Journal of Social Work in End-of-Life & Palliative Care最新文献_第3页

A Specially Designed Room for Dying in Place for Persons with Various Types of Disabilities in Residential Settings in Hong Kong: Their Views on Its Design and Operations. 为香港各类残疾人士在院舍内设计的就地死亡室：他们对其设计及运作的意见

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-01-01 Epub Date: 2025-02-27 DOI: 10.1080/15524256.2025.2471865

Man C M Tsui, Joseph H L Yuen, Joseph Y M Lo, Gallery K L Choi, Tracy C K Wong, Harry K M Lee, Rebecca S Y Li, Andy K Y Fung, Hector W H Tsang

引用次数: 0

Prevalence Rate of Depression in Palliative and Hospice Care: A Narrative Review. 缓和疗护与安宁疗护中抑郁症的患病率：叙述性回顾。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-01-01 Epub Date: 2025-12-18 DOI: 10.1080/15524256.2025.2601629

Reid M Jacobs

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From Diagnosis to Care: Lived Experiences of Family Caregivers of Patients with Newly Diagnosed Metastatic Cancer. 从诊断到护理：新诊断的转移性癌症患者的家庭照顾者的生活经历。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-01-01 Epub Date: 2025-12-13 DOI: 10.1080/15524256.2025.2601628

Kiran Thampi, Ann Kurian, Lija Mary Mathew, Abshana Jamal, Sabine Wardle

{"title":"From Diagnosis to Care: Lived Experiences of Family Caregivers of Patients with Newly Diagnosed Metastatic Cancer.","authors":"Kiran Thampi, Ann Kurian, Lija Mary Mathew, Abshana Jamal, Sabine Wardle","doi":"10.1080/15524256.2025.2601628","DOIUrl":"10.1080/15524256.2025.2601628","url":null,"abstract":"Cancer presents a major public health concern, worldwide withmetastatic cancer being particularly alarming due to its association to cancer-related mortality. The burden of cancer is increasing in LMICs like India, particularly in Kerala, the southernmost state renowned for its remarkable healthcare achievements and high health index rankings. Despite Kerala's reputation for healthcare, it records the highest crude cancer incidence rate in the country, placing increasing pressure on its healthcare services. Family caregivers play a vital role in supporting patients during this period of distress; however, their psychosocial needs are often overlooked. This study adopts a descriptive qualitative approach to explore the experiences of family caregivers of patients newly diagnosed with metastatic cancer. Eight family caregivers were recruited from a cancer care center in Kerala that supports both patients and caregivers. In-depth interviews were conducted by trained social work students under the supervision of the research team. The analysis generated five major themes describing caregivers' journey: the initial diagnosis; factors shaping their caregiving role; their evolving responsibilities; challenges encountered, and available support systems. The study findings underscore the need for evidence-based practices and policies that address the holistic needs enhancing health outcomes for both caregivers and patients.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"49-72"},"PeriodicalIF":1.0,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145745007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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The Caregiver's Hands. 看护者的手。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-01-01 Epub Date: 2025-12-04 DOI: 10.1080/15524256.2025.2598068

Amir Mahmood

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Hospice Communication and MAID in Washington State: A Qualitative Case Study of Transparency, Ethics, and Social Work Practice Implications. 华盛顿州安宁疗护沟通与MAID：透明度、伦理与社会工作实务影响之定性个案研究。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-01-01 Epub Date: 2025-12-12 DOI: 10.1080/15524256.2025.2601630

Lauren Gil Hayes

{"title":"Hospice Communication and MAID in Washington State: A Qualitative Case Study of Transparency, Ethics, and Social Work Practice Implications.","authors":"Lauren Gil Hayes","doi":"10.1080/15524256.2025.2601630","DOIUrl":"10.1080/15524256.2025.2601630","url":null,"abstract":"Medical Aid in Dying (MAID) is legal in Washington State, and most individuals who pursue it are enrolled in hospice care. Despite legalization, many hospices omit MAID from their business websites, leaving patients and families without clear guidance for decision-making. This qualitative case study used exploratory document analysis, guided by the READ approach, to examine how Medicare-certified hospices in Washington communicated, or obscured, their stance on MAID through website content. Only 60% presented any position, policy, or related services online. The analysis assessed clarity, accessibility, and interpretive burden from the perspective of a prospective patient or caregiver. Four typologies emerged, Silent, Compliant, Restrictive, and Affirming, reflecting approaches that ranged from withholding all mention of MAID to providing clear, patient-oriented information. Findings suggest that public communication is not a neutral act but an ethically consequential one. When organizational silence prevails, social workers often bear the burden of interpreting policy and guiding patients with limited institutional support. Positioned at the intersection of ethics, advocacy, and care coordination, social workers are uniquely equipped to promote transparency and patient self-determination. A practice-ready toolkit is provided to support social workers in assessing hospice messaging and advocating for accessible, values-consistent communication in legally authorized settings.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"11-34"},"PeriodicalIF":1.0,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145745134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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When the Stage Goes Quiet: A Meditation on Vidi Aldiano's Hiatus. 当舞台安静下来：对维迪·阿尔迪亚诺间歇期的沉思。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-12-26 DOI: 10.1080/15524256.2025.2607047

