Journal of Social Work in End-of-Life & Palliative Care最新文献_第2页

The Family Talk Intervention Among Families Affected by Severe Illness: Hospital Social Workers' Experiences of Facilitators and Barriers to its Use in Clinical Practice. 在重病家庭中开展家庭谈话干预：医院社工在临床实践中使用该方法的促进因素和障碍。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 Epub Date: 2024-07-05 DOI: 10.1080/15524256.2024.2364589

Ingrid Thermaenius, Camilla Udo, Anette Alvariza, Tina Lundberg, Maja Holm, Malin Lövgren

{"title":"The Family Talk Intervention Among Families Affected by Severe Illness: Hospital Social Workers' Experiences of Facilitators and Barriers to its Use in Clinical Practice.","authors":"Ingrid Thermaenius, Camilla Udo, Anette Alvariza, Tina Lundberg, Maja Holm, Malin Lövgren","doi":"10.1080/15524256.2024.2364589","DOIUrl":"10.1080/15524256.2024.2364589","url":null,"abstract":"Hospital social workers (HSW) play an important role in health care, providing psychosocial support to families affected by severe illness, and having palliative care needs involving dependent children. However, there are few evidence-based family interventions for HSWs to apply when supporting these families. The Family Talk intervention (FTI), a psychosocial family-based intervention, was therefore evaluated in an effectiveness-implementation study. Within the study, HSWs were educated and trained in the use of FTI in clinical practice. This study examined HSWs' experiences of barriers and facilitating factors during their initial use of FTI in clinical practice. Altogether, 10 semi-structured focus groups were held with HSWs (n = 38) employed in cancer care and specialized palliative home care for adults, pediatric hospital care, and a children's hospice. Data were analyzed using content analysis. HSWs considered FTI to be a suitable psychosocial intervention for families affected by severe illness with dependent children. However, the way in which the care was organized acted either as a barrier or facilitator to the use of FTI, such as the HSWs' integration in the team and their possibility to organize their own work. The HSWs' work environment also impacted the use of FTI, where time and support from managers was seen as a significant facilitating factor, but which varied between the healthcare contexts. In conclusion, HSWs believed that FTI was a suitable family intervention for families involving dependent children where one family member had a severe illness. For successful initial implementation, strategies should be multi-functional, targeting the care organization and the work environment.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"235-253"},"PeriodicalIF":1.6,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141538761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Losing My Father Changed My Social Work Practice. 失去父亲改变了我的社会工作实践

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 Epub Date: 2024-08-23 DOI: 10.1080/15524256.2024.2389046

Melissa Wombwell-Twersky

引用次数: 0

Virtual Bereavement Support Program in a Children's Hospice Care Center During COVID-19 Pandemic and Beyond. 在 COVID-19 大流行期间及之后，儿童临终关怀中心的虚拟丧亲支持计划。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 DOI: 10.1080/15524256.2024.2364588

Sarah Allan-Wiseman, Nahal Yazdani, Shokoufeh Modanloo

引用次数: 0

Factors Influencing Perception of Social Support among Patients with Advanced Cancer Receiving Palliative Care in Bangladesh. 影响孟加拉国接受姑息治疗的晚期癌症患者对社会支持看法的因素。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 Epub Date: 2024-06-16 DOI: 10.1080/15524256.2024.2367004

Jheelam Biswas, A K M Motiur Rahman Bhuiyan, Afroja Alam, Mostofa Kamal Chowdhury

{"title":"Factors Influencing Perception of Social Support among Patients with Advanced Cancer Receiving Palliative Care in Bangladesh.","authors":"Jheelam Biswas, A K M Motiur Rahman Bhuiyan, Afroja Alam, Mostofa Kamal Chowdhury","doi":"10.1080/15524256.2024.2367004","DOIUrl":"10.1080/15524256.2024.2367004","url":null,"abstract":"The perception of social support among patients with advanced diseases is influenced by various factors. The socio-cultural context of Bangladesh significantly shapes the experience of patients with advanced cancer and their perception of social support. This study's aim was to assess the perceived social support by these patients and investigate the factors that shape their perception. This cross-sectional study was conducted among 115 advanced cancer patients admitted to the palliative medicine department of a tertiary care hospital in Bangladesh. Perceived social support was measured by the Multidimensional Scale of Perceived Social Support (MSPSS). Perceived social support was moderate to high for most (74.7%) of the participants. The majority (97.4%) perceived moderate to high level of support from their families. The lowest level of support was perceived from friends (53%). Factors such as economic status, family size, companionship of children, and emotional support from spouses influenced the level of perceived social support. Social support is one of the important aspects of palliative care. Identifying the factors influencing the perception of social support among cancer patients is essential for palliative care professionals to effectively address their care needs.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"276-291"},"PeriodicalIF":1.6,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141327974","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Dreams in Gojoseon. 五丈原的梦想

