Palliative Care and Social Practice最新文献

筛选
英文 中文
Work-related quality of life in professionals involved in pediatric palliative care: a repeated cross-sectional comparative effectiveness study. 参与儿科姑息关怀的专业人员与工作相关的生活质量:重复横断面比较效果研究。
Palliative Care and Social Practice Pub Date : 2024-05-09 eCollection Date: 2024-01-01 DOI: 10.1177/26323524241247857
Anne-Kathrin Gerber, Ursula Feuz, Karin Zimmermann, Stefan Mitterer, Michael Simon, Nicolas von der Weid, Eva Bergsträsser
{"title":"Work-related quality of life in professionals involved in pediatric palliative care: a repeated cross-sectional comparative effectiveness study.","authors":"Anne-Kathrin Gerber, Ursula Feuz, Karin Zimmermann, Stefan Mitterer, Michael Simon, Nicolas von der Weid, Eva Bergsträsser","doi":"10.1177/26323524241247857","DOIUrl":"10.1177/26323524241247857","url":null,"abstract":"<p><strong>Background: </strong>Working in pediatric palliative care (PPC) impacts healthcare and allied professionals' work-related quality of life (QoL). Professionals who lack specific PPC training but who regularly provide services to the affected children have articulated their need for support from specialized PPC (SPPC) teams.</p><p><strong>Objectives: </strong>This study had two objectives: (1) to evaluate whether the availability of a SPPC team impacted the work-related QoL of professionals not specialized in PPC; and (2) to explore the work-related QoL of professionals working in PPC without specialized training.</p><p><strong>Design: </strong>Repeated cross-sectional comparative effectiveness design.</p><p><strong>Methods: </strong>One hospital with an established SPPC program and affiliated institutions provided the intervention group (IG). Three hospitals and affiliated institutions where generalist PPC was offered provided the comparison group (CG). Data were collected by paper-pencil questionnaire in 2021 and 2022. The Professional Quality of Life (ProQOL 5) questionnaire was used to assess work-related QoL, yielding separate scores for burnout (BO), secondary traumatic stress (STS) and compassion satisfaction (CS). A descriptive statistical analysis was performed and general estimation equations were modelled. To increase the comparability of the IG and CG, participants were matched by propensity scores.</p><p><strong>Results: </strong>The 301 participating non-PPC-specialized professionals had overall low to moderate levels of BO and STS and moderate to high levels of CS. However, none of these scores (BO: <i>p</i> = 0.36; STS: <i>p</i> = 0.20; CS: <i>p</i> = 0.65) correlated significantly with support from an SPPC team. Compared to nurses, physicians showed higher levels of BO (1.70; <i>p</i> = 0.02) and STS (2.69; <i>p</i> ⩽ 0.001).</p><p><strong>Conclusion: </strong>Although the study sample's overall work-related QoL was satisfactory, it showed a considerable proportion of moderate BO and STS, as well as moderate CS. To provide tailored support to professionals working in PPC, evidence regarding key SPPC support elements and their effectiveness is needed.</p><p><strong>Trial registration: </strong>ClinicalTrials.gov ID, NCT04236180.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"18 ","pages":"26323524241247857"},"PeriodicalIF":0.0,"publicationDate":"2024-05-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11085006/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140913194","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Willingness to support neighbours practically or emotionally: a cross-sectional survey among the general public. 在实际或情感上支持邻居的意愿:一项针对公众的横断面调查。
Palliative Care and Social Practice Pub Date : 2024-05-09 eCollection Date: 2024-01-01 DOI: 10.1177/26323524241249196
Bert Quintiens, Tinne Smets, Kenneth Chambaere, Lieve Van den Block, Luc Deliens, Joachim Cohen
{"title":"Willingness to support neighbours practically or emotionally: a cross-sectional survey among the general public.","authors":"Bert Quintiens, Tinne Smets, Kenneth Chambaere, Lieve Van den Block, Luc Deliens, Joachim Cohen","doi":"10.1177/26323524241249196","DOIUrl":"10.1177/26323524241249196","url":null,"abstract":"<p><strong>Background: </strong>Wider social networks are increasingly recognized for supporting people with care needs. Health-promoting initiatives around the end of life aim to foster these social connections but currently provide little insight into how willing people are to help neighbours facing support needs.</p><p><strong>Objectives: </strong>This study describes how willing people are to help neighbours who need support practically or emotionally, whether there is a difference in willingness depending on the type of support needed and what determines this willingness.</p><p><strong>Design: </strong>We applied a cross-sectional survey design.