Health SA Gesondheid最新文献

{"title":"Emotional-informational support and post-traumatic growth in skin disorders.","authors":"Shannon J Hawker, Ntsoaki F Tadi, Lehlohonolo Makhakhe","doi":"10.4102/hsag.v30i0.2981","DOIUrl":"10.4102/hsag.v30i0.2981","url":null,"abstract":"<p><strong>Background: </strong>Psychophysiological skin disorders' high prevalence necessitates establishing factors that enable the development of personal strength, self-esteem and receiving adequate support.</p><p><strong>Aim: </strong>To investigate the relationship between self-esteem and post-traumatic growth (PTG), as well as whether aspects of perceived social support moderate or mediate the relationship between self-esteem and PTG in participants living with psychophysiological skin disorders.</p><p><strong>Setting: </strong>The study was conducted in South Africa.</p><p><strong>Methods: </strong>Quantitative, non-experimental, and correlational research design was utilised. 100 participants diagnosed with psychophysiological skin disorders, including atopic dermatitis, psoriasis, pruritus, and alopecia, were selected using a non-probability convenience sampling method. The Post-traumatic Growth Inventory (PTGI) and the Rosenberg Self-Esteem Scale (RSES) were used. Data was analysed using the Statistical Package of the Social Sciences (SPSS) version 28.</p><p><strong>Results: </strong>Pearson product-moment correlation coefficients and multiple hierarchical regression analyses were performed to investigate the research objectives. A significant positive relationship was found in participants between self-esteem and PTG, with coefficients indicating a moderate to large effect size. As an aspect of perceived social support, emotional-informational support acts as a moderator between self-esteem and PTG. Further, tangible support as an aspect of perceived social support was found not to moderate or mediate the relationship between self-esteem and PTG.</p><p><strong>Conclusion: </strong>The findings of the current study confirm that only emotional-informational support as an aspect of perceived social support moderates the relationship between self-esteem and PTG among participants living with psychophysiological skin disorders.</p><p><strong>Contribution: </strong>This insight highlights the need for psychosocial interventions that prioritise emotional and informational support dimensions.</p>","PeriodicalId":45721,"journal":{"name":"Health SA Gesondheid","volume":"30 ","pages":"2981"},"PeriodicalIF":1.2,"publicationDate":"2025-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12421552/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145041606","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A systematic review on factors influencing immunisation adherence among children under 12 years of age.","authors":"Bridgette Lockett, Juliana J Willemse, Rugira M Modeste","doi":"10.4102/hsag.v30i0.2864","DOIUrl":"10.4102/hsag.v30i0.2864","url":null,"abstract":"<p><strong>Background: </strong>Immunisation is crucial for preventing the spread of infectious diseases; yet, adherence remains a global challenge, particularly among children under 12. Understanding the multifaceted factors influencing vaccination adherence is essential for improving coverage rates and reducing the burden of vaccine-preventable diseases.</p><p><strong>Aim: </strong>This study aimed to develop a support intervention for improvement in childhood immunisation adherence in South Africa.</p><p><strong>Methods: </strong>Following the Preferred Reporting Items for Systematic reviews and Meta-Analyses guidelines, a comprehensive search was conducted across multiple databases. The Patient (problem or population); Intervention; Comparison, control or comparator and Outcome(s) framework guided the research question formulation and search strategy. Included studies were published between 2013 and 2023, focusing on children under 12. Data were extracted and categorised into domains affecting immunisation adherence. Quality assessment was performed using the mixed methods appraisal tool.</p><p><strong>Results: </strong>The review identified five major domains influencing immunisation adherence: socioeconomic factors, health system factors, vaccine beliefs and attitudes, cultural and social factors, and communication and information factors.</p><p><strong>Conclusion: </strong>This review highlights the complex interplay of factors affecting childhood vaccination adherence. Critical areas for intervention include tailored communication strategies, addressing vaccine hesitancy, enhancing immunisation accessibility and leveraging digital technologies for vaccine promotion.</p><p><strong>Contribution: </strong>These insights can guide evidence-based strategies to improve immunisation adherence and inform policy in the evolving landscape of global public health.