Bulletin de la Dialyse à Domicile最新文献_第5页

Dialyse péritonéale chez les aborigènes australiens. 澳大利亚土著腹膜透析。

Bulletin de la Dialyse à Domicile Pub Date : 2021-09-15 DOI: 10.25796/bdd.v4i3.62753

J. Rosman

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Assessment of Patient Experience of Care in Home Dialysis Around the World: Enhancing the Patient’s Voice in Home Dialysis Care and Research 世界各地家庭透析患者护理体验评估:增强患者在家庭透析护理和研究中的发言权

Bulletin de la Dialyse à Domicile Pub Date : 2021-09-15 DOI: 10.25796/bdd.v4i3.62803

Matthew B. Rivara

{"title":"Assessment of Patient Experience of Care in Home Dialysis Around the World: Enhancing the Patient’s Voice in Home Dialysis Care and Research","authors":"Matthew B. Rivara","doi":"10.25796/bdd.v4i3.62803","DOIUrl":"https://doi.org/10.25796/bdd.v4i3.62803","url":null,"abstract":"With the global growth in the use of home dialysis modalities, there is a need to better understand patients’ experiences with their home dialysis care. Patient-reported experience measures or PREMs, are standardized survey questionnaires that allow patients to provide input on processes and experiences of care in a confidential and validated manner. Until recently, no validated PREM has been available for assessment of patient-reported experience of care for home dialysis modalities, including peritoneal dialysis or home hemodialysis. The Home Dialysis Care Experience instrument (Home-DCE) is a newly developed and content-valid PREM for use among patients treated with home dialysis modalities. The survey instrument includes 26 core survey questions and 20 demographic questions, and is now available in English, Spanish, and French. Domains of care assessed in the Home-DCE include staff education and patient-centered communication, care coordination, patient safety, concern and helpfulness of the care team, and staff care proficiency. Worldwide use of the Home-DCE will allow incorporation of patients’ experiences and preferences in initiatives to enhance quality of care for home dialysis patients globally. Translation and deployment of a PREM in additional languages should be done using established cultural adaptation methods, the gold standard for which is termed linguistic validation. Translation and linguistic validation are hurdles to global use of the Home-DCE, but challenges that should be met to enhance home dialysis patients’ voice in clinical kidney care.","PeriodicalId":366938,"journal":{"name":"Bulletin de la Dialyse à Domicile","volume":"8 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122202849","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Signature of a partnership agreement between ISPD and RDPLF for French translation of ISPD guidelines. 签署了ISPD和RDPLF之间的合作协议，将ISPD指南翻译成法语。

Bulletin de la Dialyse à Domicile Pub Date : 2021-09-13 DOI: 10.25796/bdd.v4i3.63033

M. Dratwa, C. Verger

{"title":"Signature of a partnership agreement between ISPD and RDPLF for French translation of ISPD guidelines.","authors":"M. Dratwa, C. Verger","doi":"10.25796/bdd.v4i3.63033","DOIUrl":"https://doi.org/10.25796/bdd.v4i3.63033","url":null,"abstract":"We are pleased to announce with this new issue of the Bulletin de la Dialysis à Domicile (BDD), the bilingual journal of the RDPLF, the recent signing of a partnership agreement between the International Society of Peritoneal Dialysis (ISPD) and the RDPLF. The RDPLF now officially ensures the French translation of international open access recommendations published by the ISPD. The goal is to allow better distribution to French-speaking professionals who have difficulty accessing English-language medical literature. \u0000 \u0000In addition a webinar in French will be organized on an annual basis, in collaboration with the ISPD which will ensure logistics management. The dates will be communicated later. We warmly thank Professor Xueqing Yu, President of ISPD, and the members of the ISPD Board, for this agreement which will promote communication between health professionals who speak different languages. \u0000Max Dratwa, Christian Verger and the editorial committee. \u0000 \u0000Contents of this issue: \u0000- Assessment of Patient Experience of Care in Home Dialysis around the World: Enhancing the Patient’s Voice in Home Dialysis Care and Research \u0000- Narrative interviews to assess quality of life in Peritoneal Dialysis \u0000-Chylous peritonitis in peritoneal dialysis \u0000- Peritoneal dialysis in indigenous Australians \u0000- French translation of ISPD Recommendations for the evaluation of peritoneal membrane dysfunction in adults: classification, measurement, interpretation and rationale for intervention \u0000- Home dialysis and Covid-19 in French speaking countries (RDPLF data-base) \u0000- Literature review (in French only) by the Young Nephrologists Club \u0000 \u0000 \u0000 ","PeriodicalId":366938,"journal":{"name":"Bulletin de la Dialyse à Domicile","volume":"26 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116965308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Home dialysis and Covid-19 in french speaking countries (RDPLF data-base) 法语国家的家庭透析与Covid-19 (RDPLF数据库)

