Journal of pediatric rehabilitation medicine最新文献_第2页

Corrigendum to "Hospital Experiences and Medical Traumatic Stress in Adults with Spina Bifida". “脊柱裂成人的住院经历和医疗创伤压力”的勘误表。

IF 1

Journal of pediatric rehabilitation medicine Pub Date : 2025-08-01 Epub Date: 2025-08-19 DOI: 10.1177/00952443251357392

引用次数: 0

Safety of cardiorespiratory and muscle fitness assessment in two children with leukemia during early chemotherapy. 两例白血病患儿早期化疗期间心肺和肌肉健康评估的安全性。

IF 1

Journal of pediatric rehabilitation medicine Pub Date : 2025-08-01 Epub Date: 2025-06-27 DOI: 10.1177/18758894251347128

Virginie Aspirot-Buron, Charles Sèbiyo Batcho, Michèle Bisson, Bruno Michon, Marc-André Dugas, Isabelle Marc, Philippe Corbeil

{"title":"Safety of cardiorespiratory and muscle fitness assessment in two children with leukemia during early chemotherapy.","authors":"Virginie Aspirot-Buron, Charles Sèbiyo Batcho, Michèle Bisson, Bruno Michon, Marc-André Dugas, Isabelle Marc, Philippe Corbeil","doi":"10.1177/18758894251347128","DOIUrl":"10.1177/18758894251347128","url":null,"abstract":"PurposeLimited data are available on the cardiorespiratory and muscle fitness of children with acute lymphoblastic leukemia (ALL) during chemotherapy. This pilot study evaluated the safety of testing the cardiorespiratory and muscle fitness of two children with ALL at different risk levels in early chem treatment.MethodsTwo girls with low- and high-risk B-cell ALL (DFCI-16-001) took part in two test sessions: T1 (induction, consolidation 1A/C) and T2 (consolidation 2). Each testing session included a maximal oxygen uptake (<math><mrow><mover><mi>V</mi><mo>˙</mo></mover></mrow></math>O2max) exercise test, muscular strength tests, physical activity and quality of life questionnaires, and a semi-structured interview. The parents agreed to these assessments at the start of chemotherapy treatment.ResultsThe participants experienced no significant adverse effects from undertaking the cardiorespiratory and muscular tests, and there was no impact on their chemotherapy treatment schedule. At their post-test interview, both participants reported that thigh pain and fatigue were the most difficult part of the <math><mrow><mover><mi>V</mi><mo>˙</mo></mover></mrow></math>O2max exercise test. Regarding physical performance outcomes, both participants exhibited low scores compared to their gender, weight- and age-predicted <math><mrow><mover><mi>V</mi><mo>˙</mo></mover></mrow></math>O2max and on most strength test values.ConclusionThe physical tests were safely and successfully conducted with these two participants during early chemotherapy.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"189-200"},"PeriodicalIF":1.0,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144506027","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Provider attitudes and perspectives on rehabilitation for pediatric cancer patients. 提供者对儿童癌症患者康复的态度和观点。

IF 1

Journal of pediatric rehabilitation medicine Pub Date : 2025-08-01 Epub Date: 2025-06-08 DOI: 10.1177/18758894251341150

Maria C Swartz, Eduardo Gonzalez Villarreal, Keri Schadler, Donna Kelly, Alakh P Rajan, Clark Andersen, Shiming Zhang, Stephanie J Wells, Amy Heaton, Karen M Moody

{"title":"Provider attitudes and perspectives on rehabilitation for pediatric cancer patients.","authors":"Maria C Swartz, Eduardo Gonzalez Villarreal, Keri Schadler, Donna Kelly, Alakh P Rajan, Clark Andersen, Shiming Zhang, Stephanie J Wells, Amy Heaton, Karen M Moody","doi":"10.1177/18758894251341150","DOIUrl":"10.1177/18758894251341150","url":null,"abstract":"PurposeTwenty percent of childhood cancer survivors experience physical function impairments, and ∼75% develop a chronic health condition. Physical and occupational therapists (PT/OTs) can mitigate these late effects, yet few children receive cancer rehabilitation (CR). This research aimed to identify provider attitudes and perspectives towards CR services for children across inpatient and outpatient settings at a cancer center.MethodsThree cardiac rehabilitation instruments were adapted to evaluate knowledge, attitudes, and perceptions regarding CR delivery. Descriptive statistics were used to summarize participant survey results.ResultsTwenty administrators, 20 physicians/advanced practice providers (APPs), and 20 PT/OTs completed surveys. All disciplines strongly agreed on the value of CR for patient outcomes and care quality. Barriers to CR access included insurance models that disincentivize healthcare systems from providing CR, lack of a standardized screening and referral process, and inconsistent patient participation. Physicians/APPs (81%) endorsed clinical practice guidelines (CPGs) to promote CR referrals, and 90% of PT/OTs agreed hybrid CR delivery, which includes both supervised and unsupervised exercise, would increase patient participation.ConclusionThis study identified opportunities to increase CR access for childhood cancer survivors, including CPGs, streamlining referral processes, hybrid CR delivery, and closing insurance gaps. Future research should address these factors to improve CR access and ultimately improve outcomes for pediatric survivors.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"218-229"},"PeriodicalIF":1.0,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144248326","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Impact of intensive, multidisciplinary neurorehabilitation on functional independence following pediatric acquired brain injury (ABI): A matched cohort study. 强化、多学科神经康复对儿童获得性脑损伤（ABI）后功能独立性的影响：一项匹配队列研究。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2025-07-13 DOI: 10.1177/18758894251355865

