J. Tyrrell, Chris Conlon, A. Aboklaish, Sarah Hatch, Carl Smith, J. Mathias, K. Thomson, M. Eberl
{"title":"‘Superbugs’: raising public awareness of antimicrobial resistance through a pop-up science shop","authors":"J. Tyrrell, Chris Conlon, A. Aboklaish, Sarah Hatch, Carl Smith, J. Mathias, K. Thomson, M. Eberl","doi":"10.14324/rfa.06.1.06","DOIUrl":"https://doi.org/10.14324/rfa.06.1.06","url":null,"abstract":"\u0000‘Superbugs: A Pop-up Science Shop’ was a public engagement event in the school summer holidays of 2019, organised by members of Cardiff University’s School of Medicine. We transformed an empty retail unit in the centre of Wales’s largest shopping centre into an interactive and immersive microbiology experience. We facilitated two-way dialogue to impart positive impact on the awareness of antibiotic resistance, while concurrently evaluating the efficacy of an engagement strategy focused on the utilisation of public spaces to attract public demographics diverse to those who would normally engage with conventional science, technology, engineering and mathematics (STEM) outreach. Over the course of 14 days, we welcomed 6,566 visitors, with 67 per cent attending as part of the natural footfall of the shopping centre. We created 1,626 young Antibiotic Resistance Champions, located in over two hundred schools, across many of the most deprived areas in Wales. We imparted a positive impact to our stakeholders, with a significant increase in the knowledge and understanding of the subject of antimicrobial resistance (AMR); 91.7 per cent indicated that they had a better understanding after the event. In this article, we discuss the evolution of ‘Superbugs’ from concept, planning and design, to the logistics of delivering an engagement event of this scale. We focus in particular on the learning outcomes of the project, and on how this will shape the future of our ‘Superbugs’ project, and engagement events beyond.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"19 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127226293","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ruth Stewart, J. Aronson, E. Barends, R. Boruch, M. Brennan, Joe Chislett, Peter Cunliffe-Jones, Brandy R Maynard, M. Oxman, A. Pullin, N. Randall, J. Sharples, Janet Stott, L. Vale
{"title":"Lessons from working across fields to develop a framework for informed choices","authors":"Ruth Stewart, J. Aronson, E. Barends, R. Boruch, M. Brennan, Joe Chislett, Peter Cunliffe-Jones, Brandy R Maynard, M. Oxman, A. Pullin, N. Randall, J. Sharples, Janet Stott, L. Vale","doi":"10.14324/rfa.06.1.05","DOIUrl":"https://doi.org/10.14324/rfa.06.1.05","url":null,"abstract":"\u0000In late 2018, Iain Chalmers, Andy Oxman and others from the Informed Health Choices team convened a cross-field forum to develop a generic framework of key concepts for thinking critically about claims, research and choices about interventions, with the aim of supporting ‘informed choices’. We define an informed choice as one that is based on critical understanding of the relevant available evidence. This paper describes the process of that cross-field engagement, and reflects on how consensus was reached on the generic framework. Working in an alliance of 24 researchers from across fields to develop the Key Concepts for Informed Choices framework, we learned three lessons about cross-field working: (1) there was much agreement, despite diversity of views and experiences; (2) the applications of our work were broader than we could have imagined; and (3) we identified a wide range of problems that we have in common when making informed choices. Here we describe our experience of working together to develop the framework, and draw out lessons for others who may be involved in similar cross-field initiatives.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"23 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-02-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116688545","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Water governance in two urban African contexts: agency and action through participatory video","authors":"C. Tremblay, Leila M. Harris","doi":"10.14324/rfa.06.1.04","DOIUrl":"https://doi.org/10.14324/rfa.06.1.04","url":null,"abstract":"\u0000This paper describes and critically examines the process and outcomes of a community-based participatory video (PV) research project on issues related to water governance with residents of underserved and informal settlements in Khayelitsha, South Africa and Accra, Ghana. Co-produced videos were used to facilitate communication and to open a dialogue between the participating communities and their respective local governments, with the aims of improving awareness of the issues, enhancing agency and enabling participation in the political and social debates about water governance. Analysing the approach, our research draws on two key principles of participatory governance – recognition and response – to evaluate the application of PV as a potential engagement tool for participatory water governance. We critically discuss the reality and tensions of PV in shifting deep-rooted inequities of power in decision making through two case studies, both of which involved residents and representatives from local governments in the research process.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"6 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127857032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
S. Kennedy, S. Bewley, Jane Chevous, C. Perôt, M. Vigneri, L. Bacchus