</p><p><strong>Methods: </strong>We distributed 4400 questionnaires to a random sample of people aged >15 across four municipalities in Flanders, Belgium. These surveys included attitudinal and experiential questions related to serious illness, caregiving and dying. Respondents rated their willingness (scale of 1-5) to provide support to different neighbours in hypothetical scenarios: (1) an older person in need of assistance and (2) a caregiver of a dying partner.</p><p><strong>Results: </strong>A total of 2008 questionnaires were returned (45.6%). The average willingness to support neighbours was 3.41 (case 1) and 3.85 (case 2). Helping with groceries scored highest; cooking and keeping company scored lowest. Factors associated with higher willingness included an optimistic outlook about receiving support from others, family caregiving experience and prior volunteering around serious illness or dying.</p><p><strong>Conclusion: </strong>People are generally willing to support their neighbours who need help practically or emotionally, especially when they have prior experience with illness, death or dying and when they felt supported by different groups of people. Community-based models that build support around people with care needs could explore to what extent this willingness translates into durable community support. Initiatives promoting social connection and cohesion around serious illness, caregiving and dying may harness this potential through experiential learning.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"18 ","pages":"26323524241249196"},"PeriodicalIF":0.0,"publicationDate":"2024-05-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11085024/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140913176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Caring neighbourhoods in Belgium: lessons learned on the development, implementation and evaluation of 35 caring neighbourhood projects. 比利时的关爱社区:从 35 个关爱社区项目的制定、实施和评估中汲取的经验教训。
Palliative Care and Social Practice Pub Date : 2024-04-26 eCollection Date: 2024-01-01 DOI: 10.1177/26323524241246533
Liesbeth De Donder, Hannelore Stegen, Sylvia Hoens
{"title":"Caring neighbourhoods in Belgium: lessons learned on the development, implementation and evaluation of 35 caring neighbourhood projects.","authors":"Liesbeth De Donder, Hannelore Stegen, Sylvia Hoens","doi":"10.1177/26323524241246533","DOIUrl":"https://doi.org/10.1177/26323524241246533","url":null,"abstract":"<p><strong>Background: </strong>In recent years, there has been a rise in international (care) movements that prioritise community-centred initiatives such as age-friendly communities, compassionate communities or integrated community care. Although these movements have different focal points, they share common features: seeking to address systemic failures in (care) services, value the participation of end-users, focus on unmet (care) needs, through a local, neighbourhood-oriented approach. In the Flemish and Brussels regions notably the concept of Caring Neighbourhoods is experiencing rapid growth.</p><p><strong>Objectives: </strong>The objective of the present study is to examine the development and implementation of 35 Caring Neighbourhood initiatives in Flanders and Brussels (Belgium) to explore the added value of such projects, as well as the crucial elements for creating Caring Neighbourhoods.</p><p><strong>Design: </strong>Thirty-five caring neighbourhood projects were examined by means of five focus group interviews with project coordinators (<i>n</i> = 34) and five focus group interviews with neighbourhood residents (<i>n</i> = 27), using participant-generated photo elicitation.</p><p><strong>Methods: </strong>The focus group sessions were recorded, transcribed and data were labelled using an inductive analytical framework, following the steps of reflexive thematic analysis.</p><p><strong>Results: </strong>The analysis of the 35 Caring Neighbourhoods showed that fostering connections was key in building Caring Neighbourhoods: connections among residents, connections between residents and care and support services and among care services themselves. The three primary ways to connect people were through activities, places and people. Also, the role of the Caring Neighbourhood coordinator is highlighted as key, which should focus on weaving existing resources, facilitating and coaching instead of organising. Altogether, the projects brought meaning and value to participants' lives, enhancing overall life satisfaction and well-being, with an emphasis on physical and psychosocial care and support.</p><p><strong>Conclusion: </strong>Through critically reflecting on our results and other research, we call on researchers to pay increased attention in research on community-centred care initiatives to death, dying and grief, equity and social justice and the need for both warm and cold solidarity.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"18 ","pages":"26323524241246533"},"PeriodicalIF":0.0,"publicationDate":"2024-04-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11055489/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140869275","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Emotional experiences in palliative care and professional quality of life: a qualitative approach. 姑息关怀中的情感体验与专业人员的生活质量:一种定性方法。
