Journal of adolescent and young adult oncology最新文献_第7页

Barriers to Care and Perceived Need for Mental Health Services Among Adolescent and Emerging Adult Survivors of Pediatric Brain Tumors. 青少年和成年小儿脑肿瘤幸存者的护理障碍和对心理健康服务的认知需求。

IF 1.2 4区医学

Journal of adolescent and young adult oncology Pub Date : 2024-06-01 Epub Date: 2023-12-15 DOI: 10.1089/jayao.2023.0119

Allison P Fisher, Jamie Patronick, Emily L Moscato, Cynthia A Gerhardt, Amery Treble-Barna, Krestin Radonovich, Shari L Wade

{"title":"Barriers to Care and Perceived Need for Mental Health Services Among Adolescent and Emerging Adult Survivors of Pediatric Brain Tumors.","authors":"Allison P Fisher, Jamie Patronick, Emily L Moscato, Cynthia A Gerhardt, Amery Treble-Barna, Krestin Radonovich, Shari L Wade","doi":"10.1089/jayao.2023.0119","DOIUrl":"10.1089/jayao.2023.0119","url":null,"abstract":"Purpose: Pediatric brain tumor survivors (PBTS) commonly experience mental health challenges, which can be exacerbated during adolescence and emerging adulthood (AEA). We examined survivors and caregivers' perceived need for mental health services and barriers to receiving mental health care. Methods: Families completed surveys to assess perceived need for mental health services, socioemotional impairment, and barriers to mental health services. Survivors were between 13 and 25 years of age and were at least 5 years from diagnosis. Results: Sixty-nine caregiver-PBTS dyads participated, as well as 18 survivors and 20 caregivers who participated individually. Approximately half of survivors were male (n = 57, 52.3%), 85% (n = 93) were White, and their average age was 19.31. Most caregivers (n = 63, 70.8%) and survivors (n = 55, 63.2%) endorsed need for services for the survivors. Adolescents endorsed more barriers related to perceived helpfulness, t(18) = 2.3, p = 0.03, d = 0.54, and effects of services, t(18) = 3.8, p < 0.001, d = 0.88, than their caregivers. Emerging adults, t(34) = 2.4, p = 0.02, d = 0.41, endorsed more content barriers than their caregivers.. Discussion: Both survivors and their caregivers reported obstacles to accessing mental health services such as perceived lack of need, concerns regarding the effectiveness and usefulness of services, and limited knowledge about the content of services. Psychoeducation and psychosocial screening can support families in understanding survivors' need for mental health services.","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11296316/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138804093","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Perceptions of Infertility and Reproductive Concerns in Adolescent and Young Adult Female Cancer Survivors. 青少年和年轻成年女性癌症幸存者对不孕症和生殖问题的看法。

IF 1.2 4区医学

Journal of adolescent and young adult oncology Pub Date : 2024-06-01 Epub Date: 2024-03-06 DOI: 10.1089/jayao.2023.0138

Anna Zeidman, Alexandra M Davis, Jennifer S Ford, Michael Diefenbach, Catherine Benedict

引用次数: 0

Knowledge and Perceptions About Cervical Cancer and Human Papillomavirus, and Relationship with E-health Literacy, and Affecting Factors Among Female University Students. 女大学生对宫颈癌和人类乳头状瘤病毒的认识和看法，以及与电子健康知识和影响因素的关系。

IF 1.2 4区医学

Journal of adolescent and young adult oncology Pub Date : 2024-06-01 Epub Date: 2024-02-23 DOI: 10.1089/jayao.2023.0173

