Elina Weiste, Melisa Stevanovic, Nanette Ranta, Henri Nevalainen
{"title":"Healthcare providers’ narratives about interactionally troubling patient exchanges: Accounting for and against an active patient role","authors":"Elina Weiste, Melisa Stevanovic, Nanette Ranta, Henri Nevalainen","doi":"10.4081/qrmh.2024.11877","DOIUrl":"https://doi.org/10.4081/qrmh.2024.11877","url":null,"abstract":"The current trend in healthcare is to actively involve patients in their own treatment; however, in practice, healthcare providers may adhere to paternalistic views, which may not align with ideals related to patient involvement. This tension may become visible when providers talk about service encounters that they experienced as being interactionally troubling. In this empirical qualitative study, we utilize Bamberg’s narrative positioning analysis to explore how healthcare providers construct patients’ roles in narratives about such troubling exchanges. Data consist of 20 audio-recorded interviews with healthcare providers. We found two types of narratives in which healthcare providers’ perceptions of interactionally troubling patient exchanges were consistently related to their implicit evaluations of patients along a continuum of activeness versus passiveness. In the first, an active patient was considered ideal, and the problematic patient was one who is passive. In the second, a patient’s over-activeness was thought to interfere with the healthcare delivery. While providers’ complaints about patient passiveness were unproblematically presented from the perspective of the patient participation ideal, complaints about patient over-activeness were difficult to account for due to their inherent connotations with paternalism. Thus, we conclude that there is a need for training and interventions aiming to develop healthcare providers’ critical awareness of shifting cultural models, including patient involvement ideals and providers’ capacity to reflect paternalistic tendencies.","PeriodicalId":375726,"journal":{"name":"Qualitative Research in Medicine and Healthcare","volume":" 12","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141678897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Screen time, mute, mixed messages, and panic: An international auto-ethnographic study of knowledge workers during a pandemic","authors":"Mark Finney, Jacqueline O’Reilly, Claire Wallace","doi":"10.4081/qrmh.2024.11797","DOIUrl":"https://doi.org/10.4081/qrmh.2024.11797","url":null,"abstract":"The coronavirus pandemic provoked worldwide changes to the workplace, leading to rapid changes in lifestyles and working conditions. While organizations and governments struggled to develop regulations and policies, individuals were forced to find ways to manage work and life. During the pandemic and quarantine, a group of knowledge workers from around the world convened virtually and agreed to use qualitative autoethnographic methods to study how the quarantine disrupted their conventional patterns of work and care. In this article, we apply two communication perspectives—uncertainty reduction theory and resilience— to participant diaries to understand how participants represent internal and external stressors, the efforts diarists employed to overcome those stressors, and their varying success in doing so. Post-hoc application of these communication concepts suggests that the diarists, though privileged in some ways, were not exempt from the social, professional, and emotional consequences of the pandemic and that their efforts to enact resilience were unevenly successful, especially in relation to their use of communications technology. Diarists reported struggling with uncertainty at numerous levels and that uncertainty contributed to individual emotional and cultural distress. Disruptions to work, home, and communities significantly affected wellbeing and ability to cope with challenges. Added to this were the complex and competing roles that diarists felt as they struggled to work from home, parent, and remain engaged.","PeriodicalId":375726,"journal":{"name":"Qualitative Research in Medicine and Healthcare","volume":"79 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-05-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141002771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Debating claims of fact in public health: A pedagogical activity","authors":"Julie Homchick Crowe","doi":"10.4081/qrmh.2024.11690","DOIUrl":"https://doi.org/10.4081/qrmh.2024.11690","url":null,"abstract":"This pedagogical activity asks instructors or workshop administrators to guide students through the process of evaluating evidence used in recurring health misinformation. Taking an approach based in argumentation and debate, instructors will facilitate understanding of how to evaluate evidence using specific criteria. Students are asked to develop cases to refute or defend a factual claim about human health, construct oral and written arguments for their case, and share them with other students who will evaluate the strength and quality of evidence used by each side. Ultimately, students will learn to: i) Understand how arguments are constructed that both support and refute a health claim; ii) develop strategies to evaluate evidence used for both sides of a claim of fact; and iii) know how to identify health misinformation, particularly in an online context.","PeriodicalId":375726,"journal":{"name":"Qualitative Research in Medicine and Healthcare","volume":"65 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140723694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Lessons learned from qualitative fieldwork in a multilingual setting","authors":"S. Verma","doi":"10.4081/qrmh.2024.11554","DOIUrl":"https://doi.org/10.4081/qrmh.2024.11554","url":null,"abstract":"Qualitative research conducted in a multilingual setting is an arduous, yet essential, endeavour. As part of my PhD research program, I set out to conduct qualitative process evaluation of a stroke trial in 11 languages in the Indian subcontinent. In this article, I reflect upon the challenges, oversights, and successes that I experienced in the hope of offering insight of use to fellow researchers conducting healthcare fieldwork in multicultural contexts where many languages