Journal of pediatric rehabilitation medicine最新文献_第4页

Management and treatment of musculoskeletal problems in adults with cerebral palsy: Experience gained from two lifespan clinics. 成人脑瘫患者肌肉骨骼问题的管理和治疗：从两家寿命诊所获得的经验。

IF 1.9

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-240018

Mark Katsma, Haiqing Liu, Xiaoyu Pan, Kyle J Ryan, David P Roye, Henry G Chambers

引用次数: 0

Making medical missions your mission. 让医疗任务成为你的使命

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-249003

Virginia Simson Nelson

引用次数: 0

"Tremendous burdens often unveil enormous gifts": The experiences of South African caregivers implementing speech and language teletherapy for children with cerebral palsy during COVID-19. "巨大的负担往往揭示了巨大的天赋"：南非护理人员在 COVID-19 期间为脑瘫儿童实施言语和语言远程治疗的经验。

IF 1.9

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-220118

Gabriela Evangelou, Skye Nandi Adams

{"title":"\"Tremendous burdens often unveil enormous gifts\": The experiences of South African caregivers implementing speech and language teletherapy for children with cerebral palsy during COVID-19.","authors":"Gabriela Evangelou, Skye Nandi Adams","doi":"10.3233/PRM-220118","DOIUrl":"10.3233/PRM-220118","url":null,"abstract":"Purpose: In accordance with South Africa's restrictions to mitigate the spread of COVID-19, some speech-language pathologists (SLPs) attempted to engage in novice teletherapy regimes to ensure continuity of care for children with cerebral palsy (CP). This study aimed to explore the experiences of caregivers of children with CP implementing SLP teletherapy during COVID-19 in South Africa. The goal was to shed light on how these families can be better supported and how teletherapy practices can be adjusted for this population.Methods: This study employed a qualitative phenomenological research design using in-person and virtual semi-structured interviews with 18 purposively sampled participants with children with CP who received speech and language teletherapy during COVID-19. The data was evaluated using an inductive thematic analysis approach whereby themes elicited from the caregivers' narratives were analyzed.Results: Interviews (n = 18) unveiled the significant understanding caregivers gained by becoming integral and active stakeholders in the provision of teletherapy. Caregivers were able to meaningfully communicate and bond with their children with CP. However, caregivers also assumed the burden that teletherapy placed on them, as they had to renegotiate their role during the pandemic in order to provide routine teletherapy.Conclusion: Findings indicated the need for person-centered SLP teletherapy interventions that utilize contextually and culturally responsive techniques and resources.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"85-96"},"PeriodicalIF":1.9,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10977356/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139513089","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Clinical outcomes measurement in pediatric lower limb prosthetics: A scoping review. 小儿下肢假肢的临床效果测量：范围综述。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-230014

Kevin D Koenig, Michelle J Hall, Caroline Gormley, Mary Kaleta, Meghan Munger, Jennifer Laine, Sara J Morgan

{"title":"Clinical outcomes measurement in pediatric lower limb prosthetics: A scoping review.","authors":"Kevin D Koenig, Michelle J Hall, Caroline Gormley, Mary Kaleta, Meghan Munger, Jennifer Laine, Sara J Morgan","doi":"10.3233/PRM-230014","DOIUrl":"10.3233/PRM-230014","url":null,"abstract":"Objective: This study aimed to identify clinical measures that have been used to evaluate function, health related quality of life (HRQoL), and/or satisfaction in children who use lower limb prostheses (LLP). The data reported on psychometric properties for children who use LLP were collected for each measure.Methods: First, PubMed, CINAHL, and Web of Science databases were searched using broad search terms to identify standardized outcome measures of function, HRQoL, and/or satisfaction with treatment used in pediatric LLP research published in 2001 or after. For each of the eligible measures found, a second search was performed to identify psychometric properties (e.g., validity, reliability) assessed with children who use LLP.Results: Forty-four standardized outcome measures were identified from 41 pediatric LLP research articles. Five measures (i.e., Gait Outcomes Assessment for Lower Limb Differences, Functional Mobility Assessment, Child Amputee Prosthetics Project- Prosthesis Satisfaction Inventory, Child Amputee Prosthetics Project- Functional Scale Index, and Lower Limb Function Questionnaire) had data on psychometric properties for children who use LLP.Conclusions: Few studies report psychometric data for assessing the overall HRQoL, function, and/or satisfaction for children who use LLP. Further research is needed to validate or create new outcome measures that assess the HRQoL, satisfaction, and/or function of children who use LLP.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"147-165"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11307020/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140012776","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Effectiveness of simple and basic home-based exercise programs including pediatric massage executed by caregivers at their homes in the management of children with spastic cerebral palsy: A randomized controlled trial. 简单而基本的家庭锻炼计划（包括由护理人员在家中实施的小儿按摩）在治疗痉挛性脑瘫儿童方面的效果：随机对照试验。

