Palliative Care and Social Practice最新文献

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Globalizing palliative care: a cross-cultural exploration of end-of-life practices from a developing country. 姑息关怀全球化:一个发展中国家临终关怀实践的跨文化探索。
Palliative Care and Social Practice Pub Date : 2024-01-17 eCollection Date: 2024-01-01 DOI: 10.1177/26323524231225973
Jeff Clyde G Corpuz
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引用次数: 0
Non-pharmacological interventions feasible in the nursing scope of practice for pain relief in palliative care patients: a systematic review 护理实践范围内可行的用于缓解姑息关怀患者疼痛的非药物干预措施:系统性综述
Palliative Care and Social Practice Pub Date : 2024-01-10 DOI: 10.1177/26323524231222496
Suzan van Veen, H. Drenth, H. Hobbelen, Evelyn Finnema, Saskia Teunissen, Everlien de Graaf
{"title":"Non-pharmacological interventions feasible in the nursing scope of practice for pain relief in palliative care patients: a systematic review","authors":"Suzan van Veen, H. Drenth, H. Hobbelen, Evelyn Finnema, Saskia Teunissen, Everlien de Graaf","doi":"10.1177/26323524231222496","DOIUrl":"https://doi.org/10.1177/26323524231222496","url":null,"abstract":"Background: Palliative care patients desire more symptom management interventions that are complementary to their medical treatment. Within the multi-professional team, nurses could help support pain management with non-pharmacological interventions feasible for their practice and adaptable to palliative care patients’ needs. Objectives: The objective was to identify non-pharmacological interventions feasible in the nursing scope of practice affecting pain in palliative care patients. Design: A systematic review. Data sources and methods: A defined search strategy was used in PubMed, CINAHL, PsycINFO, and Embase. Search results were screened double-blinded. Methodological quality was double-appraised with the Joanna Briggs Institute Critical Appraisal Tools. Data were extracted from selected studies and the findings were summarized. The methodological quality, quantity of studies evaluating the same intervention, and consistency in the findings were synthesized in a best-evidence synthesis to rank evidence as strong, moderate, limited, mixed, or insufficient. Results: Out of 2385 articles, 22 studies highlighted non-pharmacological interventions in the nursing scope of practice. Interventions using massage therapy and virtual reality demonstrated most evidentiary support for pain management, while art therapy lacked sufficient evidence. Mindful breathing intervention showed no significant reduction in pain. Hypnosis, progressive muscle-relaxation-interactive-guided imagery, cognitive-behavioral audiotapes, wrapped warm footbath, reflexology, and music therapy exhibited promising results in pain reduction, whereas mindfulness-based stress reduction program, aromatherapy, and aroma-massage therapy did not. Conclusion: Despite not all studies reaching significant changes in pain scores, non-pharmacological interventions can be clinically relevant to palliative care patients. Its use should be discussed for its potential value and nurses to be trained for safe practice. Methodologically rigorous research for non-pharmacological interventions in nursing scope of practice for pain relief in palliative care patients is necessary. Trial registration: The protocol for this study is registered in the International Prospective Register of Systematic Review (PROSPERO registration number: CRD42020196781).","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-01-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139440815","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Culturally sensitive neonatal palliative care: a critical review. 对文化敏感的新生儿姑息关怀:评论性综述。
Palliative Care and Social Practice Pub Date : 2024-01-08 eCollection Date: 2024-01-01 DOI: 10.1177/26323524231222499
Hayley Redman, Marie Clancy, Felicity Thomas
{"title":"Culturally sensitive neonatal palliative care: a critical review.","authors":"Hayley Redman, Marie Clancy, Felicity Thomas","doi":"10.1177/26323524231222499","DOIUrl":"10.1177/26323524231222499","url":null,"abstract":"<p><p>Although there are known disparities in neonatal and perinatal deaths across cultural groups, less is known about how cultural diversity impacts neonatal palliative care. This article critically reviews available literature and sets out key questions that need to be addressed to enhance neonatal palliative care provision for culturally diverse families. We begin by critically reviewing the challenges to recording, categorizing and understanding data which need to be addressed to enable a true reflection of the health disparities in neonatal mortality. We then consider whose voices frame the current neonatal palliative care agenda, and, importantly, whose perspectives are missing; what this means in terms of limiting current understanding and how the inclusion of diverse perspectives can potentially help address current inequities in service provision. Utilizing these insights, we make recommendations towards setting a research agenda, including key areas for future enquiry and methodological and practice-based considerations.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-01-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10775740/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139404715","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The influence of context on the implementation of integrated palliative care in an academic teaching hospital in South Africa. 环境对南非一家学术教学医院实施综合姑息关怀的影响。
