Journal of pediatric rehabilitation medicine最新文献_第2页

Improvement on the slopes: The impact of an adaptive snow sports program on children and young adults with disabilities. 改善斜坡：适应性雪上运动项目对残疾儿童和青少年的影响。

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Journal of pediatric rehabilitation medicine Pub Date : 2025-02-01 Epub Date: 2024-12-08 DOI: 10.1177/18758894241290054

Stephanie M Barton, Matthew J McLaughlin, Mark T Fisher

{"title":"Improvement on the slopes: The impact of an adaptive snow sports program on children and young adults with disabilities.","authors":"Stephanie M Barton, Matthew J McLaughlin, Mark T Fisher","doi":"10.1177/18758894241290054","DOIUrl":"10.1177/18758894241290054","url":null,"abstract":"PurposeThis retrospective cohort study sought to examine participant skill and functional progression in an adaptive snow sports program for children and young adults with disabilities.MethodsOne hundred twelve individuals, majority male, who participated in at least 2 adapted ski or snowboard sessions were evaluated by trained adaptive instructors. The primary outcome measure was standardized skill level ranging from 1-novice to 9-expert. Secondary outcome measures of cognitive, emotional, social, physical, and independence scores, were rated on a scale from 1-5, with 5 being the highest.ResultsThe median number of sessions per participant was 4 (range 2-65 sessions) and median participation duration was 2 years (range 2-10 years). A Wilcoxon-rank sum test demonstrated an improvement in final skill level compared to baseline (p < 0.0001), with an average increase of 1.2 skill levels per participant and an average increase of 0.48 skill levels per year of involvement. There were also improvements from initial session to final session in all secondary outcomes: social (p = 0.002), emotional (p = 0.018), physical (p < 0.0001), and independence (p < 0.0001) scores.ConclusionOverall, there were improvements in all measured domains. This uses objective and functional measures to validate ongoing engagement with this adaptive skiing program at the athlete, volunteer, and organizational levels.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"18 1","pages":"42-46"},"PeriodicalIF":0.8,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143735727","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Rocking in a rocking chair activates trunk muscles in children with spinal cord injury and impaired trunk control. 在摇椅上摇动可以激活脊髓损伤和躯干控制受损儿童的躯干肌肉。

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Journal of pediatric rehabilitation medicine Pub Date : 2025-02-01 Epub Date: 2025-02-26 DOI: 10.1177/18758894251319126

Johnathan J George, Andrea L Behrman, Beatrice Ugiliweneza, Grant Morgan, Thomas J Roussel

{"title":"Rocking in a rocking chair activates trunk muscles in children with spinal cord injury and impaired trunk control.","authors":"Johnathan J George, Andrea L Behrman, Beatrice Ugiliweneza, Grant Morgan, Thomas J Roussel","doi":"10.1177/18758894251319126","DOIUrl":"10.1177/18758894251319126","url":null,"abstract":"PurposeRocking in a rocking chair may facilitate trunk muscle activation in children with spinal cord injury (SCI). To assess this, children with SCI and typically developing (TD) children were evaluated for increases in trunk muscle activation, muscle activation patterns, and correlation of trunk muscle activation with trunk control during rocking.MethodsEleven children with SCI and 10 TD children aged 1-12 years rocked while surface electromyography activity in arm, leg, and trunk muscles was captured. Mean muscle activity during rocking and at baseline were compared for each muscle. Temporal activation patterns of SCI and TD groups were compared using cluster analysis. Correlation of trunk control and trunk muscle activation was assessed.ResultsSignificantly higher muscle activity was found during rocking versus quiet sitting for each muscle (p < 0.05). Cluster analysis of temporal muscle activation patterns revealed two disparate SCI groups; one SCI group's muscle activation timing was similar to the TD group. Correlation analysis indicated greater trunk muscle activation in lower trunk muscles for participants with better trunk control.ConclusionRocking activates the neuromuscular system and is feasible for children with trunk impairment due to SCI, suggesting its potential as a home-based activity for extending practice beyond the clinic.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"18 1","pages":"61-77"},"PeriodicalIF":0.8,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143735752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Showcasing the breadth of pediatric rehabilitation medicine. 展示小儿康复医学的广度。

