Journal of pediatric rehabilitation medicine最新文献_第2页

Navigating the challenges of moving from research to clinical care: The example of the Teen Online Problem Solving program. 引导从研究到临床护理的挑战：青少年在线问题解决计划的例子。

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Journal of pediatric rehabilitation medicine Pub Date : 2026-08-01 Epub Date: 2026-06-16 DOI: 10.1177/18758894261434357

Sandra Glazer, KellyAnn Bonanno, Lisa Gies, Lindsay Cirincione, Emily L Moscato, Adrien M Winning, Sophie Leib, Cynthia Austin, Marie Van Tubbergen, Abigail Johnson, Dina Hankin, Kelly McNally, Shari L Wade

{"title":"Navigating the challenges of moving from research to clinical care: The example of the Teen Online Problem Solving program.","authors":"Sandra Glazer, KellyAnn Bonanno, Lisa Gies, Lindsay Cirincione, Emily L Moscato, Adrien M Winning, Sophie Leib, Cynthia Austin, Marie Van Tubbergen, Abigail Johnson, Dina Hankin, Kelly McNally, Shari L Wade","doi":"10.1177/18758894261434357","DOIUrl":"10.1177/18758894261434357","url":null,"abstract":"Purpose/Objective:The pathway from clinical trials to implementation is lengthy and often unsuccessful. Thus, identifying strategies that promote clinical implementation is necessary. The Framework for Reporting Adaptations and Modifications-Enhanced was employed to characterize adaptations to the Teen Online Problem Solving program (TOPS). The aim was to broaden program reach and adoption by aligning TOPS with the needs of the implementation context, extending delivery to a broader range of pediatric neurological conditions. Method: Providers completed surveys about commonly experienced neurocognitive challenges across diagnoses. Therapists delivering the program to non-traumatic brain injury (TBI) diagnoses were surveyed about their experiences. Reach to non-TBI diagnoses and adoption by therapists treating other diagnoses provided metrics of implementation impact. Results: Medical providers rated cognitive/communication issues as most common and identified physical limitations, concentration/attention problems, learning/school difficulties, planning/organization, and processing speed as top concerns. Twenty-five psychologists/trainees ranked the child's current neurocognitive challenges, mood and behavior concerns, and developmental level as the most important considerations for tailoring, with diagnosis ranked seventh. Of 828 patients enrolled, 354 had non-TBI diagnoses, and 245 had TBI. Four case studies illustrate adaptations. Conclusions/Implications: Findings suggest that transdiagnostic adaptation of evidence-based pediatric psychology programs may be acceptable to clinicians and facilitate broader implementation.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"281-292"},"PeriodicalIF":1.0,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13442698/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148264738","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Growing stronger: Nine decades of physical disability representation in children's media and implications for pediatric rehabilitation. 成长壮大：90年的身体残疾代表在儿童媒体和对儿童康复的影响。

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Journal of pediatric rehabilitation medicine Pub Date : 2026-08-01 Epub Date: 2026-04-09 DOI: 10.1177/18758894261441393

Danyal Tahseen, Amanda Saenz, Rhoda Hijazi, Jasmine Wu, Taron Davis

{"title":"Growing stronger: Nine decades of physical disability representation in children's media and implications for pediatric rehabilitation.","authors":"Danyal Tahseen, Amanda Saenz, Rhoda Hijazi, Jasmine Wu, Taron Davis","doi":"10.1177/18758894261441393","DOIUrl":"10.1177/18758894261441393","url":null,"abstract":"BackgroundChildren's media both reflects and shapes societal attitudes toward physical disability. Despite its potential impact on self-concept and stigma, longitudinal, data-driven analysis of these portrayals remains scarce. This study aimed to quantify longitudinal trends in the tone and framing of physical disability representation in children's media and to explore implications for pediatric rehabilitation.MethodsA quantitative content analysis was conducted on 68 children's media productions (1933-2025) sourced from the Vanderbilt Peabody database. Content was filtered to age-appropriate ratings (G, PG, PG-13, TV-14). Three trained reviewers classified depictions of physical disability by clinical category (e.g., spinal cord injury, limb difference) and tone (Positive, Neutral, Negative) and coded for the presence of rehabilitation themes. Inter-rater reliability (κ = 0.83) was achieved. Statistical testing included Mann-Kendall trend analysis and Fisher's exact tests to compare pre-2000 vs post-2000 portrayals.ResultsPositive portrayals increased significantly from pre-2000 (63%) to post-2000 (90%) (p = 0.01). A consistent upward trend across decades was confirmed (Z = 3.47, p < 0.01). Spinal cord injury was the most frequently depicted disability (40%); rehabilitation themes appeared in 24% of productions, more commonly post-2000. Productions with rehabilitation content were more likely to feature positive portrayals (94% vs 89%).ConclusionsOver nine decades, children's media has shifted toward more affirming representations of physical disability, particularly after 2000. Findings suggest that pediatric rehabilitation providers can use positive media examples to reinforce therapeutic engagement, normalize assistive devices, and address stigma in age-appropriate ways.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"194-203"},"PeriodicalIF":1.0,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13438987/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147639037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The concerns of mothers of female youth with physical disabilities in transitioning to adulthood: A qualitative study. 身体残疾女性青年的母亲在向成年过渡中所关注的问题：一项定性研究。