are spoken. My account starts with a description of the setting’s context and the necessity of conducting research in multiple languages. I elaborate on the planning of the study which included selection of the sample and preparation of relevant documents, including informed consent in patients’ languages. Subsequent steps entailed submission and approval of requisite documents, setup and training of a research team, and conducting interviews using interpreters. During this process, I developed a hybrid technique for conducting interviews that reduced fatigue for both patient interviewees and interpreters while still yielding in-depth insights. Additionally, I discuss the benefits of engaging professional translators for performing translations. Finally, I introduce a stepwise approach to facilitate the thematic analysis of qualitative data. I believe this account will encourage and empower researchers to pave their own way while anticipating and preparing for potential obstacles when conducting research in similar settings.","PeriodicalId":375726,"journal":{"name":"Qualitative Research in Medicine and Healthcare","volume":" 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140219890","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A qualitative analysis and evaluation of social support received after experiencing a broken marriage engagement and impacts on holistic health","authors":"Wendy Riemann","doi":"10.4081/qrmh.2024.11603","DOIUrl":"https://doi.org/10.4081/qrmh.2024.11603","url":null,"abstract":"This study provides new insights into the role of social sup- port in the largely unexplored field of broken marriage engage- ments and an individual’s wellbeing. The study extends the optimal matching theory (OMT) and the research surrounding helpful, unhelpful, and mixed social support. It uses constant comparison to examine the social support messages individuals received after telling others their engagement ended, as de- scribed in 43, in-depth, semi-structured interviews. Six types of helpful support messengers, six types of unhelpful support mes- sengers, and four mixed messenger types were found. Receiver- centric messengers were found to be more helpful than messengers who centered on their own feelings and needs, sometimes to the detriment of the receiver’s own wellbeing. Being present, thoughtful, and intentional with words, can have a positive impact on a person’s holistic health, regardless of whether the relationship is a weak-tie or strong-tie. Using study findings, the broken engagement message stoplight is proposed, detailing messages that are generally helpful to a person’s over- all wellbeing, messages that should likely be avoided, and mes- sages that should be said cautiously when interacting with someone experiencing a broken engagement.","PeriodicalId":375726,"journal":{"name":"Qualitative Research in Medicine and Healthcare","volume":"28 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140245262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Learning about perspectives of patients and colleagues through qualitative research","authors":"Warren Bareiss","doi":"10.4081/qrmh.2023.12242","DOIUrl":"https://doi.org/10.4081/qrmh.2023.12242","url":null,"abstract":"Welcome to the third issue, Volume 7, of Qualitative Research in Medicine & Healthcare. As usual, articles demonstrate the immense range of applications for qualitative scholarship in the field of healthcare. \u0000Before introducing this issue’s articles, I want to welcome some new folks to QRMH. Dr. Paula Hopeck and Dr. Elizabeth Spradley joined our editorial board. Dr. Hopeck teaches at Commonwealth University in Bloomsburg, Pennsylvania where she researches end-of-life issues and trains nursing students as they transition into the nursing profession. Dr. Spradley teaches courses in communication and medical humanities at Stephen F. Austin State University in Nacagdoches, Texas. Dr. Spradley has published widely on narrative and identity, instructional communication, and work-from-home issues. Also, we have our first-ever book review editor: Dr. Michelle Walter, teaching specialist and lecturer at the Centre for the Study of Higher Education at the University of Melbourne. Dr. Walter’s research examines mental illness from the perspective of poststructural feminist theory. Dr. Walter contributed this issue’s book review on mental health in higher education. [...]","PeriodicalId":375726,"journal":{"name":"Qualitative Research in Medicine and Healthcare","volume":"37 5","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139528434","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A narrative journey into the borderland of patient safety: Toward an expanded, relational concept of safety","authors":"Lisbeth Lauge Andersen","doi":"10.4081/qrmh.2023.11496","DOIUrl":"https://doi.org/10.4081/qrmh.2023.11496","url":null,"abstract":"“Patient safety” is routinely defined in health services globally as “safety for patients against harm and risk of injury in health care.” (Danish Board of Quality in Health Care, 2022, p. 28; translated by the author). This is a standardized, broad, and general definition of what counts as safety. In this article, I argue for an expanded, relational concept of patient safety revolving around experienced patient safety. Recognizing safety as vital for all groups of patients, I follow a dialogical, critical-reflexive approach to focus on safety in a somatic hospital setting in Denmark as it is experienced by people with lived experience of mental distress. Safety in this context is often compromised, contributing to inequity in health for people with mental distress. I present and analyze the narratives of two experts by experience about their somatic hospital stay. As an analytical approach, I draw on Frank’s dialogical narrative analysis together with elements from Bakhtin’s theory of dialogue and Foucault’s theory of power/knowledge. Forefronting voices of those rarely asked and seldom heard, dialogical narrative analysis provides insight into how “patient safety” is enacted through situated negotiations of meaning in the narratives of people with lived experience. The storytellers are continuously struggling to fit in and to be seen as human beings, trying to resist