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Journal of pediatric rehabilitation medicine Pub Date : 2025-02-01 Epub Date: 2025-03-25 DOI: 10.1177/18758894251319631

Rachel Byrne, Heakyung Kim, Raffi Najarian, Elaine Pico, Justin Ramsey, Sruthi Thomas, Sara Tinsley

引用次数: 0

Quantitative ultrasound of submental and masticatory muscles in children with cerebral palsy. 对脑瘫儿童的下颌和咀嚼肌进行定量超声检查。

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Journal of pediatric rehabilitation medicine Pub Date : 2025-02-01 Epub Date: 2025-03-28 DOI: 10.3233/PRM-230029

Marloes L J Lagarde, Karen van Hulst, Corrie E Erasmus, Lenie van den Engel-Hoek, Alexander C H Geurts, Nens van Alfen

{"title":"Quantitative ultrasound of submental and masticatory muscles in children with cerebral palsy.","authors":"Marloes L J Lagarde, Karen van Hulst, Corrie E Erasmus, Lenie van den Engel-Hoek, Alexander C H Geurts, Nens van Alfen","doi":"10.3233/PRM-230029","DOIUrl":"10.3233/PRM-230029","url":null,"abstract":"Purpose: Quantitative muscle ultrasound (QMUS) is potentially valuable as a diagnostic tool in central neurological disorders, as it provides information about changes in muscle architecture. This study aimed to investigate whether ultrasound images of the submental and masticatory muscles in children with spastic cerebral palsy (CP) differ from those obtained in a reference group, and whether observed ultrasound abnormalities differ between subgroups of children with different Eating and Drinking Ability Classification System (EDACS) levels to support its construct validity.Methods: A prospective cohort study was conducted in 25 children with spastic CP aged 3-18 years. QMUS of selected muscles was performed. Muscle thickness and echogenicity in the CP group were compared to previously collected reference values, and between different EDACS levels within the CP group.Results: Median echogenicity of all muscles was significantly higher in children with CP than in healthy controls. The temporalis muscle was significantly thinner in the CP group. There were no differences in muscle thickness or echogenicity between EDACS levels.Conclusion: QMUS is able to detect abnormal architecture of submental and masticatory muscles in children with spastic CP, but the interpretation of abnormalities in relation to the severity of mastication and swallowing problems needs further investigation.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"13-22"},"PeriodicalIF":0.8,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141600258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Clinical utility of a patient-reported outcome for assessing spasticity in a pediatric population. 评估小儿痉挛患者报告结果的临床应用。

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Journal of pediatric rehabilitation medicine Pub Date : 2025-02-01 Epub Date: 2024-12-08 DOI: 10.1177/18758894241296259

Elaine Hong Hatch, Ashlee M Jaffe, Laura A Prosser

{"title":"Clinical utility of a patient-reported outcome for assessing spasticity in a pediatric population.","authors":"Elaine Hong Hatch, Ashlee M Jaffe, Laura A Prosser","doi":"10.1177/18758894241296259","DOIUrl":"10.1177/18758894241296259","url":null,"abstract":"PurposeThis study aimed to (1) examine the construct validity of the Zorowitz spasticity patient-reported outcome (PRO) scale in pediatric populations and (2) examine the scale's responsiveness to change in children to determine its clinical utility in guiding treatment of pediatric spasticity.MethodsRetrospective analysis of data collected at a large academic pediatric hospital system, including 505 patients who received injections for spasticity from pediatric physiatrists, was performed. Zorowitz scores, spasticity (Modified Ashworth Scale) scores, and Gross Motor Function Classification System levels were extracted.ResultsBaseline Zorowitz score (median 19, interquartile range 13-25) was not related to functional level (r = -0.088, p = 0.20) nor muscle tone (r = 0.006, p = 0.95), but patients with follow-up data reported reduced impact of spasticity post-injection (p < 0.0001). Higher baseline Zorowitz score was related to a greater decrease in Zorowitz score after injection (r = -0.39, p < 0.00001). Injection location, sex, number of muscles injected, and botulinum toxin dose were not related to Zorowitz change score.ConclusionThe Zorowitz scale may be responsive to spasticity treatment in children. However, construct validity to existing clinical measures was not observed, suggesting either that a clinical gold standard does not exist, that the scale measures a construct not otherwise captured clinically, or that it has limited validity in children.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"18 1","pages":"5-12"},"PeriodicalIF":0.8,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143735641","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The functional secondary effect after an integrated rehabilitative intervention to learn reading and writing in a girl with Rubinstein-Taybi syndrome. 对鲁宾斯坦-泰比综合征女孩进行阅读和写作学习的综合康复干预后的功能性继发效果。