Bulletin de la Dialyse à Domicile Pub Date : 2021-09-09 DOI: 10.25796/bdd.v4i3.63003

C. Verger, E. Fabre, P. Durand, J. Chanliau, I. Vernier, M. Dratwa

{"title":"Home dialysis and Covid-19 in french speaking countries (RDPLF data-base)","authors":"C. Verger, E. Fabre, P. Durand, J. Chanliau, I. Vernier, M. Dratwa","doi":"10.25796/bdd.v4i3.63003","DOIUrl":"https://doi.org/10.25796/bdd.v4i3.63003","url":null,"abstract":"Aims of the study: to assess the frequency of symptomatic Covid-19 in home dialysis patients and its influence on the number of patients treated at home in dialysis units of centers included in the French-speaking peritoneal and home hemodialysis Registry (RDPLF). Focus is placed on patients treated by peritoneal dialysis (PD) in mainland France. \u0000Results: in home hemodialysis (HHD)the incidence is 6% in Belgium and 4.8% in mainland France. On peritoneal dialysis it is 10.6% in Belgium, 6.7% in mainland France, 10.8% in Morocco and 11.5% in Tunisia. Lethality is less than 5% in HHD and between 8.4% and 42.7% in PD depending on age and associated comorbidities. In France, the percentage of patients who have had symptomatic Covid-19 is lower on home dialysis, all methods combined. Nevertheless, among the home methods, the higher frequencies and severities are observed in mainland France in home assisted PD: these are the oldest and most co-morbid patients. Transfers from PD to in center hemodialysis have increased during Covid-19 pandemic while the number of transplants has decreased. \u0000Conclusion: if the drop in the number of transplants can be explained by a reduced availability of operating theaters and surgical teams during a pandemic period, it is paradoxical that the prescription of home dialysis, which should be supposed to limit the risk of contagion, has decreased. More investigation should be performed to understand this paradox. \u0000 ","PeriodicalId":366938,"journal":{"name":"Bulletin de la Dialyse à Domicile","volume":"2 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116355818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Chylous peritonitis in peritoneal dialysis 腹膜透析中的乳糜性腹膜炎

Bulletin de la Dialyse à Domicile Pub Date : 2021-09-08 DOI: 10.25796/bdd.v4i3.62623

H. Abid, S. Toumi, H. Chaker, B. Fandri, I. Agrebi, N. Dammak, F. Mseddi, K. Kammoun, S. Yaich, M. Ben hmida

引用次数: 0

Narrative interviews to assess quality of life in Peritoneal Dialysis 叙述性访谈评估腹膜透析患者的生活质量

Bulletin de la Dialyse à Domicile Pub Date : 2021-07-10 DOI: 10.25796/bdd.v4i3.62223

