J López-Picazo Ferrer, J M Marín Martínez, I Vidal-Abarca Gutiérrez, M López Ibáñez
{"title":"[Exploring the voice of patients: Mapping their experience following care in an integrated health area].","authors":"J López-Picazo Ferrer, J M Marín Martínez, I Vidal-Abarca Gutiérrez, M López Ibáñez","doi":"10.1016/j.jhqr.2024.12.006","DOIUrl":"https://doi.org/10.1016/j.jhqr.2024.12.006","url":null,"abstract":"<p><strong>Background and aim: </strong>Measuring patient-reported experience measures (PREMs) is essential for the continuous improvement of quality. This study aims to assess the quality perceived by patients in the key care processes of an integrated health area measuring PREM elements, with the goal of identifying opportunities for improvement.</p><p><strong>Methods: </strong>The research was conducted in the first half of 2023 within a Spanish integrated health area, analysing five key healthcare processes: Primary Care, Emergency Services, Hospitalisation, Consultations, and Surgery. To assess perceived quality, PREM elements such as accessibility, information, and professionalism were measured using the Net Promoter Score (NPS). The Lot Quality Assurance Sampling (LQAS) method was employed to identify specific areas for improvement by detecting rejected lots and optimising sample sizes.</p><p><strong>Results: </strong>Although the perceived quality was generally high, with good or excellent NPS scores, significant variability was observed between processes. A total of 104 rejected lots (21%) were identified across the processes evaluated. The highest number of rejections occurred in and Emergency Services (67%), with notable issues in accessibility and information.</p><p><strong>Conclusions: </strong>The study underscores the need for targeted interventions in accessibility and information to enhance the patient experience, particularly in Primary Care and Emergency Services. The measurement of PREM elements using NPS, in conjunction with the LQAS method, proves to be an effective tool for identifying and prioritising areas for improvement, especially when applied on a regular basis.</p>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013158","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A Gutiérrez Delgado, C J Gómez Martín, C Martín-Arriscado Arroba, G González Monterrubio, S Pérez García, A Jariego Gómez
{"title":"[Humanization and professional quality of life in oncohematology and radiotherapy care: A descriptive study in a university hospital].","authors":"A Gutiérrez Delgado, C J Gómez Martín, C Martín-Arriscado Arroba, G González Monterrubio, S Pérez García, A Jariego Gómez","doi":"10.1016/j.jhqr.2024.12.007","DOIUrl":"https://doi.org/10.1016/j.jhqr.2024.12.007","url":null,"abstract":"<p><strong>Objective: </strong>To evaluate levels of humanization, professional quality of life, resilience, communication skills, and the use of silence among healthcare professionals in these areas.</p><p><strong>Methods: </strong>Observational, cross-sectional, and descriptive study conducted in a referral hospital. Data were collected from 152 healthcare professionals through questionnaires assessing professional quality of life (ProQOL), resilience (CD-RISC), humanization (HUMAS), communication skills (EHC-PS), and the use of silence (Q-SPS).</p><p><strong>Results: </strong>The median age of the professionals was 42 years. They showed moderate levels of compassion satisfaction and resilience (means=23.47 and 29.96) but low levels of humanization (mean=66.09). Emotional exhaustion was significant among physicians (mean=19.19, P=.022), while radiotherapy technicians excelled in empathy (mean=27.33). Significant correlations were observed between compassion satisfaction and optimism (Rho=0.2017, P=.0127), and between productive silence and communication skills (Rho=0.3131, P=.0001).</p><p><strong>Conclusions: </strong>Strengthening emotional and communication competencies is essential. Interventions should focus on reducing compassion fatigue and enhancing the well-being of healthcare professionals, improving care quality for oncohematology and radiotherapy patients.</p>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":" ","pages":""},"PeriodicalIF":1.1,"publicationDate":"2025-01-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142972498","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
S. Lorenzo, G.C. Gómez, D. Parés, C. Natal, R. Lledó, J.J. Mira, F. Vázquez, S. Izquierdo, K. Polluste, M. Santiñá, B. Zurita
