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The burden of metastatic breast cancer on caregiver productivity and quality of life: A survey study in the United States, United Kingdom, and Germany.
IF 2
Journal of Cancer Policy Pub Date : 2024-12-02 DOI: 10.1016/j.jcpo.2024.100526
Erin Comerford, Sukyung Chung, Marlon Graf, Natalie Land, Anh-Thy Nguyen, Medha Sasane, Ying Zheng, Suepattra G May
{"title":"The burden of metastatic breast cancer on caregiver productivity and quality of life: A survey study in the United States, United Kingdom, and Germany.","authors":"Erin Comerford, Sukyung Chung, Marlon Graf, Natalie Land, Anh-Thy Nguyen, Medha Sasane, Ying Zheng, Suepattra G May","doi":"10.1016/j.jcpo.2024.100526","DOIUrl":"10.1016/j.jcpo.2024.100526","url":null,"abstract":"<p><strong>Background: </strong>Caring for a patient with metastatic breast cancer (mBC) can impose a substantial burden and can lead to significant productivity losses. However, the extent to which productivity loss impacts caregiver well-being has not been well-elucidated. This study examined the relationship between productivity and other characteristics with quality of life (QoL) to illuminate the multifaceted challenges faced by caregivers in the context of mBC.</p><p><strong>Methods: </strong>We conducted a one-time, cross-sectional survey of 345 informal caregivers of people living with mBC in the United States, United Kingdom, and Germany in December 2021. Caregivers were asked about their QoL using the Caregiver Quality of Life Index-Cancer (CQOLC) and pre-/post-caregiving productivity impacts. Heterogeneity in reported burden was assessed across a variety of caregiver characteristics.</p><p><strong>Results: </strong>One in three caregivers changed work status after onset of caregiving, either reducing working hours (12 %), stopping work altogether (13 %), or increasing working hours (8 %). Caregivers who reduced hours or stopped working reported better QoL overall with total CQOLC scores of 71.8 and 65.3, compared to those who maintained or increased work hours (CQOLC scores of 61.3 and 54.4, respectively, [p < 0.001]). While there were no differences in caregiver QoL by patients' disease status (p = 0.48), longer time spent caregiving was associated with lower burden (p = 0.002).</p><p><strong>Conclusions: </strong>Caregiver productivity and QoL scores indicate leaving the workforce may ease the challenges associated with caregiving, suggesting a need for workplace flexibility to better support caregivers. Our study emphasizes the importance of supporting caregivers alongside patients, acknowledging caregiver well-being can significantly influence patient outcomes.</p><p><strong>Policy summary: </strong>Although the burden associated with cancer caregiving has been well-documented, policies supporting caregivers, such as flexible employment leave and mental health support resources, are urgently needed to improve QoL and health outcomes for both patients and their informal caregivers.</p>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":" ","pages":"100526"},"PeriodicalIF":2.0,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142781317","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Impact of Medicaid Expansion on Screenable versus Non-Screenable Gastrointestinal Cancers.
