Cecelia I Nelson, Destiny Noel, Line Caes, Klanci M McCabe, Christina L Duncan
{"title":"Adherence in young people living with juvenile arthritis: A systematic review.","authors":"Cecelia I Nelson, Destiny Noel, Line Caes, Klanci M McCabe, Christina L Duncan","doi":"10.1037/cpp0000483","DOIUrl":"10.1037/cpp0000483","url":null,"abstract":"<p><strong>Objective: </strong>Juvenile idiopathic arthritis (JIA) is one of the leading causes of chronic pain in pediatric patients. Treatment regimens, which are critical to symptom management, can be burdensome, involving medication with potentially aversive side effects and exercise that can cause joint pain. Thus, it is important to examine the barriers and facilitators to adherence in JIA. While systematic reviews exist for rheumatic disease in adults, there has not yet been a synthesis of the literature examining adherence in JIA.</p><p><strong>Methods: </strong>PsychINFO, PubMed and MEDLINE databases were systematically searched to identify qualitative and quantitative empirical studies that investigate adherence for JIA. Keywords included: patient compliance OR adherence OR persistence; youth OR children OR juvenile OR pediatric OR teen OR child OR adolescent; and rheumatoid arthritis OR idiopathic arthritis OR arthritis. Articles were excluded from the review if they involved non-human or adult samples, were non-experimental (e.g., practice recommendations), were not peer-reviewed, or were not written in English. After abstract selection, 32 articles were included in the analyses.</p><p><strong>Results: </strong>Adherence to exercise regimens was consistently lower than adherence to medication. Researchers relied heavily on self-report of adherence, which suggests a need for additional research with more objective measures of adherence. Across studies, psychological treatment was not included, so adherence to this treatment component in JIA remains understudied.</p><p><strong>Conclusions: </strong>Results suggest that future research should target devising and evaluating interventions to improve adherence to exercise and perhaps psychological treatment.</p><p><strong>Implications for impact: </strong>To facilitate adherence in JIA, behavioral health providers should focus on building a strong therapeutic alliance between provider and child, fostering positive coping skills in parents and children, and monitoring the parent-child relationship.</p>","PeriodicalId":37641,"journal":{"name":"Clinical Practice in Pediatric Psychology","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11415228/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48512372","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
M. Pavlova, S. Kohut, Isabel Jordan, Janice Sumpton, Kyleigh Schraeder, S. L. Orr, Lindsay Craddock, Melanie Noel, K. Birnie
{"title":"Acceptance and commitment therapy-based intervention for parents living with chronic pain: Feasibility and acceptability study.","authors":"M. Pavlova, S. Kohut, Isabel Jordan, Janice Sumpton, Kyleigh Schraeder, S. L. Orr, Lindsay Craddock, Melanie Noel, K. Birnie","doi":"10.1037/cpp0000525","DOIUrl":"https://doi.org/10.1037/cpp0000525","url":null,"abstract":"","PeriodicalId":37641,"journal":{"name":"Clinical Practice in Pediatric Psychology","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141022959","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ian C. Carroll, Christopher J. Senior, Mattina A. Davenport, Carmelita S. Foster, Ana Diaz-LePage, Cheyenne L. Hughes-Reid, Danielle R. Hatchimonji
{"title":"Racial match: Black youth and pediatric integrated primary care.","authors":"Ian C. Carroll, Christopher J. Senior, Mattina A. Davenport, Carmelita S. Foster, Ana Diaz-LePage, Cheyenne L. Hughes-Reid, Danielle R. Hatchimonji","doi":"10.1037/cpp0000526","DOIUrl":"https://doi.org/10.1037/cpp0000526","url":null,"abstract":"","PeriodicalId":37641,"journal":{"name":"Clinical Practice in Pediatric Psychology","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141017885","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
B. Parchem, Jonathan L. Poquiz, R. Rahm-Knigge, Elizabeth Panetta, Ryan J. Watson, G. N. Rider
{"title":"Participation in organized physical activity and discomfort with locker rooms among youth across sexual, gender, and racial identities.","authors":"B. Parchem, Jonathan L. Poquiz, R. Rahm-Knigge, Elizabeth Panetta, Ryan J. Watson, G. N. Rider","doi":"10.1037/cpp0000518","DOIUrl":"https://doi.org/10.1037/cpp0000518","url":null,"abstract":"","PeriodicalId":37641,"journal":{"name":"Clinical Practice in Pediatric Psychology","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140242504","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Ethical and psychological considerations for posthumous-assisted reproduction for adolescents and young adults with poor cancer prognosis in the context of grief.","authors":"B. Parchem, G. N. Rider, G. P. Quinn","doi":"10.1037/cpp0000502","DOIUrl":"https://doi.org/10.1037/cpp0000502","url":null,"abstract":"","PeriodicalId":37641,"journal":{"name":"Clinical Practice in Pediatric Psychology","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140244586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Christina G. Salley, Dana M Bakula, Colleen F. Bechtel Driscoll, Catherine Flanagan-Priore, Theresa L. Kapke, Rachel M. Moore, Kendra R. Parris, Christina M. Sharkey
