Journal of Social Work in End-of-Life & Palliative Care最新文献_第3页

Always Politically Correct: Supporting Seriously Ill Older Populations and Their Families. 始终保持政治正确：为身患重病的老年人及其家人提供支持》。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-10-01 Epub Date: 2024-08-12 DOI: 10.1080/15524256.2024.2391393

M Courtney Hughes, Erin Vernon

引用次数: 0

Disbelief, Distress, & Distrust: Trending Institution Related Emotional Distress During COVID-19. 不相信、痛苦和不信任：COVID-19 期间与机构相关的情绪困扰趋势。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-10-01 Epub Date: 2024-10-03 DOI: 10.1080/15524256.2024.2404461

Jillian Sherman, Shannon Petros

{"title":"Disbelief, Distress, & Distrust: Trending Institution Related Emotional Distress During COVID-19.","authors":"Jillian Sherman, Shannon Petros","doi":"10.1080/15524256.2024.2404461","DOIUrl":"10.1080/15524256.2024.2404461","url":null,"abstract":"The COVID-19 pandemic had an unprecedented impact on the well-being of individuals working in the healthcare sector. Though many studies exist that focus on physician and nurse well-being, few have specifically identified stressors that affect professionals working within the end-of-life interdisciplinary team. The primary objective of this study was to expand research on moral distress and clinician well-being to include healthcare professionals working with patients with chronic and life-limiting illnesses during the COVID-19 pandemic. A survey approach was used with 110 professionals working within one hospital network's palliative and hospice team to identify key indicators of moral distress (using the MMD-HP scale) and professional well-being during the pandemic. Quantitative and qualitative analysis was completed to determine themes related to moral distress and professional well-being. Numerous themes were identified, including the importance of caseload, general support, team support, management, and professional flexibility. Additional end-of-life themes were identified, including the impact of death, lack of personal protective equipment, fear of transmitting the virus, COVID disbelief, and the inability of clinicians and/or family to be with patients in person. From the experience participants had during COVID-19, four areas of change were identified: professional resilience, management/ethics support, professional development, and physical and emotional safety.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"352-373"},"PeriodicalIF":1.6,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142373204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Phenomenological Study of Clinical Stillbirth Management for Grieving Mothers. 为悲伤的母亲进行死产临床管理的现象学研究。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-10-01 Epub Date: 2024-11-05 DOI: 10.1080/15524256.2024.2420186

Sahar Al-Shuqerat, Zaid Al-Hamdan, Hala Bawadi

{"title":"A Phenomenological Study of Clinical Stillbirth Management for Grieving Mothers.","authors":"Sahar Al-Shuqerat, Zaid Al-Hamdan, Hala Bawadi","doi":"10.1080/15524256.2024.2420186","DOIUrl":"10.1080/15524256.2024.2420186","url":null,"abstract":"For any expectant mother, the worst possible outcome of pregnancy is for the baby to die. The experience can lead to various forms of physical and psychosocial morbidity. The purpose of this study was to gain in-depth understanding of the experiences of mothers who suffered stillbirth with a view to improving the clinical management of stillbirth. Semi-structured qualitative interviews were conducted with ten women who had experienced stillbirths within one year prior to the interview. The interviews were recorded and transcribed verbatim. The data were analyzed using Smith's interpretative phenomenological analysis (IPA) model and ATLAS.ti 8 software. Healthcare professionals identified three main themes: clinical management for stillbirth and bereaved mothers across various roles; public hospitals; and the Jordanian Ministry of Health Policies and Guidelines. The study findings underscore the devastating impact of insensitive and poor-quality care on bereaved mothers, highlighting how it exacerbates their grief and sorrow. These findings emphasize the need for training healthcare providers in perinatal loss and bereavement care, as well as the importance of adopting new policies and guidelines to improve the quality of care provided to bereaved mothers.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"318-333"},"PeriodicalIF":1.6,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142577025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"They Make the Will, But They Want the Food:" Staff Perspectives on Challenges in Implementing Dementia Advance Directives Related to Stopping Feeding. "他们立下遗嘱，却想要食物："工作人员对执行与停止喂食有关的痴呆症预先医疗指示所面临挑战的看法。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 DOI: 10.1080/15524256.2024.2365368

Meredith Levine, Mercedes Bern-Klug

引用次数: 0

Factors Influencing Palliative and End-of-Life Care for Adults with Intellectual Disabilities: A Scoping Review of Health and Care Workers' Experiences. 影响智障成人姑息治疗和临终关怀的因素：影响智障成人姑息治疗和临终关怀的因素：医疗和护理工作者经验的范围界定研究》（A Scoping Review of Health and Care Workers' Experiences）。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 Epub Date: 2024-05-05 DOI: 10.1080/15524256.2024.2346113

Romane Couvrette, É Milot, G Fortin

引用次数: 0

Editor Introduction. 编辑介绍。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 Epub Date: 2024-09-11 DOI: 10.1080/15524256.2024.2400826