IF 2
Journal of Cancer Policy Pub Date : 2024-12-02 DOI: 10.1016/j.jcpo.2024.100525
Omid Salehi, Kanishka Uttam Chandani, Cara J Sammartino, Ponnandai Somasundar, N Joseph Espat, Abdul Saied Calvino, Steve Kwon
{"title":"Impact of Medicaid Expansion on Screenable versus Non-Screenable Gastrointestinal Cancers.","authors":"Omid Salehi, Kanishka Uttam Chandani, Cara J Sammartino, Ponnandai Somasundar, N Joseph Espat, Abdul Saied Calvino, Steve Kwon","doi":"10.1016/j.jcpo.2024.100525","DOIUrl":"https://doi.org/10.1016/j.jcpo.2024.100525","url":null,"abstract":"<p><strong>Background: </strong>Medicaid expansion afforded increased healthcare access to low-income Americans contributing to a positive impact on cancer outcomes. However, it is unclear if these benefits were mainly due to enhanced access to cancer screening and earlier diagnosis versus access to cancer treatment METHODS: The National Cancer Database (NCDB) was queried between 2010-2021 for Medicaid and uninsured patients with GI malignancies. Patients were stratified by screenable (SGI) and non-screenable (NGI) cancers and expansion state (ES) categories: early (EES) and late (LES) adopters, and non-expansion state (NES) cohorts. Statistical analyses, including difference-in-difference (DiD) and adjusted models, assessed the impact of Medicaid expansion on stage at diagnosis.</p><p><strong>Results: </strong>There were 230,159 pre-expansion and 539,028 post-expansion patients. There was an increase in Medicaid coverage (14.8% vs. 11.1%) and a concomitant decline in the uninsured population (5.3% vs. 8.2%) in the post-expansion era. For SGI cancers, Medicaid expansion was associated with significantly lower mean stage at diagnosis (DiD Coef. -0.12; p<0.01). For NGI cancers, Medicaid expansion was associated with a lower mean stage at diagnosis but with much smaller coefficient (DiD Coef. -0.015; p<0.01). Comparing EES and LES to NES, EES had more impact on lower mean stage at diagnosis (vs NES DiD Coef. -0.16; p<0.01) compared to LES (vs NES DiD Coef. -0.02; p=0.04) for SGI cancers. For NGI cancers, there was a modest reduction in mean stage at diagnosis only for EES (vs NES DiD Coef. -0.04; p<0.01).</p><p><strong>Conclusion: </strong>Medicaid expansion, particularly for SGI cancers and early adopters, had a profound impact in lowering the mean stage at diagnosis. This emphasizes that long-term advantages of providing access to preventive care and screening, and thus earlier treatment, may be one of the main mechanisms of Medicaid expansion on improving cancer outcomes for GI malignancies. POLICY SUMMARY To establish the benefits of Medicaid expansion under the Affordable Care Act 2010 for gastrointestinal cancer patients particularly in screening.</p>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":" ","pages":"100525"},"PeriodicalIF":2.0,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142781311","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Utilisation patterns of radiotherapy among older patients: Insights from Portuguese National Cancer Registry data 放疗在老年患者中的使用模式:葡萄牙全国癌症登记数据的启示
IF 2
Journal of Cancer Policy Pub Date : 2024-11-22 DOI: 10.1016/j.jcpo.2024.100522
Edna Darlene Rodrigues , Maria José Bento , Rita Calisto , Jéssica Rodrigues , Paulo Almeida , Escarlata López , Laetitia Teixeira
{"title":"Utilisation patterns of radiotherapy among older patients: Insights from Portuguese National Cancer Registry data","authors":"Edna Darlene Rodrigues ,&nbsp;Maria José Bento ,&nbsp;Rita Calisto ,&nbsp;Jéssica Rodrigues ,&nbsp;Paulo Almeida ,&nbsp;Escarlata López ,&nbsp;Laetitia Teixeira","doi":"10.1016/j.jcpo.2024.100522","DOIUrl":"10.1016/j.jcpo.2024.100522","url":null,"abstract":"<div><h3>Introduction</h3><div>Radiation therapy (RT) will be required by millions of those aged 70 or older by 2040 based on European growth in cancer incidence among this age group.</div></div><div><h3>Purpose</h3><div>This study evaluates the use of external radiotherapy (EBRT) using data from the Portuguese National Cancer Registry (RON), analysing various cancer locations and age groups. A comparative analysis was conducted between actual EBRT utilization and comorbidity-adjusted optimal rates.</div></div><div><h3>Methods</h3><div>Based on RON’s data, cancer diagnoses from January to June 2018 were analysed. Optimal Utilization Proportions (OUP) of EBRT were obtained from European SocieTy for Radiotherapy and Oncology (ESTRO), Health Economics in Radiation Oncology (HERO) project. Actual utilization percentages (AUP) were calculated using national cancer registry data, and a comparative analysis adjusting for comorbidities was conducted.