Marissa N Baudino, Samantha Garcia Perez, Maeve B O'Donnell, Brenda Duran, Daniel J DeSalvo, Faisal Malik, Catherine Pihoker, Katherine Gallagher, Ashley M Butler, Joyce P Yi-Frazier, Abby R Rosenberg, Marisa E Hilliard
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引用次数: 0
Abstract
Objective: The COVID-19 pandemic presented unique stressors for parents of youth with chronic health conditions including type 1 diabetes (T1D), such as managing youths' diabetes self-management demands without usual routines, changes in interactions with health care system, and concerns about increased health risks related to COVID-19 exposure. While data have been published on how adolescents with T1D coped with pandemic-related stress, little is known about their parents' perspectives. To fill this gap, we explored parents' coping strategies.
Method: At the baseline of a multisite trial of a psychosocial intervention for adolescents with T1D, parents answered an open-ended question, "What is helping you through the pandemic?" A multidisciplinary qualitative research team used thematic analysis to code, analyze responses, and generate themes and explored patterns by gender, study site, race, ethnicity, and socioeconomic status indices.
Results: Eighty-nine parents (89% female, 18% Hispanic/Latinx, 7% non-Hispanic Black/African American, 70% non-Hispanic White) provided text responses to the qualitative question. We generated six themes: safety practices, social efforts, maintaining a positive perspective, efforts to distract, cognitive avoidance, and religious/spiritual coping. The spiritual/religious coping theme was more common among Black/African American and Hispanic/Latinx parents. There were no other demographic group patterns for the other themes.
Conclusions: Themes aligned with primary control, secondary control, and disengagement coping strategies of the control-based model of coping. Religious and spiritual coping represented an additional coping category that was especially common in marginalized groups. During stressful times, pediatric psychologists should attend to parental coping and consider cultural factors in relation to parental well-being.
期刊介绍：
Clinical Practice in Pediatric Psychology® publishes articles representing the professional and applied activities of pediatric psychology. The journal comprehensively describes the breadth and richness of the field in its diverse activities;complements the scientific development of the field with information on the applied/clinical side;provides modeling that addresses the ways practicing pediatric psychologists incorporate empirical literature into day-to-day activities;emphasizes work that incorporates and cites evidence from the science base; andprovides a forum for those engaged in primarily clinical activities to report on their activities and inform future research activities. Articles include a range of formats such as commentaries, reviews, and clinical case reports in addition to more traditional empirical clinical studies. Articles address issues such as: professional and training activities in pediatric psychology and interprofessional functioning;funding/reimbursement patterns and the evaluation of the cost-effectiveness of clinical services;program development;organization of clinical services and workforce analyses;applications of evidence based interventions in "real world" settings with particular attention to potential barriers and solutions and considerations of diverse populations;critical analyses of professional practice issues;clinical innovations, e.g., emerging use of technology in clinical practice;case studies, particularly case studies that have enough detail to be replicated and that provide a basis for larger scale intervention studies; andorganizational, state and federal policies as they impact the practice of pediatric psychology, with a particular emphasis on changes due to health care reform.
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