Journal of Social Work in End-of-Life & Palliative Care最新文献

{"title":"A Separate Peace.","authors":"Aysha Jawed","doi":"10.1080/15524256.2023.2165598","DOIUrl":"https://doi.org/10.1080/15524256.2023.2165598","url":null,"abstract":"This past summer, a 4-month-old baby named Heidi with microcephaly and subsequent autonomic instability was hospitalized for 1 month in an intermediate care unit at a hospital on the eastern seaboard. She was diagnosed with microcephaly at 2 months of age at the same hospital. During her most recent hospitalization, Heidi presented with significant neuroirritability. Her parents felt uncomfortable having her return home unless she was sleeping through the night without needing any pain medications. The family and the medical team had different perspectives on the management of Heidi’s care. Both recognized that Heidi had a progressive, degenerative illness; however, her parents felt that her illness would progress to death a lot sooner than the medical team’s prediction that she could potentially live for longer than 6 months. The medical team and nursing staff involved in her care were emotionally impacted by this hospitalization in several different ways. This was evident in behavioral responses such as distress, anger, fear, and defensiveness. As the social worker supporting Heidi’s family, I found myself as a gatekeeper and holder of information as well as an advocate and educator. The rest of the care team, especially our nursing staff, felt a sense of protection over the child which affected their objectivity in approaching the child’s case. This was a unique situation where the family’s peace about their child’s limited life span clashed with the care team’s expectation that the family would still be coming to terms with her illness.","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 1","pages":"3-7"},"PeriodicalIF":1.6,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9123531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluation of a Routine Psychosocial Screening for Patients Receiving Inpatient Specialist Palliative Care: Feasibility and Outcomes.","authors":"Anneke Ullrich,&nbsp;Said Bahloul,&nbsp;Carsten Bokemeyer,&nbsp;Karin Oechsle","doi":"10.1080/15524256.2022.2139336","DOIUrl":"https://doi.org/10.1080/15524256.2022.2139336","url":null,"abstract":"<p><p>This prospective one-year cohort study aimed to assess the feasibility and outcomes of a routine psychosocial screening at patients' admittance to specialist inpatient palliative care. Patients admitted to an academic palliative care ward were routinely screened for self-reported distress and psychological morbidity, psychosocial stress factors, and subjective need for help from psychosocial professions. Cognitive impairments were the most common patient barrier to screening. Screenings were completed in 138 of 428 patients (32%). Based on established cutoffs, distress was indicated in 89%, depression in 51%, and anxiety in 50% of these patients. The burden on next-of-kin emerged as the most prevalent stress factor (73%). One-half of the patients disclosed a subjective need for help (53%). Possible depression (<i>p</i> = .023), anxiety (<i>p</i> < .001), and subjective need for help (<i>p</i> < .001) correlated positively with a higher amount of time spent by psychologists and creative arts-based therapists with small to moderate effects. Patients who completed the screening were attributed with a higher amount of time by social workers than patients who did not (<i>p</i> = .004), but there were no relationships between screening results and social work. Results suggest the potential of screenings for the allocation of specialist psychosocial care during specialist palliative care; however, barriers to screening do exist.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 1","pages":"33-52"},"PeriodicalIF":1.6,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9448002","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Editor's Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2023.2184601","DOIUrl":"https://doi.org/10.1080/15524256.2023.2184601","url":null,"abstract":"Welcome to the new volume for 2023. In this issue, interventions to improve the lives of caregivers as they provide care to individuals near the end of life is the focus. After two reflections, in a practice concepts and innovations entry, Koufacos describes an educational intervention for stress-reduction among caregivers of Veterans with dementia. There were two aspects of the program, individual counseling provided to caregivers and group self-care webinars. The interventionist was a VA palliative care social worker and these techniques showed promising results. Further examination of this model is needed but it is something that other professionals may wish to consider to reduce caregiver stress and increase self-care among dementia caregivers. In the first of the research articles, a problem-solving intervention among family caregivers of people with cancer receiving outpatient palliative care was examined with respect to dimensions/styles of problem solving. These dimensions are described well by Bruton et al., which included positive and negative orientations and found these to have a relationship with age. Also, gender was related to differences in use of rational problem-solving style and use of negative orientation and an impulsive problem-making style. Because cancer caregivers often have to deal with many changes in care plans, these factors can and should be assessed when working with cancer caregivers in outpatient palliative care settings to determine the most effective aspects of problem solving. Next, Ullrich et al., switch us to examine inpatient palliative care. A multi-factor screening intervention was conducted among patients admitted in a specialist inpatient palliative care unit in an academic center that included self-reported distress as well as psychosocial stress and others. High levels of distress, depression and anxiety were found and those indicating a subjective need for help were also found to have received assistance, such as increased use of