了解临终朵拉提供的护理:报告设计丧亲调查以评估朵拉支持的情况。

IF 2.7 Q2 HEALTH CARE SCIENCES & SERVICES
Palliative Care and Social Practice Pub Date : 2024-10-17 eCollection Date: 2024-01-01 DOI:10.1177/26323524241273489
Kirsten Bashir, Emma Clare, Catherine Pestano, Esther Ramsey-Jones, Erica Borgstrom
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引用次数: 0

摘要

背景:在临终关怀中提供始终如一的以病人为中心的护理仍然是医疗服务提供者面临的挑战,而且研究继续表明,人们的需求并没有得到可靠的满足。因此,医疗服务机构正在寻求创新的支持方式,例如委托朵拉为临终者及其亲近者提供支持:在英国,有关人们接受临终朵拉支持的经验的现有研究很少。本文概述了一项针对接受临终朵拉支持者的家人或朋友的调查设计:为了评估临终朵拉在支持临终者及其护理者方面的作用,我们设计了一项丧亲后调查,作为朵拉服务更广泛评估策略的一部分。经过多次文献回顾以及与专业组织和以前的服务使用者反复协商,我们设计了一份调查问卷来收集这些数据。该调查在网上进行,并提供纸质版以扩大可访问性:结论:临终朵拉支持是为临终者及其家人和朋友等重要人士提供服务的一个相对较新的领域。将临终陪伴支持作为地方医疗服务的一部分进行委托则更具创新性。目前急需开展实证研究,以进一步了解这一举措的影响。在对该地区进行研究并为该服务设计评估调查的过程中,我们发现了这一角色的复杂性以及捕捉对临终者及其周围的人有帮助的内容的难度。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Understanding end-of-life doula care provision: reporting on the design of a bereavement survey to evaluate doula support.

Background: Delivery of consistent patient-centred care at end-of-life care continues to challenge healthcare providers and research continues to suggest that peoples' needs are not being reliably met. Consequently, healthcare services are looking to innovate how support is provided, such as commissioning doulas to support dying people and those close to them.

Objective: Within the United Kingdom, there is little existing research about peoples' experience of receiving end-of-life doula support. This paper outlines the design of a survey for the family or friends of a person who received end-of-life doula support.

Design: To evaluate the role of an end-of-life doula in supporting the dying person and those who care for them, we designed a post-bereavement survey as part of a wider evaluation strategy of doula services. Following multiple literature reviews and an iterative process of consulting with the professional organisation and previous service users, a questionnaire was developed to collect this data. This survey is hosted online, with paper copies available to widen accessibility.

Conclusion: End-of-life doula support is a relatively new area of provision for dying people and those important to them, such as family and friends. It is even more innovative to have doula support commissioned as part of a locality's healthcare service. There is a dire need for empirical research to understand the impact of this further. The process of researching the area and designing the evaluation survey for this service revealed the complexity of the role and the difficulty of capturing what was found to be helpful for the dying person and those around them.

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来源期刊
Palliative Care and Social Practice
Palliative Care and Social Practice Nursing-Advanced and Specialized Nursing
CiteScore
2.90
自引率
0.00%
发文量
37
审稿时长
9 weeks
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