Biopsychosocial Spiritual Needs of Patients in a Singapore Home Hospice Setting-an Exploratory Qualitative Study.

IF 1 Q2 SOCIAL WORK
Yinn Shan Ooi, Hui En Lee, Mei Yan Ong, Yue Shean Nicole Ng, Nithia Angamuthu, Eng Koon Ong
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Abstract

Patients receiving home palliative care face complex biopsychosocial-spiritual (BPSS) needs, yet studies on their experiences are limited. This study sought to investigate the BPSS needs of home palliative care patients from a qualitative perspective. Between October 2023 and December 2024, patients admitted to Assisi HPC service in Singapore were invited to participate in individual semi-structured interviews. Twenty eligible patients who provided written consent were interviewed using the BPSS model. The results were transcribed, anonymized, and analyzed through thematic analysis. Three key themes emerged: (1) total suffering, which captured the interconnected nature of physical, psychological, and spiritual distress; (2) loss of personhood and identity, reflecting the disruptions in self-concept caused by illness; and (3) search for spiritual wellbeing, highlighting coping mechanisms shaped by faith, social connections, or acceptance of life's course. While some participants found meaning, others struggled with despair. Protective factors such as social support, spirituality, and personal coping strategies were crucial in reducing distress and fostering adaptation. These findings emphasize the need for a holistic, patient-centered approach in home palliative care, where BPSS needs are dynamic. Strengthening social networks and integrating spiritual care may help patients transition from futile to meaningful suffering, enhancing dignity at life's end.

新加坡家庭安宁疗护病患的生物心理社会精神需求:一项探索性质的研究。
接受家庭姑息治疗的患者面临复杂的生物、心理、社会、精神(BPSS)需求,但对其体验的研究有限。本研究旨在从质性角度探讨家庭姑息治疗患者的BPSS需求。在2023年10月至2024年12月期间,新加坡阿西西HPC服务收治的患者被邀请参加个人半结构化访谈。使用BPSS模型对20名提供书面同意的符合条件的患者进行访谈。结果被转录、匿名化,并通过专题分析进行分析。出现了三个关键主题:(1)总的痛苦,它捕捉到了身体、心理和精神痛苦的相互联系的本质;(2)人格和身份的丧失,反映了疾病对自我概念的破坏;(3)寻找精神健康,强调由信仰、社会关系或对生活进程的接受形成的应对机制。虽然一些参与者找到了意义,但其他人却在绝望中挣扎。社会支持、精神和个人应对策略等保护性因素在减少痛苦和促进适应方面至关重要。这些发现强调需要一个整体的,以病人为中心的方法在家庭姑息治疗,其中BPSS的需求是动态的。加强社会网络和整合精神护理可以帮助患者从无谓的痛苦过渡到有意义的痛苦,提高生命结束时的尊严。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
2.60
自引率
12.50%
发文量
28
期刊介绍: The Journal of Social Work in End-of-Life & Palliative Care, now affiliated with the Social Work in Hospice and Palliative Care Network, explores issues crucial to caring for terminally ill patients and their families. Academics and social work practitioners present current research, articles, and continuing features on the "state of the art" of social work practice, including interdisciplinary interventions, practice innovations, practice evaluations, end-of-life decision-making, grief and bereavement, and ethical and moral issues. The Journal of Social Work in End-of-Life & Palliative Care combines theory and practice to facilitate an understanding of the multi-level issues surrounding care for those in pain and suffering from painful, debilitating, and/or terminal illness.
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