IF 1.9

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-220135

Qamar Mahmood, Shaista Habibullah, Hazrat Ullah Aurakzai

{"title":"Effectiveness of simple and basic home-based exercise programs including pediatric massage executed by caregivers at their homes in the management of children with spastic cerebral palsy: A randomized controlled trial.","authors":"Qamar Mahmood, Shaista Habibullah, Hazrat Ullah Aurakzai","doi":"10.3233/PRM-220135","DOIUrl":"10.3233/PRM-220135","url":null,"abstract":"Purpose: This study aimed to assess the effectiveness of simple and basic home-based exercise programs (HEPs), including pediatric massage (PM), executed by caregivers at their homes in the management of children with spastic cerebral palsy (CP).Methods: Sixty-eight children with spastic CP (diplegia) aged 4-12 years were randomly assigned to PM and HEP groups for a randomized controlled trial continuing from November 01, 2021 to June 2022. Parents provided home-based exercises to both groups, five times a week for 12 weeks. However, the PM group was additionally provided with PM. Modified Ashworth Scale (MAS), Gross Motor Function Measure (GMFM-88) and Gross Motor Function Classification System (GMFCS) were used for evaluation of spasticity and gross motor activity at baseline as well as after six and 12 weeks of intervention. Comparative analysis of data was carried out with SPSS-20.Results: Mean age in HEP and PM groups was 6.65±2.12 and 7.09±2.22 years respectively. Data revealed homogeneity of both groups at the beginning of study. The PM group showed a statistically significant decrease in MAS scores after six and 12 weeks of intervention (p < 0.05) when compared with the HEP group, but similar changes did not happen in GMFM scores and GMFCS levels. However, comparative analysis revealed statistically significant change in GMFM scores and GMFCS levels (p < 0.05) when compared from baseline to 12 weeks of intervention in both groups.Conclusion: PM along with HEPs can be used effectively to reduce spasticity and to improve gross motor ability if performed for a period of at least six and 12 weeks respectively. In conjunction with HEPs, PM has better outcomes in the management of tone and movement disorders of spastic CP than HEPs alone.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"97-106"},"PeriodicalIF":1.9,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10977413/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140012777","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Clinical feeding assessment: An effective screening test to predict aspiration in children in low resource settings. 临床喂养评估：在资源匮乏的环境中预测儿童误吸的有效筛查测试。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-220052

Vijeyta Dahiya, Naina Picardo, Ramanadham Thejesh, Mary John, Ajoy Mathew Varghese

{"title":"Clinical feeding assessment: An effective screening test to predict aspiration in children in low resource settings.","authors":"Vijeyta Dahiya, Naina Picardo, Ramanadham Thejesh, Mary John, Ajoy Mathew Varghese","doi":"10.3233/PRM-220052","DOIUrl":"10.3233/PRM-220052","url":null,"abstract":"Objective: Diagnosis and management of swallowing problems in children is crucial for improvement of their health status and quality of life. This study aimed to determine the accuracy of clinical feeding assessment (CFA) as a screening test to detect aspiration in children using fibreoptic endoscopic evaluation of swallowing (FEES) as the gold standard.Methods: A prospective study of 80 children aged below 16 years who were referred to a paediatric otolaryngology clinic for swallowing complaints was completed from 2019 to 2020. Swallowing was assessed by both CFA and FEES. Presence of any one of the following symptoms was considered positive for aspiration in CFA: cough, wet vocal quality, and respiratory distress. Aspiration on FEES was measured using the Penetration Aspiration Scale. The clinical predictors of aspiration were analysed.Results: The majority of the children (78.8%) had an associated neurological condition, with cerebral palsy being the most common. CFA had a sensitivity ranging from 80% to 100% and a specificity ranging from 68% to 79% for predicting true aspiration for different food consistencies. The significant risk factors predicting aspiration (p value <0.05) were history of prior intubation (p = 0.009), history of nasal regurgitation (p = 0.002) and spasticity on examination (p = 0.043).Conclusion: This study showed that CFA can be used as a screening test in evaluation of paediatric dysphagia. In those with negative CFA, the chances of aspiration are less while those with positive CFA need further evaluation. In addition, the availability and cost-effectiveness of the test make it a good tool for screening aspiration in low-resource settings.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"211-219"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11307002/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41115608","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Erratum to: 2023 updates to the spina bifida transition to adult care guidelines. 勘误：脊柱裂过渡到成人护理指南的 2023 年更新。