{"title":"Continuing the journey: A new chapter for the Journal of Healthcare Quality Research","authors":"S. Lorenzo, G.C. Gómez, D. Parés, C. Natal, R. Lledó, J.J. Mira, F. Vázquez, S. Izquierdo, K. Polluste, M. Santiñá, B. Zurita","doi":"10.1016/j.jhqr.2024.12.002","DOIUrl":"10.1016/j.jhqr.2024.12.002","url":null,"abstract":"","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 1-2"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143170961","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
S. Rujido Freire , P. Viaño Nogueira , M.J. Pérez Taboada , R. Bugarín González , A. Rodríguez Núñez
{"title":"Aprendiendo de nuestros errores: notificación de eventos pediátricos a través del SiNASP en Galicia","authors":"S. Rujido Freire , P. Viaño Nogueira , M.J. Pérez Taboada , R. Bugarín González , A. Rodríguez Núñez","doi":"10.1016/j.jhqr.2024.08.002","DOIUrl":"10.1016/j.jhqr.2024.08.002","url":null,"abstract":"","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 59-61"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142297422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
M. Ottonello , C. Pistarini , S. Ruvolo , S. Costa , V. Navarra , C. Murianni , E. Cristallo , S. Maiello , M.R. Tritto , M.G. Pagliarulo , M.R. Manera
{"title":"Informational and educational needs of caregivers of neurologic inpatients in rehabilitation treatment: A qualitative exploratory study","authors":"M. Ottonello , C. Pistarini , S. Ruvolo , S. Costa , V. Navarra , C. Murianni , E. Cristallo , S. Maiello , M.R. Tritto , M.G. Pagliarulo , M.R. Manera","doi":"10.1016/j.jhqr.2024.09.005","DOIUrl":"10.1016/j.jhqr.2024.09.005","url":null,"abstract":"<div><h3>Introduction</h3><div>The aim of the present study was to identify information and educational needs of neurological inpatients during residential rehabilitation from the caregivers’ perspective. On top of that, it was important to acknowledge the conceptual framework underlying the complexity of needs, for the development in future research of an early identification of caregiver's information needs assessment tool. This preliminary study will allow to define the dimensions on which to measure caregiver needs and the quality of care provided to the patients and their families.</div></div><div><h3>Material and methods</h3><div>Focus groups of family caregivers of inpatients admitted to the Neurorehabilitation Units by the ICS Maugeri Institutes were conducted to explore the caregivers needs. All focus groups were tape-recorded and contemporaneous notes made. The tapes were transcribed and thematic analysis was used to develop categories of needs. To ensure consistency between groups, a semi-structured schedule was used to guide the focus groups.</div></div><div><h3>Results</h3><div>In the analysis of the statements extracted from the transcripts we defined five main themes of information needs expressed from caregivers: education, hospital care organization, legal and social care management and emotional or psychological support.</div></div><div><h3>Conclusion</h3><div>The results provided the identification of the domains essential for the development of a questionnaire that measures the complexity of the caregiver's information needs during residential rehabilitation. The caregivers’ statements expressed in the focus groups allowed to identify five main kinds of needs. Moreover, some suggestions and ideas to improve the information and education materials to satisfy these needs emerged from caregivers and health professionals during team meetings.</div></div>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 48-55"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142629703","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
E. Uibu , K. Binsol , K. Põlluste , M. Lember , M. Kangasniemi
