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Journal of Social Work in End-of-Life & Palliative Care最新文献

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"What about Your Social Worker?" Professionals and Families' Perceptions of Pediatric Palliative Care Social Work: A Qualitative Study. “你的社工呢？”专业人员和家庭对儿童姑息治疗社会工作的认知：一项质的研究。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-04-01 Epub Date: 2025-05-05 DOI: 10.1080/15524256.2025.2499514
Balma Soraya Hernández Moscoso, Josep Maria Torralba Roselló
{"title":"\"What about Your Social Worker?\" Professionals and Families' Perceptions of Pediatric Palliative Care Social Work: A Qualitative Study.","authors":"Balma Soraya Hernández Moscoso, Josep Maria Torralba Roselló","doi":"10.1080/15524256.2025.2499514","DOIUrl":"10.1080/15524256.2025.2499514","url":null,"abstract":"<p><p>This article offers an in-depth examination of the social worker's role in pediatric palliative care, focusing on their skills and scope of intervention. This study was conducted to understand perceptions of the social worker's contributions within a multidisciplinary palliative care team. A qualitative design with healthcare professionals and families at a major hospital in Catalonia (Spain) was used to gather data. Semi-structured interviews and focus group discussions were used to collect insights into the social worker's diverse roles, including emotional support, family guidance, child protection, and their unique position in connecting healthcare with social, cultural, and relational factors. Findings show that social workers were perceived to be crucial in addressing psychosocial needs, promoting family autonomy, and providing guidance on resources. However, their integration into teams is often hindered by structural and hierarchical barriers. The study highlighted the importance of recognizing and reinforcing the social worker's role through policy changes that ensure their consistent involvement in all aspects of pediatric palliative care. Further studies are needed to develop strong support systems that prioritize the social and emotional needs of families in end-of-life care, ultimately aiming to enhance the quality of pediatric palliative services.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"132-149"},"PeriodicalIF":1.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143985865","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Munch's: 'Death and the Child'. 蒙克的《死亡与孩子》。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-04-01 Epub Date: 2025-03-25 DOI: 10.1080/15524256.2025.2483681
Steve Marshall
{"title":"Munch's: '<i>Death and the Child</i>'.","authors":"Steve Marshall","doi":"10.1080/15524256.2025.2483681","DOIUrl":"10.1080/15524256.2025.2483681","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"104-106"},"PeriodicalIF":1.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143701345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Eureka. 尤里卡。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-01-05 DOI: 10.1080/15524256.2024.2445055
Zhaohui Su
{"title":"Eureka.","authors":"Zhaohui Su","doi":"10.1080/15524256.2024.2445055","DOIUrl":"https://doi.org/10.1080/15524256.2024.2445055","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2025-01-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142933110","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How Tangible is an Advance Care Planning Document in Reality? 预先护理规划文件在现实中到底有多具体？
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-01-01 Epub Date: 2024-10-18 DOI: 10.1080/15524256.2024.2417183
See Mieng Tan
{"title":"How Tangible is an Advance Care Planning Document in Reality?","authors":"See Mieng Tan","doi":"10.1080/15524256.2024.2417183","DOIUrl":"10.1080/15524256.2024.2417183","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"3-5"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Introduction. 介绍。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-01-01 Epub Date: 2025-03-10 DOI: 10.1080/15524256.2025.2472446
Ellen L Csikai
{"title":"Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2025.2472446","DOIUrl":"10.1080/15524256.2025.2472446","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143587694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hiding in Plain Sight: A Narrative Review of Non-Parental Relatives' Perinatal Grief. 隐藏在平淡的视线中：非父母亲属围产期悲伤的叙事回顾。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-01-01 Epub Date: 2025-03-17 DOI: 10.1080/15524256.2024.2443152
Rennie Bimman, Nancy Graham
