Psycho‐Oncology最新文献

{"title":"A caregivers' perspective on social reintegration and stigma of childhood cancer survivors in Kenya.","authors":"Jesse Lemmen, Susan Mageto, Festus Njuguna, Nancy Midiwo, Terry A Vik, Gertjan Kaspers, Saskia Mostert","doi":"10.1002/pon.6345","DOIUrl":"https://doi.org/10.1002/pon.6345","url":null,"abstract":"<p><strong>Objectives: </strong>Childhood cancer survivors' social reintegration may be hampered in low and middle-income countries. The nature and extent of social challenges and prejudices that survivors encounter in such settings are largely unknown. This study explores caregivers' perspectives on social reintegration and stigmatization of Kenyan childhood cancer survivors.</p><p><strong>Methods: </strong>Caretakers of childhood cancer survivors (<18 years) were interviewed using mixed-methods questionnaires during home or clinic visits between 2021 and 2022. Stigma was assessed with an adjusted Social Impact Scale and risk factors were investigated.</p><p><strong>Results: </strong>Caretakers of 54 survivors (median age 11 years) were interviewed. Families' income (93%) decreased since start of treatment. Caretakers (44%) often lost their jobs. Financial struggles (88%) were a burden that provoked conflicts within communities (31%). School fees for siblings became unaffordable (52%). Families received negative responses (26%) and were left or avoided (13%) by community members after cancer disclosure. Survivors and families were discriminated against because the child was perceived fragile, and cancer was considered fatal, contagious, or witchcraft. Survivors repeated school levels (58%) and were excluded from school activities (19%) or bullied (13%). Performance limitations of daily activities (p = 0.019), male sex (p = 0.032), solid tumors (p = 0.056) and a short time since treatment completion (p = 0.047) were associated with increased stigma. Caretakers recommended educational programs in schools and communities to raise awareness about cancer treatment and curability.</p><p><strong>Conclusions: </strong>Childhood cancer survivors and their families experienced difficulties with re-entry and stigmatization in society. Increasing cancer and survivorship awareness in schools and communities should facilitate social reintegration and prevent stigmatization.</p>","PeriodicalId":20779,"journal":{"name":"Psycho‐Oncology","volume":"33 5","pages":"e6345"},"PeriodicalIF":3.6,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140865157","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A pilot randomised controlled trial of acceptance and commitment therapy for medication decision-making and quality of life in women with breast cancer: The ACTION trial.","authors":"Christopher D Graham, Rachel Ellison, Louise H Hall, Jane Clark, Emma McNaught, Sophie M C Green, Hollie Wilkes, Gita Robson, Ian Lorentz, Lucy Holmes, Nicky Bould, Suzanne Hartley, Jay Naik, Sarah Buckley, Charlotte Hirst, Sue Hartup, Robbie Foy, Richard D Neal, Galina Velikova, Amanda Farrin, Michelle Collinson, Samuel G Smith","doi":"10.1002/pon.6349","DOIUrl":"10.1002/pon.6349","url":null,"abstract":"<p><strong>Objective: </strong>Non-adherence to adjuvant endocrine therapy (AET) in women with breast cancer is common and associated with medication side-effects and distress. We co-designed an Acceptance and Commitment Therapy intervention (ACTION) to enhance medication decision-making and quality of life (QoL). We undertook a pilot trial of ACTION to inform the feasibility of a phase III trial, and to examine intervention acceptability.</p><p><strong>Methods: </strong>This was a multi-site, exploratory, two-arm, individually randomised external pilot trial. Women with early breast cancer prescribed AET were randomised (1:1) to receive usual care (UC) or UC + ACTION. The ACTION intervention comprised a remotely delivered one-to-one ACT session followed by three group sessions delivered by clinical psychologists, alongside a website containing ideas for the self-management of side effects.</p><p><strong>Results: </strong>Of the 480 women screened for eligibility, 260 (54.2%) were approached and 79 (30.4%) randomised. 71 (89.9%) women provided data at 3-month and 70 (88.6%) at 6-month 40 women were randomised to receive UC + ACTION and 32 (80.0%) completed the intervention. Most (75.0%) accessed the website at least once. ACTION was acceptable to participants (Borkovec & Nau Scale: mean = 7.8 [SD = 2.7] out of 10). Signals of effectiveness in favour of the UC + ACTION arm were observed for medication adherence (Adherence Starts with Knowledge questionnaire-12), QoL (work and social adjustment scale), health-related QoL (functional assessment of cancer therapy[FACT] general and FACT-ES-19/23), distress (generalised anxiety disorder -7, patient health questionnaire-9) and psychological flexibility (valuing questionnaire).