Yinn Shan Ooi, Hui En Lee, Mei Yan Ong, Yue Shean Nicole Ng, Nithia Angamuthu, Eng Koon Ong
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引用次数: 0
Abstract
Patients receiving home palliative care face complex biopsychosocial-spiritual (BPSS) needs, yet studies on their experiences are limited. This study sought to investigate the BPSS needs of home palliative care patients from a qualitative perspective. Between October 2023 and December 2024, patients admitted to Assisi HPC service in Singapore were invited to participate in individual semi-structured interviews. Twenty eligible patients who provided written consent were interviewed using the BPSS model. The results were transcribed, anonymized, and analyzed through thematic analysis. Three key themes emerged: (1) total suffering, which captured the interconnected nature of physical, psychological, and spiritual distress; (2) loss of personhood and identity, reflecting the disruptions in self-concept caused by illness; and (3) search for spiritual wellbeing, highlighting coping mechanisms shaped by faith, social connections, or acceptance of life's course. While some participants found meaning, others struggled with despair. Protective factors such as social support, spirituality, and personal coping strategies were crucial in reducing distress and fostering adaptation. These findings emphasize the need for a holistic, patient-centered approach in home palliative care, where BPSS needs are dynamic. Strengthening social networks and integrating spiritual care may help patients transition from futile to meaningful suffering, enhancing dignity at life's end.
期刊介绍:
The Journal of Social Work in End-of-Life & Palliative Care, now affiliated with the Social Work in Hospice and Palliative Care Network, explores issues crucial to caring for terminally ill patients and their families. Academics and social work practitioners present current research, articles, and continuing features on the "state of the art" of social work practice, including interdisciplinary interventions, practice innovations, practice evaluations, end-of-life decision-making, grief and bereavement, and ethical and moral issues. The Journal of Social Work in End-of-Life & Palliative Care combines theory and practice to facilitate an understanding of the multi-level issues surrounding care for those in pain and suffering from painful, debilitating, and/or terminal illness.