{"title":"<i>Hiding in Plain Sight</i>: A Narrative Review of Non-Parental Relatives' Perinatal Grief.","authors":"Rennie Bimman, Nancy Graham","doi":"10.1080/15524256.2024.2443152","DOIUrl":"10.1080/15524256.2024.2443152","url":null,"abstract":"<p><p>Perinatal loss is often immensely painful for families, yet remains unrecognized despite its ubiquity. Perinatal loss frequently leads to disenfranchised grief, and members of family systems less proximate to the loss are at risk for additional disenfranchisement. Grandparents and siblings are especially vulnerable to complications in perinatal grief due to intersecting and disenfranchising factors of identity, including age, role within family, and type of loss. The purpose of this narrative review was to examine their experiences in order to provide informed support. Medline via OVID was searched using specific terms to identify articles for inclusion. Content from each article was screened, synthesized, and codified according to salient themes. Evidence found attested to the uniquely complex grief experiences these populations face as a result of their confluent disenfranchisement, and their overwhelming lack of support and recognition. New insights uncovered may inform clinicians as they assess needs and provide support to these oft-ignored grievers. Significant research gaps remain in this subtopic, such as firsthand perspectives of nonparental grievers, data on other extended family members, and the effect of additional psychosocial stressors on nonparental perinatal grief. As recent legal restrictions curtail reproductive healthcare access, the need for support and research is especially salient.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"30-57"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651244","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Granting Permission: Toward Embracing Grief. 给予许可：拥抱悲伤。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-01-01 Epub Date: 2025-01-12 DOI: 10.1080/15524256.2024.2447313
Rennie Bimman
{"title":"Granting Permission: Toward Embracing Grief.","authors":"Rennie Bimman","doi":"10.1080/15524256.2024.2447313","DOIUrl":"10.1080/15524256.2024.2447313","url":null,"abstract":"<p><p>Grief, unavoidable and often excruciating, is rarely sufficiently acknowledged or supported in Western society. It is not granted <i>permission</i> to exist without barriers. By considering and evaluating grief experiences through the lens of their access to <i>permission</i>, clinicians can collectively imagine and promote inclusivity in grief. <i>Permission</i> is presented as a conceptual framework and clinical tool, with broader micro- and macro-level applications for both professional and layperson engagement, offering a foundation for further implementation and research.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"8-29"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142972585","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Chains. 链条
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-01-01 Epub Date: 2024-11-27 DOI: 10.1080/15524256.2024.2430970
James Seymour Huntley
{"title":"Chains.","authors":"James Seymour Huntley","doi":"10.1080/15524256.2024.2430970","DOIUrl":"10.1080/15524256.2024.2430970","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"6"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142733261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Introduction. 介绍。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-01-01 Epub Date: 2025-03-10 DOI: 10.1080/15524256.2025.2472446
Ellen L Csikai
{"title":"Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2025.2472446","DOIUrl":"https://doi.org/10.1080/15524256.2025.2472446","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"21 1","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144188227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Development of Palliative Care in Finland and Its Societal Impacts: A Scoping Review. 芬兰姑息治疗的发展及其社会影响：一项范围回顾。
IF 1.6
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2025-01-01 Epub Date: 2025-02-23 DOI: 10.1080/15524256.2025.2468217
Miia Kontro
{"title":"The Development of Palliative Care in Finland and Its Societal Impacts: A Scoping Review.","authors":"Miia Kontro","doi":"10.1080/15524256.2025.2468217","DOIUrl":"10.1080/15524256.2025.2468217","url":null,"abstract":"<p><p>Palliative care has evolved considerably over the past decades. This scoping literature review explores the development of palliative care in Finland and its societal impact, guided by Arksey and O'Malley's five-stage framework. A total of 25 articles and grey literature sources were analyzed, revealing three key themes: the evolution and ethical foundations of palliative care in Finland, defining roles and enhancing communication, and equitable access and regional integration in palliative care. The review highlights the role of caregivers and shows that clear communication between caregivers, healthcare professionals, and patients is important to coordinating care and meeting various needs. Furthermore, it stresses the necessity of reducing regional disparities and improving access to palliative care, particularly for individuals without family caregivers. As Finland's population ages, policies must focus on equitable care for individuals living alone to avoid over-reliance on relatives and uphold fundamental rights.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"72-93"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143484182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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