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Journal of pediatric rehabilitation medicine Pub Date : 2025-02-01 Epub Date: 2025-03-28 DOI: 10.3233/PRM-230051

Donatella Saviola, Katia de Gaetano, Stefania Bruni, Margherita Chiari, Chiara Moschini, Erica Battagliola, Daniela Colla, Matteo Cantoni, Antonio De Tanti

{"title":"The functional secondary effect after an integrated rehabilitative intervention to learn reading and writing in a girl with Rubinstein-Taybi syndrome.","authors":"Donatella Saviola, Katia de Gaetano, Stefania Bruni, Margherita Chiari, Chiara Moschini, Erica Battagliola, Daniela Colla, Matteo Cantoni, Antonio De Tanti","doi":"10.3233/PRM-230051","DOIUrl":"10.3233/PRM-230051","url":null,"abstract":"PURPOSEA case report of a six-year and five-month-old female admitted with typical symptoms of Rubinstein-Taybi syndrome is presented. Clinical and rehabilitation settings where she acquired her reading, writing, and communication skills are described.METHODSBecause of her cognitive disabilities, a multidisciplinary and long-term intervention (2014-2020) was necessary. Treatment included orthoptic, psychomotor, logopedic, occupational, and neuropsychological care. Her family and school were involved.RESULTSIncreased attention led to decreased dysfunctional behaviors. Test results are still below average, but there has been significant improvement. Better communication skills resulted from increased phonetic range, improved articulation, lexical-semantic structure, comprehension, and production of sentences. Digital technologies played a significant role in enhancing her communication skills, not just in social interactions but also in school activities. The patient is oriented in time and space with the help of agendas and calendars. She can express her needs and compose concise narratives. As a result of acquiring functional skills, she is better equipped to handle real-life situations, which has led to increased social and family activities.CONCLUSIONThis case report highlights the importance of personalized rehabilitation programs. Obtaining an early genetic diagnosis is crucial for timely tailored rehabilitation, and any delays in this process can hinder progress.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"47-56"},"PeriodicalIF":0.8,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141437024","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

New-onset hydrocephalus in an adult with cerebral palsy: A case report and review of the literature. 脑瘫成人新发脑积水：病例报告和文献综述。

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Journal of pediatric rehabilitation medicine Pub Date : 2025-02-01 Epub Date: 2025-03-28 DOI: 10.3233/PRM-240015

Jeremy Roberts, Denesh Ratnasingam, Cristina Sarmiento

{"title":"New-onset hydrocephalus in an adult with cerebral palsy: A case report and review of the literature.","authors":"Jeremy Roberts, Denesh Ratnasingam, Cristina Sarmiento","doi":"10.3233/PRM-240015","DOIUrl":"10.3233/PRM-240015","url":null,"abstract":"Hydrocephalus is a common comorbidity associated with brain injuries, including cerebral palsy (CP). In CP, hydrocephalus typically presents in infancy or early childhood. This report describes a patient in their mid 20 s with mixed dyskinetic-spastic CP with adult-onset hydrocephalus of unknown cause initially presenting with new-onset bilateral lower extremity spasms. Multiple interventions were trialed, including ischial bursal steroid injections, botulinum toxin injections, trigger point injections, multiple oral medications, and physical and massage therapies without benefit. Given lack of treatment response, imaging of the neuraxis was obtained. Magnetic resonance imaging (MRI) of the brain demonstrated new diffuse moderate ventriculomegaly compared to prior MRI. Ophthalmologic evaluation demonstrated papilledema, and opening pressure on lumbar puncture was elevated to 44 mmHg H2O. The patient underwent ventriculoperitoneal shunt placement with rapid and near-resolution of their spasms and pain. This patient represents a unique case of new-onset hydrocephalus in an adult with CP. To ensure appropriate and timely diagnosis and treatment, individuals with neurologic conditions such as CP should have ongoing surveillance and comprehensive evaluation for any neurologic or functional changes, including changes in baseline tone. Future research is needed to better understand if adults with CP are at higher risk for the development of hydrocephalus in adulthood.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"26-29"},"PeriodicalIF":0.8,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142289668","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Using technology to enhance prevention of pressure injuries in the spina bifida population. 利用技术加强脊柱裂人群压力损伤的预防。