{"title":"Call to action: Screening and addressing caregiver mental health needs within all pediatric medical subspecialty settings as standard of care.","authors":"Christina G. Salley, Dana M Bakula, Colleen F. Bechtel Driscoll, Catherine Flanagan-Priore, Theresa L. Kapke, Rachel M. Moore, Kendra R. Parris, Christina M. Sharkey","doi":"10.1037/cpp0000514","DOIUrl":"https://doi.org/10.1037/cpp0000514","url":null,"abstract":"","PeriodicalId":37641,"journal":{"name":"Clinical Practice in Pediatric Psychology","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140259144","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Margo M Szabo, Cecelia I Nelson, Christa L Lilly, Ellen M Manegold, Brian D Riedel, Audra S Rouster, Christina L Duncan
{"title":"Sleep Patterns, Pain, and Emotional Functioning in Youth with Inflammatory Bowel Disease.","authors":"Margo M Szabo, Cecelia I Nelson, Christa L Lilly, Ellen M Manegold, Brian D Riedel, Audra S Rouster, Christina L Duncan","doi":"10.1037/cpp0000491","DOIUrl":"10.1037/cpp0000491","url":null,"abstract":"<p><strong>Objective: </strong>Youth with inflammatory bowel disease (IBD) may be at increased risk for sleep difficulties due to the painful and inflammatory nature of their disease. Moreover, children and adolescents with IBD experience impairment across a variety of psychosocial domains. However, researchers have yet to investigate the complex interplay between sleep, disease-related symptoms, and psychosocial factors in this population. The purpose of this study was to examine sleep patterns, pain, and mood in pediatric IBD.</p><p><strong>Methods: </strong>A sample of 25 children and adolescents with IBD (<i>M</i>age = 14.24, Range = 10-18 years; 56% male) were recruited from a pediatric gastroenterology clinic. Youth wore an actigraphy watch and completed daily measures of affect and pain over the course of 14 days. Statistical analyses involved repeated measures general estimating equations.</p><p><strong>Results: </strong>No significant association for sleep with negative affect was demonstrated. Despite majority of this sample being in disease remission, results revealed that increased sleep onset latency was associated with presence of next day pain and pain was associated with better next night sleep efficiency.</p><p><strong>Conclusions: </strong>Findings of the current study suggest youth with IBD experience poor sleep quality, which is significantly related to the pain they experience. Consequently, healthcare providers should screen for and address sleep quality to optimize outcomes in their pediatric patients. Objectively assessing sleep patterns (e.g., actigraphy) may prove useful for pediatric IBD samples; however, additional research is needed to determine actigraphy's feasibility and efficacy in assessing sleep patterns in real world settings (e.g., pediatric medical clinics).</p>","PeriodicalId":37641,"journal":{"name":"Clinical Practice in Pediatric Psychology","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11101145/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46274272","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A. Modi, Sarah J. Beal, Stephen P. Becker, Katelynn E. Boerner, E. T. Burton, Diane Chen, Lori E. Crosby, Marisa E Hilliard, Anna M. Hood, Nicole A. Kahhan, Emily Law, Kristin A Long, M. McGrady, Rachel E Sweenie, I. Thurston, Cecelia R Valrie, Yelena P. Wu, Christina L Duncan
{"title":"Recommendations on inclusive language and transparent reporting relating to diversity dimensions for the Journal of Pediatric Psychology and Clinical Practice in Pediatric Psychology.","authors":"A. Modi, Sarah J. Beal, Stephen P. Becker, Katelynn E. Boerner, E. T. Burton, Diane Chen, Lori E. Crosby, Marisa E Hilliard, Anna M. Hood, Nicole A. Kahhan, Emily Law, Kristin A Long, M. McGrady, Rachel E Sweenie, I. Thurston, Cecelia R Valrie, Yelena P. Wu, Christina L Duncan","doi":"10.1037/cpp0000519","DOIUrl":"https://doi.org/10.1037/cpp0000519","url":null,"abstract":"","PeriodicalId":37641,"journal":{"name":"Clinical Practice in Pediatric Psychology","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140271447","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Grayson R. Jackson, Diane Chen, Claire Coyne, Kelly Donahue, Lisa Campo-Engelstein
{"title":"Ethics of pediatric gender-affirming care: A case study comparison.","authors":"Grayson R. Jackson, Diane Chen, Claire Coyne, Kelly Donahue, Lisa Campo-Engelstein","doi":"10.1037/cpp0000487","DOIUrl":"https://doi.org/10.1037/cpp0000487","url":null,"abstract":"","PeriodicalId":37641,"journal":{"name":"Clinical Practice in Pediatric Psychology","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140269950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sakina Butt, Julia Nahman, Charles Cederberg, Nora Coultis
{"title":"Preserved neonatal follow-up care during COVID-19: Use of neurodevelopmental evaluation via telehealth.","authors":"Sakina Butt, Julia Nahman, Charles Cederberg, Nora Coultis","doi":"10.1037/cpp0000516","DOIUrl":"https://doi.org/10.1037/cpp0000516","url":null,"abstract":"","PeriodicalId":37641,"journal":{"name":"Clinical Practice in Pediatric Psychology","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139597518","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}