Palliative Care and Social Practice最新文献

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Facilitators and barriers to implementation of a patient and staff reported measure for screening of palliative concerns of patients with heart failure: a qualitative analysis using the Consolidated Framework for Implementation Research. 实施患者和工作人员报告的心力衰竭患者姑息治疗筛查措施的促进因素和障碍:使用实施研究统一框架的定性分析。
Palliative Care and Social Practice Pub Date : 2023-12-01 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231214814
Shirlyn Hui-Shan Neo, Jasmine Yun-Ting Tan, Elaine Swee-Ling Ng, Sungwon Yoon
{"title":"Facilitators and barriers to implementation of a patient and staff reported measure for screening of palliative concerns of patients with heart failure: a qualitative analysis using the Consolidated Framework for Implementation Research.","authors":"Shirlyn Hui-Shan Neo, Jasmine Yun-Ting Tan, Elaine Swee-Ling Ng, Sungwon Yoon","doi":"10.1177/26323524231214814","DOIUrl":"10.1177/26323524231214814","url":null,"abstract":"<p><strong>Background: </strong>Screening patients with patient-reported outcome measures allows identification of palliative care concerns. The Integrated Palliative Care Outcome Scale (IPOS) was developed in the United Kingdom for this purpose. Tools developed in another setting might not be readily usable locally. We previously evaluated the validity and reliability of the IPOS in our cardiology setting. However, it remains uncertain what factors would influence the subsequent implementation of IPOS for routine screening of patients with advanced heart failure in future practice.</p><p><strong>Objectives: </strong>This study aimed to identify the factors that could affect the IPOS implementation for patients with advanced heart failure.</p><p><strong>Design: </strong>This was a qualitative study conducted at the National Heart Centre Singapore.</p><p><strong>Methods: </strong>Patients with advanced heart failure who participated in our previous IPOS validation study were purposively recruited for semi-structured interviews. Healthcare workers caring for these patients and involved in the testing of the IPOS tool were also invited for interviews. The interviews were analyzed thematically and mapped to the Consolidated Framework for Implementation Research (CFIR).</p><p><strong>Results: </strong>Our analysis identified six potential facilitators and six potential barriers to implementation across five major domains of the CFIR (intervention characteristics, inner setting, outer setting, individual characteristics, and process). Facilitators include: (i) perception of utility, (ii) perception of minimal complexity, (iii) perception of relatability, (iv) conducive culture, (v) dedicated resources, and (vi) advocates for implementation. Barriers include: (i) need for adaptation, (ii) mindsets/role strains, (iii) resource constraints, (iv) cultural concerns, (v) individual needs, and (vi) change process.</p><p><strong>Conclusion: </strong>Institutions could focus on cultivating appropriate perceptions and conducive cultures, providing dedicated resources for implementation and introducing facilitators to advocate for implementation. Adaptation of IPOS to suit workflows and individual needs, consideration of change processes, and systemic changes to alleviate cultural, resource, and staff role strains would improve IPOS uptake during actual implementation in clinical services.</p><p><strong>Trial registration: </strong>Not applicable.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"17 ","pages":"26323524231214814"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10693212/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138478789","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors associated with living will among older persons receiving long-term care in Finland. 芬兰接受长期护理的老年人生活意愿的相关因素。
Palliative Care and Social Practice Pub Date : 2023-11-30 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231212513
Paula Andreasen, Leena Forma, Ilkka Pietilä
{"title":"Factors associated with living will among older persons receiving long-term care in Finland.","authors":"Paula Andreasen, Leena Forma, Ilkka Pietilä","doi":"10.1177/26323524231212513","DOIUrl":"10.1177/26323524231212513","url":null,"abstract":"<p><strong>Background: </strong>A living will document is known to be an important tool for preparing for future care together with healthcare professionals. A living will supports an older person's self-determination and autonomy. Only a few studies have approached the underlying factors of a living will document among older long-term care recipients.</p><p><strong>Objectives: </strong>To explore how common having a living will was among older persons receiving home care or round-the-clock long-term care, as well as to evaluate associations between socio-demographical factors and functional capacity with a living will.</p><p><strong>Design: </strong>The study population consisted of older persons receiving long-term care in Finland in 2016-2017. Data were collected <i>via</i> individual assessments at home or at a care facility. The questions in the assessment covered health, functional capacity, service use, and social support.