</p>","PeriodicalId":45721,"journal":{"name":"Health SA Gesondheid","volume":"30 ","pages":"2864"},"PeriodicalIF":1.2,"publicationDate":"2025-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12421498/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145041539","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Knowledge and attitude of nurses in primary health care regarding climate change in Mpumalanga.","authors":"Marriot M Mabena, Ramadimetja S Mooa, Andries Masenge, Nombulelo V Sepeng","doi":"10.4102/hsag.v30i0.3105","DOIUrl":"10.4102/hsag.v30i0.3105","url":null,"abstract":"<p><strong>Background: </strong>Climate change is increasingly recognised as a critical public health challenge, a perspective reinforced by its inclusion as Sustainable Development Goal 13. Given its significant disease burden, climate change should be reframed as a leading health priority, demanding an immediate and coordinated response from the health sector.</p><p><strong>Aim: </strong>The aim of the study was to assess the knowledge and attitudes of professional nurses in primary health care regarding climate change.</p><p><strong>Setting: </strong>The study was conducted in Nkangala District, Mpumalanga province.</p><p><strong>Methods: </strong>A non-experimental, descriptive and quantitative research design, employing a self-administered questionnaire, was used to collect data. A comprehensive sampling of the entire population was conducted in the Thembisile Hani Local Municipality, Nkangala District, Mpumalanga, because of the small population size.</p><p><strong>Results: </strong>About 82% of the professional nurses in primary health care had knowledge regarding the effects of climate change, and 23% did not link climate change to diseases. Regarding nurses' attitudes and perceptions, approximately 66.2% strongly agreed that understanding the issue is crucial to providing effective patient care. In support, 29.8% agreed that it is essential to understand the issue to help patients, 3.3% were neutral, while 0.7% strongly disagreed and 0% disagreed.</p><p><strong>Conclusion: </strong>The findings of the study highlighted the importance of educating registered nurses about the mental health effects of climate change. It also emphasised the need to formally include climate change in the nursing curriculum, as many nurses currently depend on informal education to understand its implications.</p><p><strong>Contribution: </strong>The results of the study will contribute new knowledge regarding climate change, its impact on health and its implications for the nursing profession. In addition, the study emphasised the importance of incorporating climate change into the nursing curriculum.</p>","PeriodicalId":45721,"journal":{"name":"Health SA Gesondheid","volume":"30 ","pages":"3105"},"PeriodicalIF":1.2,"publicationDate":"2025-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12421580/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145041524","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Levelling the ground for decolonising the nursing curriculum: A matter of critical consciousness.","authors":"Agnes Makhene","doi":"10.4102/hsag.v30i0.3207","DOIUrl":"10.4102/hsag.v30i0.3207","url":null,"abstract":"","PeriodicalId":45721,"journal":{"name":"Health SA Gesondheid","volume":"30 ","pages":"3207"},"PeriodicalIF":1.2,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12421456/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145041616","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring resource availability for nurses implementing HIV prevention guidelines in primary healthcare facilities.","authors":"Junior M Ntimani, Andile G Mokoena-de Beer, Deliwe R Phetlhu","doi":"10.4102/hsag.v30i0.3084","DOIUrl":"10.4102/hsag.v30i0.3084","url":null,"abstract":"<p><strong>Background: </strong>Pre-exposure prophylaxis (PrEP) lowers new human immunodeficiency virus (HIV) infections among individuals at risk; however, its uptake in South Africa is hindered by resource limitations within public health facilities. This occurs despite the established PrEP guidelines to promote its use.</p><p><strong>Aim: </strong>This study aimed to explore the availability of resources that support nurses in implementing the PrEP guidelines in Johannesburg's primary health settings.</p><p><strong>Setting: </strong>Four primary healthcare settings in sub-districts A and E of the City of Johannesburg, South Africa, were used to conduct the study.</p><p><strong>Methods: </strong>A qualitative exploratory design with an interpretive approach was used to gather insights into the availability of resources for implementation of PrEP guidelines. Donabedian's framework was used to assess implementing PrEP guidelines looking at the structure, process and outcomes linked to resource availability. Data were gathered from 19 nurses in four primary healthcare facilities via semi-structured interviews and analysed using the thematic analysis method.