Journal of Cancer Policy最新文献

{"title":"Ethnic disparities in breast cancer outcomes in Europe: Data gaps and policy recommendations","authors":"Ariwan Saeed , Bamo Muhsin , Nyan Osman Saeed , Shwan Ali , Jalil Salih , Mohammed Khalid Mahmood , Karzan Murad , Shkar Othman Arif , Kamaran Ahmed , Sazgar Star , Hawbir Ahmed , Lana H. Baba Haji , Basak Barzngy","doi":"10.1016/j.jcpo.2025.100691","DOIUrl":"10.1016/j.jcpo.2025.100691","url":null,"abstract":"","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"47 ","pages":"Article 100691"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147394100","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Quality of life in patients with advanced cancer: Critical evaluation of EORTC QLQ-C15-PAL and FACIT-PAL-14 in prospective studies","authors":"Paula Tur , Eva Oldenburger , Andrew Bottomley , David Cella , Shing Fung Lee , Adrian W. Chan , Gustavo Nader Marta , Timothy Jacobs , Edward Chow , Henry C.Y. Wong , Agata Rembielak","doi":"10.1016/j.jcpo.2025.100692","DOIUrl":"10.1016/j.jcpo.2025.100692","url":null,"abstract":"","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"47 ","pages":"Article 100692"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147394337","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding the development process of national cancer control plans in low- and middle-income countries","authors":"Linsey Eldridge ,&nbsp;Amina Chtourou ,&nbsp;Kalina Duncan ,&nbsp;Leslie Given ,&nbsp;Sana Haider ,&nbsp;Karin Hohman ,&nbsp;Douglas M. Puricelli Perin ,&nbsp;Yannick Romero ,&nbsp;Zuzanna Tittenbrun ,&nbsp;Mishka Kohli Cira","doi":"10.1016/j.jcpo.2025.100670","DOIUrl":"10.1016/j.jcpo.2025.100670","url":null,"abstract":"<div><h3>Background</h3><div>As cancer incidence in low- and middle-income countries (LMICs) continues to rise, the development of National Cancer Control Plans (NCCP) has become an essential policy tool for guiding a comprehensive and coordinated response. The NCCP Development Research Initiative (NCCP DRIVE) is a qualitative study led by the International Cancer Control Partnership (ICCP) to understand the NCCP development process and contextual factors that may enable or impede effective NCCP development.</div></div><div><h3>Methods</h3><div>In-depth interviews were conducted with country-level cancer planners in nine countries (seven African, two South Asian) within the ICCP network. Transcripts were recorded, transcribed, and double-coded in Dedoose, then analyzed thematically using the Health Policy Triangle (HPT) framework.</div></div><div><h3>Results</h3><div>Findings highlight that NCCP development is dynamic and iterative, following six commonly reported phases: Initiation, Formulation, Negotiation, Communication, Implementation, and Monitoring/Evaluation. Common challenges reported by respondents included limited financial and human resources, competing priorities, fragmented health systems, and inadequate data. These constraints led to compressed timelines, overlapping planning activities, and gaps in costing and implementation plans. To address these challenges, respondents employed various strategies, including integrating cancer control efforts with existing health programs, engaging multisector actors, building political will, and securing technical assistance (TA) from partners. Building partnerships was pivotal, helping to set priorities, align plans with national and global agendas, and leverage resources. However, some respondents reported misaligned timelines and priorities, and coordination challenges.</div></div><div><h3>Conclusion</h3><div>This study contributes a policy framework-informed, implementation-focused analysis of NCCP development, offering practical insights into how countries navigate complex challenges to initiate and sustain cancer control planning. Findings underscore the need for flexible TA models and stronger data systems, and the value of integrating cancer control priorities within existing health systems. Understanding these dynamics from initiation to implementation offers practical insights for countries at various stages of development, and for partners providing technical assistance.