Eda Kılınç İşleyen, Gülbahar Korkmaz Aslan, Asiye Kartal

{"title":"Knowledge and Perceptions About Cervical Cancer and Human Papillomavirus, and Relationship with E-health Literacy, and Affecting Factors Among Female University Students.","authors":"Eda Kılınç İşleyen, Gülbahar Korkmaz Aslan, Asiye Kartal","doi":"10.1089/jayao.2023.0173","DOIUrl":"10.1089/jayao.2023.0173","url":null,"abstract":"Purpose: The aim of this study is to reveal female university students' knowledge and perceptions about cervical cancer (CC) and human papillomavirus (HPV), and relationship with e-health literacy (e-HL). It also aims to determine the predictors affecting CC and HPV. Methods: A cross-sectional study was conducted with 589 female university students in Türkiye. Data were collected using a \"Cervical Cancer and HPV Awareness Questionnaire\" and an \"E-health Literacy Scale (e-HLS).\" Analysis involved Pearson correlation analysis, Independent Sample t-test, one-way analysis of variance, and Linear Regression analysis. Results: Results indicate that female students exhibited a low level of knowledge and perception about CC and HPV. Only 2.90% of students reported being vaccinated, while 39.90% had sexual experience. Higher knowledge levels were observed among married individuals, those familiar with HPV and the HPV vaccine, those who had undergone Pap smear tests, sexually active individuals, and consistent condom users. e-HL had a positive impact on knowledge and perceived threat about CC and HPV. The affecting predictors for knowledge about CC and HPV were found to be e-HLS (β = 0.911), having prior knowledge of HPV (β = 0.201), and being aware of the HPV vaccine (β = 0.172). In terms of perceived threat, the affecting predictors were e-HLS (β = 0.207), having heard of HPV (β = 0.101), and having knowledge of the HPV vaccine (β = 0.092). Conclusion: e-HL emerged as a crucial predictor positively influencing knowledge and perceptions about CC and HPV. This suggests the potential for organizing digital health campaigns to enhance awareness and understanding of CC and HPV.","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139939991","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reel Resilience: Unveiling the Potential Role of Entertainment Media Narratives in Improving Psychological Well-Being Among Adolescent and Young Adult Cancer Survivors. 卷轴弹性:揭示娱乐媒体叙事在改善青少年和青年癌症幸存者心理健康方面的潜在作用。

IF 1.2 4区医学

Journal of adolescent and young adult oncology Pub Date : 2024-06-01 Epub Date: 2023-11-29 DOI: 10.1089/jayao.2023.0114

Meredith K Reffner Collins

引用次数: 0

Medical Trainee Education and Advocacy Regarding Sexual Health and Oncofertility: Gaps and Opportunities. 关于性健康和肿瘤生育的医学培训生教育和宣传：差距与机遇。

IF 1.2 4区医学

Journal of adolescent and young adult oncology Pub Date : 2024-06-01 Epub Date: 2024-01-30 DOI: 10.1089/jayao.2023.0135

Mariah L Wright-Nadkarni, Leena Nahata, Anthony N Audino

引用次数: 0

A Scoping Review of Oncosexology Policy and Practice Tools Focused on Adolescents and Young Adults. 以青少年为重点的肿瘤学政策和实践工具范围审查。

IF 1.2 4区医学

Journal of adolescent and young adult oncology Pub Date : 2024-06-01 Epub Date: 2024-04-02 DOI: 10.1089/jayao.2023.0145

Kexin Sun, Nhu Thao Dinh, Jeremy Lewin, Luke Grzeskowiak, Chiara Mariano, Eliza Bailey, Smaro Lazarakis, Safeera Y Hussainy