Raegan Furman, Steven Janselewitz, Patricia Coker-Bolt, Kristen Johnson

{"title":"Impact of intensive, multidisciplinary neurorehabilitation on functional independence following pediatric acquired brain injury (ABI): A matched cohort study.","authors":"Raegan Furman, Steven Janselewitz, Patricia Coker-Bolt, Kristen Johnson","doi":"10.1177/18758894251355865","DOIUrl":"https://doi.org/10.1177/18758894251355865","url":null,"abstract":"PurposeThe purpose of this matched cohort study was to determine the impact of intensive, multidisciplinary neurorehabilitation on functional independence following pediatric acquired brain injury.MethodsCohorts receiving lower-intensity (n = 19) and higher-intensity multidisciplinary neurorehabilitation (n = 19) were matched on age, injury characteristics, and admission functional status. Intensity was measured by time in physical, occupational (OT), and speech therapy over length of stay (LOS). Outcome measures included WeeFIM efficiency, WeeFIM developmental functional quotients (DFQs), and LOS.ResultsThere were no significant between-cohort findings in 1) WeeFIM efficiency, 2) WeeFIM DFQs or 3) LOS. There was a significant difference between admission and discharge WeeFIM DFQs for all participants (p < 0.001), demonstrating significant functional recovery regardless of intensity. Hierarchical linear regressions were significant for OT intensity and discharge WeeFIM DFQs (p = .003, ΔR2 = .22). Total admission WeeFIM DFQs significantly predicted LOS in the lower-intensity (p = 0.016, R2 = 0.29) and higher-intensity (p < 0.001, R2 = 0.51) cohorts, indicating a greater variance explained with increased intensity.ConclusionWhile significant functional outcomes were not correlated with intensity, OT intensity did significantly predict variations in functional independence. Investigation into definitive parameters for intensive treatment, including the amount and context of therapeutic interventions, is needed.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894251355865"},"PeriodicalIF":0.8,"publicationDate":"2025-07-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144626585","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Characteristics of pediatric patients with sports-related concussions: A single site retrospective review. 儿童运动相关脑震荡患者的特点：单部位回顾性分析。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2025-05-14 DOI: 10.1177/18758894251341146

Jose A Cruz Ayala, Shahrukh Khan, Holly Monk, Emma Cole, Alison Smith, Scott Schultz, Lindsay Elliott, Jessica Zagory

{"title":"Characteristics of pediatric patients with sports-related concussions: A single site retrospective review.","authors":"Jose A Cruz Ayala, Shahrukh Khan, Holly Monk, Emma Cole, Alison Smith, Scott Schultz, Lindsay Elliott, Jessica Zagory","doi":"10.1177/18758894251341146","DOIUrl":"https://doi.org/10.1177/18758894251341146","url":null,"abstract":"Purpose: Sports-related concussion (SRC) cases have increased among children in the last decade. Differences in concussion symptoms, presentation, and follow-up care exist when comparing demographics. The aim of this study was to explore SRC within the pediatric population.Methods: A retrospective chart review of patients ≤18 years old diagnosed with SRC at a New Orleans stand-alone children's hospital from January 2007 to December 2021 was performed. T-test and Fisher's exact test were used for relationship between outcomes and sports, demographics, setting, insurance, and follow-up care.Results: Children who sustained SRC at practice were more likely to be male (p = 0.0311) and younger (p < 0.0001). Cheerleading was more likely to have injuries during practice (p < 0.0001). Medicaid/uninsured patients were more likely to be referred from the emergency department (ED) (p = 0.001), have longer length of follow-ups (p = 0.0489), and have more missed appointments (p = 0.0062). However, the total number of follow-ups between insurance types did not differ (p = 0.3084).Conclusion: SRC incidence is situation and time dependent. Medicaid/uninsured patients are more likely to be evaluated at the ED, miss appointments, and have a longer length of follow-up to attain the same number of appointments. Exploring the nuances of SRC within this population will improve management and outcomes.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"18758894251341146"},"PeriodicalIF":0.8,"publicationDate":"2025-05-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144078673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Maternal-fetal surgery for myelomeningocele longitudinal follow-up model: Mitigation of care fragmentation through care coordination and outcomes reporting. 脊髓脊膜膨出的母胎手术纵向随访模型：通过护理协调和结果报告缓解护理碎片化