psychological services. Social work services increased among those screened but not at a significant level. A major barrier to completing the screening was cognitive impairment. Different methods of screening for distress and other psychosocial problems may need to be developed specifically for palliative care settings. Finally, Isler and Yildirim share their study pointing to the tremendous need for hospice care in Turkey which is currently absent. Although some palliative care units exist, the needs of the country are not being met. In a qualitative approach, both oncology healthcare professionals and family caregivers of individuals near the end of life (without hospice services) were interviewed. Themes centered around preferences for environment of death, problems caused by in-hospital deaths, need for hospice care, and hospice care for caregivers. These themes were shared by the healthcare professionals and the caregivers. For individuals with cancer and their caregiver","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 1","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9131286","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Equitable Death Care for Sexual and Gender Minorities: The Role for Social Workers.","authors":"Jennifer L Wright-Berryman","doi":"10.1080/15524256.2023.2175104","DOIUrl":"https://doi.org/10.1080/15524256.2023.2175104","url":null,"abstract":"Early in my career as a suicidologist, I was ignorant about the world of death care, outside of personal experiences attending funerals, celebrations of life, and other forms of memorial and disposition. At the American Association of Suicidology Conference in 2018, I overheard some colleagues discussing the lack of death education in schools. Soon after the conference, I received a phone call from a local pastor asking me to help him properly memorialize the life of a young person who’d died by suicide. Not long after that, I was contacted by a funeral provider, asking me a similar question. It occurred to me that death care providers didn’t know much about suicide, and I didn’t know enough about death care. My journey in studying death care in the United States was born from these conversations. Stigmatized forms of death were difficult for the providers to “get right”. I then wonderedis there anything else the U.S. death care industry needs more help to understand? I began reading the research on all things death and dying, starting with Jessica Mitford’s 1960s scathing expose of the funeral industry, The American Way of Death, then on to nearly every book and research study written since that time. What was largely missing from all these publications was the death care needs of sexual and gender minorities. Topics of culture, tradition, religion, economics, marketing, and policy were all addressed, but nothing was written about the experience of LGBTQIAþ people in the U.S. death care system. I’m not one to shy away from such a glaring omission in one of the largest industries in the United States. Funeral care is a 20-billion-dollar business, however, generally still privatized. Ninety percent of the 18,000 funeral homes in the U.S. are family-owned and operated, with the rest being corporately owned by companies like Service Corporation International (SCI). This is a source of pride for the industry and funeral homes market themselves as communityand family-oriented businesses. What they do not market themselves as is safe spaces for","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 1","pages":"8-11"},"PeriodicalIF":1.6,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9483133","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Supporting Caregivers of Veterans with Dementia.","authors":"Nicholas S Koufacos,&nbsp;Eve M Gottesman,&nbsp;Eugenia Dorisca,&nbsp;Judith L Howe","doi":"10.1080/15524256.2023.2184597","DOIUrl":"https://doi.org/10.1080/15524256.2023.2184597","url":null,"abstract":"<p><p>As the number of veterans with dementia continues to increase, support services for those veterans and their caregivers must also increase. Caregivers of veterans with dementia often report high levels of emotional distress in the form of anxiety, exhaustion, and burden that negatively impacts their health and quality of life. This brief descriptive report highlights a Veterans Health Administration (VHA) project in which a social worker trained in palliative care, teaches stress-reduction to caregivers through individual counseling and virtual groups. In two years, 39 caregivers received individual assessment and counseling focused on stress-reduction. Also, five group webinars were held on the topic of self-care that averaged 17 caregivers per group. 24 caregivers completed a survey and results suggested that stress-reduction and self-care may be viable target areas of intervention for caregivers of veterans with dementia in both individual and group formats. More research is needed in this area to improve our knowledge of how stress may be reduced for caregivers and what type of interventions may be effective to help caregivers reduce stress and improve their self-care.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 1","pages":"12-22"},"PeriodicalIF":1.6,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9083518","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Need for Hospice Care as a Preferred Environment of Death in Terminal Cancers: A Neglected Research Area in Turkey.","authors":"Ayşe Mine İşler,&nbsp;Buğra Yıldırım","doi":"10.1080/15524256.2022.2094524","DOIUrl":"https://doi.org/10.1080/15524256.2022.2094524","url":null,"abstract":"<p><p>In the context of end-of-life practices in Turkey, the researchers considered it important to reveal the need for hospice care in Turkey since the number of palliative care units is low and they do not meet the needs, hospice care services are absent, and intensive care units are misused in parallel with these deficiencies. The researchers addressed the subject with a phenomenological qualitative approach. The views of healthcare professionals and patient relatives who cared for terminal cancer patients. In the context