IF 1.9

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-249001

引用次数: 0

Medical delivery without representation?: Examining disability representation within the healthcare community. 没有代表的医疗服务？研究医疗界中的残疾人代表。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-240013

Justin Ramsey, Christopher Raffi Najarian

引用次数: 0

Qualitative feedback from caregivers in a multidisciplinary pediatric neuromuscular clinic. 多学科儿科神经肌肉诊所护理人员的定性反馈。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-230011

Skylar M Hess, Dorothy Adu-Amankwah, Cordelia R Elaiho, Liam R Butler, Sheena C Ranade, Brijen J Shah, Kristin Shadman, Robert Fields, Elaine P Lin

{"title":"Qualitative feedback from caregivers in a multidisciplinary pediatric neuromuscular clinic.","authors":"Skylar M Hess, Dorothy Adu-Amankwah, Cordelia R Elaiho, Liam R Butler, Sheena C Ranade, Brijen J Shah, Kristin Shadman, Robert Fields, Elaine P Lin","doi":"10.3233/PRM-230011","DOIUrl":"10.3233/PRM-230011","url":null,"abstract":"Objective: This study explored family satisfaction and perceived quality of care in a pediatric neuromuscular care clinic to assess the value of the multidisciplinary clinic (MDC) model in delivering coordinated care to children with neuromuscular disorders, such as cerebral palsy.Methods: Caregivers of 22 patients were administered a qualitative survey assessing their perceptions of clinic efficiency, care coordination, and communication. Surveys were audio-recorded and transcribed. Thematic analysis was completed using both deductive and inductive methods.Results: All caregivers reported that providers adequately communicated next steps in the patient's care, and most reported high confidence in caring for the patient as a result of the clinic. Four major themes were identified from thematic analysis: Care Delivery, Communication, Care Quality, and Family-Centeredness. Caregivers emphasized that the MDC model promoted access to care, enhanced efficiency, promoted provider teamwork, and encouraged shared care planning. Caregivers also valued a physical environment that was suitable for patients with complex needs.Conclusion: This study demonstrated that caregivers believed the MDC model was both efficient and convenient for pediatric patients with neuromuscular disorders. This model has the potential to streamline medical care and can be applied more broadly to improve care coordination for children with medical complexity.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"237-246"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11306999/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140012779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors influencing caregiver buy-in to early intervention physical therapy. 影响护理人员接受早期干预物理治疗的因素。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-230025

Andrea Fergus, Carlee Wyker, Nicole Heyl, Tayler Lewis, Katherine Hartsook

{"title":"Factors influencing caregiver buy-in to early intervention physical therapy.","authors":"Andrea Fergus, Carlee Wyker, Nicole Heyl, Tayler Lewis, Katherine Hartsook","doi":"10.3233/PRM-230025","DOIUrl":"10.3233/PRM-230025","url":null,"abstract":"Objective: The family-centered care framework of Early Intervention (EI) has shifted the focus toward caregiver engagement, but the underlying processes that build this are unknown. The aims of this study were 1) to describe the process of caregiver engagement in therapy and (2) to identify factors perceived to influence caregiver buy-in, confidence, and engagement in EI.Methods: This preliminary descriptive study utilized quantitative questionnaires and qualitative semi-structured interviews of EI participants (23 caregivers and four physical therapists). Interviews were transcribed and theme coded until saturation was achieved and a concept map was developed.Results: All caregivers believed that their children benefited from EI, that they were empowered and confident in caring for their children, and their quality of life improved based on the quantitative data. The qualitative data revealed that building a rapport and therapeutic relationship is the foundation to developing buy-in. Reciprocal communication is critical to the relationship and the buy-in. Caregiver knowledge and awareness of progress foster caregiver buy-in and confidence once the relationship is established.Conclusion: Improved understanding of the factors influencing the development of buy-in will provide a framework for the clinician to enhance caregiver buy-in. Enhanced buy-in may promote parental engagement and improved outcomes for the child and family.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"221-235"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11307095/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139513090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0