{"title":"Results of a qualitative semi-structured interview study with hospital nursing staff to improve incident reporting systems in Estonia","authors":"E. Uibu , K. Binsol , K. Põlluste , M. Lember , M. Kangasniemi","doi":"10.1016/j.jhqr.2024.10.003","DOIUrl":"10.1016/j.jhqr.2024.10.003","url":null,"abstract":"<div><h3>Objective</h3><div>Nurses and their leaders are known for actively using incident reporting systems. However, information sharing about lessons learned from incidents has rarely been reported in previous studies. This study aimed to describe nurses’ and nursing managers’ experiences with incident reporting system information sharing and their perceptions of patient safety development needs.</div></div><div><h3>Material and methods</h3><div>Semi-structured individual and group interviews were conducted with nursing staff in Estonia (<em>n</em> <!-->=<!--> <!-->26). Collected data was analyzed using the inductive content analysis method. The COREQ checklist was used for study report.</div></div><div><h3>Results</h3><div>Nursing staff considered information sharing of lessons learned crucial. First, it was necessary to raise patient safety awareness among employees. Second, the importance of learning from mistakes to protect themselves from legal consequences and improve public trust was highlighted. Nursing staff had traditional ways of sharing information about lessons learned. However, because of the lack of organized strategies, nurses resorted to private discussions or self-initiated investigations. Nursing staff reported a need to develop patient safety by supporting nurses’ patient safety competencies and training, and to establish the use of a reporting system in daily care. The precondition was a positive patient safety culture, which would be improved by open communication among nursing staff and sufficient resources.</div></div><div><h3>Conclusions</h3><div>Information sharing from safety incident reports should rely on organized strategies to avoid self-initiated practices and misinformation. Awareness of the complexity of implementing patient safety initiatives and adequate responsiveness from hospital executives can help establish practices supporting staff to feel secure when discussing safety issues.</div></div>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 39-47"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142750645","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Letter to the Editor on “Loneliness impact on healthcare utilization in primary care: A retrospective study”","authors":"M.R. Shen , J.K. Silver","doi":"10.1016/j.jhqr.2024.07.004","DOIUrl":"10.1016/j.jhqr.2024.07.004","url":null,"abstract":"","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 62-64"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142297423","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Validity, reliability, and feasibility of EQ-5D-3L, VAS, and time trade-off among Jordanians","authors":"N. Yanal , A.M. Al Massri , E.A. Hammad","doi":"10.1016/j.jhqr.2024.10.001","DOIUrl":"10.1016/j.jhqr.2024.10.001","url":null,"abstract":"<div><h3>Introduction and objectives</h3><div>The EQ-5D VAS is a widely used measure for health-related quality of life (HRQol). The EQ-5D health states often weighted using the time trade-off (TTO). The assessment of the EQ-5D, VAS, TTO psychometric properties is necessary to inform adaption across countries and populations due to cross-cultural and language diversity. The objective of the study is to evaluate validity, reliability, and feasibility of the Arabic version of the EQ-5D-3L, VAS, and TTO among a broad sample of Arabic-speaking Jordanians.</div></div><div><h3>Methods</h3><div>A cross-sectional study was conducted using structured face-to-face interviews with 1007 participants attending outpatient clinics at a central university affiliated hospital. The participants completed the EQ-5D-3L, described own health via VAS and in words (excellent, very good, good, fair, and poor). Additionally, participants requested to answer a TTO question. Validity was assessed using correlation analysis, while test–retest methods were used to evaluate reliability. Perspectives of participants on how easy to complete or understand the study measures were investigated.</div></div><div><h3>Results</h3><div>Completion rates were 100% for the EQ-5D, 98% for VAS and 77% for TTO. The construct validity of EQ-5D, VAS, and TTO was supported by significant correlation across each other and participants’ characteristics. Higher severity of EQ-5D health states was significantly associated with lower VAS scores (<em>r</em><sub>s</sub> <!-->=<!--> <!-->−0.38, <em>p</em> <!--><<!--> <!-->0.01). Usual activity and pain/discomfort had the strongest correlations with VAS scores (−0.40 and −0.39, respectively, <em>p</em> <!--><<!--> <!-->0.001). A higher willingness to trade years was observed with more severe EQ-5D states (<em>r</em><sub>s</sub> <!-->=<!--> <!-->0.32, <em>p</em> <!--><<!--> <!-->0.001), with usual activity, and pain/discomfort showing the strongest associations. Self-reported health via VAS and words was highly correlated (<em>r</em><sub>s</sub> <!