Journal of pediatric rehabilitation medicine最新文献

{"title":"Use of sensory dynamic orthosis in paediatric neuromuscular scoliosis: A pilot single-group pre-post study.","authors":"Idoia Gandarias-Mendieta, María Galán-Olleros, Carmen Martínez-González, Rosa M Egea-Gámez, Ignacio Martínez-Caballero","doi":"10.1177/18758894261469491","DOIUrl":"10.1177/18758894261469491","url":null,"abstract":"<p><p>IntroductionNeuromuscular scoliosis (NMS) in children poses significant challenges, including postural instability, pain, mobility limitations, and respiratory issues. Sensory dynamic orthosis (SDO) garments provide dynamic compression and proprioceptive feedback aimed at improving alignment and function. This pilot study explored the feasibility and preliminary effectiveness of SDO garments in the management of NMS.MethodsA single-group pre-post, multicentre pilot study was conducted in 30 paediatric patients who used the SDO® Advanced orthosis for six months. Radiographic outcomes (Cobb angle, coronal balance, pelvic obliquity) and functional assessments (FLACC-R scale, Barthel Index) were recorded at baseline and after the intervention. Caregiver-reported satisfaction and perceived functional changes were gathered through a custom-designed questionnaire.ResultsOf the 30 participants, 25 completed the study (median age 13 [IQR 10-15]). Statistically significant within-subject reductions in Cobb angle were observed during SDO use at baseline (median difference -2.6°, p<0.001) and at final evaluation (median paired difference -4.0°, p<0.001). Similar within-subject improvements in coronal balance were observed at both time points (baseline median paired difference -2.1 cm, p<0.001; final -1.8 cm, p=0.005). Pelvic obliquity and Barthel Index scores showed no significant changes. Most caregivers reported slight to moderate improvements in functional domains and high satisfaction. No serious adverse events were observed, and adherence was high.ConclusionsThis pilot study suggests that SDO garments may contribute to short-term postural spinal alignment and balance during wear and perceived functional benefits in children with NMS. These preliminary findings support further research through controlled trials with longer follow-up to clarify clinical relevance and durability of effects.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894261469491"},"PeriodicalIF":1.0,"publicationDate":"2026-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13439002/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148447374","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Functional outcomes of children after SARS-CoV-2 infection: An EHR-based cohort study.","authors":"Abigail Case, Morgan Botdorf, Nicole Marchesani, John E Leikauf, Rebecca Letts, Christine Maughan, Megan L Fitzgerald, Miranda Higginbotham, Aparna C Swaminathan, David Liebovitz, Deepika Thacker, Dima Dandachi, Jennifer A Muszynski, Kari Wellnitz, Nathan M Pajor, Ravi Jhaveri, Sandy L Gonzalez, Suchitra Rao","doi":"10.1177/18758894261460624","DOIUrl":"10.1177/18758894261460624","url":null,"abstract":"<p><p>BackgroundClinical manifestations of the post-acute sequelae of SARS-CoV-2, or long COVID, have been well-described. However, few pediatric studies explore the impact on everyday function. The objective was to describe functional outcomes for children and youth with long COVID.MethodsA retrospective cohort study of individuals < 21 years of age with COVID-19 infection seeking care at 21 children's hospitals across the United States was conducted. Using a systematic chart review, children with confirmed long COVID were identified by clinician adjudication between March 2020 and December 2022. Outcomes were compared to children with COVID-19 infection without confirmed long COVID. Functional impairments included difficulty participating in school and extracurricular activities, new referrals to rehabilitative therapies, newly modified education plans, and new or worsening mental health symptoms. Descriptive statistics and logistic regression were used to evaluate these outcomes among children with and without long COVID.ResultsAmong 686 children with completed chart review, 651 (95%) had a COVID-19 diagnosis. Functional impairment was documented in 139 (21%) children, of which 59 had clinician-adjudicated long COVID. Compared to infected children without long COVID, children with long COVID had higher odds of school decline (OR 3.5, 95% CI 1.6-7.9, <i>p</i> = 0.002), school support (OR 2.4, 95% CI 1.2-5.0, <i>p</i> = 0.014), and new or worsening behavioral or mental health symptoms (OR 4.6, 95% CI 2.1-9.2, <i>p</i> < 0.001).ConclusionsSignificant functional impairments exist among children and youth following SARS-CoV-2 infection and serve as a reminder to clinicians evaluating children with long COVID to explore everyday function. Future prospective studies with longer follow-up are underway.