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-23 DOI: 10.1080/15524256.2024.2346110

Janice Kim

引用次数: 0

Psychosocial Distress Screening Among Interprofessional Palliative Care Teams: A Narrative Review. 跨专业姑息关怀团队的社会心理压力筛查：叙述性综述。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-23 DOI: 10.1080/15524256.2024.2343052

Chelsea K Brown, Cara L Wallace

{"title":"Psychosocial Distress Screening Among Interprofessional Palliative Care Teams: A Narrative Review.","authors":"Chelsea K Brown, Cara L Wallace","doi":"10.1080/15524256.2024.2343052","DOIUrl":"https://doi.org/10.1080/15524256.2024.2343052","url":null,"abstract":"With increased need for palliative care and limited staffing resources, non-social workers are increasingly responsible for screening for urgent psychosocial distress. The National Consensus Project guidelines call for all palliative care team members to be competent in screening across domains. Yet, in contrast to an abundance of evidence-informed tools for palliative social work assessments, standardization for interprofessional psychosocial screening is lacking. This lack of standardized practice may lead to harmful disparities in care delivery. The purpose of this narrative review is to examine current literature on evidence-informed practices for psychosocial screening within palliative care. Google Scholar, a university Summon library search engine, and prominent palliative care journals were searched using the same phrases to locate articles for inclusion. Each article was reviewed and synthesized across common themes. Although an abundance of validated screening tools exists for outpatient oncology-specific settings, there is minimal guidance on psychosocial screening tools intended for specialty palliative care. The most oft-cited tools have been met with concern for validity across diverse palliative care populations and settings. Additional research is needed to operationalize and measure brief psychosocial screening tools that can be validated for use by interprofessional palliative care teams, a stepping-stone for increased equity in palliative care practice.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"39 1","pages":"1-24"},"PeriodicalIF":1.6,"publicationDate":"2024-04-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140667274","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

High Financial Hardship among Patients with Advanced Ovarian Cancer 晚期卵巢癌患者的高经济困难率

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-18 DOI: 10.1080/15524256.2024.2342285

Elsa Maria Vasquez-Trespalacios, Jessica N. Rivera Rivera, McKenzie McIntyre, Waleska Santiago-Datil, Robert M. Wenham, Susan T. Vadaparampil, Andrea L. Buras, Claire C. Conley

引用次数: 0

Your Unwavering Presence. 你坚定不移的存在

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-01 DOI: 10.1080/15524256.2024.2334264

Carina Oltmann

引用次数: 0

On Dementia. 关于痴呆症

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-01 Epub Date: 2024-02-22 DOI: 10.1080/15524256.2024.2320884

Tarek Zieneldien

引用次数: 0

A Prospective Study with Patients and Families on the Usefulness of Accurate Prognosis for Palliative Care Patients. 与患者和家属共同开展的一项前瞻性研究：准确预后对姑息治疗患者的用处。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-01 Epub Date: 2024-03-06 DOI: 10.1080/15524256.2024.2321330

Manuela Piovesan, Pauline Orr, Sarah Tevyaw, Emily Roussos, Chams Cherid, Sylvie Bouchard

{"title":"A Prospective Study with Patients and Families on the Usefulness of Accurate Prognosis for Palliative Care Patients.","authors":"Manuela Piovesan, Pauline Orr, Sarah Tevyaw, Emily Roussos, Chams Cherid, Sylvie Bouchard","doi":"10.1080/15524256.2024.2321330","DOIUrl":"10.1080/15524256.2024.2321330","url":null,"abstract":"Prediction of life expectancy in terminally ill patients is an important end-of-life care issue for patients, families and mental health workers during the last days of life. This study was conducted to examine the importance/usefulness for patients/families to have an accurate prognosis and its impact on planning their activities prior to death. All patients admitted during a period of one year were included. Patients' and families' viewpoints on the usefulness of an accurate prognosis was documented at admission. There were 285 patients in the cohort. The median time to death was 8 days. Most families (83%) rated the importance of an accurate prognosis as moderately (13%) to very much useful (70%). A total of 42% of patients were able to complete e the questionnaire. Among these, 58% found it moderately to very much useful. For families, having an accurate prognosis influenced the planning of visits (69%), communication/closure (42%) and spiritual needs/funeral arrangements (31%). Patients identified planning of visits (10%), communication/closure (12%), and goals/accomplishments (9%) as very important. Discussing the prognosis and its impact is very helpful for the mental health professionals to have open and honest conversations with patients/families to identify, prioritize and adapt treatment to achieve goals prior to death.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"133-146"},"PeriodicalIF":1.6,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140050649","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0