</div></div><div><h3>Results</h3><div>For most cancer locations and age groups, the actual EBRT utilisation fell below the ESTRO-HERO recommendations, with potential untreated patients estimated at 22 % of all new cancer cases across all age groups. Disparities were observed for older patients, such as breast cancer EBRT actual utilisation declining from 68 % to 25 % for patients aged under 70 and 85 or older, respectively. Also, cervix cancer patients aged 75 or older exhibited nearly 100 % optimal EBRT utilisation. Conversely, older patients with bladder and colon cancer had significantly lower RT actual utilisation rates. Comorbidity-adjusted EBRT utilisation rates for lung, rectal, cervix, and breast cancers in patients aged 70–79 did not reached ESTRO-HERO task force recommended rates. The actual EBRT usage in Portugal failed to meet the comorbidity-adjusted optimal utilisation rate for all cancer locations and age groups. Nevertheless, Portuguese actual EBRT for rectal and prostate cancer, exceeded the actual rates in Australian cohort.</div></div><div><h3>Conclusion</h3><div>While EBRT is essential for older adults with cancer, disparities and suboptimal utilization highlight opportunities for improving cancer care provision.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"43 ","pages":"Article 100522"},"PeriodicalIF":2.0,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142695980","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Corrigendum to "Cancer research funding in South Asia" [J. Cancer Policy 41 (2024) 100489]. 南亚癌症研究经费 "的更正[J. Cancer Policy 41 (2024) 100489]。
IF 2
Journal of Cancer Policy Pub Date : 2024-11-22 DOI: 10.1016/j.jcpo.2024.100523
Sehar Salim Virani, Kaleem Sohail Ahmed, Taylor Jaraczewski, Syed Nabeel Zafar
{"title":"Corrigendum to \"Cancer research funding in South Asia\" [J. Cancer Policy 41 (2024) 100489].","authors":"Sehar Salim Virani, Kaleem Sohail Ahmed, Taylor Jaraczewski, Syed Nabeel Zafar","doi":"10.1016/j.jcpo.2024.100523","DOIUrl":"https://doi.org/10.1016/j.jcpo.2024.100523","url":null,"abstract":"","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":" ","pages":"100523"},"PeriodicalIF":2.0,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142695979","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Time in the U.S. and colorectal cancer screening adherence among diverse immigrants 在美国的时间与不同移民坚持大肠癌筛查的情况。
IF 2
Journal of Cancer Policy Pub Date : 2024-11-17 DOI: 10.1016/j.jcpo.2024.100516
Christian Okitondo , Khezia Kawaya-Tshola , Herve Okitondo
{"title":"Time in the U.S. and colorectal cancer screening adherence among diverse immigrants","authors":"Christian Okitondo ,&nbsp;Khezia Kawaya-Tshola ,&nbsp;Herve Okitondo","doi":"10.1016/j.jcpo.2024.100516","DOIUrl":"10.1016/j.jcpo.2024.100516","url":null,"abstract":"<div><h3>Background</h3><div>Colorectal cancer screening rates are lower among immigrants compared to U.S.-born individuals. This study examined the association between time spent in the U.S. and CRC screening adherence in a diverse sample of immigrants, while considering the role of sociodemographic factors.</div></div><div><h3>Methods</h3><div>Data from the 2010, 2013, 2015, and 2018 NHIS were analyzed. The sample included 6298 immigrants aged 50–75. Multivariable logistic regression was used to assess the association between time in the U.S. (&lt;15 years vs. ≥15 years) and CRC screening adherence, adjusting for sociodemographic factors.</div></div><div><h3>Results</h3><div>Overall, 47.6 % of immigrants adhered to CRC screening guidelines. Immigrants residing in the U.S. for 15 years or more had significantly higher odds of screening adherence (AOR = 1.63; 95 % CI, 1.29–2.05) compared to those with less than 15 years of residence in the U.S. This association varied by race/ethnicity, with the greatest impact seen among Asian immigrants. Socioeconomic factors, particularly education and having a usual source of care, were also significantly associated with screening adherence.</div></div><div><h3>Conclusions</h3><div>Time in the U.S. is a significant predictor of CRC screening adherence among immigrants, with those residing 15 years or more showing higher adherence across racial and ethnic groups. Socioeconomic factors, including education, income, health insurance, and having a usual place of care, are strongly associated with screening adherence across all immigrant groups. These findings underscore the need for tailored interventions to enhance screening rates, particularly among recent immigrants and those with limited socioeconomic resources.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"43 ","pages":"Article 100516"},"PeriodicalIF":2.0,"publicationDate":"2024-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142649203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Rapid diagnostic pathways for prostate cancer: A realist synthesis 前列腺癌的快速诊断途径:现实主义综述。