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"47 ","pages":"Article 100670"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145670139","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social framework to judge the importance of breast cancer","authors":"Zsuzsa Réka Pozsár ,&nbsp;Krisztina Tóth ,&nbsp;Marianna Moizs ,&nbsp;János Révész ,&nbsp;Klára Tatár-Kiss ,&nbsp;Judit Tittmann ,&nbsp;Aliz Nikolényi ,&nbsp;Ágnes Anna Kovács ,&nbsp;Tamás Mátrai ,&nbsp;Borbála Judit Szabó ,&nbsp;Erzsébet Hajduné Kovács ,&nbsp;Csilla Czene ,&nbsp;Dalma Hosszú ,&nbsp;Anna Bögös ,&nbsp;Tu Thanh Nguyen ,&nbsp;Júlia Zemplényiné Bartha ,&nbsp;Tamás Ágh ,&nbsp;Zoltán Kaló ,&nbsp;Magdolna Dank","doi":"10.1016/j.jcpo.2025.100679","DOIUrl":"10.1016/j.jcpo.2025.100679","url":null,"abstract":"<div><h3>Background</h3><div>Breast cancer (BC) has profound effects on patients, households, and society, necessitating a multidimensional approach to understand its implications fully. This study aimed to develop a conceptual model for a social framework (SF) that assists in identifying group common values and needs for BC interventions in Hungary. The SF reflects diverse perspectives, including healthcare professionals, patients, caregivers, policymakers of health and social care, health technology developers, and corporate and philanthropic supporters of BC initiatives.</div></div><div><h3>Methods</h3><div>A narrative literature review was conducted to identify value elements (VEs) of BC. VEs were categorized into groups and further clustered into sub-groups within each main category. This literature-based conceptual model was contextualized and adapted to the Hungarian setting through individual and group interviews with various societal group representatives. A closing validation meeting fostered stakeholders’ reflection on the draft model.</div></div><div><h3>Results</h3><div>The final conceptual model incorporates five traditional (e.g., clinical outcomes, adverse events, survival, and direct medical costs), nine patient-centric (e.g., personal milestones, patient experience, and financial burden), and seven societal (e.g., disease severity, the presence of the disease around us, and indirect costs) VEs.</div></div><div><h3>Conclusion</h3><div>Our study is the first to present a comprehensive SF that provides insights into key disease challenges and why different BC interventions are important to various stakeholder groups via capturing traditional, patient-centric, and societal VEs. It informs decision-making within and beyond the healthcare domain by supporting the evaluation of policies, health technologies, public and civil society initiatives in Hungary.</div></div><div><h3>Policy Summary</h3><div>While BC is a priority disease area for all stakeholder groups, their views on what contributes to the success of policy decisions are different. If policymakers intend to represent the interests of the whole society, they should aim to express the value of policy interventions in a comprehensive SF.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"47 ","pages":"Article 100679"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145828480","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The out-of-pocket cost of colorectal cancer care in Nigeria: A prospective analysis","authors":"Funmilola Olanike Wuraola ,&nbsp;Ryan Fodero ,&nbsp;Olalekan Olasehinde ,&nbsp;Adewale A. Aderounmu ,&nbsp;Adeoluwa O. Adeleye ,&nbsp;Oluwatosin Z. Omoyiola ,&nbsp;Adewale O. Adisa ,&nbsp;Juliet Lumati ,&nbsp;Israel A. Owoade ,&nbsp;T. Peter Kingham ,&nbsp;Olusegun I. Alatise ,&nbsp;Gregory Knapp","doi":"10.1016/j.jcpo.2026.100705","DOIUrl":"10.1016/j.jcpo.2026.100705","url":null,"abstract":"<div><h3>Background</h3><div>In Nigeria, cancer patients often pay for care out-of-pocket, leading to catastrophic health expenditure (CHE). However, data on the true costs and economic burden of cancer care are limited. This study prospectively analyzes direct and indirect out-of-pocket costs for colorectal cancer (CRC) care at a tertiary hospital in Southwest Nigeria.</div></div><div><h3>Methods</h3><div>Patients newly diagnosed with CRC between August 2019 and April 2024 were enrolled. Trained research assistants administered a context-specific questionnaire at admission and six months later. Patients reported household income and all cancer-related expenditures. CHE was defined using three standard thresholds: healthcare costs exceeding 40 % of capacity-to-pay or 10 % and 25 % of annual income.</div></div><div><h3>Results</h3><div>Data were collected from 50 patients with a mean age of 57.9 years (SD 14.3). Twelve percent of patients (6/50) presented with stage I disease. Forty-two percent (21/50) had stage II disease, while 46 % (23/50) had stage III or IV disease at presentation. 24 % (12/50) of patients had right-sided disease, while 38 % (19/50) had rectal cancer, 4 (21 %) of whom received neoadjuvant radiotherapy. Ninety percent (45/50) of patients received systemic chemotherapy. The mean annual capacity-to-pay for the cohort was $3930.71(SD $5108.10), while the mean cost of care was $5286.16(SD $2919.77). Indirect costs, including travel, lodging, and lost income, accounted for $2144.04(SD $2478.68) of the total cost of care. Between 95.2 % and 100 % of our cohort experienced a CHE. Only 20 % (10/50) of our cohort had health insurance.