{"title":"<i>Hiding in Plain Sight</i>: A Narrative Review of Non-Parental Relatives' Perinatal Grief.","authors":"Rennie Bimman, Nancy Graham","doi":"10.1080/15524256.2024.2443152","DOIUrl":"10.1080/15524256.2024.2443152","url":null,"abstract":"<p><p>Perinatal loss is often immensely painful for families, yet remains unrecognized despite its ubiquity. Perinatal loss frequently leads to disenfranchised grief, and members of family systems less proximate to the loss are at risk for additional disenfranchisement. Grandparents and siblings are especially vulnerable to complications in perinatal grief due to intersecting and disenfranchising factors of identity, including age, role within family, and type of loss. The purpose of this narrative review was to examine their experiences in order to provide informed support. Medline via OVID was searched using specific terms to identify articles for inclusion. Content from each article was screened, synthesized, and codified according to salient themes. Evidence found attested to the uniquely complex grief experiences these populations face as a result of their confluent disenfranchisement, and their overwhelming lack of support and recognition. New insights uncovered may inform clinicians as they assess needs and provide support to these oft-ignored grievers. Significant research gaps remain in this subtopic, such as firsthand perspectives of nonparental grievers, data on other extended family members, and the effect of additional psychosocial stressors on nonparental perinatal grief. As recent legal restrictions curtail reproductive healthcare access, the need for support and research is especially salient.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"30-57"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651244","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Chains.","authors":"James Seymour Huntley","doi":"10.1080/15524256.2024.2430970","DOIUrl":"10.1080/15524256.2024.2430970","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"6"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142733261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Apricot Forest.","authors":"Tarek Zieneldien","doi":"10.1080/15524256.2024.2439265","DOIUrl":"10.1080/15524256.2024.2439265","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"7"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792644","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Development of Palliative Care in Finland and Its Societal Impacts: A Scoping Review.","authors":"Miia Kontro","doi":"10.1080/15524256.2025.2468217","DOIUrl":"10.1080/15524256.2025.2468217","url":null,"abstract":"<p><p>Palliative care has evolved considerably over the past decades. This scoping literature review explores the development of palliative care in Finland and its societal impact, guided by Arksey and O'Malley's five-stage framework. A total of 25 articles and grey literature sources were analyzed, revealing three key themes: the evolution and ethical foundations of palliative care in Finland, defining roles and enhancing communication, and equitable access and regional integration in palliative care. The review highlights the role of caregivers and shows that clear communication between caregivers, healthcare professionals, and patients is important to coordinating care and meeting various needs. Furthermore, it stresses the necessity of reducing regional disparities and improving access to palliative care, particularly for individuals without family caregivers. As Finland's population ages, policies must focus on equitable care for individuals living alone to avoid over-reliance on relatives and uphold fundamental rights.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"72-93"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143484182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Donna M Wilson, Brooklyn Grainger, Hannah Fonteyne, Jennifer E Heron, Cynthia Fiore, Suzanne Rainsford, Begoña Errasti-Ibarrondo
{"title":"Remembering the Dead: What Community Newspaper Memorials Reveal.","authors":"Donna M Wilson, Brooklyn Grainger, Hannah Fonteyne, Jennifer E Heron, Cynthia Fiore, Suzanne Rainsford, Begoña Errasti-Ibarrondo","doi":"10.1080/15524256.2025.2469685","DOIUrl":"10.1080/15524256.2025.2469685","url":null,"abstract":"<p><p>People will understandably continue to remember significant persons long after their deaths. One possible remembrance practice is the placement of a memorial about the deceased person in a community newspaper. It is not clear what these memorials are intended to do, how they are constructed, who places them in a public sphere for open viewing, and what purpose or purposes they serve. As these memorials could be important for grief management and other personal, family, or social purposes, an examination of memorials to the dead appearing over one year in the Edmonton Journal, the primary newspaper for a Canadian city of one million inhabitants, was conducted. This research project found memorials were uncommon (N = 567) compared to obituaries (N = 4,865), and very uncommon in relation to the number of decedents who could have been memorialized. Memorial authors were most often parents or children, with memorials usually appearing on a second year or later death anniversary. Two content themes were identified: (a) enduring love for the deceased, and (b) a continuing if not permanent remembrance of them. The findings raise many questions, but primarily how people can openly and constructively grieve long after the death of a loved one.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"58-71"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483784","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Need for Psychiatrists in Hospice Care - A Call for Urgent Action.","authors":"Varshinee Sathyanarayanan","doi":"10.1080/15524256.2024.2445057","DOIUrl":"https://doi.org/10.1080/15524256.2024.2445057","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-3"},"PeriodicalIF":1.6,"publicationDate":"2024-12-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142878201","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Still Ship at Sea.","authors":"Zhaohui Su","doi":"10.1080/15524256.2024.2416626","DOIUrl":"https://doi.org/10.1080/15524256.2024.2416626","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2024-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"What is This Job?","authors":"Catherine Pilling","doi":"10.1080/15524256.2024.2379852","DOIUrl":"10.1080/15524256.2024.2379852","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"314"},"PeriodicalIF":1.6,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141628060","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Editor Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2024.2440833","DOIUrl":"10.1080/15524256.2024.2440833","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"311-312"},"PeriodicalIF":1.6,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142873246","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nur Atikah Mohamed Hussin, Satu-Maria Vesala, Reija Peltomäki, Anna Liisa Aho
{"title":"Post-Traumatic Growth in Finnish Parents After the Traumatic Death of a Child.","authors":"Nur Atikah Mohamed Hussin, Satu-Maria Vesala, Reija Peltomäki, Anna Liisa Aho","doi":"10.1080/15524256.2024.2439291","DOIUrl":"https://doi.org/10.1080/15524256.2024.2439291","url":null,"abstract":"<p><p>The traumatic death of a child may cause a wide range of emotional and behavioral responses in parents. In contrast to the extensive research and literature on the negative aspects of parental bereavement, the topic of post-traumatic growth in parents has received relatively little attention. This study addressed a need for further understanding post-traumatic growth in parents following the traumatic death of a child. To recruit participants, an online advertisement was posted on the websites of Finnish bereavement organizations, their member mailing lists, and closed discussion groups. Seventeen parents were interviewed in-depth over the phone. This qualitative involved an inductive content analysis of 401 narratives of post-traumatic growth in the grief experiences of participants. The post-traumatic growth identified featured positive attitudes toward life, positive attitudes toward death, enhancing one's spiritual life, improvements in well-being, concern about others' needs and wanting to help, and meaningful relationships. The findings highlight the increasing complexity of topics in spirituality and social work with bereaved parents.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"20 4","pages":"334-351"},"PeriodicalIF":1.6,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013018","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}