Journal of Social Work in End-of-Life & Palliative Care最新文献

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The Grammar of Grief in Three Dialects. 三种方言中的悲伤语法。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-05-19 DOI: 10.1080/15524256.2025.2507608
Awu Isaac Oben
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引用次数: 0
"What about Your Social Worker?" Professionals and Families' Perceptions of Pediatric Palliative Care Social Work: A Qualitative Study. “你的社工呢?”专业人员和家庭对儿童姑息治疗社会工作的认知:一项质的研究。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-05-05 DOI: 10.1080/15524256.2025.2499514
Balma Soraya Hernández Moscoso, Josep Maria Torralba Roselló
{"title":"\"What about Your Social Worker?\" Professionals and Families' Perceptions of Pediatric Palliative Care Social Work: A Qualitative Study.","authors":"Balma Soraya Hernández Moscoso, Josep Maria Torralba Roselló","doi":"10.1080/15524256.2025.2499514","DOIUrl":"https://doi.org/10.1080/15524256.2025.2499514","url":null,"abstract":"<p><p>This article offers an in-depth examination of the social worker's role in pediatric palliative care, focusing on their skills and scope of intervention. This study was conducted to understand perceptions of the social worker's contributions within a multidisciplinary palliative care team. A qualitative design with healthcare professionals and families at a major hospital in Catalonia (Spain) was used to gather data. Semi-structured interviews and focus group discussions were used to collect insights into the social worker's diverse roles, including emotional support, family guidance, child protection, and their unique position in connecting healthcare with social, cultural, and relational factors. Findings show that social workers were perceived to be crucial in addressing psychosocial needs, promoting family autonomy, and providing guidance on resources. However, their integration into teams is often hindered by structural and hierarchical barriers. The study highlighted the importance of recognizing and reinforcing the social worker's role through policy changes that ensure their consistent involvement in all aspects of pediatric palliative care. Further studies are needed to develop strong support systems that prioritize the social and emotional needs of families in end-of-life care, ultimately aiming to enhance the quality of pediatric palliative services.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-18"},"PeriodicalIF":1.6,"publicationDate":"2025-05-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143985865","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Spiritual Care, Meaning in Life and Inner Harmony: The Parallel Mediation of Compassion for Others and Self-Compassion in Palliative Care Workers. 精神关怀、生命意义与内心和谐:姑息治疗工作者对他人同情与自我同情的平行中介作用。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-04-21 DOI: 10.1080/15524256.2025.2492018
Dariusz Krok, Dagna Kocur, Małgorzata Fopka-Kowalczyk
{"title":"Spiritual Care, Meaning in Life and Inner Harmony: The Parallel Mediation of Compassion for Others and Self-Compassion in Palliative Care Workers.","authors":"Dariusz Krok, Dagna Kocur, Małgorzata Fopka-Kowalczyk","doi":"10.1080/15524256.2025.2492018","DOIUrl":"https://doi.org/10.1080/15524256.2025.2492018","url":null,"abstract":"<p><p>Working in palliative care is recognized as one of the most demanding occupations, characterized by high levels of stress and frequent exposure to those with life-limiting illnesses and perceived as suffering. Investigating psychological factors that could provide support is crucial, particularly given the importance of compassion and self-compassion in promoting professionals' well-being. A cross-sectional study of palliative care workers (<i>N</i> = 232) found that spiritual care had a positive direct effect on compassion for others and self-compassion. Indirect effects showed that compassion and self-compassion were parallel mediators in the relationship of spiritual care with the presence of meaning. However, only self-compassion mediated the association between spiritual care and inner harmony. The findings showed that the attitudes of palliative care workers reflecting kindness, humanity and attentiveness to themselves and others may play a key role in how they experience of meaning in life and inner harmony. The study underscores the potential value of interventions that educate and develop spiritual care and dimensions of compassion within palliative care workers.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-21"},"PeriodicalIF":1.6,"publicationDate":"2025-04-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144005825","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Vanity's Hollow Hourglass. 虚荣的空心沙漏。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-04-17 DOI: 10.1080/15524256.2025.2494276
Awu Isaac Oben
{"title":"Vanity's Hollow Hourglass.","authors":"Awu Isaac Oben","doi":"10.1080/15524256.2025.2494276","DOIUrl":"https://doi.org/10.1080/15524256.2025.2494276","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2025-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144001211","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An Interdisciplinary Approach to Legacy Work for a Young Cancer patient - A Case Illustration. 一个跨学科的方法,以遗产工作为一个年轻的癌症患者-一个案例说明。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-04-15 DOI: 10.1080/15524256.2025.2492023
Deborah Tan, Grace Yong, Vivian Wong, Benjamin Hooi, Eng Koon Ong