</p><p><strong>Results: </strong>Three overarching themes emerged as barriers to effective PrEP implementation: (1) structural inadequacies; (2) healthcare system processes and support; and (3) unclear performance tracking. Both barriers and facilitators were identified to have an impact on the implementation of PrEP while highlighting the need for the strengthening of the healthcare system in HIV prevention success.</p><p><strong>Conclusion: </strong>The study highlights critical resource limitations hindering PrEP implementation. It underlines the urgent need for improved physical infrastructure, additional human resources and robust data management systems.</p><p><strong>Contribution: </strong>The study emphasises the need for policymakers to strengthen infrastructure and human resources to minimise service delays and inefficiencies, ultimately reducing healthcare costs by enhancing PrEP uptake and retention.</p>","PeriodicalId":45721,"journal":{"name":"Health SA Gesondheid","volume":"30 ","pages":"3084"},"PeriodicalIF":1.2,"publicationDate":"2025-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12421553/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145041569","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Strengthening theoretical assessment design in nursing education: Advancing SDG 4.","authors":"Gabieba Donough, Katlego Mthimunye, Felicity Daniels","doi":"10.4102/hsag.v30i0.3061","DOIUrl":"10.4102/hsag.v30i0.3061","url":null,"abstract":"<p><strong>Background: </strong>Quality theoretical assessments in nursing education are essential for achieving Sustainable Development Goal 4 (ensuring inclusive and equitable quality education and promoting lifelong learning opportunities for all). However, misalignment with National Qualification Framework (NQF) standards, an overreliance on recall-based questions and inadequate educator training undermine the fairness of assessments and students' ability to demonstrate clinical competence.</p><p><strong>Aim: </strong>This study explores theoretical assessment design in nursing education, evaluating its alignment with NQF standards, competency-based assessments and Sustainable Development Goal 4.</p><p><strong>Setting: </strong>Conducted at a South African nursing school offering undergraduate nursing programmes.</p><p><strong>Methods: </strong>A multimethod approach integrated educator interviews, document reviews of moderation reports, a scoping review and a student survey to investigate assessment practices.</p><p><strong>Results: </strong>While educators valued Bloom's Taxonomy, over-reliance on recall-based questions limited critical thinking, clinical decision-making and competency development. Misalignment with NQF standards caused inconsistencies in cognitive demand, while gaps in moderation processes impacted assessment validity and fairness. Educators faced challenges because of limited training and support, and students struggled with ambiguous and linguistically complex assessments that hindered their ability to demonstrate competency.</p><p><strong>Conclusion: </strong>Strengthening assessment design, moderation and educator training is essential to improving competency-based assessment practices in nursing education. Policy reforms promoting fair, transparent, and competency-driven assessments will enhance graduate preparedness, ensure alignment with NQF standards and support SDG 4's goal of quality education.</p><p><strong>Contribution: </strong>This study provides empirical evidence supporting assessment policy improvements, promoting structured, competency-based assessments that enhance fairness, deepen learning and align with nursing education standards.</p>","PeriodicalId":45721,"journal":{"name":"Health SA Gesondheid","volume":"30 ","pages":"3061"},"PeriodicalIF":1.2,"publicationDate":"2025-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12421558/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145041787","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Quality assurance: A document review of moderation reports on final theoretical assessments.","authors":"Gabieba Donough, Katlego Mthimunye, Felicity Daniels","doi":"10.4102/hsag.v30i0.3024","DOIUrl":"10.4102/hsag.v30i0.3024","url":null,"abstract":"<p><strong>Background: </strong>Ensuring assessment quality in nursing education is crucial for preparing graduates for healthcare demands, particularly in South Africa, where healthcare systems face challenges. Moderation serves as a quality assurance tool, yet its effectiveness remains underexplored.</p><p><strong>Aim: </strong>To review moderation reports on final theoretical assessments of nursing modules in the R425 Bachelor of Nursing programme.</p><p><strong>Setting: </strong>A higher education institution (HEI) in the Western Cape, South Africa.