</div></div><div><h3>Conclusions</h3><div>More than 95 % of patients seeking care for CRC at a tertiary care facility in Southwest Nigeria experience a CHE because of out-of-pocket costs associated with accessing care. There is the need for more studies on interventions to reduce these cost barriers for patients.</div></div><div><h3>Policy Summary</h3><div>A more effective and accessible health insurance scheme is urgently needed in Nigeria to protect CRC patients from CHE.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"47 ","pages":"Article 100705"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145925546","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Is breast cancer survival correlated with indicators of the right to health? An interdisciplinary study in 58 countries","authors":"Lisa Montel ,&nbsp;Veronica Di Carlo ,&nbsp;Michel P. Coleman ,&nbsp;Claire Lougarre ,&nbsp;Claudia Allemani","doi":"10.1016/j.jcpo.2026.100707","DOIUrl":"10.1016/j.jcpo.2026.100707","url":null,"abstract":"<div><h3>Background</h3><div>Women with breast cancer have different chances of surviving their disease, depending on where they live. When breast cancer is diagnosed and treated early, the chances of longer-term survival improve. Inequalities in survival are deemed unfair, because high survival for breast cancer <em>can</em> be achieved. We enquired whether adoption of a human rights-based approach to breast cancer care and management is correlated with breast cancer survival.</div></div><div><h3>Method</h3><div>We reviewed the law literature on key concepts of the human right to health and performed a scoping review of the public health literature. We then used a Delphi technique to identify indicators of the right to health, and collected information for 17 indicators for which consensus was achieved. We then examined correlations with five-year net survival for women diagnosed with breast cancer during 2010–14 in up to 58 OECD countries. We used survival estimates from the CONCORD programme for the global surveillance of cancer survival.</div></div><div><h3>Results</h3><div>Higher survival was correlated with the availability of radiotherapy equipment, financial availability of morphine, morphine consumption, the number of nurses and midwives, and the proportion of eligible women screened for breast cancer in the previous two years. Lower survival was correlated with the proportion of women diagnosed at an advanced stage, out-of-pocket expenditure, and legal recognition of the right to health.</div></div><div><h3>Conclusion</h3><div>The findings show that some right-to-health components of health systems are correlated with higher survival for breast cancer, suggesting that adoption of a human rights-based approach to breast cancer care and management may help improve survival and reduce inequalities.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"47 ","pages":"Article 100707"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146041649","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pain at the end of life in patients with cancer: a population-based study on prevalence, relief and the role of pain assessment","authors":"Ellis Slotman ,&nbsp;Christel Hedman ,&nbsp;Heidi P. Fransen ,&nbsp;Yvette M. van der Linden ,&nbsp;Natasja J.H. Raijmakers ,&nbsp;Staffan Lundström","doi":"10.1016/j.jcpo.2025.100697","DOIUrl":"10.1016/j.jcpo.2025.100697","url":null,"abstract":"","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"47 ","pages":"Article 100697"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147394489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Research Engine by Seintinelles: A participatory platform to foster science–society dialogue and inform research priorities in cancer research","authors":"F. Le Moal ,&nbsp;A. Arnais ,&nbsp;C. Binquet ,&nbsp;Bluenove ,&nbsp;F. Bozzo ,&nbsp;M. Bailleul ,&nbsp;S. Dabakuyo ,&nbsp;C. Delpierre ,&nbsp;S. de Montgolfier ,&nbsp;R. Desjardin ,&nbsp;F. Docagne ,&nbsp;S. Ginguené ,&nbsp;C. Guillaume ,&nbsp;J. Haesebaert ,&nbsp;G. Jacob ,&nbsp;M. Marcel ,&nbsp;O. Peixoto ,&nbsp;L. Perie ,&nbsp;J.-C. Thalabard ,&nbsp;M. Préau","doi":"10.1016/j.jcpo.2025.100681","DOIUrl":"10.1016/j.jcpo.2025.100681","url":null,"abstract":"","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"47 ","pages":"Article 100681"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147394740","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ensuring equitable access to cancer medicine and care in Australia: A human-rights lens, including people experiencing homelessness","authors":"Rashidul Alam Mahumud","doi":"10.1016/j.jcpo.2025.100678","DOIUrl":"10.1016/j.jcpo.2025.100678","url":null,"abstract":"<div><div>Australia has strong cancer survival. Yet many people still struggle to get timely diagnosis, medicines, and supportive care. Gaps are widest for Aboriginal and Torres Strait Islander peoples, rural and remote communities, culturally and linguistically diverse groups, people with disability, temporary visa holders, and people experiencing homelessness.