</p><p><strong>Methods: </strong>Primary outcome 'living will' and associated factors were identified for each person aged 65 or older from RAI-assessment data (Resident Assessment Instrument, RAI). Cross-tabulations with χ²-tests and adjusted binary logistic regression models were performed to evaluate the association between the factors and a living will.</p><p><strong>Results: </strong>Of the 10,178 participants, 21% had a living will - a greater proportion were female (22%) than male (18%), and a greater proportion of residents in assisted living (25%) and residential care homes (20%) compared with home care residents (15%) had a living will. Female gender (<i>p</i> < 0.001), having a proxy decision-maker (<i>p</i> = 0.001), increasing age (<i>p</i> = 0.003), impairing functional capacity (activities of daily living hierarchy <i>p</i> < 0.001, Cognitive Performance Scale <i>p</i> < 0.001), instability of health status (Changes in Health, End-Stage Disease and Signs and Symptoms <i>p</i> < 0.001), and closeness of death (<i>p</i> < 0.001) were significantly associated with a living will among older persons. Extensive differences in results were found between home care clients and clients of round-the-clock long-term care.</p><p><strong>Conclusion: </strong>Preparedness for the future with a living will varies according to services and on individual level. To reduce inequalities in end-of-life care, actions for advance care planning with appropriate timing are warranted.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"17 ","pages":"26323524231212513"},"PeriodicalIF":0.0,"publicationDate":"2023-11-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10687943/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138463216","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A model for community-led peer-facilitated advance care planning workshops for the public. 为市民提供由社区领导、由同侪协助的预先护理计划工作坊的模式。
Palliative Care and Social Practice Pub Date : 2023-11-29 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231212515
Rachel Z Carter, Eman Hassan, Pat Porterfield, Doris Barwich
{"title":"A model for community-led peer-facilitated advance care planning workshops for the public.","authors":"Rachel Z Carter, Eman Hassan, Pat Porterfield, Doris Barwich","doi":"10.1177/26323524231212515","DOIUrl":"10.1177/26323524231212515","url":null,"abstract":"<p><strong>Background: </strong>The core to successful advance care planning (ACP) facilitation is helping people determine their values, beliefs and wishes, and understand substitute decision-making. Recognizing the potential for community members to support public awareness and education we developed a model of ACP education, whereby peer facilitators associated with community organizations host workshops that educate and assist members of the public with ACP.</p><p><strong>Objectives: </strong>Describe the development and evaluation of the model for community-led peer-facilitated ACP workshops for the public.</p><p><strong>Design: </strong>Descriptive mixed methods.</p><p><strong>Methods: </strong>A training curriculum and program model were co-developed with two community organizations that had been successful in delivering ACP workshops independently in their communities. Herein we describe a mixed-methods evaluation of three cycles of implementation and improvement of the model.</p><p><strong>Results: </strong>The model centers on three key concepts; the right content (based around three steps Think, Talk, Plan), the right facilitator, and the right approach. A suite of tools was designed to support the three groups involved in the delivery of the ACP workshops: the public participants, the peer facilitators, and the community-based organizations. The peer-facilitator training addresses the facilitator's learning needs of ACP content knowledge, facilitation skills, and understanding change behavior. Training evaluation data from 106 facilitators confirmed that the curriculum prepared them to facilitate the workshops. Qualitative data revealed that support from organizations with established reputations in their community is critical, with mentoring from more experienced facilitators beneficial.</p><p><strong>Conclusion: </strong>Our model demonstrates the potential of community-led, peer-facilitated ACP initiatives to enhance the capacity of community to upstream ACP conversations. Reaching a broader audience and creating a supportive, inclusive environment for individuals to comfortably learn about ACP can drive the much-needed culture shift to normalize ACP. Meaningful community engagement, empowerment, and partnerships are essential for the successful development and widespread impact of these initiatives.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"17 ","pages":"26323524231212515"},"PeriodicalIF":0.0,"publicationDate":"2023-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10685751/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138463215","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family caregivers bereaved by voluntary-assisted dying with a focus on motor neurone disease: the hidden patients. 由自愿协助死亡而失去亲人的家庭照护者,聚焦于运动神经元疾病:隐藏的病人。
Palliative Care and Social Practice Pub Date : 2023-11-22 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231212512