Palliative Care and Social Practice Pub Date : 2024-04-25 eCollection Date: 2024-01-01 DOI: 10.1177/26323524241246531
Ana Josefa Cañas-Lerma, Paula Hidalgo-Andrade, Viviana Araujo-Lugo, Gabriela Moya, Sebastià Verger
{"title":"Emotional experiences in palliative care and professional quality of life: a qualitative approach.","authors":"Ana Josefa Cañas-Lerma, Paula Hidalgo-Andrade, Viviana Araujo-Lugo, Gabriela Moya, Sebastià Verger","doi":"10.1177/26323524241246531","DOIUrl":"https://doi.org/10.1177/26323524241246531","url":null,"abstract":"<p><strong>Objective: </strong>To explore the experiences that significantly impact the professional quality of life of people providing palliative care (PC) in Ecuador.</p><p><strong>Design: </strong>Observational cross-sectional qualitative research.</p><p><strong>Methods: </strong>In September 2022, 10 focus groups were carried out in four cities in Ecuador; each group lasted from 1 to 2 h, was audio recorded, and transcribed verbatim. Recruitment was conducted through convenience sampling, and a total of 71 individuals (15 students, 50 professionals, and 6 volunteers) linked to PC participated. Content analysis with a phenomenological and inductive approach was used to analyze the data.</p><p><strong>Results: </strong>People recognized their experiences in PC as having positive and negative impacts on their professional quality of life. Experiences were mapped as affecting them at individual, relational, and contextual levels. These experiences included personal growth, opportunity to provide care, teamwork, death-related issues, inability to deal with work-related stress, social acceptance of PC, and dealing with inefficient health systems, among others.</p><p><strong>Conclusion: </strong>Despite the positive emotions that arise with caring for others, individuals working and volunteering in PC experience situations that influence their professional quality of life. Addressing these factors to increase satisfaction and ease the burden of PC work is essential. Undergraduate education, continuous professional training, and PC teams should incorporate actions to address these factors at all levels, such as teaching coping skills, fostering social support, and increasing awareness of PC.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"18 ","pages":"26323524241246531"},"PeriodicalIF":0.0,"publicationDate":"2024-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11047252/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140862261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A mixed-methods systematic review investigating the use of digital health interventions to provide palliative and end-of-life care for patients in low- and middle-income countries. 采用混合方法对中低收入国家使用数字医疗干预措施为患者提供姑息治疗和临终关怀服务的情况进行系统性研究。
Palliative Care and Social Practice Pub Date : 2024-04-12 eCollection Date: 2024-01-01 DOI: 10.1177/26323524241236965
Weerasingha Navarathnage Sachintha Dilhani, Sarah Mitchell, Jeremy Dale, Kavanbir Toor, Mikail Javaid, John I MacArtney
{"title":"A mixed-methods systematic review investigating the use of digital health interventions to provide palliative and end-of-life care for patients in low- and middle-income countries.","authors":"Weerasingha Navarathnage Sachintha Dilhani, Sarah Mitchell, Jeremy Dale, Kavanbir Toor, Mikail Javaid, John I MacArtney","doi":"10.1177/26323524241236965","DOIUrl":"https://doi.org/10.1177/26323524241236965","url":null,"abstract":"<p><strong>Background: </strong>The need for palliative care is rising globally with 76% of those who are in need living in low- and middle-income countries (LMICs). Digital health interventions (DHIs) have been identified as a means of making palliative care more widely accessible. This review summarizes the range and characteristics of DHIs used to deliver palliative care in LMICs and sought to identify factors that influence their implementation and utilization.</p><p><strong>Objectives: </strong>This review aims to summarize the range and characteristics of DHIs used to deliver palliative care in LMICs and identify factors that influence their implementation and utilization.</p><p><strong>Design: </strong>Mixed-method systematic review incorporating both quantitative and qualitative data.