Sophie Mougel, H. Tabibi, M. Rosier

{"title":"Narrative interviews to assess quality of life in Peritoneal Dialysis","authors":"Sophie Mougel, H. Tabibi, M. Rosier","doi":"10.25796/bdd.v4i3.62223","DOIUrl":"https://doi.org/10.25796/bdd.v4i3.62223","url":null,"abstract":"It has been found that people undergoing dialysis have a lower quality of life than the rest of the population. The aim of dialysis is to improve physical health, but also well-being. \u0000We were interested in the perception of the quality of life of patients undergoing Peritoneal Dialysis. We used the narrative interview method to collect their feelings, their daily experience, and their impressions about their care. We conducted four in-depth interviews, following the principle of theoretical data saturation, with adults treated at the Hospital of Nice. \u0000These interviews indicated that Peritoneal Dialysis rapidly improves physical and emotional health. Patients are satisfied with the technique, which allows them to return to a social, familial, and professional life. However, they regret that it does not relieve them of dietary restrictions, especially on salt. Patients appreciate the temporary support of a private nurse, which is systematically offered by our center at the beginning of treatment. They wish the involvement of peers to benefit from their experience, explanations and practical demonstrations. \u0000Quality of life is important to assess when choosing a renal replacement technique. Caregivers have to understand patients’ expectations and wishes in order to guide them towards the dialysis modality that suits their lifestyle and preferences best. This will improve treatment outcomes.","PeriodicalId":366938,"journal":{"name":"Bulletin de la Dialyse à Domicile","volume":"21 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-07-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114387776","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Early results and medico-economic evaluation of a short daily home hemodialysis program in a Private hemodialysis center 私人血液透析中心每日短期家庭血液透析计划的早期结果和医学经济评估

Bulletin de la Dialyse à Domicile Pub Date : 2021-05-20 DOI: 10.25796/BDD.V4I2.61653

H. Hebibi, M. Ciroldi, L. Cornillac, Samah Saibi, Fatia El Boundri, C. Chazot, D. Attaf

{"title":"Early results and medico-economic evaluation of a short daily home hemodialysis program in a Private hemodialysis center","authors":"H. Hebibi, M. Ciroldi, L. Cornillac, Samah Saibi, Fatia El Boundri, C. Chazot, D. Attaf","doi":"10.25796/BDD.V4I2.61653","DOIUrl":"https://doi.org/10.25796/BDD.V4I2.61653","url":null,"abstract":"Abstract: Between 2015 and 2017 there was a 40% increase in daily hemodialysis, according to the REIN database. This increase concerns 1% of patients and the private sector remains under-represented. Our retrospective study aims to describe the clinical features, the organizational and medico-economic specificities of this technique in a private hemodialysis center. \u0000Methods: We included 12 dialyzed patients trained on Nx Stage® machine from February 2020 to April 2021. Data were retrospectively obtained through review of our electronic medical records (EUCLID®). \u0000Results: Of the 12 patients trained, 11 dialyzed from home, with an average follow-up of 9 months (1-14). The average age was 45 with a sex ratio of 4/8 (M/W), and a median Charlson score of 3 (2-4). The average residual urinary output was 700 mL/24h, and 50% of patients were anuric. 100% of patients had an arteriovenous fistula and were cannulated using the buttonhole technique. 9 patients are on a transplant list. One patient needed anticoagulants. The mean training time was 35 days (28-35). 83% of patients were dialyzed 6 days a week with an average duration of 210 minutes (130-150) per session. The average volume of dialysate was 24.85 liters. One patient developed an allergy to the PUREMA® membrane. Pre-dialytic hemoglobin, serum creatinine, urea, phosphoremia and B2-microglobuline are stable at 9 months with improvement in metabolic acidosis. \u0000Conclusion: DHHD allowed a better socio-professional integration. One patient received a transplant and 3 patients resumed professional activity.","PeriodicalId":366938,"journal":{"name":"Bulletin de la Dialyse à Domicile","volume":"19 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132983690","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Peritoneal dialysis catheter dysfunction due to fibrin clots following treatment with tranexamic acid: a clinical case 氨甲环酸治疗后纤维蛋白凝块导致腹膜透析导管功能障碍1例

Bulletin de la Dialyse à Domicile Pub Date : 2021-05-07 DOI: 10.25796/BDD.V4I2.61393

E. Bogner, Elodie Ferrero, J. Marín, S. Bataille

引用次数: 0

Feedback on the benefits of remote patient control in Automated Peritoneal Dialysis in a French peritoneal dialysis center. 在法国腹膜透析中心对自动腹膜透析患者远程控制的好处的反馈。

Bulletin de la Dialyse à Domicile Pub Date : 2021-04-07 DOI: 10.25796/BDD.V4I1.60183