Margaret Sealey, Samar M Aoun
{"title":"Family caregivers bereaved by voluntary-assisted dying with a focus on motor neurone disease: the hidden patients.","authors":"Margaret Sealey, Samar M Aoun","doi":"10.1177/26323524231212512","DOIUrl":"https://doi.org/10.1177/26323524231212512","url":null,"abstract":"","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"17 ","pages":"26323524231212512"},"PeriodicalIF":0.0,"publicationDate":"2023-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10666550/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138463217","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Developing competencies for volunteer navigators to support caregivers of children living with medical complexity: a mixed-method e-Delphi study. 培养志愿者导航员的能力,以支持医疗复杂性儿童的照顾者:一项混合方法e-德尔菲研究。
Palliative Care and Social Practice Pub Date : 2023-11-08 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231209060
Robyn Thomas, Barbara Pesut, Hal Siden, Michael Treschow, Gloria Puurveen
{"title":"Developing competencies for volunteer navigators to support caregivers of children living with medical complexity: a mixed-method e-Delphi study.","authors":"Robyn Thomas, Barbara Pesut, Hal Siden, Michael Treschow, Gloria Puurveen","doi":"10.1177/26323524231209060","DOIUrl":"10.1177/26323524231209060","url":null,"abstract":"<p><strong>Background: </strong>Providing specially trained volunteer navigators is one promising strategy for supporting the increasing number of family caregivers who are caring for children living with medical complexity.</p><p><strong>Objective: </strong>The objective of this study was to develop consensus on the role and competencies required for volunteer navigators who support caregivers of children living with medical complexity.</p><p><strong>Design: </strong>This was a mixed-method study using modified e-Delphi and focus group methods. In phase 1, a modified e-Delphi survey with 20 family caregivers and a focus group with 4 family caregivers were conducted to develop consensus on their unmet needs and the potential roles of a volunteer to meet those needs. In phase 2, a modified e-Delphi survey was conducted with experts to develop consensus on the volunteer competencies required to meet the roles identified by family caregivers in phase 1.</p><p><strong>Results: </strong>Findings from phase 1 resulted in 36 need-related items over 8 domains: communication, daily life and chores, emotional support, information and knowledge, respite, support with decision-making, and sharing the caregiving experience. Concerns about the volunteer role included the potential lack of commitment in the absence of remuneration, the complexity of the child's condition that was beyond the role of a volunteer, and a preference for support from individuals they knew. Findings from the phase 2 Delphi survey with professionals resulted in 22 competencies, derived from the roles identified in phase 1, that would be required of volunteers who wished to support these family caregivers.</p><p><strong>Conclusion: </strong>This study provides insight into a role for volunteers in meeting the needs of family caregivers of children living with medical complexity. A volunteer with lived experience and adequate preparation can assist with meeting some of these important needs. Further research is required to better understand the feasibility and acceptability of such a role.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"17 ","pages":"26323524231209060"},"PeriodicalIF":0.0,"publicationDate":"2023-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10634257/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89719871","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experiences of engaging a death doula: qualitative interviews with bereaved family members. 参与死亡助产师的经验:与失去亲人的家庭成员的定性访谈。
Palliative Care and Social Practice Pub Date : 2023-11-08 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231207112
Deb Rawlings, Kristine Van Dinther, Lauren Miller-Lewis, Jenifer Tieman, Kate Swetenham
{"title":"Experiences of engaging a death doula: qualitative interviews with bereaved family members.","authors":"Deb Rawlings, Kristine Van Dinther, Lauren Miller-Lewis, Jenifer Tieman, Kate Swetenham","doi":"10.1177/26323524231207112","DOIUrl":"10.1177/26323524231207112","url":null,"abstract":"<p><strong>Background: </strong>There has been an emerging trend of adopting a death doula, a non-medical advocate and guide for people at the end of life and their families. While there has been growing empirical research regarding the work of death doulas, no studies have been undertaken with the families who have engaged them.</p><p><strong>Objectives: </strong>To understand the experiences of families who used a death doula in terms of what they did for the patient and family; to understand the benefits and drawbacks of using a death doula; and to use family insight to determine cultural shifts towards death and dying, and what the death doula phenomenon tells us around our attitudes towards death and dying.