</p><p><strong>Data sources and methods: </strong>All studies focusing on DHIs for patients who need palliative care (adults/children) and their caregivers (patient and caregiver centred) in LMICs and published in English were identified through a systematic search of MEDLINE, EMBASE, PsycINFO and CINAHL databases. Data synthesis and analysis were carried out following the convergent integrated approach based on the Joanna Briggs Institute (JBI) methodology for mixed-methods systematic reviews.</p><p><strong>Results: </strong>Fifteen studies were included (three qualitative, four mixed-methods and eight quantitative studies). Telemedicine/mHealth was the most reported DHI utilized in LMICs in delivering palliative care. Patients and caregivers benefited from using DHIs in many ways including increased access to care with reduced discomfort, travel time and risk of health care-associated infections. Health care providers also reported that using DHI such as telemedicine enables them to provide care in a more effective and efficient way. Four factors were identified as the main barriers to implementation: resource constraints; literacy, training and skills; governance, operational and communication issues and technical issues.</p><p><strong>Conclusion: </strong>DHIs, such as telemedicine, have the potential to enhance accessibility to palliative care in LMICs, particularly in rural areas. Comprehensive strategies for their use are required to address the identified barriers.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"18 ","pages":"26323524241236965"},"PeriodicalIF":0.0,"publicationDate":"2024-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11010586/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140866709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Top-down and bottom-up or participation through action? How to build a compassionate community - the experience of Caring Community Cologne. 自上而下和自下而上,还是通过行动参与?如何建立一个富有同情心的社区--科隆关爱社区的经验。
IF 2.7
Palliative Care and Social Practice Pub Date : 2024-03-24 eCollection Date: 2024-01-01 DOI: 10.1177/26323524241238230
Raymond Voltz, Sophie Meesters, Karin Ohler, Birgit Weihrauch, Anne Kreische, Johannes Niessen, Andreas Heller, Julia Strupp, Kerstin Kremeike
{"title":"Top-down and bottom-up or participation through action? How to build a compassionate community - the experience of Caring Community Cologne.","authors":"Raymond Voltz, Sophie Meesters, Karin Ohler, Birgit Weihrauch, Anne Kreische, Johannes Niessen, Andreas Heller, Julia Strupp, Kerstin Kremeike","doi":"10.1177/26323524241238230","DOIUrl":"10.1177/26323524241238230","url":null,"abstract":"","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"18 ","pages":"26323524241238230"},"PeriodicalIF":2.7,"publicationDate":"2024-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10962028/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140289112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The determinants of actual place of death among noncancer patients with end-stage chronic health conditions: a scoping review. 慢性病晚期非癌症患者实际死亡地点的决定因素:范围界定综述。
IF 2.7
Palliative Care and Social Practice Pub Date : 2024-03-19 eCollection Date: 2024-01-01 DOI: 10.1177/26323524241236964
Sangduan Ginggeaw, Raeann LeBlanc
{"title":"The determinants of actual place of death among noncancer patients with end-stage chronic health conditions: a scoping review.","authors":"Sangduan Ginggeaw, Raeann LeBlanc","doi":"10.1177/26323524241236964","DOIUrl":"10.1177/26323524241236964","url":null,"abstract":"<p><p>A home is a preferred place of death by most people. Nurses play a key role in supporting end-of-life home care, yet less is known about the factors that determine home as a place of death. This scoping review describes the percentage of actual places of death and determines social factors related to home as the place of death among noncancer patients with end-stage chronic health conditions. Inclusion criteria included (1) noncancer chronic illness conditions, (2) outcomes of place of death, and (3) factors that determine home as a place of death. Sources of evidence included PubMed, CINAHL, and Web of Science databases, which were searched in May 2022, and additional searches from May 2022 to November 2023.The JBI scoping review guide (2020) and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Scoping Review extension were used. Twenty-eight studies were included in this analysis. The range of percentages is varied within the same place of death among the sample. Two major constructs that determine a home as a place of death were identified: preceding factors and social capital. The results suggest that the place of death among noncancer patients with end-stage chronic health conditions should be continued to be understood. Two constructs determined home as a place of death and are considered as a fundamental to increasing equal accessibility in the initiation of palliative care services to promote home death and meet end-of-life care goals.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"18 ","pages":"26323524241236964"},"PeriodicalIF":2.7,"publicationDate":"2024-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10953110/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140176889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Trends in the place of death in Sweden from 2013 to 2019 - disclosing prerequisites for palliative care. 2013年至2019年瑞典死亡地点的趋势--披露姑息治疗的先决条件。