Ellen L Csikai

引用次数: 0

The Family Talk Intervention Among Families Affected by Severe Illness: Hospital Social Workers' Experiences of Facilitators and Barriers to its Use in Clinical Practice. 在重病家庭中开展家庭谈话干预：医院社工在临床实践中使用该方法的促进因素和障碍。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 Epub Date: 2024-07-05 DOI: 10.1080/15524256.2024.2364589

Ingrid Thermaenius, Camilla Udo, Anette Alvariza, Tina Lundberg, Maja Holm, Malin Lövgren

{"title":"The Family Talk Intervention Among Families Affected by Severe Illness: Hospital Social Workers' Experiences of Facilitators and Barriers to its Use in Clinical Practice.","authors":"Ingrid Thermaenius, Camilla Udo, Anette Alvariza, Tina Lundberg, Maja Holm, Malin Lövgren","doi":"10.1080/15524256.2024.2364589","DOIUrl":"10.1080/15524256.2024.2364589","url":null,"abstract":"Hospital social workers (HSW) play an important role in health care, providing psychosocial support to families affected by severe illness, and having palliative care needs involving dependent children. However, there are few evidence-based family interventions for HSWs to apply when supporting these families. The Family Talk intervention (FTI), a psychosocial family-based intervention, was therefore evaluated in an effectiveness-implementation study. Within the study, HSWs were educated and trained in the use of FTI in clinical practice. This study examined HSWs' experiences of barriers and facilitating factors during their initial use of FTI in clinical practice. Altogether, 10 semi-structured focus groups were held with HSWs (n = 38) employed in cancer care and specialized palliative home care for adults, pediatric hospital care, and a children's hospice. Data were analyzed using content analysis. HSWs considered FTI to be a suitable psychosocial intervention for families affected by severe illness with dependent children. However, the way in which the care was organized acted either as a barrier or facilitator to the use of FTI, such as the HSWs' integration in the team and their possibility to organize their own work. The HSWs' work environment also impacted the use of FTI, where time and support from managers was seen as a significant facilitating factor, but which varied between the healthcare contexts. In conclusion, HSWs believed that FTI was a suitable family intervention for families involving dependent children where one family member had a severe illness. For successful initial implementation, strategies should be multi-functional, targeting the care organization and the work environment.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"235-253"},"PeriodicalIF":1.6,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141538761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Losing My Father Changed My Social Work Practice. 失去父亲改变了我的社会工作实践

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 Epub Date: 2024-08-23 DOI: 10.1080/15524256.2024.2389046

Melissa Wombwell-Twersky

引用次数: 0

Virtual Bereavement Support Program in a Children's Hospice Care Center During COVID-19 Pandemic and Beyond. 在 COVID-19 大流行期间及之后，儿童临终关怀中心的虚拟丧亲支持计划。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 DOI: 10.1080/15524256.2024.2364588

Sarah Allan-Wiseman, Nahal Yazdani, Shokoufeh Modanloo

引用次数: 0

Factors Influencing Perception of Social Support among Patients with Advanced Cancer Receiving Palliative Care in Bangladesh. 影响孟加拉国接受姑息治疗的晚期癌症患者对社会支持看法的因素。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-07-01 Epub Date: 2024-06-16 DOI: 10.1080/15524256.2024.2367004

Jheelam Biswas, A K M Motiur Rahman Bhuiyan, Afroja Alam, Mostofa Kamal Chowdhury

{"title":"Factors Influencing Perception of Social Support among Patients with Advanced Cancer Receiving Palliative Care in Bangladesh.","authors":"Jheelam Biswas, A K M Motiur Rahman Bhuiyan, Afroja Alam, Mostofa Kamal Chowdhury","doi":"10.1080/15524256.2024.2367004","DOIUrl":"10.1080/15524256.2024.2367004","url":null,"abstract":"The perception of social support among patients with advanced diseases is influenced by various factors. The socio-cultural context of Bangladesh significantly shapes the experience of patients with advanced cancer and their perception of social support. This study's aim was to assess the perceived social support by these patients and investigate the factors that shape their perception. This cross-sectional study was conducted among 115 advanced cancer patients admitted to the palliative medicine department of a tertiary care hospital in Bangladesh. Perceived social support was measured by the Multidimensional Scale of Perceived Social Support (MSPSS). Perceived social support was moderate to high for most (74.7%) of the participants. The majority (97.4%) perceived moderate to high level of support from their families. The lowest level of support was perceived from friends (53%). Factors such as economic status, family size, companionship of children, and emotional support from spouses influenced the level of perceived social support. Social support is one of the important aspects of palliative care. Identifying the factors influencing the perception of social support among cancer patients is essential for palliative care professionals to effectively address their care needs.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"276-291"},"PeriodicalIF":1.6,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141327974","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0