IF 2
Journal of Cancer Policy Pub Date : 2024-11-16 DOI: 10.1016/j.jcpo.2024.100514
Katie Jones , Arya Chandran , Jaynie Rance
{"title":"Rapid diagnostic pathways for prostate cancer: A realist synthesis","authors":"Katie Jones ,&nbsp;Arya Chandran ,&nbsp;Jaynie Rance","doi":"10.1016/j.jcpo.2024.100514","DOIUrl":"10.1016/j.jcpo.2024.100514","url":null,"abstract":"<div><h3>Introduction</h3><div>The NHS Long-term Plan outlines a number of approaches to address delays and diagnose three out of four cancers at an early stage, and yet patients regularly experience delays to diagnosis. Attempts to address such delays include the implementation of a number of rapid diagnosis pathways (RDPs). This realist review explores rapid diagnosis pathways for prostate cancer, identifying approaches to RDPs, as well as generating theories regarding what works, for whom and under which circumstances.</div></div><div><h3>Methods</h3><div>This is a realist evidence synthesis. The questions and approach are informed by patient and public involvement (PPI). We conducted a scoping review to generate initial programme theories and then refined these through further search processes. As a realist review, we do not focus on a specific data type or outcome, rather we include qualitative and quantitative data to inform theories comprised of contexts, mechanisms, and outcomes (CMO chains).</div></div><div><h3>Results</h3><div>Six studies were included in our scoping review; twenty studies were included in the second review. The studies include qualitative and quantitative data. We identified three broad themes: Primary care, organizational factors, and patient experience.</div></div><div><h3>Conclusions/ Recommendations</h3><div>We recommend the involvement of adjoining services (e.g. general practice and radiology) in the planning of prostate cancer RDPs and emphasize the importance of clear communication with patients.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"42 ","pages":"Article 100514"},"PeriodicalIF":2.0,"publicationDate":"2024-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142669440","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Overcoming barriers of cervical cancer elimination in India: A practice to policy level advocacy 克服印度消除宫颈癌的障碍:从实践到政策层面的宣传。
IF 2
Journal of Cancer Policy Pub Date : 2024-11-13 DOI: 10.1016/j.jcpo.2024.100521
Abhijit Poddar , S.R. Rao
{"title":"Overcoming barriers of cervical cancer elimination in India: A practice to policy level advocacy","authors":"Abhijit Poddar ,&nbsp;S.R. Rao","doi":"10.1016/j.jcpo.2024.100521","DOIUrl":"10.1016/j.jcpo.2024.100521","url":null,"abstract":"<div><div>India’s ambitious goal of eliminating cervical cancer by 2030 faces significant challenges due to the high burden of disease, low screening rates, and sociocultural barriers. Despite the Government’s focus on vaccination, addressing cervical cancer requires a more comprehensive approach that is multisectoral and consider practice to policy engagement. Addressing not only vaccination but also social barriers, healthcare infrastructure, and research is key to preventing and controlling this preventable disease. Fragmented health policies with limited coverage for cervical cancer, coupled with societal issues like stigma and limited access to healthcare, particularly in rural areas, pose significant challenges. Moreover, limited awareness of HPV and vaccines hinders progress. To effectively combat cervical cancer, India must prioritize a readiness assessment to evaluate past interventions, economic feasibility, and social issues before launching new programs. Improving healthcare infrastructure, training healthcare workers, and utilizing innovative models like mobile clinics can expand access to care. Public-private partnerships with incentives can also play a crucial role in mobilizing resources. Investing in culturally appropriate public awareness campaigns is essential to educate the population about HPV, cervical cancer, and prevention strategies. A robust pharmacovigilance program is necessary to ensure vaccine safety. Additionally, India should invest in science and technology to support long-term research efforts, while increasing understanding of population-specific predisposing factors for broader-spectrum vaccines and personalized approaches. A dedicated national policy with clear objectives, strategies, and accountability mechanisms is crucial for successful cervical cancer control. Learning from the experiences of other countries can inform policy development.