{"title":"A systematic review that evaluates the extent and quality of involving childhood abuse survivors in shaping, conducting and disseminating research in the UK","authors":"S. Kennedy, S. Bewley, Jane Chevous, C. Perôt, M. Vigneri, L. Bacchus","doi":"10.14324/rfa.06.1.03","DOIUrl":"https://doi.org/10.14324/rfa.06.1.03","url":null,"abstract":"Despite a well-established understanding of the mental and physical health consequences associated with exposure to childhood abuse, the active voices of survivors are rarely present in shaping, conducting and disseminating research. To explore the extent and quality of involvement with adult survivors of childhood abuse in the UK, we performed a systematic review of research conducted ‘with’ or ‘by’ survivors, and analysed involvement against a new instrument, the Survivor Research Involvement Ladder, which was co-produced drawing from the principles of the Survivors Voices Charter. A search of relevant grey and peer-reviewed literature was conducted, which retrieved 662 sources after removing duplicates. Of these, 116 full-text articles on adult survivors of childhood abuse in the UK were subsequently assessed for involvement (beyond participation as ‘subjects’), of which only 15 (12.9 per cent) reported activities led, co-produced, advised or consulted on by survivors, and these were included in the review. From evaluations and analysis using the ladder, consumerist models were found to be the dominant form of involvement, with survivors filling advisory roles at isolated stages. Survivor-led research was scarce but emerged when survivor-researchers planned, conducted and disseminated their work. This review finds considerable opportunity for improvements in the level, quality and subsequent reporting of research activities involving survivors. The use of the instrument needs replication, validation and further field-testing.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"28 5 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123488675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Participatory evaluation for large-scale arts programmes: challenges, adaptations and unexpected shifts in culture","authors":"N. Gratton, J. Reynolds","doi":"10.14324/rfa.06.1.01","DOIUrl":"https://doi.org/10.14324/rfa.06.1.01","url":null,"abstract":"\u0000Researchers at Staffordshire University have a long history of undertaking community-based research in and with communities in Stoke-on-Trent. Commitment to the principles and practice of participatory research by the university’s Creative Communities Unit (CCU) team led to an approach to participatory action research called Get Talking. This article highlights the use of Get Talking to evaluate Appetite, an Arts Council England Creative People and Places project in Stoke-on-Trent. Staffordshire University conducted a participatory evaluation using Get Talking for the three years of the programme’s first phase. As well as reflecting on the strengths of the approach, we also discuss the ways in which the approach was adapted in order to address some of the key challenges that were encountered, and the impact of taking a participatory approach to the evaluation on the programme’s culture in relation to community engagement and co-production.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"17 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"125997160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Collaboration between doctoral researchers and patient research partners: reflections and considerations","authors":"B. Jones, A. Hunt","doi":"10.14324/rfa.06.1.02","DOIUrl":"https://doi.org/10.14324/rfa.06.1.02","url":null,"abstract":"\u0000A key principle of working in collaboration with patient research partners (patients contributing to research projects as team members, rather than as participants) is that they should be equal partners with researchers and health professionals. This presents a challenge in doctoral research, where students are expected to own their research decisions. Consequently, efforts are required to ensure that patient partners’ involvements are not tokenistic. This case study brings together the reflections of a recently completed doctoral student and a patient partner, who was part of the doctoral supervisory team. It discusses the role that the patient partner took during the doctorate and the activities in which he was involved. Both the researcher and the patient partner reflect on their expectations and experiences of collaboration. These reflections include factors that facilitated good working practices, the process of building rapport, and the benefits each got out of their collaboration. The interactions exploring ‘the dance of academia’ (the processes that were formally part of the PhD process or the aspects of academic work that were not directly related to completing the research) required recognition. Open, ongoing communication and practical considerations to support the patient partner were key to establishing a strong working relationship, and to determining what a meaningful contribution looked like at each stage of the process. Working with a patient partner as a doctoral student adds value to the doctoral process, and it is a vital opportunity to develop good practice as a researcher.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"75 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-01-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132858160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Z. Sheppard, Sarah Williams, R. Lawson, Kimberly Appleby