{"title":"A Scoping Review of Oncosexology Policy and Practice Tools Focused on Adolescents and Young Adults.","authors":"Kexin Sun, Nhu Thao Dinh, Jeremy Lewin, Luke Grzeskowiak, Chiara Mariano, Eliza Bailey, Smaro Lazarakis, Safeera Y Hussainy","doi":"10.1089/jayao.2023.0145","DOIUrl":"10.1089/jayao.2023.0145","url":null,"abstract":"Background: Despite being considered a key component of quality-of-life, sexual health concerns in adolescents and young adults (AYA) patients with cancer (aged 15-39 years old) are often unmet due to barriers from both patients and health care professionals (HCPs). Investigation into policy and practice tools in this scope of practice is also limited. Aim: To review the literature on policy and practice tools in AYA oncosexology. Method: A scoping review was conducted using four databases: Medline, EMCARE, EMBASE, and PsycINFO, based on the Joanna Briggs Institute Scoping Review methodology. Retrieved articles were extracted into Covidence, followed by two screening rounds. Descriptive and basic content analyses were performed for evidence synthesis. Results: Seventy-four articles were included after screening rounds and citation searches. Overall, oncosexology policy and practice tools were categorized into screening tools (11 articles), guidelines (38 articles), training programs (15 articles), service delivery initiatives (5 articles), and the evaluation of their feasibility/challenges to implementation (5 articles). Among these, only ten articles were specifically about the AYA population. They helped identify and resolve sexual health concerns in AYA patients with cancer by providing strategies to overcome communication barriers, treatment options, and information resources for patients, and by advocating for more HCP education on this topic. Conclusion: The results warrant the need for more research, implementation and expansion of policy and practice tools for sexual health issues in AYA patients with cancer.","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140335740","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Ovarian Insufficiency and Fertility Preservation During and After Childhood Cancer Treatment. 儿童癌症治疗期间和之后的卵巢功能不全和生育力保护。

IF 1.2 4区医学

Journal of adolescent and young adult oncology Pub Date : 2024-06-01 Epub Date: 2024-01-24 DOI: 10.1089/jayao.2023.0111

Kayla L Foster, Danielle J Lee, Selma F Witchel, Catherine M Gordon

引用次数: 0

Survey of Transitional Care Between Pediatrics and Obstetrics/Gynecology in Japan. 日本儿科与妇产科过渡护理调查。

IF 1.2 4区医学

Journal of adolescent and young adult oncology Pub Date : 2024-06-01 Epub Date: 2024-02-27 DOI: 10.1089/jayao.2023.0017

Kentaro Nakamura, Yukayo Terashita, Atsushi Manabe, Nao Suzuki

{"title":"Survey of Transitional Care Between Pediatrics and Obstetrics/Gynecology in Japan.","authors":"Kentaro Nakamura, Yukayo Terashita, Atsushi Manabe, Nao Suzuki","doi":"10.1089/jayao.2023.0017","DOIUrl":"10.1089/jayao.2023.0017","url":null,"abstract":"Purpose: This study's aim was to determine the actual status of transitional care for patients with pediatric cancer (PPCs) in Japan by surveying obstetricians/gynecologists. Methods: A questionnaire survey on transitional medicine was conducted in the form of an online questionnaire at 579 major training facilities nationwide, which were registered with the Japanese Society of Obstetrics and Gynecology. Results: While 40% of the facilities had received referrals for PPCs, only 13% provided transitional care specifically for PPCs. The most common problems with referrals were related to \"insufficient explanation.\" In addition, at facilities with no experience treating PPCs, many respondents commented that they did not know how to follow the progression of the disease. Regarding the necessity of obstetrics/gynecology visits for PPCs, more than half of the respondents at facilities with experience treating PPCs answered that such visits were \"necessary\"; only 1% answered that they were \"unnecessary.\" On the other hand, 37% of the facilities that had no experience treating PPCs answered that it was \"necessary,\" whereas 4% answered that it was \"unnecessary.\" Conclusions: This survey of the actual status of transitional care between pediatrics and obstetrics/gynecology in Japan identified issues to be addressed for the spread of transitional care. The results suggest that, in the future, health care professionals need education to increase their knowledge, and that patient education that leads to patients' awareness of their own self-management is necessary.","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139990121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Evaluation of the Cancer Awareness Measure in Adolescents in Turkiye: A Methodological Study. 对土耳其青少年癌症意识测量的评估：方法论研究

IF 1.2 4区医学

Journal of adolescent and young adult oncology Pub Date : 2024-05-28 DOI: 10.1089/jayao.2024.0005