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894261460624"},"PeriodicalIF":1.0,"publicationDate":"2026-07-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13438835/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148436804","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"It's okay to not be okay.","authors":"Jeremy Roberts, Denesh Ratnasingam, Megan Machek","doi":"10.1177/18758894261466054","DOIUrl":"10.1177/18758894261466054","url":null,"abstract":"<p><p>There are many obstacles that might be faced throughout medical training. We present three personal experiences (dealing with physical, family, and mental health) that led to significant challenges during our medical school, residency, and fellowship training. Afterwards, we describe different strategies and resources for medical trainees and professionals to overcome these personal and family challenges.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894261466054"},"PeriodicalIF":1.0,"publicationDate":"2026-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13438521/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148391070","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Response to \"Advancing mechanistic interpretation of diaphragmatic interventions in children with cerebral palsy\".","authors":"Berna Karamancıoğlu, Özge Keniş Coşkun, Ela Erdem-Eralp, Yasemin Gökdemir, Evrim Karadag-Saygı","doi":"10.1177/18758894261463111","DOIUrl":"10.1177/18758894261463111","url":null,"abstract":"","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894261463111"},"PeriodicalIF":1.0,"publicationDate":"2026-06-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13438072/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148302207","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessing and categorizing health-related quality of life outcomes in children and youth with acquired brain injury in outpatient rehabilitation.","authors":"Florian Allonsius, Celine de Mooij, Arend de Kloet, Frederike van Markus-Doornbosch, Menno van der Holst","doi":"10.1177/18758894261460617","DOIUrl":"10.1177/18758894261460617","url":null,"abstract":"<p><strong>Introduction: </strong>Young patients with acquired brain injury (ABI) often report diminished health-related quality of life (HRQoL) compared to healthy peers. Yet, this has not been investigated in a large multicenter outpatient-rehabilitation based cohort. Furthermore, a clear way to categorize HRQoL to better interpret scores is lacking, though this could be valuable for clinical use (i.e., for comparison with other populations).</p><p><strong>Methods: </strong>This cross-sectional study used the PedsQL™ Generic Core Scales 4.0 questionnaire with 23 items to assess patients' HRQoL, where lower scores mean a more diminished HRQoL. Children (8-12 years), adolescents (13-17 years), and young adults (18-25 years) with ABI, referred to a Dutch rehabilitation center, were included. Patient characteristics were analyzed using descriptive statistics and mean (standard deviation [SD]). HRQoL scores were calculated per age group and subsequently categorized using reference data(means, SDs) from healthy peers. HRQoL was categorized as 1 ('better HRQoL than healthy peers', > + 1SD), 2 ('comparable HRQoL', -1SD to +1SD), 3 ('moderately diminished HRQoL', -1SD to -2SD), or 4 ('severely diminished HRQoL', < -2SD).</p><p><strong>Results: </strong>Four hundred twenty-six young patients (aged 8-25 years) with ABI participated in the study; 233 were female (54.7%), and 334 had a diagnosis of traumatic brain injury (78.4%). Children, adolescents, and young adults had mean (SD) HRQoL total scores below age-specific Dutch healthy peer normative means (62.98 [14.39], 62.86 [16.82], and 59.34 [18.46], respectively). Based on the SD-based categorization using healthy peer reference data, 59% of children (55/93), 52% of adolescents (147/282), and 61% of young adults (31/51) were categorized in Category 4 ('severely diminished HRQoL' < -2SD relative to age-specific Dutch healthy peer norms).</p><p><strong>Conclusion: </strong>Measuring and categorizing HRQoL in outpatient rehabilitation may facilitate clinically meaningful interpretation of PedsQL scores by benchmarking to healthy peers, supporting shared decision-making at referral in young patients with ABI.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894261460617"},"PeriodicalIF":1.0,"publicationDate":"2026-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13438772/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148264728","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Lorazepam for post-operative pediatric cerebellar mutism syndrome: A case report.","authors":"Son Nguyen, Denesh Ratnasingam, Kimberly C Hartman","doi":"10.1177/18758894261461379","DOIUrl":"10.1177/18758894261461379","url":null,"abstract":"<p><p>Case DiagnosisAn 11-year-old male with medulloblastoma underwent gross total resection of a posterior fossa tumor, complicated by post-operative pediatric cerebellar mutism syndrome (ppCMS), exhibiting mutism, emotional dysregulation, impaired volitional movement initiation, and ataxia.Case DescriptionWhile ppCMS's pathophysiology remains incompletely understood, prevailing hypotheses implicate cerebellothalamocortical dysregulation, functional diaschisis, and inhibitory-excitatory network imbalance. This case explores the use of lorazepam, a benzodiazepine that enhances GABA-A receptor activity, as a potential neuromodulator to facilitate recovery in ppCMS.SettingTertiary care children's