Journal of Social Work in End-of-Life & Palliative Care最新文献_第4页

A Prospective Study with Patients and Families on the Usefulness of Accurate Prognosis for Palliative Care Patients. 与患者和家属共同开展的一项前瞻性研究：准确预后对姑息治疗患者的用处。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-01 Epub Date: 2024-03-06 DOI: 10.1080/15524256.2024.2321330

Manuela Piovesan, Pauline Orr, Sarah Tevyaw, Emily Roussos, Chams Cherid, Sylvie Bouchard

{"title":"A Prospective Study with Patients and Families on the Usefulness of Accurate Prognosis for Palliative Care Patients.","authors":"Manuela Piovesan, Pauline Orr, Sarah Tevyaw, Emily Roussos, Chams Cherid, Sylvie Bouchard","doi":"10.1080/15524256.2024.2321330","DOIUrl":"10.1080/15524256.2024.2321330","url":null,"abstract":"Prediction of life expectancy in terminally ill patients is an important end-of-life care issue for patients, families and mental health workers during the last days of life. This study was conducted to examine the importance/usefulness for patients/families to have an accurate prognosis and its impact on planning their activities prior to death. All patients admitted during a period of one year were included. Patients' and families' viewpoints on the usefulness of an accurate prognosis was documented at admission. There were 285 patients in the cohort. The median time to death was 8 days. Most families (83%) rated the importance of an accurate prognosis as moderately (13%) to very much useful (70%). A total of 42% of patients were able to complete e the questionnaire. Among these, 58% found it moderately to very much useful. For families, having an accurate prognosis influenced the planning of visits (69%), communication/closure (42%) and spiritual needs/funeral arrangements (31%). Patients identified planning of visits (10%), communication/closure (12%), and goals/accomplishments (9%) as very important. Discussing the prognosis and its impact is very helpful for the mental health professionals to have open and honest conversations with patients/families to identify, prioritize and adapt treatment to achieve goals prior to death.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"133-146"},"PeriodicalIF":1.6,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140050649","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Hospice Knowledge, Attitudes, and Preference among Older Chinese Immigrants in the United States. 美国老年华裔移民的临终关怀知识、态度和偏好。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-01 DOI: 10.1080/15524256.2024.2330920

Xiaofang Liu, Cathy Berkman

{"title":"Hospice Knowledge, Attitudes, and Preference among Older Chinese Immigrants in the United States.","authors":"Xiaofang Liu, Cathy Berkman","doi":"10.1080/15524256.2024.2330920","DOIUrl":"10.1080/15524256.2024.2330920","url":null,"abstract":"Racial disparities in hospice use are a longstanding concern in the U.S. Asian Americans are among the least likely to receive hospice care and to be included in studies on this topic. This study examined the knowledge, attitudes, and preferences related to hospice care among older Chinese immigrants and associated factors. A sample of 262 Chinese immigrants age 60+ was recruited from six older adult centers in NYC. In-person interviews were conducted in Mandarin and Cantonese. Non-English-speaking older Chinese immigrants had very limited knowledge about hospice care. Only 26% of respondents had heard of hospice, and a few could correctly define any components. After receiving a comprehensive definition of hospice care, study participants expressed a positive attitude and a strong willingness to use hospice if near the end of life. Notably, some respondents still held misconceptions about hospice and were less positive in their attitude and preference for hospice care. These findings underscore the necessity for clear and accessible information about hospice among this population throughout the trajectory from good health to end of life. Further research is needed to identify the range of factors that influence the attitudes and preferences of older Chinese immigrants toward hospice care.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"201-216"},"PeriodicalIF":1.6,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140337059","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Editor Introduction. 编辑介绍。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-01 Epub Date: 2024-06-05 DOI: 10.1080/15524256.2024.2362049

Ellen L Csikai

引用次数: 0

Inclusion of Social Work in Comprehensive Palliative Care to Address Psychosocial Needs of Advanced Cancer Patients in Vietnam. 将社会工作纳入综合姑息治疗，以满足越南晚期癌症患者的社会心理需求。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-01 Epub Date: 2024-02-12 DOI: 10.1080/15524256.2024.2310863

Quynh Xuan Nguyen Truong, The Ngoc Ha Than, Duong Le Dai, Khoa Duy Duong, Eric L Krakauer, Bumi Herman, Surasak Taneepanichskul