{"title":"An Interdisciplinary Approach to Legacy Work for a Young Cancer patient - A Case Illustration.","authors":"Deborah Tan, Grace Yong, Vivian Wong, Benjamin Hooi, Eng Koon Ong","doi":"10.1080/15524256.2025.2492023","DOIUrl":"https://doi.org/10.1080/15524256.2025.2492023","url":null,"abstract":"<p><p>An interdisciplinary approach to care is essential and crucial in the practice of end-of-life and hospice care. However, there is a lack of data on how social workers and art therapists may work together to provide psychosocial-spiritual interventions. This case study illustrates how the home hospice medical social worker and art therapist employed complementary methods to fulfill the wish of a young adult with advanced cancer through legacy work. Similar team approaches in practice may benefit other patients with similar needs. Further research is needed to investigate patient care outcomes and formulate guidelines to inform and encourage the use of similar complementary team practices.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-8"},"PeriodicalIF":1.6,"publicationDate":"2025-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144019988","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Munch's: 'Death and the Child'. 蒙克的《死亡与孩子》。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-03-25 DOI: 10.1080/15524256.2025.2483681
Steve Marshall
{"title":"Munch's: '<i>Death and the Child</i>'.","authors":"Steve Marshall","doi":"10.1080/15524256.2025.2483681","DOIUrl":"https://doi.org/10.1080/15524256.2025.2483681","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-3"},"PeriodicalIF":1.6,"publicationDate":"2025-03-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143701345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"Enabling Families to Find Their Own Path" - A Narrative Exploration of the Role of Social Workers When a Child is Receiving End-of-Life Care in Hospital. “让家庭找到自己的道路”——儿童在医院接受临终关怀时社会工作者角色的叙事探索。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-03-23 DOI: 10.1080/15524256.2025.2474027
Anne Marie Jones, Erna O'Connor, Jayne Price
{"title":"\"Enabling Families to Find Their Own Path\" - A Narrative Exploration of the Role of Social Workers When a Child is Receiving End-of-Life Care in Hospital.","authors":"Anne Marie Jones, Erna O'Connor, Jayne Price","doi":"10.1080/15524256.2025.2474027","DOIUrl":"https://doi.org/10.1080/15524256.2025.2474027","url":null,"abstract":"<p><p>Social workers are frontline professionals providing psychosocial care to families when children are receiving end-of-life care. To explore the social work role in this context, data was collected from a cohort of 12 social workers employed at a national children's hospital in Ireland, via three focus groups, with four participants in each group. A two-part narrative process elicited social workers' stories of end-of-life care, facilitating the recounting of experiences in the first part of the focus group and allowing the researcher to explore issues raised, in the second part. Following thematic analysis, an overarching theme \"enabling families to find their own path\" emerged, with four sub-themes: a) engaging with families and navigating across boundaries; b) mediating end-of-life care; c) negotiating competing discourses; d) enabling preferences to minimize regrets. The theme and sub-themes provide insight into empowerment of families at this critical time. The use of a narrative approach facilitated the emergence of knowledge about how this is achieved in a hospital setting. This article maps the essential components of practice identified in the study and charts the key contribution that social workers make in supporting families, with the purpose of informing future practice within this field.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-17"},"PeriodicalIF":1.6,"publicationDate":"2025-03-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143693854","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Sea of Grief. 悲伤之海。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-03-03 DOI: 10.1080/15524256.2025.2471859
Andrea G Bell
{"title":"The Sea of Grief.","authors":"Andrea G Bell","doi":"10.1080/15524256.2025.2471859","DOIUrl":"https://doi.org/10.1080/15524256.2025.2471859","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143543889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Specially Designed Room for Dying in Place for Persons with Various Types of Disabilities in Residential Settings in Hong Kong: Their Views on Its Design and Operations. 为香港各类残疾人士在院舍内设计的就地死亡室:他们对其设计及运作的意见
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-02-27 DOI: 10.1080/15524256.2025.2471865
Man C M Tsui, Joseph H L Yuen, Joseph Y M Lo, Gallery K L Choi, Tracy C K Wong, Harry K M Lee, Rebecca S Y Li, Andy K Y Fung, Hector W H Tsang
{"title":"A Specially Designed Room for Dying in Place for Persons with Various Types of Disabilities in Residential Settings in Hong Kong: Their Views on Its Design and Operations.","authors":"Man C M Tsui, Joseph H L Yuen, Joseph Y M Lo, Gallery K L Choi, Tracy C K Wong, Harry K M Lee, Rebecca S Y Li, Andy K Y Fung, Hector W H Tsang","doi":"10.1080/15524256.2025.2471865","DOIUrl":"https://doi.org/10.1080/15524256.2025.2471865","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-4"},"PeriodicalIF":1.6,"publicationDate":"2025-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143517008","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
By A Thousand Miracles, and More. 通过一千个奇迹,甚至更多。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-02-26 DOI: 10.1080/15524256.2025.2471863
Zhaohui Su
{"title":"By A Thousand Miracles, and More.","authors":"Zhaohui Su","doi":"10.1080/15524256.2025.2471863","DOIUrl":"https://doi.org/10.1080/15524256.2025.2471863","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2025-02-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143517009","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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