Journal of Social Work in End-of-Life & Palliative Care最新文献_第3页

Holding Fast in a Downpour of Trauma: A Reflection on Parallel Planning and Loss. 在创伤的倾盆大雨中坚守：对平行计划和损失的反思。

IF 1.3

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-07-01 Epub Date: 2026-02-06 DOI: 10.1080/15524256.2026.2625692

Aysha Jawed

引用次数: 0

Balancing Safety and Compassion: A Social Work Reflection on Pediatric End-of-Life Care. 平衡安全和同情：儿童临终关怀的社会工作反思。

IF 1.3

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-07-01 Epub Date: 2026-01-05 DOI: 10.1080/15524256.2026.2612735

Aysha Jawed

引用次数: 0

Finnish Parents' Preferences for Online Grief Support Content After a Child's Death. 芬兰父母在孩子死后对在线悲伤支持内容的偏好。

IF 1.3

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-07-01 Epub Date: 2026-06-02 DOI: 10.1080/15524256.2026.2674197

Nur Atikah Mohamed Hussin, Tiia Alanko, Anna Liisa Aho

{"title":"Finnish Parents' Preferences for Online Grief Support Content After a Child's Death.","authors":"Nur Atikah Mohamed Hussin, Tiia Alanko, Anna Liisa Aho","doi":"10.1080/15524256.2026.2674197","DOIUrl":"10.1080/15524256.2026.2674197","url":null,"abstract":"Online grief support has become a valuable resource for parents coping with the death of a child as it offers accessible and ongoing support during what is often a deeply challenging time. However, the specific content needs within these platforms remain underexplored. This study's purpose was to identify the types of content parents find most helpful in online grief support following the loss of a child. A total of 141 parents in Finland completed an online survey consisting of 62 Likert-scale questions related to their content preferences for grief interventions. The findings revealed that these parents sought information about grief and typical grief reactions, coping strategies, available support services, practical arrangements, self-assessment tools, and personalized content tailored to individual needs. They also expressed the importance of support that actively support coping and healing. Social work practictioners could use these findings in the design of multidisciplinary grief interventions that address the complex psychological, social, and spiritual needs of bereaved individuals and families.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"268-288"},"PeriodicalIF":1.3,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148145006","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors Influencing Quality of Life Among Family Caregivers Supporting Heart Failure Home Care in Rural Appalachia. 影响阿巴拉契亚农村心力衰竭家庭照护者生活质量的因素

IF 1.3

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-07-01 Epub Date: 2026-07-08 DOI: 10.1080/15524256.2026.2697320

Ubolrat Piamjariyakul, Angelo Giolzetti, Michael Wojciechowski, Joy Mbadiwe, Stephanie Young, Angel Smothers, Sijin Wen, Carol Smith

{"title":"Factors Influencing Quality of Life Among Family Caregivers Supporting Heart Failure Home Care in Rural Appalachia.","authors":"Ubolrat Piamjariyakul, Angelo Giolzetti, Michael Wojciechowski, Joy Mbadiwe, Stephanie Young, Angel Smothers, Sijin Wen, Carol Smith","doi":"10.1080/15524256.2026.2697320","DOIUrl":"10.1080/15524256.2026.2697320","url":null,"abstract":"Rural caregivers of older adults with heart failure experience substantial caregiving burden and reduced quality of life. This cross-sectional study examined how caregiver characteristics, demographics, psychological variables (anxiety, depression, loneliness, spiritual well-being), and palliative care concerns predict quality of life among rural family caregivers. Conducted in rural Appalachia, the study included 68 informal caregivers providing in-home care to adults aged 50 or older with advanced heart failure. Quality of life was measured using the World Health Organization Quality of Life-BREF, assessing physical, psychological, social, and environmental domains. Backward stepwise regression analyses were conducted for each domain. Caregivers were primarily older (mean age 60), female, White, and spouses or partners. All models were statistically significant. Lower depressive symptoms consistently predicted better quality of life across multiple domains. Greater spiritual well-being was associated with improved psychological and social relationship, while fewer palliative care-related communication and practical concerns were linked to better psychological and environmental quality of life. Lower loneliness predicted better social relationship, and higher income and older age were associated with improved environmental quality of life. Findings highlight the importance of interdisciplinary support, including social work and healthcare services, to enhance rural caregiver well-being through tailored, home-based, and palliative care interventions.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"180-198"},"PeriodicalIF":1.3,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148413294","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Evaluation of Nursing Home Care Staff's Views on Dignified Death: A Qualitative Study. 疗养院护理员尊严死亡观评价：质性研究

IF 1.3

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-07-01 Epub Date: 2026-02-19 DOI: 10.1080/15524256.2026.2633502

Yasemin Çekiç, Mesiya Aydın, Tuba Yılmaz Bulut

引用次数: 0

Impact of Serious Illnesses on Advance Care Planning Practice in Japan. 严重疾病对日本提前护理计划实践的影响。

IF 1.3

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-07-01 Epub Date: 2026-07-23 DOI: 10.1080/15524256.2026.2706478