{"title":"Inclusion of Social Work in Comprehensive Palliative Care to Address Psychosocial Needs of Advanced Cancer Patients in Vietnam.","authors":"Quynh Xuan Nguyen Truong, The Ngoc Ha Than, Duong Le Dai, Khoa Duy Duong, Eric L Krakauer, Bumi Herman, Surasak Taneepanichskul","doi":"10.1080/15524256.2024.2310863","DOIUrl":"10.1080/15524256.2024.2310863","url":null,"abstract":"The need for psychosocial care among patients with serious illnesses and available social work services continues to be great, especially in low- and middle-income countries. To evaluate the specific needs of Vietnamese cancer patients' quality of life (QOL), prevalence and severity of symptoms including depression and anxiety, and caregiver burden were assessed. Data on QOL, mood, caregiver burden, and other parameters were collected through face-to-face and phone- interviews. The QOL assessed by European Quality of Life scale version 5D (EQ5D) was poor but consistent with other studies of cancer patients. Assessed by the Hospital Anxiety and depression Scale (HADS), borderline or severe anxiety and depression were prevalent. Caregiver burden was high for one third of study participants. These results confirm the need among cancer patients for psycho-social support services that currently are rarely available in Vietnam. In light of this need, a comprehensive palliative care (CPC) service, including social work, was created to improve the quality of life (QOL) of Vietnamese cancer patients.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"147-160"},"PeriodicalIF":1.6,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139724449","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"Stop Imposing on Us": A Critical Examination of Ethnocultural Considerations in the Canadian Volunteer Hospice Palliative Care Landscape. "停止强加给我们"：对加拿大安宁疗护缓和医疗志愿服务中的民族文化因素进行批判性审视。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-01 Epub Date: 2024-02-28 DOI: 10.1080/15524256.2024.2321522

Cheryl-Anne Cait, Ginette Lafreniere

{"title":"\"Stop Imposing on Us\": A Critical Examination of Ethnocultural Considerations in the Canadian Volunteer Hospice Palliative Care Landscape.","authors":"Cheryl-Anne Cait, Ginette Lafreniere","doi":"10.1080/15524256.2024.2321522","DOIUrl":"10.1080/15524256.2024.2321522","url":null,"abstract":"Volunteers are foundational in hospice programs. The purpose of this research was to address social, ethnic and demographic changes in Southwestern Ontario and understand how this may affect volunteer recruitment, and representation. Interviews and focus groups were conducted with hospice volunteers, key informants from leaders in ethnocultural communities, and hospice staff. Qualitative data from the interviews was analyzed using thematic analysis in five phases. Findings suggest ethnocultural interpretations of hospice can be very different than Westernized, Eurocentric ideas around end-of-life care. Systemic and structural barriers, information sharing, volunteer motivation and representation were found to influence and impact ethnocultural volunteer recruitment in hospice palliative care. Using a critical analysis allows us to identify the \"imposition\" of a Euro-ethnocentric hospice palliative care model that prevents recruitment of and impedes access of ethnocultural groups to hospice palliative care. To build bridges across predominantly White/Western models of care to ethnocultural racialized communities requires constant communication, relationship building, and determination in mutuality of learning on behalf of the dominant model. This research has implications for different regions of Canada providing hospice palliative care and hoping to increase ethnocultural accessibility and volunteer recruitment for hospice palliative care.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"185-200"},"PeriodicalIF":1.6,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139991413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Family History. 家族历史

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-04-01 Epub Date: 2024-02-12 DOI: 10.1080/15524256.2024.2315430

Tarek Zieneldien

引用次数: 0

Situational Analysis of Barriers to Continuity of End-of-Life Care in Urban Areas, Bangkok. 曼谷市区临终关怀持续障碍的情境分析。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-01-01 Epub Date: 2023-11-17 DOI: 10.1080/15524256.2023.2282354