Palliative Care and Social Practice Pub Date : 2024-03-16 eCollection Date: 2024-01-01 DOI: 10.1177/26323524241238232
Cecilia Larsdotter, Stina Nyblom, Hanna Gyllensten, Carl-Johan Furst, Anneli Ozanne, Ragnhild Hedman, Stefan Nilsson, Joakim Öhlén
{"title":"Trends in the place of death in Sweden from 2013 to 2019 - disclosing prerequisites for palliative care.","authors":"Cecilia Larsdotter, Stina Nyblom, Hanna Gyllensten, Carl-Johan Furst, Anneli Ozanne, Ragnhild Hedman, Stefan Nilsson, Joakim Öhlén","doi":"10.1177/26323524241238232","DOIUrl":"10.1177/26323524241238232","url":null,"abstract":"<p><strong>Background: </strong>The drive for home care has increasingly impacted the organization and allocation of resources within the Swedish healthcare system.</p><p><strong>Objectives: </strong>With an interest in uncovering prerequisites for palliative care, this study aimed to investigate longitudinal trends in place of death within the adult Swedish population from 2013 to 2019 and examine potential associations between place of death and individual, geographic, and socioeconomic factors; hospital capacity; and healthcare utilization.</p><p><strong>Methods: </strong>This population-level comprehensive register study included all deceased individuals ⩾18 years old with a registered place of death (<i>n</i> = 599,137). Data were retrieved from public and patient data registers and the national register for palliative care. Trends and associations between place of death and co-variables were investigated by logistic regression- and interaction analyses.</p><p><strong>Results: </strong>From 2013 to 2019, the total number of home deaths increased by 1.9%, whereas the number of hospital deaths decreased by 2.6%. In the overall population of individuals living in their own homes, from 2013 to 2019, the likelihood of dying in hospital <i>versus</i> dying at home decreased (odds ratio: 0.98, 95% confidence interval: 0.97-0.99). Within the population with potential palliative needs living in their own home (78.4%), the likelihood of dying in hospitals equally decreased, except in Stockholm and the north region. For individuals residing in a nursing home, however, the likelihood of dying in hospital <i>versus</i> remaining in the nursing home until death only significantly decreased in the southern region.</p><p><strong>Conclusion: </strong>The results show a trend towards a decrease in hospital deaths but with cross-regional variations. Still, in 2019, only about one-fifth of all individuals died in their own homes. Public health-oriented interventions aimed at strengthening palliative care resources in nursing homes and home care are suggested.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"18 ","pages":"26323524241238232"},"PeriodicalIF":0.0,"publicationDate":"2024-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10943753/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140144221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Nursing activities for health promotion in palliative home care: an integrative review. 居家姑息关怀中促进健康的护理活动:综合综述。
Palliative Care and Social Practice Pub Date : 2024-03-13 eCollection Date: 2024-01-01 DOI: 10.1177/26323524241235191
Jérôme Leclerc-Loiselle, Sylvie Gendron, Serge Daneault
{"title":"Nursing activities for health promotion in palliative home care: an integrative review.","authors":"Jérôme Leclerc-Loiselle, Sylvie Gendron, Serge Daneault","doi":"10.1177/26323524241235191","DOIUrl":"10.1177/26323524241235191","url":null,"abstract":"<p><p>Palliative care in community contexts is undergoing significant change as a result of public policy and new models of care, which link health promotion principles with palliative care practices. These models support the creation of partnerships between formal care structures and the communities in which care is provided. Given the central role of nurses in the institutional delivery of palliative care, particularly in the home, it is important to provide a systematic description of the activities of nurses that fall within the principles of health promotion. The objective was to describe the diverse range of nursing