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Journal of pediatric rehabilitation medicine Pub Date : 2026-08-01 Epub Date: 2026-05-05 DOI: 10.1177/18758894261448317

Courtney S Streur, Jodi M Kreschmer, Peace Asumadu, Daniela A Wittmann, Claire Z Kalpakjian, John F P Bridges

{"title":"The concerns of mothers of female youth with physical disabilities in transitioning to adulthood: A qualitative study.","authors":"Courtney S Streur, Jodi M Kreschmer, Peace Asumadu, Daniela A Wittmann, Claire Z Kalpakjian, John F P Bridges","doi":"10.1177/18758894261448317","DOIUrl":"10.1177/18758894261448317","url":null,"abstract":"PurposeMothers of female youth with a physical disability experience stress as their child prepares for adulthood. Interventions that promote parental coping are needed to better support families. This study sought to identify the concerns and coping strategies of mothers of female youth with physical disabilities to inform a family-centered intervention.MethodsOne-on-one semi-structured interviews probed mothers' concerns and coping strategies as their daughters with physical disabilities prepared for adulthood. Dual review of de-identified transcripts was used to identify relevant themes using interpretive phenomenological analysis.ResultsTwenty-one mothers of daughters with physical disabilities participated. Five overarching themes describing mothers' concerns for their daughters emerged. Mothers were concerned about barriers in helping their daughters 1) maximize independence in life skills, 2) achieve empowerment, 3) develop meaningful relationships, 4) maintain good health, and 5) successfully transition to legal adulthood. Mothers described coping strategies to address these concerns, including intentionality and persistence in teaching their daughters new skills, surrounding their daughters with affirming adults, and adapting their own goals.ConclusionsMothers' concerns centered around how barriers, biases, and lived experiences challenged their life goals for their daughters. Nonetheless, they identified several coping strategies to overcome most of these concerns.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"204-216"},"PeriodicalIF":1.0,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13438809/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147839291","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sensory sensitive Nutcracker. 感官灵敏的胡桃夹子。

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Journal of pediatric rehabilitation medicine Pub Date : 2026-08-01 Epub Date: 2026-07-18 DOI: 10.1177/18758894261469571

Elaine L Pico

引用次数: 0

Face-to-face vs. telerehabilitation for thoracic hyperkyphosis in children- A randomized controlled pilot study. 面对面与远程康复治疗儿童胸后凸症-一项随机对照先导研究。

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Journal of pediatric rehabilitation medicine Pub Date : 2026-08-01 Epub Date: 2026-04-29 DOI: 10.1177/18758894261446171

Seda Gözener Canbülbül, Batuhan Canbülbül, Şilan İdil Özcan, Yaren Kaya

{"title":"Face-to-face vs. telerehabilitation for thoracic hyperkyphosis in children- A randomized controlled pilot study.","authors":"Seda Gözener Canbülbül, Batuhan Canbülbül, Şilan İdil Özcan, Yaren Kaya","doi":"10.1177/18758894261446171","DOIUrl":"10.1177/18758894261446171","url":null,"abstract":"PurposeThis pilot study aimed to compare the effects of face-to-face and telerehabilitation approaches on thoracic hyperkyphosis, back extensor muscle strength, and discomfort in children.MethodsA randomized clinical trial was conducted in Türkiye with twenty children (aged 9-12 years) diagnosed with thoracic hyperkyphosis (thoracic kyphosis angle >40°). Participants were randomly allocated to a face-to-face rehabilitation group (n = 10) or a telerehabilitation group (n = 10) using the Fiziu Digital Exercise Platform. Both groups performed the same supervised exercise program three times per week for six weeks. Thoracic kyphosis angle (TKA), manual muscle testing (MMT) of the back extensors, and Visual Analog Scale (VAS) scores for discomfort were assessed pre- and post-intervention.ResultsIn the face-to-face group, significant improvements were observed in all outcome measures. TKA decreased by 2.00° (p < .001), MMT increased by 0.50 points (p = .037), and VAS decreased by 1.90 points (p < .001). In the telerehabilitation group, TKA also showed a significant reduction of 1.55° (p = .002), and VAS decreased significantly by 1.30 points (p = .009). Although MMT increased by 0.40 points in the telerehabilitation group, this change did not reach statistical significance (p = .072). No significant between-group differences were observed for any outcome at post-intervention (TKA p = .34; MMT p = .693; VAS p = .27).ConclusionsBoth face-to-face and telerehabilitation approaches improved posture, muscle strength, and discomfort in children with thoracic hyperkyphosis. Telerehabilitation using the Fiziu platform may be a practical and accessible alternative in pediatric rehabilitation.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"271-280"},"PeriodicalIF":1.0,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13443100/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147774527","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Rehabilitation approaches used for children with spinal muscular atrophy: A scoping review based on the F-words framework. 儿童脊髓性肌萎缩症的康复治疗方法：基于f词框架的范围综述。