Palliative Care and Social Practice Pub Date : 2024-01-08 eCollection Date: 2024-01-01 DOI: 10.1177/26323524231219510
Rene Krause, Liz Gwyther, Jill Olivier
{"title":"The influence of context on the implementation of integrated palliative care in an academic teaching hospital in South Africa.","authors":"Rene Krause, Liz Gwyther, Jill Olivier","doi":"10.1177/26323524231219510","DOIUrl":"10.1177/26323524231219510","url":null,"abstract":"<p><strong>Background: </strong>Palliative care (PC) has been integrated to a limited extent in the South African healthcare system. Contextual factors may be a pivotal influence in this integration.</p><p><strong>Objectives: </strong>This study aims to explore contextual factors that are possibly influencing the integration or lack thereof in an academic teaching hospital (ATH).</p><p><strong>Design: </strong>A mixed-method study was conducted in a large ATH in South Africa.</p><p><strong>Methods: </strong>The mixed methods were conducted in parallel and then merged. Findings were integrated to describe the contextual factors influencing PC integration, to develop a timeline of implementation and assess the probable influence of context on the integration process. The mixed-methods phases included a narrative review of published literature related to health systems, integration of health interventions and PC in teaching hospital settings; followed by interviews, documentary and routine data analyses. Semi-structured interviews with purposively sampled participants provided the qualitative data. Primary national, provincial and organizational documents expanded the contextual phenomena and corroborated findings. Routine hospital admission and mortality data was statistically analysed to expand further and corroborate findings. All qualitative data was thematically analysed using deductive coding, drawing from the aspects of the contextual dimensions of integration.</p><p><strong>Results: </strong>Enabling contextual factors for local PC integration were global and local advocacy, demonstrated need, PC being a human right, as well as the personal experiences of hospital staff. Impeding factors were numerous misconceptions, PC not valued as a healthcare priority, as well as limitations in functional elements necessary for PC integration: national and regional political support, leadership at all levels and sustainable financing.</p><p><strong>Conclusion: </strong>The normative and functional contextual aspects interplay at macro, meso and micro levels positively and negatively. How stakeholders understand and value PC directly and indirectly impacts on PC integration. Strategic interventions such as mandatory education are required to ensure PC integration. The health system is dynamic, and understanding the context in which the health system functions is core to the integration of PC. This may assist in developing integration strategies to address PC integration and the transferability of these strategies.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-01-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10775728/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139404716","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Relationship between implementation of systematic advance care planning and the quality of death among nursing home residents: a survey. 系统性预先护理计划的实施与养老院居民死亡质量之间的关系:一项调查。
Palliative Care and Social Practice Pub Date : 2024-01-06 eCollection Date: 2024-01-01 DOI: 10.1177/26323524231219519
Yoshie Toyoda, Aya Tokumasu, Yuki Minato, Takayasu Sone, Kyoko Oshiro, Hideki Kojima, Mitsunori Nishikawa
{"title":"Relationship between implementation of systematic advance care planning and the quality of death among nursing home residents: a survey.","authors":"Yoshie Toyoda, Aya Tokumasu, Yuki Minato, Takayasu Sone, Kyoko Oshiro, Hideki Kojima, Mitsunori Nishikawa","doi":"10.1177/26323524231219519","DOIUrl":"10.1177/26323524231219519","url":null,"abstract":"<p><strong>Background: </strong>Advance care planning (ACP) is beneficial for the quality of death (QOD). However, the effects of ACP on the QOD may vary across cultures.</p><p><strong>Objectives: </strong>This study aimed to explore the relationship between the 15-step ACP program and the QOD among Japanese nursing home residents.</p><p><strong>Design: </strong>A cross-sectional survey.</p><p><strong>Methods: </strong>A cross-sectional survey was conducted among the family members of 39 nursing home residents who died between April 2017 and March 2019 by distributing the survey questionnaire by post. The survey included questions about the QOD of residents, and responses were evaluated using the Good Death Inventory (GDI) scale.</p><p><strong>Results: </strong>Responses were obtained from 30 of the 39 bereaved families (76.9%). Data were analyzed using hierarchical clustering to determine five groups and conduct multiple comparisons. The following three domains of interest were identified: 'Dying in a favorite place', 'Good relationship with the medical staff', and 'Independence'. GDI scores were significantly higher for residents with higher ACP completion rates than for those with lower rates (<i>p</i> < 0.01). Residents who had taken ACP interviews had significantly higher GDI scores (<i>p</i> < 0.01) than those who had not taken interviews.