public narratives on mental distress that threaten to limit their scope of action and who they can become. The discussion highlights how unintended emotional and psychosocial harm limit the benefits of patient safety for certain groups in society. In particular, shame, individualized responsibility, and internalized inferiority hinder equity in health. Building on my analysis, I suggest a collaborative, participatory approach for coproducing further knowledge through joint analysis with people with lived experience and nurses from somatic hospital wards.","PeriodicalId":375726,"journal":{"name":"Qualitative Research in Medicine and Healthcare","volume":" 39","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139619773","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Heidi Lempp, Chris Tang, Emily Heavey, K. Bristowe, Helen Allan, Vanessa Lawrence, Beatriz Santana Suarez, Ruth Williams, Lisa Hinton, Karen Gillett, Anne Arber
{"title":"The use of metaphors by service users with diverse long-term conditions: a secondary qualitative data analysis","authors":"Heidi Lempp, Chris Tang, Emily Heavey, K. Bristowe, Helen Allan, Vanessa Lawrence, Beatriz Santana Suarez, Ruth Williams, Lisa Hinton, Karen Gillett, Anne Arber","doi":"10.4081/qrmh.2023.11336","DOIUrl":"https://doi.org/10.4081/qrmh.2023.11336","url":null,"abstract":"Long-term conditions and accompanied co-morbidities now affect about a quarter of the UK population. Enabling patients and caregivers to communicate their experience of illness in their own words is vital to developing a shared understanding of the condition and its impact on patients’ and caregivers’ lives and in delivering person-centred care. Studies of patient language show how metaphors provide insight into the physical and emotional world of the patient, but such studies are often limited by their focus on a single illness. The authors of this study undertook a secondary qualitative data analysis of 25 interviews, comparing the metaphors used by patients and parents of patients with five longterm conditions. Analysis shows how similar metaphors can be used in empowering and disempowering ways as patients strive to accept illness in their daily lives and how metaphor use depends on the manifestation, diagnosis, and treatment of individual conditions. The study concludes with implications for how metaphorical expressions can be attended to by healthcare professionals as part of shared care planning.","PeriodicalId":375726,"journal":{"name":"Qualitative Research in Medicine and Healthcare","volume":" 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-01-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139624580","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Catherine Pengelly, Carolyn Spring, Rachel M Taylor
{"title":"An evaluation of staff experiences of the Royal Literary Fund writer-in-residence service to support improvements in written communication in healthcare","authors":"Catherine Pengelly, Carolyn Spring, Rachel M Taylor","doi":"10.4081/qrmh.2023.11601","DOIUrl":"https://doi.org/10.4081/qrmh.2023.11601","url":null,"abstract":"Written communication is essential to staff and patient experience in healthcare. The Royal Literary Fund has hosted a writing fellow in an NHS Trust since 2018 providing professional writing training. The aim of this evaluation was to explore the experiences of staff using the service. Semi-structured interviews were conducted with 21 staff members from a range of professions who had accessed the service. Data were analysed using thematic analysis. Findings: The writing service was highly valued. Three themes emerged: feelings about writing at work, reported benefits of attending sessions, and perceived barriers to accessing them. Staff felt underskilled in professional writing and described the wish to write more succinctly and reflectively. Self-reported confidence increased after sessions. Stigma around writing skills prevented some staff from recommending the service. Wider adoption of professional writing skills training through the NHS could have benefits in terms of increasing self-perceived skills and confidence.","PeriodicalId":375726,"journal":{"name":"Qualitative Research in Medicine and Healthcare","volume":"6 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139146253","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
K. Heiden-Rootes, Dixie Meyer, Renata Sledge, Bryce K. Davis, Theresa Drallmeier, W. Linsenmeyer, Samantha Levine, Michelle R. Dalton
{"title":"Seeking gender-affirming medical care: A phenomenological inquiry on skillful coping with transgender and non-binary adults in the United States Midwest","authors":"K. Heiden-Rootes, Dixie Meyer, Renata Sledge, Bryce K. Davis, Theresa Drallmeier, W. Linsenmeyer, Samantha Levine, Michelle R. Dalton","doi":"10.4081/qrmh.2023.11485","DOIUrl":"https://doi.org/10.4081/qrmh.2023.11485","url":null,"abstract":"This study sought to understand how transgender and gender non-binary (TGNB) individuals skillfully cope with healthcare services and to explore how childhood experiences impact expectations, habits, and meaning-making when utilizing healthcare services. Using an interpretive phenomenological approach, we sampled 17, White TGNB adults in the United States, ages 19 to 57, using semi-structed interviews about childhood experiences with healthcare utilization and adult experiences seeking genderaffirming healthcare. Analysis identified one main theme—Anticipate the worst in healthcare and be pleasantly surprised—and three subthemes: i) contrast between positive childhood and negative adulthood experiences in medical care; ii) coping practices for the worst; and iii) finding your unicorn doctor and medical staff for pleasant experiences. Results indicate participants experienced a disruption and acquisition of new coping practices in healthcare settings and the cultivation of a radical imagination for a more liberated medical world for TGNB people. Implications for providers and medical offices for empowering TGNB adults are described.","PeriodicalId":375726,"journal":{"name":"Qualitative Research in Medicine and Healthcare","volume":" 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139143900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}