Journal of Social Work in End-of-Life & Palliative Care最新文献

{"title":"Sitting with Helplessness.","authors":"Catherine Olsen","doi":"10.1080/15524256.2023.2231160","DOIUrl":"10.1080/15524256.2023.2231160","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 3","pages":"179-181"},"PeriodicalIF":1.6,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10072355","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Awaiting.","authors":"Dalvani Marques","doi":"10.1080/15524256.2023.2198671","DOIUrl":"https://doi.org/10.1080/15524256.2023.2198671","url":null,"abstract":"<p><p>The poem portrays the wait and expectations of the family member about the outcome of hospitalizations of a patient in palliative care.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 2","pages":"87"},"PeriodicalIF":1.6,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9657686","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Perspectives on Social Justice among Hospice and Palliative Care Social Workers: Voices from the Field.","authors":"John G Cagle,&nbsp;Rachel Brandon","doi":"10.1080/15524256.2023.2219408","DOIUrl":"https://doi.org/10.1080/15524256.2023.2219408","url":null,"abstract":"<p><p>Hospice and palliative care are burgeoning fields of social work practice. Within the social work profession, the pursuit of social justice is a defining ethical value. While some research exists on social justice within palliative and hospice care, no studies have examined its meaning within the context of this highly specialized field. To date, there is an absence of empirical research examining the meaning of social justice within a sample of hospice and palliative social workers. This study attempts to fill this gap. We used qualitative and quantitative survey items to ask hospice and palliative care social workers about the meaning of social justice within their unique practice setting, as well as to identify prominent social injustices and opportunities for action. Using responses from 51 seasoned practitioners, we found that social workers generally defined social justice as equitable access to three core areas-basic needs, high quality care, and education (for both patients, families, and providers)-regardless of a person's group membership (e.g., race, class, sexual orientation). Participants also made recommendations for improving social justice in clinical practice through advocacy and other initiatives.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 2","pages":"118-132"},"PeriodicalIF":1.6,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9664725","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Suicide and Hospice Caregivers: A Case Study.","authors":"Rebecca G Mirick,&nbsp;Stephanie P Wladkowski","doi":"10.1080/15524256.2023.2198157","DOIUrl":"https://doi.org/10.1080/15524256.2023.2198157","url":null,"abstract":"<p><p>In 2020, hospices supported 1.72 million Medicare patients and their caregivers. The end-of-life experience can be difficult for caregivers and many experience anxiety, depression, and suicidality. Little literature has explored the role of hospice social workers in addressing and treating caregivers' suicidal thoughts and behaviors. This paper will explore the topic of hospice caregiver suicide, using a case study to illustrate relevant issues, practices, and needs. Implications for hospice social work practice are included.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 2","pages":"93-102"},"PeriodicalIF":1.6,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10033246","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cardiac Related Psychosocial Distress and Traumatic Distress in Individuals with Advanced Heart Failure.","authors":"Schuyler C Cunningham,&nbsp;Anne Keleman,&nbsp;Rachel Brandon,&nbsp;Hunter Groninger,&nbsp;Karlynn BrintzenhofeSzoc","doi":"10.1080/15524256.2023.2198158","DOIUrl":"https://doi.org/10.1080/15524256.2023.2198158","url":null,"abstract":"<p><p>Guided by the Transactional Model of Stress and Coping, this study explored relationships between cardiac related psychosocial distress, traumatic distress, and the number of lifetime traumas in people with advanced heart failure. Utilizing a cross-sectional survey design, a convenience sample of participants with advanced heart failure who received treatment in Washington, DC, completed standardized measures. Bivariate analysis showed a statistically significant difference in mean number of exposures and distress associated with advanced heart failure therapies and linear relationships between exposures and traumatic distress, distress and traumatic distress, and exposures and distress, as well as between the number of exposures and distress and traumatic distress and between the distress and traumatic distress. Multivariate analysis suggested that the higher the number of reported traumatic events, the higher the distress, and the higher the distress, the higher the traumatic distress. Social workers and allied team members should consider how a patient's distress relates to traumatic distress in the advanced stage heart failure population.