</p><p><strong>Methods: </strong>A qualitative exploratory descriptive study analysed 70 moderation reports (2015-2019) using a structured data extraction tool and content analysis.</p><p><strong>Results: </strong>One main theme emerged, quality assurance in assessment design, with five categories: standard of questions and alignment with Bloom's Taxonomy and NQF levels; linguistic presentation and clarity of questions; clarity of instructions to students; duration and mark allocation; and attainment of module outcomes.</p><p><strong>Conclusion: </strong>The study revealed persistent gaps in assessment quality, including misalignment with cognitive levels, unclear instructions, inconsistent mark allocation, and limited outcome alignment. These findings reinforce the need for robust moderation processes to support fair, valid, and reliable assessments. Recommendations include strengthening assessor training, implementing structured moderation frameworks, and improving documentation.</p><p><strong>Contribution: </strong>This study highlights the critical role of quality assurance in final theoretical assessments by identifying recurring issues in assessment design and moderation. It offers practical insights to enhance assessment integrity and ensure alignment with educational standards.</p>","PeriodicalId":45721,"journal":{"name":"Health SA Gesondheid","volume":"30 ","pages":"3024"},"PeriodicalIF":1.2,"publicationDate":"2025-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12421457/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145041604","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Post-discharge experiences of Malaria patients in a Vhembe district village, South Africa.","authors":"Wavhudi Kwinda, Takalani R Luhalima, Aluwani D Mudzweda","doi":"10.4102/hsag.v30i0.3032","DOIUrl":"10.4102/hsag.v30i0.3032","url":null,"abstract":"<p><strong>Background: </strong>People in South Africa have been diagnosed with malaria, including those coming from other countries. Malaria is still life-threatening, and people are still being diagnosed even after preventive measures have been developed.</p><p><strong>Aim: </strong>The study's purpose was to determine the post-discharge experiences of people diagnosed with malaria at Mhinga village of Vhembe district, Limpopo province.</p><p><strong>Setting: </strong>The setting was at the participants' homes at Mhinga village, Collins Chabane Municipality, Vhembe district, Limpopo.</p><p><strong>Methods: </strong>An exploratory, descriptive and contextual qualitative method was employed to attain a comprehensive understanding of the phenomenon. Audio recordings of semi-structured interviews focused on the post-discharge experiences of malaria patients in Mhinga village, Vhembe district, Limpopo, with participants selected through purposive sampling. Qualitative theme analysis was performed utilising codes, while adhering to trustworthiness and ethical considerations.</p><p><strong>Results: </strong>Two themes emerged: post-discharge experiences from Mhinga clinic and post-discharge experiences from the hospital. The findings described and expressed the post-discharge experiences of people diagnosed with malaria at Mhinga village, Vhembe district, which included complicated symptoms experienced after discharge from the Mhinga clinic and the transfer to Malamulele hospital.</p><p><strong>Conclusion: </strong>The study has concluded that the participants had experienced complicated symptoms of malaria even after obtaining treatment from the clinic and hospital.</p><p><strong>Contribution: </strong>This study highlights the potential reduction of admissions to the Limpopo Province Department of Health by increasing awareness of malaria prevention methods. It suggests strategies to combat malaria, such as enhancing surveillance systems, implementing vector control measures, conducting public awareness campaigns, equipping healthcare facilities, reducing mosquito breeding sites and collaborating with neighbouring regions for cross-border efforts.</p>","PeriodicalId":45721,"journal":{"name":"Health SA Gesondheid","volume":"30 ","pages":"3032"},"PeriodicalIF":1.2,"publicationDate":"2025-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12421526/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145041588","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Consensus statements for the biopsychosocial care of patients with epidermolysis bullosa South Africa: Part 2.","authors":"Antoinette V Chateau, David Blackbeard, Carol Hlela, Martie Wege, Anne Armour, Thirona Naicker, Ncoza Dlova, Serantha Foolchand, Angela Chetty, Sarah Ainsworth, Cassidy-Mae Shaw, Reshmee Lachman, Carl-Heinz Kruse, Kavir Rajkumar, Pieter Mare, Andile Mchiza, Heidi Shanahan, Toni Roberts, Shuaib Kauchali, Colleen Aldous","doi":"10.4102/hsag.v30i0.2964","DOIUrl":"10.4102/hsag.v30i0.2964","url":null,"abstract":"<p><strong>Background: </strong>Epidermolysis bullosa (EB) is a rare, incurable inherited mucocutaneous blistering disorder that can lead to multisystemic complications. In Africa, there are no established consensus statements or clinical guidelines for the care of patients with EB.