hospital.Assessments/ResultsPharmacologic trials with bromocriptine, risperidone, and gabapentin yielded minimal benefit. However, administration of intranasal midazolam (5 mg) during radiation simulation resulted in transient resolution of mutism and improved initiation of movement. Based on this response, lorazepam (2 mg daily, 0.06 mg/kg) was initiated, leading to sustained improvements in speech, motor function, and therapy participation. Functional outcome assessments, including the WeeFIM, revealed a 40-unit gain within one week of lorazepam initiation compared to a 1-unit gain in the preceding week. Immediate regression was noted upon medication discontinuation and reintroduction resulted in subsequent recovery.Discussion/RelevanceThe differential response to benzodiazepines compared to other medications suggests potential for inhibitory-excitatory network imbalances. Future research should explore whether less sedating benzodiazepines, such as clobazam, or other GABAergic modulators could provide similar benefits without the cognitive side effects associated with lorazepam.ConclusionsThere is compelling evidence that benzodiazepine-mediated GABAergic modulation may facilitate CMS recovery by restoring cerebellothalamocortical network function. The observed improvements in motor initiation and speech fluency underscore the potential for pharmacologic neuromodulation as an adjunct to traditional rehabilitative therapies.An 11-year-old male with medulloblastoma underwent gross total resection of a posterior fossa tumor, complicated by ppCMS, exhibiting mutism, emotional dysregulation, impaired volitional movement initiation, and ataxia. Amid ongoing neurorehabilitation, a pharmacologic trial with lorazepam led to a reproducible improvement in speech and engagement. Though transient, the response suggested reversible disruption within functional circuits rather than fixed structural damage. This case report uncovers latent functional capacity in ppCMS, which can help distinguish ppCMS from other overlapping neurologic or psychiatric conditions throughout the course of rehabilitation.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894261461379"},"PeriodicalIF":1.0,"publicationDate":"2026-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13438969/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148258495","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Acute effect of hippotherapy applied on different sitting surfaces in children with special needs.","authors":"Gonul Ertunc Gulcelik, Ebru Sever, Burak Atalay, Emirhan Dursun, Irem Memisoglu","doi":"10.1177/18758894261423727","DOIUrl":"10.1177/18758894261423727","url":null,"abstract":"<p><p>PurposeThis study aimed to assess the acute effects of hippotherapy performed on different seating surfaces on sitting balance and walking speed in children with special needs.Materials and MethodsChildren aged 3-18 years with special needs were included. Participants were assigned to three groups: Group 1 (Saddle), Group 2 (No saddle, direct horse contact), and Group 3 (Saddle with additional texture material). Each group received a 30-min hippotherapy session in a riding arena. Sitting balance was measured with the BeCure balance system, and walking speed was assessed using the 10-meter walk test before and immediately after the session.ResultsNo significant improvement was found in sitting balance in any group after the intervention. However, Group 3 showed increased walking speed compared to Groups 1 and 2. Intergroup comparisons showed no statistically significant differences in sitting balance or walking speed.ConclusionDifferent texture materials used on saddles may provide more noticeable acute effects in hippotherapy. Future research should involve larger sample sizes and explore subacute and long-term outcomes.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"134-140"},"PeriodicalIF":1.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292742/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147344459","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pediatrician reported experiences of transitioning adolescents with disabilities.","authors":"Amy J Houtrow, William H Burr, Chloe A Somberg, Dennis Z Kuo, Garey H Noritz, Carolyn C Foster","doi":"10.1177/18758894261432778","DOIUrl":"10.1177/18758894261432778","url":null,"abstract":"<p><p>PurposeDespite knowing that adolescents with disabilities face substantial barriers transitioning from pediatric to adult health care, little is known about how pediatricians experience transition-related tasks for their patients with disabilities.MethodsThe 2023 American Academy of Pediatrics (AAP) Periodic Survey utilized a cross-sectional random sample of post-trainee, non-retired, US-based AAP members to derive a nationally representative sample. Several questions related to transition services were compared. Data were weighted for non-response bias. Only AAP staff conducting the statistics had access to the non-anonymized data.ResultsOver half of the pediatricians reported discussing consent for care (56.3%), assisting with referrals to adult care (56.5%) and providing anticipatory guidance about sexual health and development (52.7%) to most or all adolescents with disabilities. In addition, 22.7% reported providing all four transition services to most or all of their adolescent patients with disabilities. A majority identified barriers that impeded successful transition of their patients with disabilities.ConclusionWhile many pediatricians engaged in a variety of transition-related activities for their adolescent patients with disabilities, they also identified numerous barriers. These findings underscore the importance of addressing both the practice and system level barriers that limit pediatricians' abilities to provide transition services for their patients with disabilities.