</p><p><strong>Conclusions: </strong>The ACTION intervention was acceptable to patients. There were promising signals for effectiveness on primary and secondary outcomes. A phase III randomised controlled trial is feasible.</p><p><strong>Trial registration: </strong>ISRCTN12027752.</p>","PeriodicalId":20779,"journal":{"name":"Psycho‐Oncology","volume":"33 5","pages":"e6349"},"PeriodicalIF":3.3,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140945721","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Developmental surveillance and screening practices in a pediatric oncology clinic: Initial progress of a quality improvement study.","authors":"Lila M Pereira, Madeline H Bono, Samuel Hilbert","doi":"10.1002/pon.6348","DOIUrl":"https://doi.org/10.1002/pon.6348","url":null,"abstract":"<p><strong>Background: </strong>Pediatric cancer patients' oncology teams regularly take on a primary care role, but due to the urgent nature of cancer treatment, developmental screenings may be deprioritized. This leaves patients at risk of developmental diagnoses and referrals being delayed.</p><p><strong>Aims: </strong>Clarify the current developmental surveillance and screening practices of one pediatric oncology team.</p><p><strong>Materials and methods: </strong>Researchers reviewed charts for patients (n = 66) seen at a pediatric oncology clinic in a suburban academic medical center to determine engagement in developmental screening (including functioning around related areas such as speech, neurocognition, etc.) and referrals for care in these areas.</p><p><strong>Results: </strong>Developmental histories were collected from all patients through admission history and physical examination (H&P), but there was no routinized follow-up. Physicians did not conduct regular developmental screening per American Academy of Pediatrics guidelines for any patients but identified n = 3 patients with needs while the psychology team routinely surveilled all patients seen during this time (n = 41) and identified n = 18 patients as having delays.</p><p><strong>Discussion: </strong>Physicians did not routinely screen for development needs beyond H&P and were inconsistent in developmental follow-up/referrals. Integrated psychologists were key in generating referrals for developmental-based care. However, many oncology patients were not seen by psychologists quickly or at all, creating a significant gap in care during a crucial developmental period.</p><p><strong>Conclusion: </strong>The case is made for further routinization of ongoing developmental screening in pediatric oncology care.</p>","PeriodicalId":20779,"journal":{"name":"Psycho‐Oncology","volume":"33 5","pages":"e6348"},"PeriodicalIF":3.6,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140909127","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Symptoms, concerns, and experiences of women living with and beyond breast cancer in Africa: A mixed-methods systematic review.","authors":"Eme O Asuquo, Kate Absolom, Bassey Ebenso, Mathew J Allsop","doi":"10.1002/pon.6342","DOIUrl":"10.1002/pon.6342","url":null,"abstract":"<p><strong>Objective: </strong>A mixed-methods systematic review to determine reported symptoms, concerns, and experiences of women living with and beyond breast cancer in Africa.</p><p><strong>Methods: </strong>Literature searches were conducted in Medline, Embase, PsycINFO, Global Health, Web of Science, CINAHL, and the Cochrane Library. Quantitative and qualitative studies that comprised study populations of women with breast cancer from countries in Africa, detailing symptoms, concerns, and experiences of living with and beyond breast cancer were included. Inductive framework analysis was applied to organise existing literature with the Adversity, Restoration, and Compatibility framework and quality was assessed using the Mixed Methods Appraisal Tool.</p><p><strong>Results: </strong>In total, 48 studies were included, comprising quantitative (n = 24), qualitative (n = 23) and mixed method (n = 1) studies. Women reported multiple complex and burdensome symptoms at all stages of the breast cancer disease trajectory. Multiple pervasive factors influencing participants' experiences included a lack of cancer knowledge, being removed from decision-making, religion, and the presence and use of traditional medicines. Literature relating to benefit finding, understanding identity for the future, and broader perspectives of well-being was absent.</p><p><strong>Conclusions: </strong>This review contributes insights and mapping of symptoms, concerns, and experiences of women with breast cancer in Africa. There is a great necessity to increase an understanding of the needs and experiences of women with breast cancer in Africa following cancer treatment, stages of remission, and longer-term monitoring and follow-up. This is required to ensure access to prompt and timely clinical and individualized supportive care for women with breast cancer in Africa.