Narrative interviews to assess quality of life in Peritoneal Dialysis

Abstract

It has been found that people undergoing dialysis have a lower quality of life than the rest of the population. The aim of dialysis is to improve physical health, but also well-being. We were interested in the perception of the quality of life of patients undergoing Peritoneal Dialysis. We used the narrative interview method to collect their feelings, their daily experience, and their impressions about their care. We conducted four in-depth interviews, following the principle of theoretical data saturation, with adults treated at the Hospital of Nice. These interviews indicated that Peritoneal Dialysis rapidly improves physical and emotional health. Patients are satisfied with the technique, which allows them to return to a social, familial, and professional life. However, they regret that it does not relieve them of dietary restrictions, especially on salt. Patients appreciate the temporary support of a private nurse, which is systematically offered by our center at the beginning of treatment. They wish the involvement of peers to benefit from their experience, explanations and practical demonstrations. Quality of life is important to assess when choosing a renal replacement technique. Caregivers have to understand patients’ expectations and wishes in order to guide them towards the dialysis modality that suits their lifestyle and preferences best. This will improve treatment outcomes.