of the environment of death preferences were of interest. The study was conducted in the city center of Manisa, one of the 30 metropolitan cities located in the western region of Turkey. Of the 23 participants, 18 were healthcare professionals working in the field of oncology, and five participants were primary caregivers who lost their loved ones with terminal cancer. The caregiver family members were the family members who provided care to the terminal cancer patient with their own means at home and accompanied the patient's treatment process, since there was no hospice care. A semi-structured interview guide was utilized for the in-depth interviews. Data were transcribed by the researchers and coded in MAXQDA 2020, subjected to thematic analysis, and divided into units of meaning. At the final stage of the study, the units of meaning were combined, and four basic themes were revealed: the conceptualization of the environment of death preferences, the problems caused by death in the hospital, the necessity of hospice care, and hospice care for caregivers. The study results demonstrated that hospice care was an essential need in Turkey, and the workload of hospitals would decrease, and hospital resources could be used efficiently in the presence of hospices. At the same time, it was understood that hospices were services making it easier for terminal cancer patients and their caregivers to face death with peaceful expectations.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 1","pages":"53-83"},"PeriodicalIF":1.6,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9431095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Hospital Palliative Social Worker's Reflection of Working During The Pandemic.","authors":"Julia Manning","doi":"10.1080/15524256.2022.2093316","DOIUrl":"https://doi.org/10.1080/15524256.2022.2093316","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 4","pages":"298-301"},"PeriodicalIF":1.6,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10420996","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Wellbeing of Palliative Care Workers During Covid-19 Pandemic: Implications for Social Work Practice.","authors":"S Rama Gokula Krishnan,&nbsp;Savita Butola","doi":"10.1080/15524256.2022.2112808","DOIUrl":"https://doi.org/10.1080/15524256.2022.2112808","url":null,"abstract":"<p><p>The present study is aimed at examining the wellbeing of palliative care workers in India (<i>n</i> = 114) with special reference to work related variables. The World Health Organization's five item wellbeing index was used to measure the wellbeing of the respondents. In general, the wellbeing of the respondents was found to be good. Furthermore, the age of the respondent (<i>p</i> < 0.001), gender (<i>p</i> < 0.05), work setting (hospital vs. non-hospital) (<i>p</i> < 0.05), work environment (<i>p</i> < 0.01), recent unemployment (job loss) (<i>p</i> < 0.01), years of experience in palliative care (<i>p</i> < 0.05), number of hours of work per week (<i>p</i> < 0.05), and the number of clients who died in the previous month (<i>p</i> < 0.01), were all found to be associated with the wellbeing of the respondents. Specifically, young and female respondents, those engaged in hospital based palliative care, having a poor work environment, facing recent unemployment, having less experience, working for more number of hours, and having more number of patients dying in the previous month, all had a lower level of wellbeing. The implications for social work practice have also been discussed in detail.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 4","pages":"345-359"},"PeriodicalIF":1.6,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10759070","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Buddy System: An Intervention to Reduce Distress and Compassion Fatigue and Promote Resilience on a Palliative Care Team During the COVID-19 Pandemic.","authors":"Nancy McCool,&nbsp;Jennifer Reidy,&nbsp;Shawna Steadman,&nbsp;Vandana Nagpal","doi":"10.1080/15524256.2022.2122650","DOIUrl":"https://doi.org/10.1080/15524256.2022.2122650","url":null,"abstract":"<p><p>The SARS-CoV-2 pandemic (COVID-19) dramatically increased the number of stressors on healthcare workers, including palliative care practitioners. Restrictions and increased demands on time made it difficult for the UMass Memorial Health palliative care team to utilize preexisting wellness strategies. In response to team members' stress reactions, a buddy system intervention was conceived and implemented to restore a sense of connection and self-efficacy (Phase 1). Our objective with this quality improvement project was to assess the feasibility and effectiveness of the buddy system and evaluate staff attitudes toward this intervention. After four months, feedback from team members informed redesign to a more structured buddy system (Phase 2). A mixed-methods design of this project included a qualitative online survey along with quantitative data collection with the Professional Quality of Life Scale V (ProQOL V) and the Brief Resilience Scale (BRS) during Phase 1. Phase 2 was also evaluated quantitatively with ProQOL V and BRS. Semi-structured interviews were conducted at the end of this project to enhance qualitative data on staff attitudes and beliefs. Of the 12 study participants, 10 completed all phases of the study. Participants reported the buddy system was a useful, easy-to-implement intervention for mitigating personal distress and compassion fatigue (CF) by providing a strong sense of support and connection to team members.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 4","pages":"302-324"},"PeriodicalIF":1.6,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10415306","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Scars and Conversations.","authors":"Meera Mahendiran","doi":"10.1080/15524256.2022.2093317","DOIUrl":"https://doi.org/10.1080/15524256.2022.2093317","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"18 4","pages":"295"},"PeriodicalIF":1.6,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10416708","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}