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 2","pages":"103-117"},"PeriodicalIF":1.6,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10033244","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Editor Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2023.2222963","DOIUrl":"https://doi.org/10.1080/15524256.2023.2222963","url":null,"abstract":"Welcome to another issue! Each in a different way, the authors in this issue together present a focus on difficult medical/social situations that may cause distress in the individual or caregivers and thus lead toward a lessening of quality of life at the end of life. These articles show the value of taking into consideration that traumatic experiences happen in everyday lives While suicide among hospice recipients has received some attention in the literature, suicide and suicidal thoughts among hospice caregivers has not. Primary among the difficulties with focusing on this topic is the fact that most receive hospice care for a very short time. The first article, by Mirick and Wladkowski, takes us through a case study presenting a step-by-step recognition of the issues involved and recommendations for how social workers can best utilize prevention techniques and intervene as necessary. The first among these is universal screening for suicidality. Social workers may also engage in providing resources, safety planning, supportive contacts, including following death of the care recipient and continue their own training and awareness of suicidality. Cunningham et al. explored psychosocial distress as it related to cardiac distress in individuals with advanced heart failure and then further linked this to traumatic distress. Of course this is important as it has been well-established that psychosocial distress and traumatic distress can lead to negative health outcomes. Through a survey of individuals with advanced heart failure, multiple measures were utilized to understand distress on multiple levels and included measures of depression and anxiety. Explore the usefulness of the current measures in assessing distress in this population. They found that the number of exposures to potentially traumatic incidents, the higher the distress and then likely higher level of traumatic distress, but no predictors of it in this particular group of respondents. The authors suggest that further study is needed with this population and also examination of the usefulness of the measures for populations with advance heart disease. Next, Cagle and Brandon address the issue of social justice in palliative care. They conducted a survey of hospice and palliative care social workers’ perceptions on the meaning of social justice and how these social workers see the issue played out in their work. These social workers reported encountering many people who are disadvantaged in some way, economically, physically or intellectually, and non-English speaking as well as those who abuse substances or are homeless. All of these individuals may be at a higher risk to experience social injustices and in turn, traumatic experiences. The respondents’ defined social justice as access to basic needs, high-quality care, and education without regard to group membership. Also identified were ways to overcome barriers to access, some of which included the recognition that something active","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 2","pages":"85-86"},"PeriodicalIF":1.6,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9722521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Revisiting a Time of Study: Older Adults Learning Through Grieving.","authors":"Paul J Moon","doi":"10.1080/15524256.2023.2198674","DOIUrl":"https://doi.org/10.1080/15524256.2023.2198674","url":null,"abstract":"<p><p>A brief reflection of encountering four older adult women who claimed self-transformation through learning in late life grief.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 2","pages":"88-92"},"PeriodicalIF":1.6,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9657690","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Support and Informational Needs of Ultra-Orthodox Jewish Women Coping with Advanced Cancer: A Pilot Observational Study.","authors":"Meital Simhi,&nbsp;Aviva Yoselis","doi":"10.1080/15524256.2023.2220080","DOIUrl":"https://doi.org/10.1080/15524256.2023.2220080","url":null,"abstract":"<p><p>In Israel, as in other countries, the emotional and physical needs of minority populations receiving palliative care, are largely unknown. The ultra-Orthodox Jewish sector is one such minority population. This study's goal was to identify perceived social support, desire to receive information about illness and prognosis, and willingness to disclose information to others. Various measures assessing perception of social support, psychological symptoms and information disclosure were completed. Fifty-one women consented to participate; approximately 50% of participants had disclosed the diagnosis to their rabbi or a friend, in addition to their spouse. Almost all of the participants would want to be told if their condition were worsening (86.3%), yet only 17.6% reported that their doctor had discussed future care options if their health situation were to worsen. Overall, participants felt that the level of support they received was high and reported low levels of mental distress. This is the first known study regarding perceptions and needs of ultra-Orthodox Jewish women with advanced-stage cancer. Both diagnosis disclosure and palliative care options should be addressed and discussed with these patients so they may make important end-of-life decisions.