</p><p><strong>Conclusion: </strong>Overall, these findings suggest that systematic ACP might be related to the QOD among Japanese nursing home residents in the above mentioned three domains. Limitations of the present study were small sample size, cross-sectional survey design as opposed to a cohort survey design, and multiple biases, including the emotional instability of bereaved family members, the length of stay of the residents, the degree of dementia of the residents, and their tendency to talk about the place of death and to develop good relationships with the medical staff.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10771744/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139378369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Changes in care managers' positive attitudes toward dying patients compared to that of nurses by one-day online advance care planning communication training. 通过为期一天的在线预先护理计划沟通培训,护理经理对临终病人的积极态度与护士相比发生了变化。
Palliative Care and Social Practice Pub Date : 2024-01-04 eCollection Date: 2024-01-01 DOI: 10.1177/26323524231222497
Kyoko Oshiro, Shozo Okochi, Junko Nakashima, Tomoko Hirano, Shuichi Ohe, Hideki Kojima, Mitsunori Nishikawa
{"title":"Changes in care managers' positive attitudes toward dying patients compared to that of nurses by one-day online advance care planning communication training.","authors":"Kyoko Oshiro, Shozo Okochi, Junko Nakashima, Tomoko Hirano, Shuichi Ohe, Hideki Kojima, Mitsunori Nishikawa","doi":"10.1177/26323524231222497","DOIUrl":"10.1177/26323524231222497","url":null,"abstract":"<p><strong>Background: </strong>Culturally appropriate communication training programs for a wide range of professions that can be used during infection epidemics are crucial for advance care planning implementation. Starting in 2018, the Japanese Ministry of Health, Labour and Welfare made a major policy change, and doctors, nurses, and social workers, and care managers were identified in the guidelines as the professions that promote advance care planning. Motivated by the lack of online programs for Japanese care managers, we proposed a new one-day program.</p><p><strong>Objectives: </strong>This study aimed to determine the changes in the positive attitude of care managers toward dying patients compared to that of nurses, which has been used in past literature as an outcome of advance care planning educational interventions, after administering the program in Japan.</p><p><strong>Design: </strong>Before-after comparison study.</p><p><strong>Methods: </strong>Care managers were recruited through our website, ACP-Piece, http://plaza.umin.ac.jp/~acp-piece/piece.html. A questionnaire survey concerning positive attitudes toward dying patients was administered before and after the program on 28 August 2021. Sixty-six subjects participated in the training and 60 participants, including 14 care managers, consented to the study and completed the questionnaire surveys before and after the program.</p><p><strong>Results: </strong>The Frommelt attitude toward care of the dying scores for care managers increased after the program (<i>p</i>-values, confidence intervals, and effect sizes: <i>p</i> < 0.001, -11.90 to -4.388, -1.252). After training, care managers had a significantly higher maximum score occurrence than nurses. Older care managers with advance care planning experience may have had a higher maximum score occurrence compared to younger, inexperienced participants.</p><p><strong>Conclusion: </strong>To our knowledge, this is the first to demonstrate the increased positive attitude scores toward dying patients after online communication training for Japanese care managers. The limitations of this study include the lack of evidence regarding reasons for score changes, long-term score changes, and effectiveness for patients and their families.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-01-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10768599/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139378368","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Should continuous deep sedation until death be legally regulated in Switzerland? An exploratory study with palliative care physicians. 瑞士是否应该对持续深度镇静直至死亡进行法律监管?一项针对姑息治疗医生的探索性研究。
Palliative Care and Social Practice Pub Date : 2023-12-25 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231219509
Martyna Tomczyk, Roberto Andorno, Ralf J Jox
{"title":"Should continuous deep sedation until death be legally regulated in Switzerland? An exploratory study with palliative care physicians.","authors":"Martyna Tomczyk, Roberto Andorno, Ralf J Jox","doi":"10.1177/26323524231219509","DOIUrl":"10.1177/26323524231219509","url":null,"abstract":"<p><strong>Background: </strong>In Switzerland, continuous deep sedation until death (CDSUD) is not legally regulated and the current clinical practice guidelines on palliative sedation from 2005 do not refer to it. In contrast, in France, a neighbouring country, CDSUD is regulated by a specific law and professional guidelines. International studies show that in culturally polymorphic countries, there are variations in the end-of-life practices between linguistic regions and that a linguistic region shares many cultural characteristics with the neighbouring country.