Rachel Jager, A. Robles, Philippe Lan Yue Wah

{"title":"Feedback on the benefits of remote patient control in Automated Peritoneal Dialysis in a French peritoneal dialysis center.","authors":"Rachel Jager, A. Robles, Philippe Lan Yue Wah","doi":"10.25796/BDD.V4I1.60183","DOIUrl":"https://doi.org/10.25796/BDD.V4I1.60183","url":null,"abstract":"The COVID-19 pandemic has highlighted the growing role of telemedicine in home dialysis treatments. Since the appearance of a connected automated peritoneal dialysis (APD) machine (Claria Sharesource Baxter® machine), we have systematically offered this solution to our patients treated with APD. Over the past two years, we have treated 35 patients with connected APD, of which 20 are still under the technique (aged 50 to 87) and represent 54% of the patients on peritoneal dialysis. A questionnaire on five subjects (perception of switching to the connected machine, stress, safety, everyday life, and vacations) was also given to them and showed that 80% of the patients had no stress related to the telemonitoring, while 18 out of 20 patients (90%) felt safe. In 2020, we received 74 phone calls during on-call phone duty, including 42 calls for the 20 patients on connected APD, one all for a patient on normal APD, and 32 calls for 16 patients on continuous ambulatory peritoneal dialysis (CAPD). Handling errors concerned 42.85% of the calls, system errors concerned 4.76%, program validation concerned 7.14%, and connection problems concerned 9.52%. We were thus able to correct several problems remotely, such as drainage problems, weight gain, blood pressure imbalance, poor compliance, and connection problems. Thanks to the platform, we are notified daily of a possible problem. This saves the nurses time and allows them to deal with other issues. The way we educate patients and assist private nurses has not changed. Indeed, only the connection to the network as well as the entry of the weight and arterial pressure were added, and the disposables remained the same. \u0000Night or day, or in times of a health crisis, we can provide a rapid and targeted response to the patients’ questions, thanks to the platform.","PeriodicalId":366938,"journal":{"name":"Bulletin de la Dialyse à Domicile","volume":"405 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115993488","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Peritoneal Dialysis Initiation to treat end stage kidney desease during pregnancy. A report of 2 cases. 腹膜透析起始治疗终末期肾脏疾病在怀孕期间。报告2例病例。

Bulletin de la Dialyse à Domicile Pub Date : 2021-02-18 DOI: 10.25796/BDD.V4I1.60673

L. Jacobs, S. Kaysi, M. Mesquita, C. Fosso, A. Carlin, Isabelle Brayer, M. Dratwa

{"title":"Peritoneal Dialysis Initiation to treat end stage kidney desease during pregnancy. A report of 2 cases.","authors":"L. Jacobs, S. Kaysi, M. Mesquita, C. Fosso, A. Carlin, Isabelle Brayer, M. Dratwa","doi":"10.25796/BDD.V4I1.60673","DOIUrl":"https://doi.org/10.25796/BDD.V4I1.60673","url":null,"abstract":"Despite strong evidence suggesting that peritoneal dialysis (PD) is a comparable technique to long-hour hemodialysis (HD) for pregnant patients (11,12), few cases are described in the current literature. Moreover, initiating PD in a pregnant woman needing extrarenal epuration is rarely described if at all. \u0000In this article, we present two cases of patients who initiated PD while being already multiple month pregnant: the first one 14 years ago and the other today. \u0000Our two patients are in their thirties, are respectively 16 and 10 weeks pregnant and have a history of anti-phospholipids syndrome. It was decided to start a PD program with both of them. Our first patient gave birth to a healthy 2.5 kg and 45 cm daughter despite an episode of peritonitis and the freeing of the peritoneal catheter from adherences. Our second patient is currently on dialysis without complications and is now 28 weeks pregnant with a healthy monitored child. \u0000Initiating PD in a pregnant patient is a subject that has not yet been published in the current scientific literature. With higher pregnancy rates than ever in the end stage renal disease population (31), we suggest to assess the objective benefits of PD extrarenal epuration method by performing a prospective comparative study between PD and HD.","PeriodicalId":366938,"journal":{"name":"Bulletin de la Dialyse à Domicile","volume":"122 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127962133","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1