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 2","pages":"150-167"},"PeriodicalIF":1.6,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9660335","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"The Health Caregivers Did Not Care about Me after the Loss\": Maternal Experiences of Perinatal Loss in the Kumasi Metropolitan Area, Ghana.","authors":"Bridget Amankwah,&nbsp;Mary Ani-Amponsah,&nbsp;Mustapha Mahama,&nbsp;Alberta Gyepi-Garbrah,&nbsp;Doris Richardson,&nbsp;Olivia Nyarko Mensah,&nbsp;Hannah Acquah,&nbsp;Dzigbordi Kpikpitse,&nbsp;Rasheed Ofosu-Poku","doi":"10.1080/15524256.2023.2220078","DOIUrl":"https://doi.org/10.1080/15524256.2023.2220078","url":null,"abstract":"<p><p>One of the common undesirable outcomes of pregnancy is perinatal loss. Healthcare systems strive to reduce the incidence of perinatal loss but typically little attention is on the experiences of bereaved mothers following perinatal loss, particularly in low and middle-income countries where such deaths are common. This research explored the lived experiences of mothers with perinatal loss in the Kumasi metropolis, Ghana. A qualitative design was used to explore the experiences of nine (9) bereaved mothers from the Komfo Anokye Teaching Hospital's postnatal ward and the Mother and Baby Unit. Data were collected through face-to-face interviews using a semi-structured interview guide, audio-recorded, and thematically analyzed. One major finding was that mothers restricted mourning their dead babies based on fear of recurrent perinatal loss and traditional beliefs on delayed return to fertility. Mothers blamed healthcare providers for their loss due to their concerns about care received. Gaps in communication flow from healthcare professionals to bereaved mothers were commonly identified as mothers struggled to make meaning of their loss and coped with cultural restrictions and beliefs. Healthcare professionals must explore mothers' concerns and \"gut-feelings,\" and pay attention to their communication needs following perinatal loss.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 2","pages":"133-149"},"PeriodicalIF":1.6,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9722523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Problem-Solving Dimensions among Caregivers of People with Cancer Receiving Outpatient Palliative Care.","authors":"Adrian E Bruton, Lindsey R Debosik, Kyle A Pitzer, Ellen L Csikai, Karla T Washington","doi":"10.1080/15524256.2022.2139333","DOIUrl":"10.1080/15524256.2022.2139333","url":null,"abstract":"<p><p>Family caregivers of people with cancer encounter a wide range of problems including challenges managing patients' symptoms, difficulties navigating complex healthcare systems, and financial stressors associated with caregiving. Outpatient palliative care teams are ideally positioned to help caregivers respond to these challenges; however, little evidence is available to inform problem-solving support for caregivers in this setting. This article presents results from a secondary analysis of data obtained as part of a randomized clinical trial of a problem-solving intervention for family caregivers of people with cancer receiving outpatient palliative care. It describes the extent to which caregivers report adoption of positive and negative problem orientations and use of rational, impulsive, and avoidant problem-solving styles, and examines whether these problem-solving dimensions differ by age and gender. Results reveal statistically significant negative correlations between caregiver age and positive and negative problem orientations and use of a rational problem-solving style, and statistically significant gender differences with regard to negative problem orientation and use of an impulsive problem-solving style. Findings from this exploratory study highlight unique potential strengths and needs of caregivers, and set the stage for future research on problem-solving among cancer caregivers in the growing field of outpatient palliative care.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"19 1","pages":"23-32"},"PeriodicalIF":1.6,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9998336/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9436190","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}