Rony Kurniawan Pratama

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The Last Conversation That Never Happened. 最后一次从未发生的对话。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-12-12 DOI: 10.1080/15524256.2025.2601631

Nadia Rehman

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Strategies for Self-Care and Support During the COVID-19 Pandemic: Findings From an International Survey of Social Workers in Palliative Care. COVID-19大流行期间的自我护理和支持策略：对姑息治疗社会工作者的国际调查结果

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-10-01 Epub Date: 2025-11-25 DOI: 10.1080/15524256.2025.2588585

Patricia Dobríková, Audrey Roulston, Natália Valúchová, Maria Wasner, Petruta Anania

{"title":"Strategies for Self-Care and Support During the COVID-19 Pandemic: Findings From an International Survey of Social Workers in Palliative Care.","authors":"Patricia Dobríková, Audrey Roulston, Natália Valúchová, Maria Wasner, Petruta Anania","doi":"10.1080/15524256.2025.2588585","DOIUrl":"10.1080/15524256.2025.2588585","url":null,"abstract":"The COVID-19 pandemic caused many hospice and palliative care services to reconfigure existing services and invent new ones using technology and remote working. Workloads increased in response to demand and healthcare professionals risked professional burnout, stress and emotional exhaustion. The aim of this study was to conduct secondary analysis of international survey data from palliative care social workers regarding the support received during the COVID-19 pandemic. A cross-sectional online survey-based design was used. Social workers in palliative care were invited to participate via members of international palliative care Social Work networks. The findings are based on data from 278 respondents from 21 countries. Most reported online team meetings, supervision and peer-led group supervision as the main support strategies during the pandemic, yet many indicated they had no time during the pandemic to access support. With hindsight, 43.5% of respondents said they would have done things differently during the pandemic. Most regretted implementing social distancing measures, due to the social isolation, moral distress and impact on grieving relatives. Managers need to help social workers prioritize self-care and proactively engage in support strategies, including supervision, peer-led group supervision and have a better work-life balance that allows time to switch off from work.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"247-262"},"PeriodicalIF":1.0,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145597916","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Lessons Learned Teaching Loss. 教学损失。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-10-01 Epub Date: 2025-07-03 DOI: 10.1080/15524256.2025.2528035

E Goldblatt Hyatt, Tangela Sawyerr

引用次数: 0

Horticulture Therapy as a Complementary Intervention in Palliative Care: A Narrative Review. 园艺疗法作为一种辅助干预在姑息治疗：叙述回顾。

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Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-10-01 Epub Date: 2025-11-17 DOI: 10.1080/15524256.2025.2588573

Muhammad Bilal Nadeem, Esha Habib, Muhammad Hamayal

{"title":"Horticulture Therapy as a Complementary Intervention in Palliative Care: A Narrative Review.","authors":"Muhammad Bilal Nadeem, Esha Habib, Muhammad Hamayal","doi":"10.1080/15524256.2025.2588573","DOIUrl":"10.1080/15524256.2025.2588573","url":null,"abstract":"Palliative care is provided to chronically ill patients to offer symptomatic relief from their disease, but it is not a curative treatment. A range of strategies are employed to alleviate symptoms and improve quality of life, among which horticultural therapy has emerged as a possible option. Horticultural therapy has been shown to provide diverse benefits, including creating a calming environment that provides comfort and emotional support for palliative care patients. Patients experience symptom relief and perceived pain reduction through engaging activities that distract from discomfort. Those with mental health disorders also report decreased symptoms after participating in horticulture therapy. It also encourages healthier and proactive lifestyle through physical exercise and a more positive outlook on life, however, participants should be cautious of potential risks, such as dehydration and fatigue. This therapy can result in reduced cortisol and increased serotonin levels, indicating lower stress and improvement of cognitive function. Moreover, horticultural activities enhance social well-being by fostering interactions and strengthening social bonds among participants. Horticultural therapy benefits patients' senses by providing an immersive experience with diverse colors, textures, fragrances, and lush landscapes. Through the interplay of these mechanisms, horticulture therapy holds strong prospect of emerging as valuable addition to palliative care.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"263-280"},"PeriodicalIF":1.0,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145542943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0