</p><p><strong>Aim: </strong>To develop comprehensive transdisciplinary consensus statements for the care of patients with EB. This article (Part 2) presents 24 consensus statements focused on the biopsychosocial aspects of EB care. Part 1 addressed diagnostic and clinical management and resulted in 16 consensus statements.</p><p><strong>Setting: </strong>This was a multicentre, multiprovincial study involving healthcare practitioners from Eastern Cape, Free State, Gauteng, KwaZulu-Natal and Western Cape.</p><p><strong>Methods: </strong>In collaboration with patients and families, the transdisciplinary team of experts developed consensus-based statements through a modified Delphi process. This iterative process involved three consensus rounds with an 80% agreement threshold for each action point to ensure validity and reliability.</p><p><strong>Results: </strong>In total, 24 consensus statements were endorsed. These included holistic patient and family care; cultural considerations; educational inclusion; paediatric and emergency care; psychosocial care; nutritional; gynaecological and ophthalmic support; occupational therapy; physiotherapy and orthopaedic; dental and podiatric management.</p><p><strong>Conclusion: </strong>Comprehensive transdisciplinary care is essential for addressing the holistic needs of patients with EB and their families, particularly in resource-limited and culturally diverse settings.</p><p><strong>Contribution: </strong>This is the first set of consensus statements for the care of EB in South Africa and the broader African continent, offering a culturally sensitive, patient-centred framework for multidisciplinary care.</p>","PeriodicalId":45721,"journal":{"name":"Health SA Gesondheid","volume":"30 ","pages":"2964"},"PeriodicalIF":1.2,"publicationDate":"2025-08-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12421568/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145041601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Consensus statements for the transdisciplinary care of patients with epidermolysis bullosa in South Africa: Part 1.","authors":"Antoinette V Chateau, Carol Hlela, Ncoza Dlova, Thuraya Isaacs, Thirona Naicker, Tracey Nupen, Julia Ambler, Frans Maruma, Lushen Pillay, Avumile Mankahla, Fatima Moosa, Jabulile Makhubele, Rannakoe Lehloenya, Willem I Visser, Caridad Velazquez, Sinead Cameron-Mackintosh, Gail Todd, David Blackbeard, Colleen Aldous","doi":"10.4102/hsag.v30i0.2963","DOIUrl":"10.4102/hsag.v30i0.2963","url":null,"abstract":"<p><strong>Background: </strong>Epidermolysis bullosa (EB) is a rare, painful and blistering genodermatosis with no cure. Treatment aims to prevent new lesions and manage complications. Previously, there were no management guidelines or consensus recommendations for patients with EB in Africa.</p><p><strong>Aim: </strong>The aim of this study is to produce a comprehensive, transdisciplinary and practical care guide that is contextually appropriate to the cultural setting and resource limitations in South Africa.</p><p><strong>Setting: </strong>Multicentre, multiprovincial study involving healthcare practitioners from five South African provinces - KwaZulu-Natal, Gauteng (Johannesburg, Pretoria), Western Cape (Cape Town, Stellenbosch), Free State (Bloemfontein) and the Eastern Cape (Umtata).</p><p><strong>Methods: </strong>Consensus recommendations for the care of patients with EB were developed by a transdisciplinary team of specialists in consultation with EB patients. The modified Delphi technique was used to reach a robust consensus with a threshold of 80% for each action point to ensure the validity and reliability of the recommendations.</p><p><strong>Results: </strong>In all, 16 consensus statements were developed, and the main themes included the clinical clues to the diagnosis, complications as per the subtype of EB, diagnostics in a resource-limited environment, management of EB, pruritus and pain, palliative care and genetic counselling.</p><p><strong>Conclusion: </strong>A transdisciplinary approach is essential for the holistic care of patients and their families with EB in the context of their resource limitations and cultural diversity providing much-needed guidance for clinicians in South Africa and similar settings.</p><p><strong>Contribution: </strong>This is the first consensus recommendation of care for patients with EB in Africa.</p>","PeriodicalId":45721,"journal":{"name":"Health SA Gesondheid","volume":"30 ","pages":"2963"},"PeriodicalIF":1.2,"publicationDate":"2025-08-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12421581/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145041549","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}