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Journal of pediatric rehabilitation medicine Pub Date : 2025-02-01 Epub Date: 2025-02-16 DOI: 10.1177/18758894251316073

Holly Kirkland-Kyhn, Tuba Sengul, Dilek Yilmaz Akyaz

{"title":"Using technology to enhance prevention of pressure injuries in the spina bifida population.","authors":"Holly Kirkland-Kyhn, Tuba Sengul, Dilek Yilmaz Akyaz","doi":"10.1177/18758894251316073","DOIUrl":"10.1177/18758894251316073","url":null,"abstract":"Patients with spina bifida (SB) are highly susceptible to pressure injuries (PIs) due to limited mobility and sensory deficits, and they may occur during multiple surgical procedures. The article highlights that PIs, which significantly increase hospital costs and extend patient stays, can be prevented mainly through evidence-based interventions. One of the critical technologies used at this stage is pressure mapping to monitor and optimize pressure distribution on surfaces, whether lying or seated, particularly during prolonged medical procedures. Additionally, the article emphasizes the importance of educating families and caregivers about early signs of PIs, photography, using electronic health records for tracking, and effective home care strategies to prevent these injuries post-discharge. Future research should investigate how to enhance prevention methods in hospital settings, especially for patients undergoing surgeries or other lengthy procedures. Overall, the article underscores the critical role of early identification of risk, intervention, and technological support in reducing the incidence and impact of PIs in patients with SB.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"57-60"},"PeriodicalIF":0.8,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143433354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The process of adaptation: Parents' journey navigating their child's chronic health condition diagnosis. 适应的过程：父母的旅程导航他们的孩子的慢性健康状况诊断。

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Journal of pediatric rehabilitation medicine Pub Date : 2025-02-01 Epub Date: 2025-01-14 DOI: 10.1177/18758894241292147

Amy L Thompson, Sarah L Smith

引用次数: 0

Approach to obtaining a swallow study in a five-year-old with a disability and significant procedural anxiety: A case report. 如何为一名患有残疾和严重程序焦虑症的五岁儿童进行吞咽检查？病例报告。

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Journal of pediatric rehabilitation medicine Pub Date : 2025-02-01 Epub Date: 2025-03-28 DOI: 10.3233/PRM-230063

Tyler Estes, Aaron Gaul, Allison Thornton, Laura Hobart-Porter

{"title":"Approach to obtaining a swallow study in a five-year-old with a disability and significant procedural anxiety: A case report.","authors":"Tyler Estes, Aaron Gaul, Allison Thornton, Laura Hobart-Porter","doi":"10.3233/PRM-230063","DOIUrl":"10.3233/PRM-230063","url":null,"abstract":"CASE DESCRIPTIONA five-year-old male with spastic quadriplegia cerebral palsy and an expressive communication disorder presented because the family desired liberalization of diet. The diet consisted of pureed solids and no liquids due to deficits identified on bedside swallow evaluation; further dysphagia assessment had not been obtained due to significant procedural anxiety. Comprehensive approaches were taken involving premedication with buspirone, desensitization, distraction, and positive reinforcement. The fluoroscopic swallow study was successfully completed, and the patient's diet was upgraded to include moderately thickened liquids.DISCUSSIONProcedural anxiety management in special populations is not well-researched. The lack of definitive recommendations regarding these issues increases the difficulty of managing these patients. This case highlights one successful approach to addressing individual needs using widely-available pharmacologic and environmental techniques. Additionally, this case reinforces the need to identify underlying causes for procedural anxiety and involve an interdisciplinary team.CONCLUSIONSAttempts should be made to identify factors driving procedural anxiety. After discussing with the patient and family, relevant information should be relayed to staff with an open-ended invitation to propose ideas. While not all hospitals have equivalent resources, concerns related to unfamiliarity, underlying anxiety, and locus of control can be addressed with limited resource utilization, as demonstrated in this case.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"23-25"},"PeriodicalIF":0.8,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141093095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0