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Journal of pediatric rehabilitation medicine Pub Date : 2026-08-01 Epub Date: 2026-04-22 DOI: 10.1177/18758894261443738

Patricia Mortenson, Niamh Cushen, Jill G Zwicker

{"title":"Rehabilitation approaches used for children with spinal muscular atrophy: A scoping review based on the F-words framework.","authors":"Patricia Mortenson, Niamh Cushen, Jill G Zwicker","doi":"10.1177/18758894261443738","DOIUrl":"10.1177/18758894261443738","url":null,"abstract":"AimWith medical advances, children with spinal muscular atrophy (SMA) now survive. Literature reporting on SMA rehabilitation approaches before and after disease-modifying treatments has not been reviewed.MethodFive databases and grey literature were systematically searched for pediatric reports with a SMA rehabilitation focus, published between 2000-2024. Two independent reviewers screened titles and abstracts; a third reviewer resolved disagreements. Rehabilitation interventions and outcomes were extracted and coded using the International Classification of Function (ICF) Category Tool and analysed using the 'F-words for Childhood Disability' as an interpretive framework.ResultsWith duplicates removed, 2621 reports were screened, 268 reviewed and 71 retained for detailed extraction. Authors described interventions directed at impairment (50%), functioning (15%), participation (8%), and environmental (27%) domains. Rehabilitation outcomes focused on impairment (42%), functioning (43%), participation (9%), and quality of life (6%) outcomes.InterpretationThere is a trend in SMA rehabilitation to address impairments with hopes of translation to functional gains. Recommendations include applying the F-words framework, using individual goal-directed multi-disciplinary approaches, and considering the voices of children and families to broaden and re-imagine SMA rehabilitation.Protocol RegistryOpen Science Framework (https://osf.io/w47m8/).","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"151-164"},"PeriodicalIF":1.0,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13443077/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147774639","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A mixed methods analysis of health literacy among adults with brachial plexus birth injury. 臂丛出生损伤成人健康素养的混合方法分析。

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Journal of pediatric rehabilitation medicine Pub Date : 2026-08-01 Epub Date: 2026-06-15 DOI: 10.1177/18758894261446091

Jenny M Dorich, Jordyn Whiting, Vicki L Plano Clark, Richard F Ittenbach, Roger Cornwall

{"title":"A mixed methods analysis of health literacy among adults with brachial plexus birth injury.","authors":"Jenny M Dorich, Jordyn Whiting, Vicki L Plano Clark, Richard F Ittenbach, Roger Cornwall","doi":"10.1177/18758894261446091","DOIUrl":"10.1177/18758894261446091","url":null,"abstract":"ObjectiveThis study aimed to characterize health literacy among adults with brachial plexus birth injury (BPBI) and identify challenges and opportunities to improve BPBI care for affected adults.MethodsA prior multiphase, mixed methods outcomes study of adults with BPBI identified health literacy as salient factor needing further analysis. The current convergent mixed methods secondary analysis thus combined relevant quantitative and qualitative data from this prior study specifically to analyze health literacy in this population. Quantitative data included five scales of the Health Literacy Questionnaire (HLQ) (n = 147). Qualitative data included open-ended survey responses (n = 183) and individual interviews (n = 12). The qualitative data from the surveys and interviews were combined and coded. Then qualitative data and quantitative data were merged in joint displays, utilizing the qualitative data to expand on the quantitative findings.ResultsMean HLQ scores were midrange with wide standard deviations. Corresponding qualitative data tended to cluster at the negative and positive extremes. Negative health literacy experiences revealed opportunities for improving care for affected adults, while positive experiences provided examples to guide such improvement.ConclusionHealth literacy varies among adults with BPBI. In this variability lie opportunities for improving overall care for affected individuals throughout the lifespan.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"259-270"},"PeriodicalIF":1.0,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13438635/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148252123","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Clinical characteristics, functional impact and caregivers' priorities in Malaysian children with dystonic cerebral palsy. 马来西亚儿童张力障碍脑瘫的临床特征、功能影响和照顾者的优先事项。

