PeriodicalIF":1.6,"publicationDate":"2024-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Still Ship at Sea. 仍在海上航行的船
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-10-18 DOI: 10.1080/15524256.2024.2416626
Zhaohui Su
{"title":"Still Ship at Sea.","authors":"Zhaohui Su","doi":"10.1080/15524256.2024.2416626","DOIUrl":"https://doi.org/10.1080/15524256.2024.2416626","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2024-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disbelief, Distress, & Distrust: Trending Institution Related Emotional Distress During COVID-19. 不相信、痛苦和不信任：COVID-19 期间与机构相关的情绪困扰趋势。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-10-03 DOI: 10.1080/15524256.2024.2404461
Jillian Sherman, Shannon Petros
{"title":"Disbelief, Distress, & Distrust: Trending Institution Related Emotional Distress During COVID-19.","authors":"Jillian Sherman, Shannon Petros","doi":"10.1080/15524256.2024.2404461","DOIUrl":"https://doi.org/10.1080/15524256.2024.2404461","url":null,"abstract":"<p><p>The COVID-19 pandemic had an unprecedented impact on the well-being of individuals working in the healthcare sector. Though many studies exist that focus on physician and nurse well-being, few have specifically identified stressors that affect professionals working within the end-of-life interdisciplinary team. The primary objective of this study was to expand research on moral distress and clinician well-being to include healthcare professionals working with patients with chronic and life-limiting illnesses during the COVID-19 pandemic. A survey approach was used with 110 professionals working within one hospital network's palliative and hospice team to identify key indicators of moral distress (using the MMD-HP scale) and professional well-being during the pandemic. Quantitative and qualitative analysis was completed to determine themes related to moral distress and professional well-being. Numerous themes were identified, including the importance of caseload, general support, team support, management, and professional flexibility. Additional end-of-life themes were identified, including the impact of death, lack of personal protective equipment, fear of transmitting the virus, COVID disbelief, and the inability of clinicians and/or family to be with patients in person. From the experience participants had during COVID-19, four areas of change were identified: professional resilience, management/ethics support, professional development, and physical and emotional safety.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-22"},"PeriodicalIF":1.6,"publicationDate":"2024-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142373204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Always Politically Correct: Supporting Seriously Ill Older Populations and Their Families. 始终保持政治正确：为身患重病的老年人及其家人提供支持》。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-08-12 DOI: 10.1080/15524256.2024.2391393
M Courtney Hughes, Erin Vernon
{"title":"Always Politically Correct: Supporting Seriously Ill Older Populations and Their Families.","authors":"M Courtney Hughes, Erin Vernon","doi":"10.1080/15524256.2024.2391393","DOIUrl":"https://doi.org/10.1080/15524256.2024.2391393","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-3"},"PeriodicalIF":1.6,"publicationDate":"2024-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141972057","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What is This Job? 这份工作是什么？
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-16 DOI: 10.1080/15524256.2024.2379852
Catherine Pilling
{"title":"What is This Job?","authors":"Catherine Pilling","doi":"10.1080/15524256.2024.2379852","DOIUrl":"https://doi.org/10.1080/15524256.2024.2379852","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1"},"PeriodicalIF":1.6,"publicationDate":"2024-07-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141628060","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"They Make the Will, But They Want the Food:" Staff Perspectives on Challenges in Implementing Dementia Advance Directives Related to Stopping Feeding. "他们立下遗嘱，却想要食物："工作人员对执行与停止喂食有关的痴呆症预先医疗指示所面临挑战的看法。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 DOI: 10.1080/15524256.2024.2365368
Meredith Levine, Mercedes Bern-Klug
{"title":"\"They Make the Will, But They Want the Food:\" Staff Perspectives on Challenges in Implementing Dementia Advance Directives Related to Stopping Feeding.","authors":"Meredith Levine, Mercedes Bern-Klug","doi":"10.1080/15524256.2024.2365368","DOIUrl":"10.1080/15524256.2024.2365368","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"254-275"},"PeriodicalIF":1.6,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors Influencing Palliative and End-of-Life Care for Adults with Intellectual Disabilities: A Scoping Review of Health and Care Workers' Experiences. 影响智障成人姑息治疗和临终关怀的因素：影响智障成人姑息治疗和临终关怀的因素：医疗和护理工作者经验的范围界定研究》（A Scoping Review of Health and Care Workers' Experiences）。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 Epub Date: 2024-05-05 DOI: 10.1080/15524256.2024.2346113
Romane Couvrette, É Milot, G Fortin
{"title":"Factors Influencing Palliative and End-of-Life Care for Adults with Intellectual Disabilities: A Scoping Review of Health and Care Workers' Experiences.","authors":"Romane Couvrette, É Milot, G Fortin","doi":"10.1080/15524256.2024.2346113","DOIUrl":"10.1080/15524256.2024.2346113","url":null,"abstract":"<p><p>In developed countries, there has been an increase in the longevity of adults with intellectual disabilities. In the later stages of their lives, people with intellectual disability have specific needs in terms of palliative and end-of-life care that need to be better understood in order to offer appropriate care. This scoping review aimed to identify the main factors influencing the provision of palliative and end-of-life care from the perspective of health and care workers involved with adults with an intellectual disability at the end of life. Seven databases were systematically searched for relevant articles published between 2002 and 2022. NVivo qualitative research analysis software was used to conduct a thematic analysis of the 50 included studies. Three main factors were identified: the location of care and death, the involvement of the person with intellectual disability, and collaborative practices.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"292-310"},"PeriodicalIF":1.6,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140866865","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Editor Introduction. 编辑介绍。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 Epub Date: 2024-09-11 DOI: 10.1080/15524256.2024.2400826
Ellen L Csikai
{"title":"Editor Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2024.2400826","DOIUrl":"https://doi.org/10.1080/15524256.2024.2400826","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"20 3","pages":"217-218"},"PeriodicalIF":1.6,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298248","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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