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Journal of Social Work in End-of-Life & Palliative Care最新文献

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What Stroke Taught Me About Care. 中风教会我什么是关爱。
IF 1.3
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-06-29 DOI: 10.1080/15524256.2026.2696866
Raditya Pratama Putra
{"title":"What Stroke Taught Me About Care.","authors":"Raditya Pratama Putra","doi":"10.1080/15524256.2026.2696866","DOIUrl":"https://doi.org/10.1080/15524256.2026.2696866","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-3"},"PeriodicalIF":1.3,"publicationDate":"2026-06-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148354127","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Different Goodbyes. 不同的道别。
IF 1.3
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-06-29 DOI: 10.1080/15524256.2026.2696868
Seto Herwandito, Sampoerno, Alvianto Wahyudi Utomo
{"title":"Different Goodbyes.","authors":"Seto Herwandito, Sampoerno, Alvianto Wahyudi Utomo","doi":"10.1080/15524256.2026.2696868","DOIUrl":"https://doi.org/10.1080/15524256.2026.2696868","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.3,"publicationDate":"2026-06-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148354107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Role of Volunteers in Providing Palliative Care Services in Iran: A Qualitative Study. 志愿者在伊朗提供姑息治疗服务中的作用：一项定性研究。
IF 1
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-06-09 DOI: 10.1080/15524256.2026.2685052
Hadis Ashrafizadeh, Azam Eshaghian-Dorcheh, Samira Beiranvand, Mohammad-Sajad Zare, Maryam Rassouli
{"title":"The Role of Volunteers in Providing Palliative Care Services in Iran: A Qualitative Study.","authors":"Hadis Ashrafizadeh, Azam Eshaghian-Dorcheh, Samira Beiranvand, Mohammad-Sajad Zare, Maryam Rassouli","doi":"10.1080/15524256.2026.2685052","DOIUrl":"https://doi.org/10.1080/15524256.2026.2685052","url":null,"abstract":"<p><p>Access to palliative care for patients with chronic illnesses, including cancer, is essential. However, limited health system resources and reliance on charitable support in many countries have created service gaps. Volunteers can play a key role in bridging these gaps. This qualitative study explored the roles and responsibilities of volunteers in Iran's palliative care services. Semi-structured interviews were conducted with 12 stakeholders involved in volunteer-based palliative care, including policymakers/program managers, palliative care providers, community participation/public engagement experts, volunteers, and family caregivers. Data were analyzed using Graneheim and Lundman's approach with MAXQDA 20 software. The central theme identified was \"Volunteers as the Missing Link in the Health System.\" Three main categories emerged: (1) facilitators of volunteer services, including perceived benefits for volunteers, patients, families, and the community; (2) management of volunteer services, encompassing infrastructure, planning, and leadership; and (3) outcomes of volunteering, including cultural promotion and invisible impacts. Volunteer involvement in palliative care may yield multidimensional benefits and foster a culture of participation. Effective management is essential to ensure structured and sustainable engagement. Stakeholders should prioritize the development of legal frameworks (Policies and Governmental or facility), standardized training, and organizational models to institutionalize volunteer participation in palliative care.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-23"},"PeriodicalIF":1.0,"publicationDate":"2026-06-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148206301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Screams, Silence, and Space: Trauma-Informed Presence during Pediatric Diagnostic Grief. 尖叫、沉默和空间：儿童诊断悲伤期间的创伤知情存在。
IF 1
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-06-03 DOI: 10.1080/15524256.2026.2682146
Aysha Jawed
{"title":"Screams, Silence, and Space: Trauma-Informed Presence during Pediatric Diagnostic Grief.","authors":"Aysha Jawed","doi":"10.1080/15524256.2026.2682146","DOIUrl":"https://doi.org/10.1080/15524256.2026.2682146","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-5"},"PeriodicalIF":1.0,"publicationDate":"2026-06-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148151755","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
My Body Learned to Fear Sugar Before It Learned Mercy. 我的身体在学会仁慈之前学会了害怕糖。
IF 1
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-05-21 DOI: 10.1080/15524256.2026.2674195
Pramana, Haris Annisari Indah Nur Rochimah
{"title":"My Body Learned to Fear Sugar Before It Learned Mercy.","authors":"Pramana, Haris Annisari Indah Nur Rochimah","doi":"10.1080/15524256.2026.2674195","DOIUrl":"https://doi.org/10.1080/15524256.2026.2674195","url":null,"abstract":"<p><p>Diabetes is often understood through blood sugar levels, dietary restriction, and medical discipline, yet it also shapes emotional life, bodily trust, shame, and daily social experience. This poem explores diabetes as an embodied and emotional condition, focusing on how food, numbers, wounds, and self-monitoring transform a person's relationship with the body. Through poetic reflection and everyday imagery, the poem uses sugar, measurement, meals, wounds, and bodily negotiation as metaphors for illness management, vulnerability, and the search for self-compassion. The poem highlights how diabetes can make ordinary acts such as eating, healing, and caring for oneself feel burdened by guilt, fear, and social judgment. It also emphasizes the need to view discipline not as moral failure or punishment, but as a form of survival and tenderness. By presenting diabetes through poetic expression, the work contributes to arts and health discussions on chronic illness, embodiment, dignity, health behavior, and compassionate self-care.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-4"},"PeriodicalIF":1.0,"publicationDate":"2026-05-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147989384","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Full Room, Unheld. 满屋，空屋。
IF 1
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-05-07 DOI: 10.1080/15524256.2026.2666513