activities for health promotion that are provided in the palliative home care setting. This is an integrative review. Fifty-five studies listed in the MEDLINE, CINAHL and EMBASE databases, and published between 1999 and December 2022, were identified. Data analysis and presentation of the results were guided by Kellehear's Health-Promoting Palliative Care (HPPC) model. Six themes were identified to describe nursing activities for health promotion in the context of palliative home care: creating a meaningful relationship, supplying medical information, promoting self-care throughout the trajectory, providing emotional support, involving professional or community services and supporting change. The findings point to nurses focusing more on the individual context and on direct care. The relationship with communities in which they work remains unidirectional. However, some HPPC principles are relevant to nursing activities through the contextualization of nurses' actions and their moral responsibility to work towards the respect of patient's values. Being poorly described, how nurses can truly engage their practice towards health-promoting principles, such as the enhancement of support and control over their lives for people living with serious illness, still requires further empirical research.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"18 ","pages":"26323524241235191"},"PeriodicalIF":0.0,"publicationDate":"2024-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10938613/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140132772","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
'Confidence and fulfillment': a qualitative descriptive study exploring the impact of palliative care training for long-term care physicians and nurses. 信心与成就感":一项定性描述性研究,探讨姑息关怀培训对长期护理医生和护士的影响。
Palliative Care and Social Practice Pub Date : 2024-03-05 eCollection Date: 2024-01-01 DOI: 10.1177/26323524241235180
Ashlinder Gill, Lynn Meadows, Jessica Ashbourne, Sharon Kaasalainen, Sandy Shamon, José Pereira
{"title":"'Confidence and fulfillment': a qualitative descriptive study exploring the impact of palliative care training for long-term care physicians and nurses.","authors":"Ashlinder Gill, Lynn Meadows, Jessica Ashbourne, Sharon Kaasalainen, Sandy Shamon, José Pereira","doi":"10.1177/26323524241235180","DOIUrl":"10.1177/26323524241235180","url":null,"abstract":"<p><strong>Objective: </strong>To explore the impact of a 2-day, in-person interprofessional palliative care course for staff working in long-term care (LTC) homes.</p><p><strong>Methods: </strong>A qualitative descriptive study design was employed. LTC staff who had participated in Pallium Canada's Learning Essential Approaches to Palliative Care LTC Course in Ontario, Canada between 2017 and 2019 were approached. Semi-structured interviews were conducted, using an online videoconferencing platform in mid-2021 in Ontario, Canada. These were done online, recorded, and transcribed. Data were coded inductively.</p><p><strong>Results: </strong>Ten persons were interviewed: four registered practical nurses, three registered nurses, one nurse practitioner, and two physicians. Some held leadership roles. Participants described ongoing impact on themselves and their ability to provide end-of-life (EOL) care (micro-level), their services and institutions (meso-level), and their healthcare systems (macro-level). At a micro-level, participants described increased knowledge and confidence to support residents and families, and increased work fulfillment. At the meso-level, their teams gained increased collective knowledge and greater interprofessional collaboration to provide palliative care. At the macro level, some participants connected with other LTC homes and external stakeholders to improve palliative care across the sector. Training provided much-needed preparedness to respond to the impact of the COVID-19 pandemic, including undertaking advance care planning and EOL conversations. The pandemic caused staff burnout and shortages, creating challenges to applying course learnings.</p><p><strong>Significance of results: </strong>The impact of palliative care training had ripple effects several years after completing the training, and equipped staff with key skills to provide care during the COVID-19 pandemic. Palliative care education of staff remains a critical element of an overall strategy to improve the integration of palliative care in LTC.</p>","PeriodicalId":36693,"journal":{"name":"Palliative Care and Social Practice","volume":"18 ","pages":"26323524241235180"},"PeriodicalIF":0.0,"publicationDate":"2024-03-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10916492/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140050568","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信