</p><p><strong>Methods: </strong>We recruited and interviewed 10 bereaved family members to learn about their experiences using a death doula. This qualitative research took an interpretive phenomenological approach, and thematic analysis was used to analyse the data.</p><p><strong>Results: </strong>The most valuable attribute the families gained from death doulas was an increase in death literacy resulting in personal empowerment. Empowerment enabled positive end-of-life experiences for the family and personalised deaths for the patient. A novel finding was that the connections and knowledge shared between the death doula and family had a resonant effect, resulting in families being more comfortable with death and keen to share their knowledge with others. Therefore, family engagement of a death doula led to an increase in community awareness around death and dying.</p><p><strong>Conclusion: </strong>Family members' experience with a death doula was overwhelmingly positive, empowering them practically and emotionally to deliver the best end-of-life care. Empathy and sharing of knowledge by death doulas were valued by families and resulted in an increase in death literacy which provided families with opportunities to 'pay it forward'. Furthermore, the relationships formed between doulas and families have the potential for a lasting, resonant effect.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"17 ","pages":"26323524231207112"},"PeriodicalIF":0.0,"publicationDate":"2023-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10637134/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89719872","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Conversations on death and dying: exploring performance as a prompt. 关于死亡和死亡的对话:探索表演作为提示。
Palliative Care and Social Practice Pub Date : 2023-11-01 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231209059
Sheila McCormick
{"title":"Conversations on death and dying: exploring performance as a prompt.","authors":"Sheila McCormick","doi":"10.1177/26323524231209059","DOIUrl":"https://doi.org/10.1177/26323524231209059","url":null,"abstract":"<p><strong>Background: </strong>Death is inevitable, yet for some, conversations around death remain difficult. The stigmatisation of death amongst some cultures has a negative impact with studies showing societies least likely to discuss end of life openly remain the lowest ranked in terms of end-of-life care quality. Out of this understanding have come several socially engaged projects (e.g. Death Cafes, The Conversation Project, Before I Die Festivals) developed to encourage engagement with the subject.</p><p><strong>Objective: </strong>In this article I ask, can autobiographical performance prompt conversations on death and dying? To answer the research question, I examine the socially engaged Death, Dinner, and Performance project, and analyse the effectiveness of the performance/dramaturgical methodology developed in the project to encourage participant engagement with the difficult subjects of death and dying.</p><p><strong>Design: </strong>I look specifically at the use of autobiographical performance strategies in the Death, Dinner, and Performance project and explore the outcomes associated with the adaptation of those strategies (particularly regarding relationality in a socially engaged context) in conversations between participants on death, dying and bereavement.</p><p><strong>Method: </strong>The project adopted a mixed methodology that engaged both Practice as Research (PaR) and qualitative research strategies.</p><p><strong>Results: </strong>PaR reflection and analysis, along with qualitative coding of participant responses allowed an inductive, thematic analysis that highlighted several recurring themes. These are analysed and discussed under two categories in the Analysis and results section at the end of this paper: firstly, in relation to recurring themes in the participants' discussion around the subject of death and dying, and secondly, in relation to the socially engaged strategy (commensality and use of autobiographical performance) used to encourage that discussion.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"17 ","pages":"26323524231209059"},"PeriodicalIF":0.0,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10623634/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71486950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The compassionate communities connectors program: effect on healthcare usage. 富有同情心的社区连接器计划:对医疗保健使用的影响。
Palliative Care and Social Practice Pub Date : 2023-10-26 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231205323
Samar M Aoun, Natasha Bear, Bruce Rumbold