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"141-144"},"PeriodicalIF":1.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292743/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147486293","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Coping experiences in child and adolescent rehabilitation through a novel device: A multi-method feasibility study.","authors":"Elisabeth Ørskov Rotevatn, Nina Elisabeth Hjorth, Emilie Stensaker Paz, Louise Sandal Løkeland, Frode Guribye, Lars Jørgen Rygh, Mette Engan","doi":"10.1177/18758894261424016","DOIUrl":"10.1177/18758894261424016","url":null,"abstract":"<p><p>PurposeThis study aimed to explore the feasibility and user experience of Grasp, a novel digital tool designed to register coping experiences during paediatric rehabilitation, and to examine perceived impact on reflection and sense of mastery.MethodsChildren and adolescents aged 8-16 years, their parents, and healthcare professionals in paediatric rehabilitation participated. Those participating were instructed to squeeze Grasp when experiencing mastery or coping during activities. Data were visualised and discussed during the end-of-stay summary meeting. A multi-method design was applied, integrating data logs, questionnaires, and semi-structured interviews to capture measurable indicators and in-depth perspectives.ResultsTwenty-three children and adolescents with parents and healthcare professionals were included. Recruitment rate was 100% and retention 96%. All participants used the device and software (median registrations 19, range 4-80). The majority found Grasp easy to use (71%), enjoyable (61%), and motivating (89%). Healthcare professionals reported that data provided valuable insights into children's coping experiences. Interviews identified two main themes: (a) coping registration with Grasp was feasible, and (b) Grasp seemed to facilitate self-efficacy and reflection.ConclusionRegistering coping experiences through Grasp was feasible and well-received in paediatric rehabilitation. For some, it appeared to strengthen reflection and sense of mastery, potentially enhancing self-efficacy.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"123-133"},"PeriodicalIF":1.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292747/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147344440","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Self-perceived fatigue in relation to activity and participation in adolescents and adults with cerebral palsy living in urban South Africa.","authors":"Nelleke Gertrude Langerak, Roshaan Salie, Kirsten Ann Donald, Anthony Graham Fieggen, Maaike Maria Eken","doi":"10.1177/18758894251406431","DOIUrl":"10.1177/18758894251406431","url":null,"abstract":"<p><p>PurposeUnderstanding the level of fatigue experienced by adolescents and adults with cerebral palsy (CP) in low- and middle-income countries is crucial, as it can inform healthcare workers in the assessment, prevention, and management of fatigue for these individuals, similar to the approach taken in high-income countries. This study aimed to determine self-perceived fatigue and the level of accomplishments and satisfaction of activities and participation in daily life in adolescents and adults with CP compared with typically developing (TD) peers living in urban South Africa. The study also examined whether the outcome measures were associated within the CP cohort.MethodsThis case-control study included 31 adolescents and 30 adults with CP and TD peers matched for age, sex, and socio-economic status. Participants completed the Fatigue Severity Scale and Life-Habits Questionnaire.ResultsSelf-perceived fatigue was reported in 14/31 adolescents with CP, 6/31 TD adolescents, 9/30 adults with CP, and 8/30 TD peers. No differences in fatigue were observed between adults or adolescents with CP and TD peers. However, accomplishment and satisfaction scores were lower for adolescents (p < 0.001 and p = 0.016, respectively) and adults with CP (both p < 0.001) compared to TD peers.ConclusionsIndividuals with CP living in urban South Africa reported similar levels of fatigue as TD peers. Despite limitations in accomplishing life habits, adolescents and adults with CP reported to be independent in their daily activities and satisfied with their community participation, which was unrelated to fatigue.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"91-100"},"PeriodicalIF":1.0,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292748/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145810632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}