-->=<!--> <!-->0.76, <em>p</em> <!--><<!--> <!-->0.001). Reliability of the weighted Cohen's <em>k</em> for EQ-5D dimension ranged between 0.3 and .72. Intraclass correlation coefficients for VAS were 0.80 and 0.92 for TTO, all <em>p</em> value <0.001. VAS showed substantial test–retest reliability (ICC<!--> <!-->=<!--> <!-->0.80), and TTO showed excellent reliability (ICC<!--> <!-->=<!--> <!-->0.92). However, only 62.3% and 54.6% found EQ-5D and TTO easy to understand, respectively, while 89.4% found the VAS easy to use.</div></div><div><h3>Conclusion</h3><div>The Arabic EQ-5D-3L, VAS, and TTO demonstrated validity and reliability for measuring HRQoL among Jordanians. The study highlights the importance of cultural and linguistic contexts in HRQoL measures adaption. Future research should focus on refining TTO to improve cultural appropriateness and understanding among Arabic-speaking population","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 29-38"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142751073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Analysis of quality of life of patients with refractive errors in India","authors":"Neha Purohit , Aarti Goyal , Parul Chawla Gupta , Kathirvel Soundappan , Atul Kotwal , Shankar Prinja","doi":"10.1016/j.jhqr.2024.08.001","DOIUrl":"10.1016/j.jhqr.2024.08.001","url":null,"abstract":"<div><h3>Introduction</h3><div>It is important to determine the health-related quality of life (HRQoL) to devise population-based cost-effective service delivery models. The present study aimed to evaluate the HRQoL of patients with refractive errors (RE) using generic and vision-specific instruments, identify the determinants of HRQoL, and examine the validity between the quality-of-life instruments for refractive errors.</div></div><div><h3>Methods</h3><div>Face-to-face interviews were conducted with 515 participants with RE using generic as well as vision-specific HRQoL measures. Mean EuroQol-five dimensions-five levels (EQ-5D-5L) utility value, National Eye Institute-Visual Function Questionnaire-25 (NEI-VFQ-25) composite score, and EuroQol-Visual analogue scale (EQ-VAS) score were computed, and determinants of quality of life were determined using generalized linear regression model. The validity between generic and disease-specific measures was ascertained using Pearson's coefficient.</div></div><div><h3>Results</h3><div>The mean EQ-5D-5L utility score for patients with RE was estimated as 0.72 (95% CI: 0.70–0.75). The mean NEI-VFQ-25 composite score and EQ-VAS score were 71.3 (95% CI: 69.8–73), and 74.7 (95% CI: 73.4–76.1), respectively. Visual acuity, gender, and presence of co-morbidities were significantly associated with quality of life. The concurrence between the generic and vision-specific instruments was found to be low to moderate.</div></div><div><h3>Conclusion</h3><div>The findings of the study indicate the importance of the value of quality of life for patients with RE, which could be taken into account by health administrators, doctors and researchers to carry out economic evaluations, since these measures provide a basis for an evaluation more precisely the impact of RE and guide the determination of efficient ways to alleviate the burden of treatable visual impairment.</div><div>More research is required to explore the potential integration of a vision component, the sixth dimension, into the EQ-5D-5L instrument, given the moderate agreement observed between the generic and specific assessment tools.</div></div>","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 12-21"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142146481","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
O. Tornero-Torres , R. Fuentes-Irigoyen , Á. Berbel García , C. Resino Luis , C. Ruiz-Huerta García de Viedma
{"title":"¿Qué conocimientos tienen los pacientes sobre su tratamiento? Estrategias «no hacer» en el uso adecuado de los medicamentos","authors":"O. Tornero-Torres , R. Fuentes-Irigoyen , Á. Berbel García , C. Resino Luis , C. Ruiz-Huerta García de Viedma","doi":"10.1016/j.jhqr.2024.04.002","DOIUrl":"10.1016/j.jhqr.2024.04.002","url":null,"abstract":"","PeriodicalId":37347,"journal":{"name":"Journal of Healthcare Quality Research","volume":"40 1","pages":"Pages 56-58"},"PeriodicalIF":1.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140783600","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}