{"title":"The compassionate communities connectors program: effect on healthcare usage.","authors":"Samar M Aoun,&nbsp;Natasha Bear,&nbsp;Bruce Rumbold","doi":"10.1177/26323524231205323","DOIUrl":"https://doi.org/10.1177/26323524231205323","url":null,"abstract":"<p><strong>Background: </strong>Public health approaches to palliative and end-of-life care focus on enhancing the integration of services and providing a comprehensive approach that engages the assets of local communities. However, few studies have evaluated the relative costs and benefits of providing care using these service models.</p><p><strong>Objectives: </strong>To assess the effect on healthcare usage of a community-based palliative care program ('Compassionate Communities Connectors') where practical and social support was delivered by community volunteers to people living with advanced life-limiting illnesses in regional Western Australia.</p><p><strong>Design: </strong>Controlled before-and-after study/Cost-consequence analysis.</p><p><strong>Methods: </strong>A total of 43 community-based patients participated in the program during the period 2020-2022. A comparator population of 172 individuals with advanced life-limiting illnesses was randomly selected from usage data from the same set of health services.</p><p><strong>Results: </strong>Relative to controls, the intervention group had lower hospitalizations per month [Incidence rate ratio (IRR): 0.37; 95% CI: 0.18-0.77, <i>p</i> = 0.007], less hospital days per month (IRR: 0.23; 95% CI: 0.11-0.49, <i>p</i> < 0.001) and less emergency presentations (IRR: 0.56; 95% CI: 0.34-0.94, <i>p</i> = 0.028. The frequency of outpatient contacts overall was two times higher for the intervention group (IRR: 2.07; 95% CI: 1.11-3.86, <i>p</i> = 0.022), indicating the Connector program may have shifted individuals away from the hospital system and toward community-based care. Estimated net savings of $AUD 518,701 would be achieved from adopting the Connector program, assuming enrollment of 100 patients over an average 6-month participation period.</p><p><strong>Conclusion: </strong>This combined healthcare usage and economic analysis of the 'Compassionate Communities Connectors' program demonstrates the benefits of optimizing palliative care services using home-based and community-centered interventions, with gains for the health system through improved patient outcomes and reduced total healthcare costs (including fewer hospitalizations and readmissions). These findings, coupled with the other published results, suggest that investment in the Connectors program has the capacity to reduce net health sector expenditure while also improving outcomes for people with life-limiting illnesses.</p><p><strong>Trial registration: </strong>Australian and New Zealand Clinical Trial Registry: ACTRN12620000326998.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"17 ","pages":"26323524231205323"},"PeriodicalIF":0.0,"publicationDate":"2023-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10612440/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71414475","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An agenda to develop Pediatric Palliative care programs to serve children with life-threatening and life-limiting conditions in the Gulf Cooperation Council countries. 制定儿科姑息治疗计划的议程,为海湾合作委员会国家患有危及生命和限制生命疾病的儿童提供服务。
Palliative Care and Social Practice Pub Date : 2023-09-29 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231201868
Qutaibah Alotaibi, Harold Siden
{"title":"An agenda to develop Pediatric Palliative care programs to serve children with life-threatening and life-limiting conditions in the Gulf Cooperation Council countries.","authors":"Qutaibah Alotaibi,&nbsp;Harold Siden","doi":"10.1177/26323524231201868","DOIUrl":"https://doi.org/10.1177/26323524231201868","url":null,"abstract":"<p><p>Medical advances have increased the number of children living with life-threatening/life-limiting illnesses worldwide, including in Gulf Cooperation Council (GCC) countries. Pediatric palliative care (PPC) is a relatively young subspecialty that cares for children with life-threatening/life-limiting illnesses and their families. PPC aims to alleviate physical, psychological, and social distress in children with life-threatening/life-limiting illnesses and their families and improve their quality of life. PPC is an essential service that should be implemented in all nations, as it is a human right. Moreover, a core value of PPC services is to alleviate children's suffering, irrespective of cure availability. Hence, the global consensus on palliative services must be universal and include developing countries with limited resources. While PPC services are growing internationally, the GCC countries have yet to implement these valuable services in the region. This work aims to define the local base information important to facilitating the PPC program. We explored and identified the information vital for establishing a successful program, which was then categorized and mapped into subgroups. In doing so, we outline a roadmap to facilitate the smooth introduction of PPC in GCC countries to benefit the lives of children with life-limiting illnesses.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"17 ","pages":"26323524231201868"},"PeriodicalIF":0.0,"publicationDate":"2023-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/40/94/10.1177_26323524231201868.PMC10542219.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41151398","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
'Completely by accident': a qualitative analysis of service providers motivations to practice palliative care. “完全偶然”:对服务提供者实施姑息治疗动机的定性分析。
Palliative Care and Social Practice Pub Date : 2023-09-20 eCollection Date: 2023-01-01 DOI: 10.1177/26323524231201869
Joshua Okyere
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