Pramana, Prahastiwi Utari, Monika Sri Yuliarti
{"title":"Full Room, Unheld.","authors":"Pramana, Prahastiwi Utari, Monika Sri Yuliarti","doi":"10.1080/15524256.2026.2666513","DOIUrl":"https://doi.org/10.1080/15524256.2026.2666513","url":null,"abstract":"<p><p>This poem reflects on one of the most painful paradoxes in end-of-life care: a person may be surrounded by medical attention, institutional routines, and physical presence, yet still experience profound emotional loneliness. Through simple but evocative imagery, the poem portrays a hospital room where care is present in technical and procedural forms, but deeper human fears remain unheld. It invites readers to consider the limits of clinical proximity when emotional presence, existential recognition, and compassionate connection are absent. Positioned within the context of palliative and end-of-life care, the poem gives voice to the often-unspoken isolation that can accompany serious illness, even in spaces designed for support. As a reflective piece, it seeks to illuminate the hidden emotional landscape of dying and to encourage greater sensitivity to the relational dimensions of care among practitioners, caregivers, and scholars.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.0,"publicationDate":"2026-05-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147844328","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
When Transplant Is No Longer the Answer: An End-of-Life Social Work Narrative in Pediatric Cystic Fibrosis. 当移植不再是答案：儿童囊性纤维化的临终社会工作叙述。
IF 1
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-05-03 DOI: 10.1080/15524256.2026.2666511
Aysha Jawed
{"title":"When Transplant Is No Longer the Answer: An End-of-Life Social Work Narrative in Pediatric Cystic Fibrosis.","authors":"Aysha Jawed","doi":"10.1080/15524256.2026.2666511","DOIUrl":"https://doi.org/10.1080/15524256.2026.2666511","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-5"},"PeriodicalIF":1.0,"publicationDate":"2026-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147822101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Quiet between Goodbyes: Witnessing, Holding, and Remaining Present at the End of Life. 告别之间的宁静：在生命的尽头见证、拥抱和保持存在。
IF 1
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-05-01 DOI: 10.1080/15524256.2026.2666507
Hafiz Muhammad Ihsan Zafeer, Samra Maqbool, Zhijun Liu, Quanwang Zhan, Mohammad Al-Masaeid
{"title":"The Quiet between Goodbyes: Witnessing, Holding, and Remaining Present at the End of Life.","authors":"Hafiz Muhammad Ihsan Zafeer, Samra Maqbool, Zhijun Liu, Quanwang Zhan, Mohammad Al-Masaeid","doi":"10.1080/15524256.2026.2666507","DOIUrl":"https://doi.org/10.1080/15524256.2026.2666507","url":null,"abstract":"<p><p>End-of-life social work often unfolds in spaces where clinical language reaches its limits. A social worker observing a 78-year-old patient with advanced heart failure noted multiple discussions had been conducted regarding prognosis, comfort-focused care, and transition planning. Despite clear explanations, the patient's daughter lingered at the bedside, rubbing lotion into her parent's hands, seemingly hesitant to leave. This act of care, quiet and deliberate, reflected the social worker's understanding that the cognitive grasp of death cannot settle its emotional weight. Social workers in such moments emphasize accompaniment over intervention, presence over problem-solving supporting dignity and psychosocial needs as proposed by Moon and McDermott (2021). Observing these moments revealed that families often communicate love and fear through gestures rather than words, providing insight into the complexity of emotional presence at the bedside.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-4"},"PeriodicalIF":1.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147822057","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
To Not Move the Flowers: Presence, Loss, and the Limits of Professional Care at the End of Life. 《不要移动花：生命末期专业护理的存在、损失和限度》。
IF 1
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-04-08 DOI: 10.1080/15524256.2026.2655176
Rony Kurniawan Pratama
{"title":"To Not Move the Flowers: Presence, Loss, and the Limits of Professional Care at the End of Life.","authors":"Rony Kurniawan Pratama","doi":"10.1080/15524256.2026.2655176","DOIUrl":"https://doi.org/10.1080/15524256.2026.2655176","url":null,"abstract":"<p><p>This poetry essay presents three shorter poems and one longer poem exploring what social workers, caregivers, and families face in end-of-life and palliative care in Indonesia. The poems are informed by field experience and cultural understanding, particularly that of communities in Central Java, where people do not speak plainly about death and dying is burdened by what is unseen. They do not attempt to explain or diagnose. Instead, they try to approximate the feel of caregiving: the silence in a hospital corridor, the grief that precedes the leaving of the body, the hands that perform tasks no policy statement lists. Poetry, as both a form of inquiry and a mode of bearing witness, is not simply an addendum to social work knowledge but a way of knowing that which clinical language alone cannot comprehend.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-4"},"PeriodicalIF":1.0,"publicationDate":"2026-04-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147634729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Bearing Witness at the Edge of Care: A Reflective Ethical Commentary from Pediatric Social Work Practice. 在护理的边缘作证：来自儿科社会工作实践的反思伦理评论。
IF 1
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2026-04-07 DOI: 10.1080/15524256.2026.2655976
Aysha Jawed
{"title":"Bearing Witness at the Edge of Care: A Reflective Ethical Commentary from Pediatric Social Work Practice.","authors":"Aysha Jawed","doi":"10.1080/15524256.2026.2655976","DOIUrl":"https://doi.org/10.1080/15524256.2026.2655976","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-5"},"PeriodicalIF":1.0,"publicationDate":"2026-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147634776","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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