</p><p><strong>Objectives: </strong>This study aimed to explore the attitudes of palliative care physicians from the French-speaking part of Switzerland on the question of whether CDSUD should be legally regulated in the country, and to identify their arguments. Our study also aimed to assess whether a hypothetical Swiss law on CDSUD should be similar to the current legal regulation of this practice in France.</p><p><strong>Design: </strong>We conducted a multicentre exploratory qualitative study based on face-to-face interviews with palliative care physicians in the French-speaking part of Switzerland.</p><p><strong>Methods: </strong>We analysed the interview transcripts using thematic analysis, combining deductive and inductive coding.</p><p><strong>Results: </strong>Most of the participants were opposed to having specific legal regulation of CDSUD in Switzerland. Their arguments were diverse: some focused on medical and epistemological aspects of CDSUD, whereas others emphasized the legal inconvenience of having such regulation. None had the opinion that, if CDSUD were legally regulated in Switzerland, the regulation should be similar to that in France.</p><p><strong>Conclusion: </strong>This study allows to better understand why palliative care physicians in French-speaking Switzerland may be reluctant to have legal regulation of CDSUD. Further studies covering the whole country would be needed to gain a more complete picture of Swiss palliative care physicians on this question.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10752051/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139049474","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Healthcare professionals' perceived barriers in providing palliative care in primary care and nursing homes: a survey study. 医护人员在基层医疗机构和疗养院提供姑息关怀时遇到的障碍:一项调查研究。
Palliative Care and Social Practice Pub Date : 2023-12-25 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231216994
Katrin Kochems, Everlien de Graaf, Ginette M Hesselmann, Marieke J E Ausems, Saskia C C M Teunissen
{"title":"Healthcare professionals' perceived barriers in providing palliative care in primary care and nursing homes: a survey study.","authors":"Katrin Kochems, Everlien de Graaf, Ginette M Hesselmann, Marieke J E Ausems, Saskia C C M Teunissen","doi":"10.1177/26323524231216994","DOIUrl":"10.1177/26323524231216994","url":null,"abstract":"<p><strong>Background: </strong>Palliative care in primary care and nursing home settings is becoming increasingly important. A multidimensional palliative care approach, provided by a multiprofessional team, is essential to meeting patients' and relatives' values, wishes, and needs. Factors that hamper the provision of palliative care in this context have not yet been fully explored.</p><p><strong>Objectives: </strong>To identify the barriers to providing palliative care for patients at home or in nursing homes as perceived by healthcare professionals.</p><p><strong>Design: </strong>Cross-sectional survey study.</p><p><strong>Methods: </strong>A convenience sample of nurses, doctors, chaplains, and rehabilitation therapists working in primary care and at nursing homes in the Netherlands is used. The primary outcome is barriers, defined as statements with ⩾20% negative response. The survey contained 56 statements on palliative reasoning, communication, and multiprofessional collaboration. Data were analyzed using descriptive statistics.</p><p><strong>Results: </strong>In total, 249 healthcare professionals completed the survey (66% completion rate). The main barriers identified in the provision of palliative care were the use of measurement tools (43%), consultation of an expert (31%), estimation of life expectancy (29%), and documentation in the electronic health record (21% and 37%). In primary care, mainly organizational barriers were identified, whereas in nursing homes, most barriers were related to care content. Chaplains and rehabilitation therapists perceived the most barriers.</p><p><strong>Conclusion: </strong>In primary care and nursing homes, there are barriers to the provision of palliative care. The provision of palliative care depends on the identification of patients with palliative care needs and is influenced by individual healthcare professionals, possibilities for consultation, and the electronic health record. An unambiguous and systematic approach within the multiprofessional team is needed, which should be patient-driven and tailored to the setting.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10750550/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139040607","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Practitioners' experiences with 2021 amendments to Canada's medical assistance in dying law: a qualitative analysis. 从业人员对加拿大临终医疗协助法 2021 年修正案的体验:定性分析。
Palliative Care and Social Practice Pub Date : 2023-12-25 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231218282
Eliana Close, Jocelyn Downie, Ben P White