Şeyma Zeybek, Şeyda Özbiçakçi

{"title":"Evaluation of the Cancer Awareness Measure in Adolescents in Turkiye: A Methodological Study.","authors":"Şeyma Zeybek, Şeyda Özbiçakçi","doi":"10.1089/jayao.2024.0005","DOIUrl":"10.1089/jayao.2024.0005","url":null,"abstract":"Purpose: Cancer awareness can help reduce the associated morbidity and mortality. There is no scale for the assessment of general cancer awareness in Turkiye. This study aimed to evaluate the cultural relevance and psychometric properties of the cancer awareness measure (CAM) for use in adolescents in the Turkish population. Methods: This methodological study included 400 students attending seven high schools in western Turkiye, recruited by convenience sampling. The CAM was translated into Turkish and assessed for content validity by expert panel opinion and content validity index (CVI). The Turkish CAM was administered online, and its reliability was assessed using Cronbach's alpha coefficients, item-total and item-subscale correlation coefficients, and test-retest analysis. Results: The Turkish CAM had excellent content validity (scale CVI = 0.99). Cronbach's alpha for the entire scale was 0.72, and item-subscale correlation coefficients were 0.33-.75 (p < 0.001). Test-retest reliability was good, with an intraclass correlation coefficient of 0.83 for the entire scale (p < 0.001). The students' mean score on the Turkish CAM was 45.60 ± 7.23 (on a scale of 11-77), indicating moderate cancer awareness. Conclusion: The Turkish CAM is a valid and reliable measure that can be used to assess cancer awareness in adolescents in Turkiye. Interventional studies should be performed to measure and increase cancer awareness and promote cancer prevention among young people.","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-05-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141158156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"The Most Important Thing is That You Are Not Left Alone"-A Qualitative Study of Challenges and Needs of Adolescents and Young Adults with Cancer. "最重要的是你不会孤单"--关于青少年癌症患者的挑战和需求的定性研究。

IF 2 4区医学

Journal of adolescent and young adult oncology Pub Date : 2024-05-21 DOI: 10.1089/jayao.2023.0158

Carolin Wilharm, Anne Pralong, Mara Weiß, Saskia Blütgen, Michael Hallek, Raymond Voltz, Steffen T Simon, Armin Tuchscherer

{"title":"\"The Most Important Thing is That You Are Not Left Alone\"-A Qualitative Study of Challenges and Needs of Adolescents and Young Adults with Cancer.","authors":"Carolin Wilharm, Anne Pralong, Mara Weiß, Saskia Blütgen, Michael Hallek, Raymond Voltz, Steffen T Simon, Armin Tuchscherer","doi":"10.1089/jayao.2023.0158","DOIUrl":"https://doi.org/10.1089/jayao.2023.0158","url":null,"abstract":"Purpose: We aimed to gain in-depth insights into the challenges and needs of adolescents and young adults with cancer (AYA) throughout their disease to detect increased needs for support. Methods: We conducted face-to-face interviews with 15 patients 18-39 years old at the time of diagnosis of malignancies who had completed treatment at the time of the interview. The interviews were analyzed using content analysis. Results: The unexpected diagnosis of a serious illness shocked the participants, especially since many were in a life phase of transition at that time and had little knowledge about cancer and its therapy. They reported feelings of helplessness, unfairness, and insecurity triggered by side effects, divergent information from health care professionals (HCPs), or lack of information. After the end of the therapy, many AYAs were challenged by prolonged changes in their lives since they gained strength from the hope of returning to \"the life before.\" The primary needs were social and psychological support, connecting with peers, orientation, and guidance. Conclusion: AYAs face special challenges requiring support and guidance from HCPs that should extend beyond the end of the therapy. There is a need for exchange opportunities with other AYAs. Trial Registration Number: DRKS00030277 (German Clinical Trials Register); September 27, 2022.","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":null,"pages":null},"PeriodicalIF":2.0,"publicationDate":"2024-05-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141070485","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0