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Journal of pediatric rehabilitation medicine Pub Date : 2026-08-01 Epub Date: 2026-05-06 DOI: 10.1177/18758894261450013

Husna Musa, Nor Hanim Mohamad Hanapi, Poorani Anandakrishnan, Suhaila Omar, Teik Beng Khoo

{"title":"Clinical characteristics, functional impact and caregivers' priorities in Malaysian children with dystonic cerebral palsy.","authors":"Husna Musa, Nor Hanim Mohamad Hanapi, Poorani Anandakrishnan, Suhaila Omar, Teik Beng Khoo","doi":"10.1177/18758894261450013","DOIUrl":"10.1177/18758894261450013","url":null,"abstract":"BackgroundDystonic cerebral palsy is a severely disabling condition that poses significant management challenges, compounded by multiple associated comorbidities and the limited availability of effective treatment options.ObjectiveThis study aimed to study the clinical characteristics, functional impact and caregivers' priorities among children with dystonic cerebral palsy.MethodsThis was a cross-sectional observational study (n = 50) among children with dystonic cerebral palsy aged four to 18 years. The Hypertonia Assessment Tool and Barry-Albright Dystonia Scale were used to identify and measure the severity of dystonia. The Dyskinetic Cerebral Palsy Functional Impact Scale was used to assess the daily impact of dystonia and caregivers' priorities.ResultsFifty children (70% male, mean age 8.6 years old) with majority functional status from level III to V across all functional classification systems were included. Significant correlation was observed between functional impact with dystonia severity scores (p = 0.003). The caregivers' priorities were beyond gross motor and mobility concerns.ConclusionsUnderstanding the clinical characteristics, comorbidities, functional profiles and caregivers' priorities is imperative in tailoring interventions to those most relevant and important for children with dystonic cerebral palsy and their families.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"243-249"},"PeriodicalIF":1.0,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13438208/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147839336","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Psychosocial outcomes of medical specialty camps for children with physical disabilities. 身体残疾儿童医疗专业营的社会心理结果。

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Journal of pediatric rehabilitation medicine Pub Date : 2026-08-01 Epub Date: 2026-04-28 DOI: 10.1177/18758894261447064

Eden J Winslow, Joshua R Siegel, Wilsaan M Joiner, Jonathon S Schofield, Phoebe Scott-Wyard

{"title":"Psychosocial outcomes of medical specialty camps for children with physical disabilities.","authors":"Eden J Winslow, Joshua R Siegel, Wilsaan M Joiner, Jonathon S Schofield, Phoebe Scott-Wyard","doi":"10.1177/18758894261447064","DOIUrl":"10.1177/18758894261447064","url":null,"abstract":"Children and youth with physical disabilities face significant psychosocial challenges compared to their able-bodied peers. Medical specialty camps provide space where children can enjoy a typical camp experience alongside peers with similar conditions, offering programming and support tailored toward various levels of ability. This paper aimed to assess the impact of such camps on the psychosocial well-being of children with physical disabilities. A literature search performed in PubMed and Science Direct uncovered n = 33 research articles meeting the inclusion criteria. The existing literature consists of a mixture of qualitative and quantitative studies, collectively suggesting that medical specialty camps can lead to measurable improvements in children's quality of life, self-esteem, and self-perception, while also fostering positive social connections, enjoyment, belonging, and empowerment. However, questions remain about the long-term benefits of these camps, with extinguishing effects potentially being offset by follow-up programming. The absence of control data limits the strength of the conclusions that can be drawn. This review builds on the body of literature suggesting that medical specialty camps offer positive improvements to the lives of children and youth with illnesses and disabilities. Also, it suggests key components of effective research in this field, as well as avenues for future study.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"165-193"},"PeriodicalIF":1.0,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13442913/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147774498","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Acute hippotherapy surface effects in children with special needs: Encouraging findings with important interpretive considerations. 特殊需要儿童的急性海马疗法表面效应：具有重要解释性考虑的令人鼓舞的发现。

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Journal of pediatric rehabilitation medicine Pub Date : 2026-07-22 DOI: 10.1177/18758894261463106

Aradhana Chhabra, Riya Kalra, Kanu Goyal

引用次数: 0