{"title":"Patient and public involvement and engagement: Practice case study with reflections and learnings from a small rural district general hospital","authors":"Z. Sheppard, Sarah Williams, R. Lawson, Kimberly Appleby","doi":"10.14324/rfa.05.2.16","DOIUrl":"https://doi.org/10.14324/rfa.05.2.16","url":null,"abstract":"\u0000The notion of patient and public involvement and engagement (PPIE) in research has been around for some time, and it is considered essential to ensure high-quality relevant research that is shared and that will make a difference. This case study of practice aims to share the PPIE practice from Dorset County Hospital NHS Foundation Trust, a small rural district general hospital. It describes the process of recruiting patients and members of the public as research volunteers, as well as the plethora of engagement and involvement activities with which they have been involved to date. This is followed by a reflection on the process and an overview of plans for the future, highlighting key challenges as well as learnings. A dedicated role to support/oversee PPIE activities is recommended to coordinate large groups of research volunteers, as well as to monitor the important impact of their input, which is considerable. Increasing diversity and access to under-served groups, and embedding the research volunteer role within the wider clinical research team, are also highlighted as fundamental challenges, as well as opportunities to make the most from this valuable resource. The case study of practice puts forward a recommendation to all research departments to embed PPIE in all of the work that they do.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"15 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124038442","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"STEM escape rooms for public engagement","authors":"A. Mathieson, E. Duca","doi":"10.14324/rfa.05.2.10","DOIUrl":"https://doi.org/10.14324/rfa.05.2.10","url":null,"abstract":"\u0000Escape rooms are a relatively new cultural phenomenon, attracting a wide range of audiences to test their puzzle-solving skills. While this format has been trialled in an educational context, there has been little exploration of it as a tool for engagement. We ran a STEM-based escape room, open to the public, over five days at a science centre in Malta. This was an exploratory exercise to determine whether escape rooms could be successful in an informal science engagement context. Over seventy players attempted the game and completed our evaluation. Our results suggest that escape rooms can be used in engagement contexts as they provide a positive experience that encourages future interactions with science. They may also draw audiences not normally interested in science and help them engage with scientific content in a more accessible manner. Interestingly, players were able to persist in engaging with content they found difficult while still finding it enjoyable, which has implications for the science communication of complex topics. Finally, players perceived that they were able to learn science through the escape room, which may increase their self-efficacy.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131255925","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
S. Gray, C. Bevan, K. Cater, Jo Gildersleve, C. Garland, Oliver Langdon
{"title":"Developing arts-based methods for exploring virtual reality technologies: A university–industry case study","authors":"S. Gray, C. Bevan, K. Cater, Jo Gildersleve, C. Garland, Oliver Langdon","doi":"10.14324/rfa.05.2.05","DOIUrl":"https://doi.org/10.14324/rfa.05.2.05","url":null,"abstract":"\u0000Collaborations between human–computer interaction (HCI) researchers and arts practitioners frequently centre on the development of creative content using novel – often emergent – technologies. Concurrently, many of the techniques that HCI researchers use in evaluative participant-based research have their roots in the arts – such as sketching, writing, artefact prototyping and role play. In this reflective paper, we describe a recent collaboration between a group of HCI researchers and dramatists from the immersive theatre organization Kilter, who worked together to design a series of audience-based interventions to explore the ethics of virtual reality (VR) technology. Through a process of knowledge exchange, the collaboration provided the researchers with new techniques to explore, ideate and communicate their work, and provided the dramatists with a solid academic grounding in order to produce an accurate yet provocative piece of theatrically based design fiction. We describe the formation of this partnership between academia and creative industry, document our journey together, and share the lasting impact it has had upon both parties.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"66 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132594456","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Therapeutic creativity and the lived experience of grief in the collaborative fiction film Lost Property","authors":"Lesel D Dawson, Jimmy Hay, Natasha Rosling","doi":"10.14324/rfa.05.2.04","DOIUrl":"https://doi.org/10.14324/rfa.05.2.04","url":null,"abstract":"\u0000This collaborative project aimed to represent the embodied experience of grief in a fiction film by drawing on research, and on the personal and professional experience of all involved: academics; an artist; bereavement therapists and counsellors; and professional actors, cinematographers, sound engineers and other film crew. By representing grief in a more phenomenologically minded manner, the project sought to capture the lived experience of loss on screen while contributing meaningfully to the discourse on practice-as-research. Hay, Dawson and Rosling used a collaborative fiction film and participatory action research to investigate whether storying loss, and representing it through narrative, images and embodied movement, is therapeutic. Participatory action research was beneficial in facilitating changes in the co-researchers’ thinking, feeling and practice, and in enabling participants to inhabit multiple roles in a manner that expanded their disciplinary boundaries. However, while the project’s effect on some of the participants demonstrated the ways that creativity and meaning making can support adaptive grieving, it also revealed the risks of using participatory action research and fiction film to investigate highly emotive topics such as grief.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"180 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116198580","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}