{"title":"Practitioners' experiences with 2021 amendments to Canada's medical assistance in dying law: a qualitative analysis.","authors":"Eliana Close, Jocelyn Downie, Ben P White","doi":"10.1177/26323524231218282","DOIUrl":"10.1177/26323524231218282","url":null,"abstract":"<p><strong>Background: </strong>In 2016, Canada joined the growing number of jurisdictions to legalize medical assistance in dying (MAiD), when the Supreme Court of Canada's decision in <i>Carter v Canada</i> took effect and the Canadian Parliament passed Bill C-14. Five years later, Bill C-7 introduced several significant amendments. These included removing the 'reasonably foreseeable natural death' requirement (an aspect that was widely debated) and introducing the final consent waiver. Since Bill C-7 is so new, very little research has investigated its operation in practice.</p><p><strong>Objectives: </strong>This study investigates the experiences of MAiD assessors and providers regarding the Bill C-7 amendments. It explores implications for understanding and improving regulatory reform and implementation.</p><p><strong>Design: </strong>Qualitative thematic analysis of semi-structured interviews.</p><p><strong>Methods: </strong>In all, 32 MAiD assessors and providers (25 physicians and 7 nurse practitioners) from British Columbia (<i>n</i> = 10), Ontario (<i>n</i> = 15) and Nova Scotia (<i>n</i> = 7) were interviewed.</p><p><strong>Results: </strong>The analysis resulted in five themes: (1) removing barriers to MAiD access; (2) navigating regulatory and systems recalibration; (3) recognizing workload burdens; (4) determining individual ethical boundaries of practice and (5) grappling with ethical tensions arising from broader health system challenges.</p><p><strong>Conclusion: </strong>This is one of the first studies to investigate physicians' and nurse practitioners' experiences of the impact of Bill C-7 after the legislation was passed. Bill C-7 addressed key problems under Bill C-14, including the two witnesses requirement and the 10-day waiting period. However, it also introduced new complexities as practitioners decided how to approach cases involving a non-reasonably foreseeable natural death (and contemplated the advent of MAiD for persons with a mental disorder as a sole underlying condition). This study highlights the importance of involving practitioners in advance of legislative changes. It also emphasizes how the regulation of MAiD involves a range of organizations, which requires strong leadership and coordination from the government.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10750527/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139040608","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Palliative care, homelessness, and restricted or uncertain immigration status. 姑息治疗、无家可归、移民身份受限或不确定。
Palliative Care and Social Practice Pub Date : 2023-12-23 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231216993
Briony F Hudson, Elizabeth Dzeng, Angela Burnett, Michelle Yeung, Caroline Shulman
{"title":"Palliative care, homelessness, and restricted or uncertain immigration status.","authors":"Briony F Hudson, Elizabeth Dzeng, Angela Burnett, Michelle Yeung, Caroline Shulman","doi":"10.1177/26323524231216993","DOIUrl":"10.1177/26323524231216993","url":null,"abstract":"<p><strong>Background: </strong>People experiencing homelessness have limited access to palliative care support despite high levels of ill health and premature mortality. Most research exploring these challenges in the United Kingdom has focused on people living in hostels or temporary accommodation. People with uncertain or restricted immigration status are often unable to access this accommodation due to lack of entitlement to benefits. There is little research about the experiences of those in the United Kingdom who cannot access hostels or temporary accommodation due to restricted or uncertain immigration status with regards to palliative and end-of-life care access.</p><p><strong>Aim: </strong>To explore the barriers to palliative and end-of-life care access for people with uncertain or restricted immigration status, who are experiencing homelessness and have advanced ill health, and the experiences of UK hospices of supporting people in this situation.</p><p><strong>Design: </strong>A multi-method cross-sectional study.</p><p><strong>Setting/participants: </strong>An online survey for hospice staff followed by online focus groups with staff from inclusion health, homelessness and palliative care services, charities and interviews with people experiencing homelessness.</p><p><strong>Results: </strong>Fifty hospice staff responded to the online survey and 17 people participated in focus groups and interviews (focus groups: <i>n</i> = 10; interviews: <i>n</i> = 7). The survey demonstrated how hospices are not currently supporting many people with restricted or uncertain immigration status who are homeless and that hospice staff have received limited training around eligibility for entitlements or National Health Service (NHS) care. Interview and focus group data demonstrated high levels of unmet need. Reasons for this included a lack of consistency around eligibility for support from local authorities, issues relating to NHS charging, and mistrust and limited knowledge of the UK health and social care system. These barriers leave many people unable to access care toward the end of their lives.</p><p><strong>Conclusion: </strong>To advocate for and provide compassionate palliative and end-of-life care for people with uncertain immigration status, there is need for more legal literacy, with training around people's entitlement to care and support, as well as easier access to specialist legal advice.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10748891/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139032644","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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