{"title":"Annonce d’une mauvaise nouvelle concernant un enfant","authors":"A. Challan Belval , E. Semon","doi":"10.1016/j.jpp.2025.01.001","DOIUrl":"10.1016/j.jpp.2025.01.001","url":null,"abstract":"<div><div>Cet article est à la fois le partage d’une expérience professionnelle et une notice permettant d’identifier certains comportements fréquents lors de l’annonce d’une mauvaise nouvelle. Pour cela, les auteurs ont choisi de prendre le temps de décrire les mécanismes de défense tant du côté des patients que ceux des soignants. En effet, le patient qui reçoit l’annonce met en place des stratégies pour se protéger de ce qu’il est en train d’apprendre et le médecin de son côté doit s’adapter à la réaction, parfois violente ou déstabilisante, du patient. Il est essentiel de connaître les mécanismes de défense afin de pouvoir les repérer et les accueillir et ainsi d’ajuster son discours pour permettre au patient de se sentir entendu dans sa souffrance.</div></div><div><div>This article is both the sharing of professional experience and a guide to identifying certain behaviors that are common when breaking bad news. To this end, the authors have taken the time to describe the defense mechanisms of both patients and caregivers. Indeed, the patient who receives the news implements strategies to protect himself from what he is about to learn, and the doctor for his part must adapt to the patient's reaction, which can sometimes be violent or destabilizing. It is essential to be aware of the patient's defense mechanisms, in order to be able to identify and deal with them, as well as adjusting one's approach to enable the patient to feel heard in his or her suffering.</div></div>","PeriodicalId":39683,"journal":{"name":"Journal de Pediatrie et de Puericulture","volume":"38 2","pages":"Pages 72-78"},"PeriodicalIF":0.0,"publicationDate":"2025-01-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143679039","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Les RSEV en Île-de-France : expérience du RPSOF-ASNR","authors":"A. Dodille, L. Leloup","doi":"10.1016/j.jpp.2025.01.002","DOIUrl":"10.1016/j.jpp.2025.01.002","url":null,"abstract":"<div><div>Depuis 2015, le suivi des enfants dits « vulnérables » est organisé et harmonisé au sein du programme SEV-IDF piloté et financé par l’ARS IDF et porté par six dispositifs spécifiques régionaux en périnatalité, qui couvrent l’ensemble du territoire francilien. Ce programme propose aux nouveau-nés, prématurés de moins de 33<!--> <!-->SA, ou ayant présenté retard de croissance intra-utérin sévère, ou une encéphalopathie anox-ischémique modéré à sévère ou toute autre pathologie susceptible d’altérer leur développement, un suivi, un accompagnement et une prise en charge adaptée à leurs besoins spécifiques jusqu’à 7 ans inclus. Les DSRP assurent le recrutement, la formation continue et la coordination des différents professionnels médicaux et paramédicaux qui interviennent dans le programme. Des difficultés demeurent quant à maintenir l’ensemble des enfants dans le suivi, favorisant ainsi la perte de vue dans le programme SEV-IDF. Ces difficultés sont liées notamment au manque de professionnels dans certains territoires et à la difficulté de maintenir un suivi de longue durée avec certaines familles. Malgré cela, l’inclusion dans le programme SEV-IDF apporte le bénéfice d’un suivi spécialisé et coordonné et donc d’un dépistage précoce de troubles éventuels et ainsi une optimisation du développement d’un grand nombre d’enfants vulnérables.</div></div><div><div>Since 2015, the follow-up of so-called “vulnerable” children has been organized and harmonized within the SEV-IDF program piloted and financed by ARS IDF and carried out by six <em>Dispositifs Spécifiques Régionaux en Périnatalité</em>, which cover the entire Île-de-France region. This program offers newborns who are preterm birth under 33<!--> <!-->weeks of age, or who have presented severe intra-uterine growth retardation, or moderate to severe anoxic-ischemic encephalopathy or any other pathology likely to impair their development, follow-up, support and care adapted to their specific needs up to and including the age of 7. DSRP ensure the recruitment, continuous training and coordination of the various medical and paramedical professionals involved in the program. Difficulties remain in keeping all the children in the follow-up, resulting in a loss of follow-up in the SEV-IDF program. These difficulties are linked in particular to the lack of professionals in certain territories and the difficulty of maintaining long-term follow-up with certain families. In spite of this, inclusion in the SEV-IDF program brings the benefit of specialized, coordinated follow-up and therefore early detection of possible disorders, thus optimization of the development of a large number of vulnerable children.</div></div>","PeriodicalId":39683,"journal":{"name":"Journal de Pediatrie et de Puericulture","volume":"38 2","pages":"Pages 105-113"},"PeriodicalIF":0.0,"publicationDate":"2025-01-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143679044","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Sommaire","authors":"","doi":"10.1016/S0987-7983(24)00149-X","DOIUrl":"10.1016/S0987-7983(24)00149-X","url":null,"abstract":"","PeriodicalId":39683,"journal":{"name":"Journal de Pediatrie et de Puericulture","volume":"37 5","pages":"Page v"},"PeriodicalIF":0.0,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143099035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Page de titre","authors":"","doi":"10.1016/S0987-7983(24)00147-6","DOIUrl":"10.1016/S0987-7983(24)00147-6","url":null,"abstract":"","PeriodicalId":39683,"journal":{"name":"Journal de Pediatrie et de Puericulture","volume":"37 5","pages":"Page i"},"PeriodicalIF":0.0,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143098494","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Comité de Rédaction","authors":"","doi":"10.1016/S0987-7983(24)00148-8","DOIUrl":"10.1016/S0987-7983(24)00148-8","url":null,"abstract":"","PeriodicalId":39683,"journal":{"name":"Journal de Pediatrie et de Puericulture","volume":"37 5","pages":"Page ii"},"PeriodicalIF":0.0,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143099034","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}