</div></div><div><h3>Objective</h3><div>To set out practical, rights-aligned actions that turn universal coverage into universal access.</div></div><div><h3>Approach</h3><div>This short communication applies a rights-based analytic framing, distinct from a checklist, to reinterpret policy choices through the lenses of accountability, justiciability, and participation.</div></div><div><h3>Actionable implications</h3><div>Using this framing, synthesising recent evidence on affordability, diagnostics, and service capacity, we prioritise four actionable levers: cap financial toxicity (with standardised travel/accommodation support and public OOP reporting); fund and benchmark companion diagnostics (national turnaround and equity dashboards); scale tele-oncology/tele-trials with minimum local capacity and travel stipends (monitoring priority populations); and adopt distributional cost-effectiveness analysis in HTA and program design to make equity trade-offs explicit. This framing specifies who must act, by when, and with what evidence, offering a practical route to equitable, sustainable cancer.</div></div><div><h3>Conclusion</h3><div>Universal coverage alone does not guarantee equity. Implementing a rights-aligned plan with clear duty-bearers, timelines, and the four actionable levers we outline can narrow access gaps and support timely, affordable, culturally safe cancer care, including for people experiencing homelessness.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"47 ","pages":"Article 100678"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145737669","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development targets in the clinical quality registries for cancer and non-cancer diseases","authors":"Amalie Helme Simoni ,&nbsp;Lina Marie Vinge Ahlstrøm ,&nbsp;Anne Gulbech Ording ,&nbsp;Michael Borre ,&nbsp;Søren Paaske Johnsen ,&nbsp;Jens Winther Jensen ,&nbsp;Henrik Møller","doi":"10.1016/j.jcpo.2026.100726","DOIUrl":"10.1016/j.jcpo.2026.100726","url":null,"abstract":"<div><h3>Background</h3><div>The Danish clinical quality registries contribute to clinical quality improvement by utilizing quality indicators and development targets. This study examines fulfillment of development targets across all registries for cancer and non-cancer diseases at national, regional, and hospital levels.</div></div><div><h3>Methods</h3><div>Annual summarized data from Danish clinical quality registries (2019–2023) were accessed. The proportion of fulfilled development targets was presented overall and in strata according to registries covering cancer or non-cancer diseases, indicators describing processes or results, and established or supplemental indicators. Regional differences and changes over time were evaluated.</div></div><div><h3>Results</h3><div>The data evaluated 13,305,861 patient pathways and 697 indicators from 65 registries. Overall, 57% of hospital-level development targets were fulfilled (median 58%, IQR:44–76%). The 24 cancer registries fulfilled 63% of targets (median 60%, IQR:49–76%), while the 41 non-cancer registries fulfilled 54% (median 54%, IQR:38–75%). Fulfillment was higher for result indicators (68%) than process indicators (44%), and for established (56%) than supplemental indicators (44%). Regional fulfillment ranged from 50% (Region Zealand) to 64% (the Central Denmark Region). Target fulfillment increased by five percentagepoints during the study period.</div></div><div><h3>Conclusions</h3><div>The Danish clinical quality registers varied in the approach to defining development targets, ranging from very conservative to very ambitious. The development targets were more ambitious for registries of non-cancer diseases than cancer diseases, more ambitious for process- than for result indicators, and more ambitious for supplemental compared to established indicators.</div></div><div><h3>Policy Summary</h3><div>Setting clinical quality improvement targets requires balancing ambition with realism. The ambitious target setting for supplemental (often new) indicators and process indicators is expected, as these have a high potential for further improvement. The data suggest that the Danish clinical quality registries in cancer diseases could benefit from raising some of the development targets.</div></div>","PeriodicalId":38212,"journal":{"name":"Journal of Cancer Policy","volume":"47 ","pages":"Article 100726"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147322373","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}