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"43 ","pages":"Article 100521"},"PeriodicalIF":2.0,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142629967","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Precision oncology implementation in a regional-based health care system: A professional consensus to define the pathway 精准肿瘤学在地区医疗保健系统中的实施:界定路径的专业共识。
IF 2
Journal of Cancer Policy Pub Date : 2024-11-10 DOI: 10.1016/j.jcpo.2024.100515
Maria Carla Barducci , Valeria Domenica Tozzi , Giacomo Pelizzari , Giuseppe Aprile , Francesco Grossi , Carmine Pinto , Gianpiero Fasola
{"title":"Precision oncology implementation in a regional-based health care system: A professional consensus to define the pathway","authors":"Maria Carla Barducci ,&nbsp;Valeria Domenica Tozzi ,&nbsp;Giacomo Pelizzari ,&nbsp;Giuseppe Aprile ,&nbsp;Francesco Grossi ,&nbsp;Carmine Pinto ,&nbsp;Gianpiero Fasola","doi":"10.1016/j.jcpo.2024.100515","DOIUrl":"10.1016/j.jcpo.2024.100515","url":null,"abstract":"<div><h3>Objective</h3><div>Precision Oncology requires deep changes in organizational settings but little evidence has been identified about the best strategy to guarantee the delivery of this innovation to patients. In the Italian health care system, high heterogeneity could jeopardize equal access opportunity for patients. Following a consensus method, we aim to define shared solutions to address these issues in clinical practice.</div></div><div><h3>Method</h3><div>A Delphi RAND method was chosen to record the consensus among involved health care professionals in the Italian region of Friuli Venezia Giulia. The item generation phase was conducted following a bottom-up approach.</div></div><div><h3>Results</h3><div>Ten statements were defined on the main topics that emerged from the direct observation of the current practice, focusing on Molecular Tumor Board organization, massive parallel sequencing technology application, laboratory report content and informed consensus submission. All the statements reached a strong consensus and have been shared with the health care government authorities of our region.</div></div><div><h3>Conclusions</h3><div>The direct observation of the current practice in different health care authorities allowed to define ten statements as solution proposals to solve the identified complexities. This methodological approach could be applied in different organizational models but aiming to achieve a homogeneous clinical outcome for patients.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"42 ","pages":"Article 100515"},"PeriodicalIF":2.0,"publicationDate":"2024-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142629970","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health-related quality of life and associated factors in breast cancer patients in Abidjan (Ivory Coast) 阿比让(象牙海岸)乳腺癌患者的健康相关生活质量及相关因素。
IF 2
Journal of Cancer Policy Pub Date : 2024-11-09 DOI: 10.1016/j.jcpo.2024.100512
Bitti Adde Odo , Kouame Konan Yvon Kouassi , Waïna Kodjo , Fleur Audrey Sessegnon , Petiori Gningayou Laurence Toure , Yenahaban Lazare Toure , N'Guessan Manlan Prosper Mebiala , Akissi Barbara Yvonne Nogbou , Sherif Traore , Israël N'guessan Saint-blanc Yapo , Moctar Toure , Innocent Adoubi
{"title":"Health-related quality of life and associated factors in breast cancer patients in Abidjan (Ivory Coast)","authors":"Bitti Adde Odo ,&nbsp;Kouame Konan Yvon Kouassi ,&nbsp;Waïna Kodjo ,&nbsp;Fleur Audrey Sessegnon ,&nbsp;Petiori Gningayou Laurence Toure ,&nbsp;Yenahaban Lazare Toure ,&nbsp;N'Guessan Manlan Prosper Mebiala ,&nbsp;Akissi Barbara Yvonne Nogbou ,&nbsp;Sherif Traore ,&nbsp;Israël N'guessan Saint-blanc Yapo ,&nbsp;Moctar Toure ,&nbsp;Innocent Adoubi","doi":"10.1016/j.jcpo.2024.100512","DOIUrl":"10.1016/j.jcpo.2024.100512","url":null,"abstract":"<div><h3>Objective</h3><div>The main objective of this study was to assess health-related quality of life, and to investigate associated factors in breast cancer patients living in Ivory Coast.