</p>","PeriodicalId":20779,"journal":{"name":"Psycho‐Oncology","volume":"33 5","pages":"e6342"},"PeriodicalIF":3.6,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140923027","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Preliminary testing of “roadmap to parenthood” decision aid and planning tool for family building after cancer: Results of a single‐arm pilot study","authors":"Catherine Benedict, Jennifer S. Ford, Lidia Schapira, Alexandra Davis, Pamela Simon, David Spiegel, Michael Diefenbach","doi":"10.1002/pon.6323","DOIUrl":"https://doi.org/10.1002/pon.6323","url":null,"abstract":"ObjectiveMany young adult female cancer survivors need to use reproductive medicine, surrogacy, or adoption to have a child. This study pilot tested <jats:italic>Roadmap to Parenthood</jats:italic>, a web‐based, self‐guided decision aid and planning tool for family building after cancer (disease agnostic).MethodsA single‐arm pilot study tested feasibility, acceptability, and obtained effect size estimates of the Roadmap tool. Participants, recruited via hospital‐based and social media strategies, completed a baseline survey (T1), accessed the Roadmap tool (website), then completed surveys at one‐ and 3‐months (T2 and T3, respectively). Feasibility and acceptability were evaluated with rates of eligibility, enrollment, and survey completion, and feedback. Pairwise <jats:italic>t</jats:italic>‐tests and repeated measures ANOVA evaluated usage effects. Effect size estimates were calculated.ResultsParticipants (<jats:italic>N</jats:italic> = 98) averaged 31 years old (SD = 5.61); 71% were nulliparous. Enrollment rate was 73%, T1‐T2 completion rate was 80%, and 93% accessed the website. From T1‐T2, participants reported improvements in decisional conflict (<jats:italic>p</jats:italic> &lt; 0.001; Cohen's <jats:italic>d</jats:italic> = 0.85), unmet information needs (<jats:italic>p</jats:italic> &lt; 0.001; Cohen's <jats:italic>d</jats:italic> = 0.70), self‐efficacy (<jats:italic>p</jats:italic> = 0.003; Cohen's <jats:italic>d</jats:italic> = 0.40), and self‐efficacy for managing negative emotions (<jats:italic>p</jats:italic> = 0.03; Cohen's <jats:italic>d</jats:italic> = 0.29); effects were sustained at T3. There was no change in reproductive distress (<jats:italic>p</jats:italic> = 0.22). By T3, 94% reported increased consideration of preparatory actions and 20%–61% completed such actions.ConclusionsThe Roadmap intervention was feasible to conduct, acceptable to users, and led to improvements in key psychosocial outcomes. Future directions will test intervention efficacy in a randomized controlled trial with a larger sample and over a longer period. A web‐based tool may help women make decisions about family building after cancer and prepare for potential challenges.","PeriodicalId":20779,"journal":{"name":"Psycho‐Oncology","volume":"16 1","pages":""},"PeriodicalIF":3.6,"publicationDate":"2024-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140617745","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The personal impact of living with a myeloproliferative neoplasm","authors":"A. A. M. Eppingbroek, L. Lechner, E. C. Bakker, M. D. Nijkamp, M. A. de Witte, C. A. W. Bolman","doi":"10.1002/pon.6338","DOIUrl":"https://doi.org/10.1002/pon.6338","url":null,"abstract":"ObjectiveThe aim of this study is to gain insight into the physical, psychological and social impact of having a myeloproliferative neoplasm (MPN), a rare type of cancer with an often chronic course.MethodsAn online survey was conducted among 455 Dutch MPN patients (62.7% female, age <jats:italic>M</jats:italic> 63) to explore the impact of the disease by measuring the MPN symptom burden (MPN‐SAF TSS) and quality of life (QoL) (EORTC QLQ‐C30) and its subscales within a hierarchical QoL model. We examined differences in MPN symptom burden and QoL in relation to sociodemographic and disease‐related factors. Hierarchical regression analysis was used to explain variances in QoL.ResultsMost patients (97%) experienced MPN‐related health complaints, with a significantly higher MPN symptom burden in women (<jats:italic>M</jats:italic> 31.50) compared to men (<jats:italic>M</jats:italic> 24.10). Regarding to fatigue and cognitive functioning MPN patients suffered more compared to a reference group of other cancers. MPN subtype or type of treatment did not show significant differences in MPN symptom burden or QoL. However, experiencing side effects, complications or comorbidities significantly negatively affected MPN symptom burden and QoL. 48.8% of patients reported that MPN affected their ability to work. The explained variance in