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-04-13 DOI: 10.1177/18758894251331335

Jonathan Castillo, Mary M Locastro, Romain Corroenne, Anjali Malhotra, Alexander Van Speybroeck, Grace Lai, Michael A Belfort, Magdalena Sanz Cortes, Heidi Castillo

{"title":"Maternal-fetal surgery for myelomeningocele longitudinal follow-up model: Mitigation of care fragmentation through care coordination and outcomes reporting.","authors":"Jonathan Castillo, Mary M Locastro, Romain Corroenne, Anjali Malhotra, Alexander Van Speybroeck, Grace Lai, Michael A Belfort, Magdalena Sanz Cortes, Heidi Castillo","doi":"10.1177/18758894251331335","DOIUrl":"10.1177/18758894251331335","url":null,"abstract":"PurposeFollowing the Global Health Symposium at the Spina Bifida World Congress in 2023, the purpose of this work is to provide a historical overview and a state-of-the-art update on the current global practice of myelomeningocele (MMC) closure and to highlight the importance of care coordination and outcomes reporting to mitigate care fragmentation through a multidisciplinary approach.MethodsPanelists from the Spina Bifida World Congress Global Health Symposium reviewed their institutions' history and experience with risk for fragmentation of care following prenatal repair and proposed solutions to address fragmentation of care.ResultsNew and rapidly evolving in-utero approaches to MMC repair are increasingly accessible for patients worldwide but bring more complexity to follow-up care. There is a consensus that unifying multidisciplinary practices and evaluations across institutions and countries will help make care coordination more comprehensive and longitudinal, and that meeting these standards may decrease care fragmentation.ConclusionRegardless of the open spina bifida repair technique, longitudinal follow-up must be established after fetal surgery, not only for the optimal care of individual patients but also to mitigate care fragmentation, transparently evaluate and compare techniques (for example, through the North American Fetal Therapy Network, the National Spina Bifida Patient Registry, etc.), engage health care professionals, and provide evidence-based multidisciplinary care.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"146-154"},"PeriodicalIF":0.8,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144000887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Towards a successful teledance program for youth with cerebral palsy: A mixed-method study with the instructor's perspective. 迈向成功的青少年脑瘫进修计划：以讲师的观点进行混合方法研究。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-04-10 DOI: 10.1177/18758894251324317

Annie Pouliot-Laforte, Claire Cherrière, Margaux Hebinck, Jessica Tallet, Catherine Donskoff, Louis-Nicolas Veilleux, Martin Lemay, Maxime T Robert

{"title":"Towards a successful teledance program for youth with cerebral palsy: A mixed-method study with the instructor's perspective.","authors":"Annie Pouliot-Laforte, Claire Cherrière, Margaux Hebinck, Jessica Tallet, Catherine Donskoff, Louis-Nicolas Veilleux, Martin Lemay, Maxime T Robert","doi":"10.1177/18758894251324317","DOIUrl":"10.1177/18758894251324317","url":null,"abstract":"PurposeDance is a leisure time physical activity (LTPA) known to improve motor, cognitive, and psychosocial functions in youth with cerebral palsy (CP). Online exercise or tele-programs are promising in overcoming the environmental barriers of accessibility to LTPA. To ensure successful implementation, it is necessary to identify limitations specific to dance in a pediatric population. The aim was to explore the perspectives of the main stakeholders, i.e., dance instructors and youth, to implement such a program.MethodsIn a mixed-method design, feasibility indicators were assessed by participation and retention rates, the Physical Activity Enjoyment Scale (PACES), and the Children's Effort Rating Table (CERT). Semi-structured interviews were conducted before and after the intervention with youth with CP [n = 15] and dance instructors [n = 3]. Interviews were analyzed with an inductive approach.ResultsParticipation and retention rates were 86.7% ± 10.7 and 100%, and the PACES and CERT average scores were 91% ± 11 and 3.7 ± 1.3, respectively. Four themes emerged from the interviews: 1) Technology; 2) Pedagogical Approach; 3) Participant's Environment; and 4) Social Relations.ConclusionThe teledance program is feasible and enjoyable, requiring minimal equipment and travel. However, there is a need to consider and provoke social interaction, to enhance the social and relational dimension of dance.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"120-131"},"PeriodicalIF":0.8,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144015497","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Transitioning from pediatric to adult multiple sclerosis care: Challenges, strategies and therapy. 从儿童到成人多发性硬化症治疗的转变：挑战、策略和治疗。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-05-30 DOI: 10.1177/18758894251329690