Takuya Makihara, Tatsuya Hosoba, Ayumi Ochi

{"title":"Impact of Serious Illnesses on Advance Care Planning Practice in Japan.","authors":"Takuya Makihara, Tatsuya Hosoba, Ayumi Ochi","doi":"10.1080/15524256.2026.2706478","DOIUrl":"10.1080/15524256.2026.2706478","url":null,"abstract":"This study was conducted to clarify the practical characteristics of decision-making support in the form of advance care planning provided by care managers to clients with heart disease and dementia and to examine the impact of perceptions of multidisciplinary collaboration on such practices. A survey was conducted of care managers working for home-based care support agencies in Japan. Measures included advance care planning practice scales that were specific to each condition and a scale measuring collaboration with medical professionals. Factor analysis revealed that the content of advance care planning practice varies in relation to the characteristics of the given condition. For heart disease, the elements were emotional support and the understanding of values, while for dementia, the elements were information sharing with families and respect for each individual's strengths. Furthermore, multiple regression analysis indicated that perceptions regarding overall collaboration with healthcare professionals and predictions of future changes were common factors that promoted advance care planning practice in both disease groups. These findings indicated that promoting effective advance care planning requires an approach that is tailored to the characteristics of each disease and that strengthening interprofessional collaboration is key to supporting care managers' practice.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"199-221"},"PeriodicalIF":1.3,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148563386","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sorrow, Unpermitted: A Narrative Review of Grief in Chronic Liver Disease. 悲伤，不允许：慢性肝病悲伤的叙事回顾。

IF 1.3

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-07-01 Epub Date: 2026-08-06 DOI: 10.1080/15524256.2026.2710138

Rennie Bimman, Anushka Dalvi, Grace Bizup, Bailey Marshall, Bonnie Mullins, Abigail Scherrer, Jane M Lavallee, Malia E Armstrong, William Munroe, Nancy Mason, Sara Kenimer, Kirsten G Engel, Michelle S Diop, Karen O'Brien, Carrie G Wade, Nneka N Ufere

{"title":"Sorrow, Unpermitted: A Narrative Review of Grief in Chronic Liver Disease.","authors":"Rennie Bimman, Anushka Dalvi, Grace Bizup, Bailey Marshall, Bonnie Mullins, Abigail Scherrer, Jane M Lavallee, Malia E Armstrong, William Munroe, Nancy Mason, Sara Kenimer, Kirsten G Engel, Michelle S Diop, Karen O'Brien, Carrie G Wade, Nneka N Ufere","doi":"10.1080/15524256.2026.2710138","DOIUrl":"10.1080/15524256.2026.2710138","url":null,"abstract":"Chronic liver disease, currently the 9th leading cause of death in the U.S., creates complex medical and psychosocial challenges. Individuals with liver disease, their caregivers, and their clinicians may be affected by this illness, and at risk for challenging grief experiences. However, grief in chronic liver disease has been underexplored. The purpose of this narrative review was to examine the grief experiences of adults with chronic liver disease, their caregivers, and their clinicians. Embase, Medline, Web of Science, CINAHL, PsycINFO, and Social Sciences online databases were searched resulting in a total of 11 included articles. 12 themes emerged capturing the unique grief in chronic liver disease: seven themes pertaining to observations of grief; including wide-ranging emotions, multifaceted losses and social isolation, unique patient age profile, stage of life, and intersections with substance use, stigma, (prognostic) uncertainty, unique caregiver burden and grief, and the need for quality palliative and/or end-of-life care, and five themes pertaining to interventions in grief; including the role and benefit of palliative care, advance care planning, interdisciplinary support, hospice, and other strategies. Findings highlight a need for interventions and further research to improve the grief experiences of people with chronic liver disease and their personal and professional caregivers.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"289-322"},"PeriodicalIF":1.3,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148680324","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

When Words Fade, Care Remains. 当言语褪去，关怀依旧。

IF 1.3

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-07-01 Epub Date: 2026-01-22 DOI: 10.1080/15524256.2026.2620377

Samra Maqbool

引用次数: 0

Living Outside the ALS Home - Everyday Experiences, Challenges and Needs of Adult Children with a Parent with ALS. 生活在渐冻人之家之外——父母患有渐冻人症的成年子女的日常经历、挑战和需要。

IF 1.3

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-07-01 Epub Date: 2026-05-16 DOI: 10.1080/15524256.2026.2672970

Lene Olesen, Stine Kaysen Moèll, Lone Knudsen

{"title":"Living Outside the ALS Home - Everyday Experiences, Challenges and Needs of Adult Children with a Parent with ALS.","authors":"Lene Olesen, Stine Kaysen Moèll, Lone Knudsen","doi":"10.1080/15524256.2026.2672970","DOIUrl":"10.1080/15524256.2026.2672970","url":null,"abstract":"Adult children of a parent with ALS may be highly burdened and in need of support, but studies of their experiences and needs are scarce. The aim of this study was to explore everyday experiences, challenges and needs of adult children living outside the home of a parent with amyotrophic lateral sclerosis (ALS). The design was qualitative using Interpretive Description methodology and Sense of Coherence as framework. Focus group interviews were conducted with 16 adult children. Participants experienced changes in relationship and roles with siblings and parents when ALS moved into the family. Their parents' disease evoked a need for understanding ALS and its trajectory as the disease raised questions, concerns, and sorrow. Furthermore, having a parent with ALS led to strong and mixed emotions and dilemmas like bad conscience, self-blame, gratitude and closeness and wanting to be there but also not being able to bear witnessing the deterioration of their parent. Adult children experience profound challenges and needs related to their parent's disease. They need information and support from professionals and peers as they struggle to balance the demands related to ALS and everyday life with family, work and leisure. Professionals should provide support for this vulnerable group who appear highly burdened practically and emotionally by the situation.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"241-267"},"PeriodicalIF":1.3,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147960506","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Between the Phone Call and the Weather. 在电话和天气之间。

IF 1.3

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-06-30 DOI: 10.1080/15524256.2026.2696873

Rio Febriannur Rachman

引用次数: 0