Nisa Wongchan, Kittikorn Nilmanat, Tippamas Chinnawong

{"title":"Situational Analysis of Barriers to Continuity of End-of-Life Care in Urban Areas, Bangkok.","authors":"Nisa Wongchan, Kittikorn Nilmanat, Tippamas Chinnawong","doi":"10.1080/15524256.2023.2282354","DOIUrl":"10.1080/15524256.2023.2282354","url":null,"abstract":"This qualitative study was designed to describe the continuity of end-of-life care and identify barriers to continuity in urban Bangkok. Continuity of care is considered an essential part of palliative care to promote the quality of life of patients at the end of life. The majority of studies have been conducted exploring continuity of care in rural communities. However, few studies have focused on urban areas, particularly in big cities. Twelve healthcare providers were the participants, including nurses in inpatient units, and in the Health Community and Continuity of Care Unit, a palliative care physician, and social workers. The data collection consisted of individual interviews, field notes, and observations. Content analysis was used to analyze data and identify barriers. The continuity of end-of-life care in a selected setting was fragmented. Three main barriers to the continuity of end-of-life care consisted of misunderstandings about patients who required palliative care, staff workloads, and incomplete patient information. The development of a comprehensive patient information sheet for communication among a multidisciplinary team could promote continuity of end-of-life care from hospital to home. An interprofessional training course on continuity of end-of-life care is also recommended. Finally, the staff workload should be monitored and managed.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"48-64"},"PeriodicalIF":1.6,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136399639","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring the Lived Experiences of Rural Hospice Social Workers in Navigating "Cracked" Systems. 探索农村临终关怀社会工作者在“破解”系统中的生存经验。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-01-01 Epub Date: 2023-09-26 DOI: 10.1080/15524256.2023.2262154

Jessica Curd, Michin Hong

{"title":"Exploring the Lived Experiences of Rural Hospice Social Workers in Navigating \"Cracked\" Systems.","authors":"Jessica Curd, Michin Hong","doi":"10.1080/15524256.2023.2262154","DOIUrl":"10.1080/15524256.2023.2262154","url":null,"abstract":"Social workers often encounter health and resource disparities and caregiver challenges in support of hospice patients and families. Social workers also play a critical role in navigating systems and confronting systemic barriers. Their input regarding macro practice is invaluable, though there is not much literature pertaining to end-of-life disparities as experienced from the social worker point of view. There is also limited research from the hospice social worker perspective, with little pertaining to those providing care in rural areas. To address these gaps, this phenomenological study explored the lived experiences of rural hospice social workers to better understand their role in these matters. Data collection occurred through in-depth unstructured qualitative interviews. A total of 19 rural hospice workers participated in the study. There were four main themes identified: systemic issues in hospice settings, resource and geographic barriers, tensions and benefits of interprofessional collaboration, and hospice work environment. Based on these findings, recommendations for hospice social work practice, research, and policy include support of and elevation of the voice of hospice social workers on the interprofessional team, assessment of resource barriers to improve hospice social work interventions and improve quality of life for dying persons, education of hospice administrators to understand best ways to support hospice social, and implementation of policy change to expedite access to caregiver resources at end of life.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"26-47"},"PeriodicalIF":1.6,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41153449","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Advanced Care Directives in Residential Aged Care for Residents with Major Neuro-Cognitive Disorders (Dementia): A Scoping Review. 老年人高级护理指导原则对患有严重神经认知障碍（痴呆症）的居民的护理：范围界定综述。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-01-01 Epub Date: 2023-06-29 DOI: 10.1080/15524256.2023.2229041

Raúl Hormazábal-Salgado, Abdi D Osman, Margarita Poblete-Troncoso, Dean Whitehead, Danny Hills

{"title":"Advanced Care Directives in Residential Aged Care for Residents with Major Neuro-Cognitive Disorders (Dementia): A Scoping Review.","authors":"Raúl Hormazábal-Salgado, Abdi D Osman, Margarita Poblete-Troncoso, Dean Whitehead, Danny Hills","doi":"10.1080/15524256.2023.2229041","DOIUrl":"10.1080/15524256.2023.2229041","url":null,"abstract":"The aim of this review was to identify, assess, collate, and analyze existing research that has made a direct contribution to aiding understanding of the ethical and decision-making issues related to the use of advance care directives for people with dementia and/or other major neurocognitive disorders and/or their surrogate decision-makers on treatment. The Web of Science, Scopus, PubMed, CINAHL, Academic Search Ultimate, and MEDLINE databases were searched between August and September 2021 and July to November 2022 limited to primary studies written in English, Spanish, or Portuguese. Twenty-eight studies of varying quality that addressed related thematic areas were identified. These themes being support for autonomy in basic needs (16%), making decisions ahead/planning ahead and upholding these decisions (52%), and support in decision-making for carers (32%). Advance care directives are an important mechanism for documenting treatment preferences in patient care planning. However, the available literature on the topic is limited in both quantity and quality. Recommendations for practice include involving decision makers, promoting educational interventions, exploring how they are used and implemented, and promoting the active involvement of social workers within the healthcare team.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"83-114"},"PeriodicalIF":1.6,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9695690","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

I Am a Hospice Social Worker. 我是一名安宁疗护社工。

IF 1.6

Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2024-01-01 Epub Date: 2023-07-09 DOI: 10.1080/15524256.2023.2232120

Reid M Jacobs

引用次数: 0