Shreya Singh Beniwal, Neetika Sharma, Mohammed Sulaiman Khan, Krithi Pichiah John, Kopila Gyawali, Daniela Castro Calderón, Prashasti Dahiya, Meenakshi Reddy Yathindra, Muhammad Saeed, Akash Rawat, Muaaz Ather, Ayush Dwivedi

{"title":"Transitioning from pediatric to adult multiple sclerosis care: Challenges, strategies and therapy.","authors":"Shreya Singh Beniwal, Neetika Sharma, Mohammed Sulaiman Khan, Krithi Pichiah John, Kopila Gyawali, Daniela Castro Calderón, Prashasti Dahiya, Meenakshi Reddy Yathindra, Muhammad Saeed, Akash Rawat, Muaaz Ather, Ayush Dwivedi","doi":"10.1177/18758894251329690","DOIUrl":"10.1177/18758894251329690","url":null,"abstract":"Multiple sclerosis (MS) is a chronic autoimmune condition causing damage to the protective covering of nerves in the central nervous system. Pediatric multiple sclerosis is a rare form of the disease that affects 3-5% of individuals with multiple sclerosis. Pediatric Onset Multiple Sclerosis (POMS) has a rather different clinical profile from the more prevalent adult multiple sclerosis. Alongside the classic symptoms of multiple sclerosis, children tend to present with various atypical symptoms that can impact motor milestones, speech development, and cognitive functions. This review aims to explore the pathogenesis, clinical features, diagnosis and progression of Pediatric Onset Multiple Sclerosis into adulthood, address the challenges accompanying this transition and identify strategies and therapies to overcome them. Pediatric multiple sclerosis patients transitioning into adulthood face many challenges, such as difficulty in school and social life, and dealing with uncertainties especially due to changes in healthcare providers from pediatric to adult settings. These challenges can be overcome by an emphasis on a well-structured transition plan, early planning, personalized care, proper counselling of the patient as well as the family and caretakers, a multidisciplinary approach with good communication and coordination between all healthcare personnel a robust support network with a gradual transition rather than an abrupt one. Proper care during the transition period is crucial to enhance patient adherence and deepen the understanding of the disease for both patients and their families. This will empower them to seek timely assistance when needed, reduce loss to follow-up, and ultimately improve overall quality of life.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"158-169"},"PeriodicalIF":0.8,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144187206","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Gait abnormalities in children with FOXP1 syndrome: A case series. FOXP1综合征患儿步态异常：一个病例系列。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-02-25 DOI: 10.1177/18758894251323784

Laura M Breij, Eveline B Boeker, Bregje Jaeger, Annemieke I Buizer

引用次数: 0

Burden of pediatric neural tube defects at a referral medical center in Tanzania. 坦桑尼亚转诊医疗中心儿童神经管缺陷的负担。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-02-24 DOI: 10.1177/18758894251317839

Gerald D Mayaya, Friedemann Schad, Shiao Li Oei, Walter H Miya, Janet Manoni, Jennifer Mekere, Fabian A Massaga

{"title":"Burden of pediatric neural tube defects at a referral medical center in Tanzania.","authors":"Gerald D Mayaya, Friedemann Schad, Shiao Li Oei, Walter H Miya, Janet Manoni, Jennifer Mekere, Fabian A Massaga","doi":"10.1177/18758894251317839","DOIUrl":"https://doi.org/10.1177/18758894251317839","url":null,"abstract":"PurposeThis project aimed to describe the current status and future needs for the management of pediatric neural tube defects (NTDs) at a referral center in Mwanza, Tanzania, and thus can offer a model for other affected areas in sub-Saharan Africa.MethodsA descriptive study design was used to collect and describe data from pediatric patients with NTDs admitted to and treated at Bugando Medical Center in collaboration with Mwanangu Development Tanzania in Mwanza, Tanzania.ResultsBetween January 2018 and August 2022, a total number of 3160 children with NTDs presented to a referral medical center. Thirty-one percent of the patients were from Mwanza, 13% from Geita, 11% from Tabora, 10% from Simiyu, and the rest came from more distant regions of Tanzania. Hydrocephalus and spina bifida were the most common NTD diagnoses recorded that required ventriculoperitoneal shunt interventions in the neurosurgical services.ConclusionEarly neural development disorders are common in sub-Saharan Africa, with spina bifida and hydrocephalus being the most prominent NTDs. The treatment and special education of affected children and adolescents are major public health challenges. As the development of protocols and guidelines for neurosurgical procedures is needed to improve the burden of pediatric hydrocephalus in sub-Saharan Africa, a report on how this is done simply, practically, and effectively here at a referral medical center in Tanzania may benefit countries with similar health issues.This study was approved by the Regional Ethic Review Board in Mwanza Tanzania (Certificate No. CREC/682b/2023).","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"18 2","pages":"132-136"},"PeriodicalIF":0.8,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144302408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0