overall QoL was 58%, most importantly by disease progression, comorbidities, MPN symptom burden and role, emotional and social functioning.ConclusionThis study revealed that having an MPN has a negative impact on several domains of QoL. Symptom assessment and support should be included in the healthcare management of MPN patients.","PeriodicalId":20779,"journal":{"name":"Psycho‐Oncology","volume":"98 1","pages":""},"PeriodicalIF":3.6,"publicationDate":"2024-04-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140601200","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development and validation of the CARE‐FCR: A caregiver‐specific measure of fear of cancer recurrence and progression","authors":"Kyra Webb, Louise Sharpe, Hayley Russell, Joanne Shaw","doi":"10.1002/pon.6341","DOIUrl":"https://doi.org/10.1002/pon.6341","url":null,"abstract":"ObjectivesFear of cancer recurring or progressing (FCR) is a concern reported by people living with cancer and caregivers alike. Whilst advances in survivor FCR have been made, less is known about caregiver FCR. As a result, measurement of caregiver FCR has relied on instruments developed for survivor populations. Findings from qualitative research indicate caregiver experiences of FCR differ. This study aimed to develop and evaluate the psychometric properties of a caregiver specific measure of FCR (CARE‐FCR).MethodsFour‐hundred and thirty‐eight caregivers (56% female, <jats:italic>M</jats:italic><jats:sub>age</jats:sub> = 50.53 years, SD = 17.38) completed the online survey including demographic questions, information about care provided, the person they care for, as well as the CARE‐FCR. Convergent validity was assessed using pre‐existing measures of fear of recurrence and progression, depression, anxiety, death anxiety and meta‐cognitions. The extraversion dimension of the Big Five Personality Trait questionnaire was used to assess divergent validity. The survey was completed 2 weeks later to assess test‐retest reliability. Exploratory factor analysis (EFA) was used to determine factor structure, followed by confirmatory factor analysis.ResultsEFA indicated a 3‐factor structure: progression, recurrence, and communication. Evidence for convergent, divergent, and test‐retest reliability was adequate. Internal consistency for the CARE‐FCR was strong, overall Cronbach's <jats:italic>α</jats:italic> = 0.96 (progression = 0.94, recurrence = 0.92 and communication = 0.78).ConclusionsWe present a theoretically informed and psychometrically robust measure of caregiver FCR. The CARE‐FCR facilitates quantification of caregiver FCR, capturing unique aspects specific to this population.","PeriodicalId":20779,"journal":{"name":"Psycho‐Oncology","volume":"81 1","pages":""},"PeriodicalIF":3.6,"publicationDate":"2024-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140600765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The implementation and mechanisms of advance notification for cancer screening: A scoping review","authors":"Katelyn E. Collins, Larry S. Myers, Belinda C. Goodwin, Alyssa Taglieri‐Sclocchi, Michael J. Ireland","doi":"10.1002/pon.6340","DOIUrl":"https://doi.org/10.1002/pon.6340","url":null,"abstract":"ObjectiveTo describe and synthesise information on the content and delivery of advance notifications (information about cancer screening delivered prior to invitation) used to increase cancer screening participation and to understand the mechanisms that may underlie their effectiveness.MethodsSearches related to advance notification and cancer screening were conducted in six electronic databases (APA PsycINFO, CINAHL, Cochrane Library, Embase, PubMed, Web of Science) and results were screened for eligibility. Study characteristics, features of the advance notifications (cancer type, format, delivery time, and content), and the effect of the notifications on cancer screening participation were extracted. Features were summarised and compared across effective versus ineffective notifications.ResultsThirty‐two articles were included in this review, reporting on 33 unique advance notifications. Of these, 79% were sent via postal mail, 79% were distributed prior to bowel cancer screening, and most were sent 2 weeks before the screening offer. Twenty‐two full versions of the advance notifications were obtained for content analysis. Notifications included information about cancer risk, the benefits of screening, barriers to participation, social endorsement of cancer screening, and what to expect throughout the screening process. Of the 19 notifications whose effect was tested statistically, 68% were found to increase screening (by 0.7%–16%). Effectiveness did not differ according to the format, delivery time, or content within the notification, although some differences in cancer type were observed.ConclusionFuture