</div></div><div><h3>Methods</h3><div>We conducted a cross-sectional, descriptive and analytical study that took place from August 1, 2022 to October 31, 2022 in the Medical Oncology Department of the Treichville University Hospital. Seventy-six breast cancer patients participated in the study. Quality of life was assessed using the EORTC QLQ-C30 and QLQ-BR23 EORTC questionnaires.</div></div><div><h3>Results</h3><div>The mean score for overall quality of life was 69.3 ± 21.9. Among the functional scales, emotional functioning, social functioning, sexual functioning, and sexual pleasure were the most affected, with 21.1 respectively; 23.7; 78.9, and 86.8 % of patients who had a bad score. Nausea/vomiting, loss of appetite, and hair loss are the symptoms that most affected the QoL of our patients with respectively 19.7; 21.1, and 52, % of patients who had a bad score. Financial difficulties also negatively affected the QoL of our patients (55.3 % had a poor score). The factors significantly associated with QoL deterioration were the metastatic stage, the presence of anemia, and the triple-negative immunohistochemical subtype.</div></div><div><h3>Conclusion</h3><div>The overall quality of life of our patients was good. The psychosocial factors that were most affected in our patients were emotional functioning, social functioning, sexual functioning, and financial difficulties. The physical factors that most negatively affected the QoL of our patients were nausea/vomiting, loss of appetite and hair loss, presence of anemia, metastatic stage, and triple negative immunohistochemical type.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"42 ","pages":"Article 100512"},"PeriodicalIF":2.0,"publicationDate":"2024-11-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142630028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Analysis of 810 tweets from 25 unofficial ASCO representatives (Featured Voices) at ASCO 2024 对来自 ASCO 2024 的 25 位非官方 ASCO 代表的推文进行分析。
IF 2
Journal of Cancer Policy Pub Date : 2024-11-09 DOI: 10.1016/j.jcpo.2024.100519
Owen Stratton , Alyson Haslam , Vinay Prasad
{"title":"Analysis of 810 tweets from 25 unofficial ASCO representatives (Featured Voices) at ASCO 2024","authors":"Owen Stratton ,&nbsp;Alyson Haslam ,&nbsp;Vinay Prasad","doi":"10.1016/j.jcpo.2024.100519","DOIUrl":"10.1016/j.jcpo.2024.100519","url":null,"abstract":"<div><h3>Aim of the study</h3><div>The American Society of Clinical Oncology (ASCO) hosts an annual conference and is one of the largest medical conferences globally. For ASCO 2024, they selected 25 Featured Voices, advertising them as individuals to follow on Twitter/X throughout the conference. The aim of this study was to characterize tweets from each of the 25 featured individuals.</div></div><div><h3>Brief summary of the methods</h3><div>From May 16, 2024 through June 19, 2024 we filtered tweets by using the twitter advanced search tool and applying the following criteria in the tweet text: #ASCO OR #ASCO24 OR #ASCO2024. Tweets were classified as being about research (yes or no) and if media was included (yes or no). Additional information about research related tweets was gathered, such as whether the research was observational or interventional. If it was interventional, we characterized whether the tweet was supportive, critical, or neutral of the research.</div></div><div><h3>Results</h3><div>We find that 229 (28.3 %) of 810 tweets commented on research. Of the 229 research related tweets, 136 (59.4 %) were related to interventional trials of which they were supportive 65.3 % of the time. Media was included in 280 (34.6 %) of 810 tweets. 219 were photos of a person and 80 were selfies.</div></div><div><h3>Conclusion</h3><div>ASCO Featured Voices tweeted more photos, including selfies (n=299), than commentary about research (n=229). When research was referenced, individuals were rarely critical. Trials presented at ASCO have the ability to impact guidelines, so it is important that they are appraised critically and discussed in an unbiased way. How Featured Voices are chosen requires further scrutiny.</div></div><div><h3>Policy summary statement at the end</h3><div>ASCO should disclose financial relationships in the future when selecting Featured Voices to represent the organization and provide insight.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"42 ","pages":"Article 100519"},"PeriodicalIF":2.0,"publicationDate":"2024-11-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142630005","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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