Journal of Social Work in End-of-Life & Palliative Care最新文献

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-05-07 DOI: 10.1080/15524256.2026.2666513

Pramana, Prahastiwi Utari, Monika Sri Yuliarti

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When Transplant Is No Longer the Answer: An End-of-Life Social Work Narrative in Pediatric Cystic Fibrosis. 当移植不再是答案：儿童囊性纤维化的临终社会工作叙述。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-05-03 DOI: 10.1080/15524256.2026.2666511

Aysha Jawed

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The Quiet between Goodbyes: Witnessing, Holding, and Remaining Present at the End of Life. 告别之间的宁静：在生命的尽头见证、拥抱和保持存在。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-05-01 DOI: 10.1080/15524256.2026.2666507

Hafiz Muhammad Ihsan Zafeer, Samra Maqbool, Zhijun Liu, Quanwang Zhan, Mohammad Al-Masaeid

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Biopsychosocial Spiritual Needs of Patients in a Singapore Home Hospice Setting-an Exploratory Qualitative Study. 新加坡家庭安宁疗护病患的生物心理社会精神需求：一项探索性质的研究。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-04-17 DOI: 10.1080/15524256.2026.2655180

Yinn Shan Ooi, Hui En Lee, Mei Yan Ong, Yue Shean Nicole Ng, Nithia Angamuthu, Eng Koon Ong

{"title":"Biopsychosocial Spiritual Needs of Patients in a Singapore Home Hospice Setting-an Exploratory Qualitative Study.","authors":"Yinn Shan Ooi, Hui En Lee, Mei Yan Ong, Yue Shean Nicole Ng, Nithia Angamuthu, Eng Koon Ong","doi":"10.1080/15524256.2026.2655180","DOIUrl":"https://doi.org/10.1080/15524256.2026.2655180","url":null,"abstract":"Patients receiving home palliative care face complex biopsychosocial-spiritual (BPSS) needs, yet studies on their experiences are limited. This study sought to investigate the BPSS needs of home palliative care patients from a qualitative perspective. Between October 2023 and December 2024, patients admitted to Assisi HPC service in Singapore were invited to participate in individual semi-structured interviews. Twenty eligible patients who provided written consent were interviewed using the BPSS model. The results were transcribed, anonymized, and analyzed through thematic analysis. Three key themes emerged: (1) total suffering, which captured the interconnected nature of physical, psychological, and spiritual distress; (2) loss of personhood and identity, reflecting the disruptions in self-concept caused by illness; and (3) search for spiritual wellbeing, highlighting coping mechanisms shaped by faith, social connections, or acceptance of life's course. While some participants found meaning, others struggled with despair. Protective factors such as social support, spirituality, and personal coping strategies were crucial in reducing distress and fostering adaptation. These findings emphasize the need for a holistic, patient-centered approach in home palliative care, where BPSS needs are dynamic. Strengthening social networks and integrating spiritual care may help patients transition from futile to meaningful suffering, enhancing dignity at life's end.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-21"},"PeriodicalIF":1.0,"publicationDate":"2026-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147699890","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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To Not Move the Flowers: Presence, Loss, and the Limits of Professional Care at the End of Life. 《不要移动花：生命末期专业护理的存在、损失和限度》。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-04-08 DOI: 10.1080/15524256.2026.2655176

Rony Kurniawan Pratama

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Bearing Witness at the Edge of Care: A Reflective Ethical Commentary from Pediatric Social Work Practice. 在护理的边缘作证：来自儿科社会工作实践的反思伦理评论。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-04-07 DOI: 10.1080/15524256.2026.2655976

Aysha Jawed

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Trauma Informed Care with an Alzheimer's Dementia Patient: A Reflection. 创伤知情护理与阿尔茨海默氏痴呆症患者：反思。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-03-30 DOI: 10.1080/15524256.2026.2650697

Hollie A Preston

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Staying Present When Solutions Fail. 当解决方案失败时保持现状。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-03-27 DOI: 10.1080/15524256.2026.2650694

Summaira Rehman

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Implementation of a Family Centered Intervention Among Families with a Parent or Child Who Is Severely Ill - Associations with Organizational Context. 有严重疾病父母或孩子的家庭实施以家庭为中心的干预：与组织情境的关联。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-03-17 DOI: 10.1080/15524256.2026.2642651

Maja Holm, Kristofer Årestedt, Tina Lundberg, Camilla Udo, Malin Lövgren

{"title":"Implementation of a Family Centered Intervention Among Families with a Parent or Child Who Is Severely Ill - Associations with Organizational Context.","authors":"Maja Holm, Kristofer Årestedt, Tina Lundberg, Camilla Udo, Malin Lövgren","doi":"10.1080/15524256.2026.2642651","DOIUrl":"https://doi.org/10.1080/15524256.2026.2642651","url":null,"abstract":"The Family Talk Intervention is a family-centered intervention in six sessions, which can be a tool to help health care social workers support families with dependent children when someone in the family has a severe illness. However, the influence of contextual factors on the implementation of Family Talk Intervention warrants further investigation. The purpose of this study was to examine the organizational context of social workers and its association with the implementation of Family Talk Intervention among families in which a parent or child is severely ill with identified palliative care needs. The study was part of a larger intervention project where Family Talk Intervention was implemented through a structured program in three different clinical care contexts: advanced palliative care, adult cancer care, and advanced pediatric care. Two validated instruments were used to measure social workers' ratings of their organizational context and the implementation of Family Talk Intervention. Results showed that higher ratings on certain organizational aspects were significantly associated with higher implementation ratings. These aspects, namely informal interactions, social capital and culture of the workplace, should be studied further. These may serve as facilitators for the implementation of family-centered interventions like Family Talk Intervention, by social workers and should be observed and promoted during the implementation of interventive processes.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-12"},"PeriodicalIF":1.0,"publicationDate":"2026-03-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147469617","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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Exploring the Role of Palliative Care Providers Perceptions of Gender-Based Violence in Uganda. 探索姑息治疗提供者对乌干达性别暴力的看法的作用。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-03-13 DOI: 10.1080/15524256.2026.2642644

Emily Karalus, Elizabeth Wood, Lacey Ahern, Eve Namisango

{"title":"Exploring the Role of Palliative Care Providers Perceptions of Gender-Based Violence in Uganda.","authors":"Emily Karalus, Elizabeth Wood, Lacey Ahern, Eve Namisango","doi":"10.1080/15524256.2026.2642644","DOIUrl":"https://doi.org/10.1080/15524256.2026.2642644","url":null,"abstract":"Gender-based violence (GBV) is an increasingly prevalent problem that can take many forms, have different levels of severity, and different ways of perpetuation. Palliative care providers' holistic focus assists in improving the quality of life of patients by identifying and responding to various factors that cause suffering in their patients, which provides a unique perspective on identifying GBV. In Uganda, there is a high rate of GBV due to cultural norms, gender inequities, and gender roles. This qualitative case study explored perspectives on GBV through the lens of palliative care providers in Uganda. During 2023, five focus group discussions were conducted across Uganda among different palliative care providers. Thematic analysis was used to identify six themes from the data: Perceptions of What Constitutes GBV, Training Experiences & Recommendations, Identification of GBV, Factors Influencing GBV, Intersectionality of GBV and Palliative Care, and Impact on Family. This study displays the need for developing targeted training, improving collaborative efforts, and creating culturally tailored and appropriate interventions to address GBV through the lens of palliative care providers.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-18"},"PeriodicalIF":1.0,"publicationDate":"2026-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147460558","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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