research should explore the effectiveness of advance notification via alternative formats and for other screening contexts and disentangle the intervention‐ and person‐level factors driving its effect on screening participation.","PeriodicalId":20779,"journal":{"name":"Psycho‐Oncology","volume":"47 10 1","pages":""},"PeriodicalIF":3.6,"publicationDate":"2024-04-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140601174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Is there scope to do better? Clinical communication with adolescents and young adults with cancer—A scoping review","authors":"Deborah J. Critoph, Maria Cable, Jessica Farmer, Helen M. Hatcher, Isla Kuhn, Rachel M. Taylor, Luke A. M. Smith","doi":"10.1002/pon.6317","DOIUrl":"https://doi.org/10.1002/pon.6317","url":null,"abstract":"IntroductionHow to communicate effectively with adolescent and young adults with cancer (AYACs) is a research priority. In a UK‐wide survey of young people with cancer's research priorities, communication was a striking cross‐cutting theme. It is increasingly recognised that AYACs have experiences and communication needs that differ significantly from those of younger children and older adults. The purpose of this review is to explore the features of effective clinical communication with AYACs.MethodsA literature search was undertaken to identify and map the available evidence using a broad scope to get an overview of the pertinent literature, identify knowledge gaps and clarify concepts. The searches yielded 5825 records, generating 4040 unique articles. These were screened and 71 full articles were read by four researchers with disagreements resolved by discussion leaving 29 included articles. Narrative synthesis was undertaken in relation to each of the research questions.ResultsThree key themes were identified: being an adolescent/young adult, supporters, and healthcare professionals (HCPs). AYACs need to feel that HCPs understand their unique perspective. They want to be involved, this changes over time and in different contexts. Supporters are a central tenet, are most often parents and undertake several roles which are not always universally supportive. HCPs enable involvement of AYACs, and this needs to be actively promoted. AYACs preference for their level of involvement requires continual assessment. The three themes are interlinked and exist within the wider scope of the triadic encounter and cancer experience.ConclusionSupporters, most often parents were a key feature across the data and were seemingly paradoxical in nature. Triadic communication, the presence of a third person, is a central tenet of communication with AYACs and we propose a conceptual model to represent the nuances, components, and facets of this complex communication.","PeriodicalId":20779,"journal":{"name":"Psycho‐Oncology","volume":"5 1","pages":""},"PeriodicalIF":3.6,"publicationDate":"2024-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140600848","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘Just Google it’—A scoping review of online mental health resources for survivors of breast cancer","authors":"Natalie Tuckey, Matthew Iasiello, Nadia Corsini, Bogda Koczwara, Monique Bareham, Amy Wellalagodage, Hannah R. Wardill","doi":"10.1002/pon.6337","DOIUrl":"https://doi.org/10.1002/pon.6337","url":null,"abstract":"ObjectiveAs the Internet is a ubiquitous resource for information, we aimed to replicate a patient's Google search to identify and assess the quality of online mental health/wellbeing materials available to support women living with or beyond cancer.MethodsA Google search was performed using a key term search strategy including search strings ‘cancer’, ‘wellbeing’, ‘distress’ and ‘resources’ to identify online resources of diverse formats (i.e., factsheet, website, program, course, video, webinar, e‐book, podcast). The quality evaluation scoring tool (QUEST) was used to analyse the quality of health information provided.ResultsThe search strategy resulted in 283 resources, 117 of which met inclusion criteria across four countries: Australia, USA, UK, and Canada. Websites and factsheets were primarily retrieved. The average QUEST score was 10.04 (highest possible score is 28), indicating low quality, with 92.31% of resources lacking references to sources of information.ConclusionsOur data indicated a lack of evidence‐based support resources and engaging information available online for people living with or beyond cancer. The majority of online resources were non‐specific to breast cancer and lacked authorship and attribution.","PeriodicalId":20779,"journal":{"name":"Psycho‐Oncology","volume":"57 1","pages":""},"PeriodicalIF":3.6,"publicationDate":"2024-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140600644","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}