Journal of adolescent and young adult oncology最新文献

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Health Care Transition Readiness in Parents of Adolescent and Young Adult Survivors of Pediatric Cancers: A Mixed Methods Study. 儿童癌症的青少年和青年幸存者的父母的医疗保健过渡准备:一项混合方法研究。
IF 1.2 4区 医学
Journal of adolescent and young adult oncology Pub Date : 2026-04-06 DOI: 10.1177/21565333261438420
Jennifer L Ellison, Suzanne Ameringer, Lisa A Schwartz, Nancy Jallo, Tracye Proffitt, Ronald K Elswick
{"title":"Health Care Transition Readiness in Parents of Adolescent and Young Adult Survivors of Pediatric Cancers: A Mixed Methods Study.","authors":"Jennifer L Ellison, Suzanne Ameringer, Lisa A Schwartz, Nancy Jallo, Tracye Proffitt, Ronald K Elswick","doi":"10.1177/21565333261438420","DOIUrl":"https://doi.org/10.1177/21565333261438420","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to better understand the phenomenon of health care transition (HCT) readiness in parents of adolescent and young adult (AYA) survivors of pediatric cancers. Specific aims were to (1) quantitatively identify factors that predict HCT readiness of parents of AYA survivors of pediatric cancers; (2) qualitatively explore the past, present, and future roles of parents related to their child's medical treatment and their potential impact on the parents' HCT readiness; and (3) integrate the quantitative and qualitative results regarding parental HCT readiness.</p><p><strong>Methods: </strong>Parents of AYA survivors were recruited through social media to complete surveys, including the Transition Readiness Index-Parent version (TRI-P), the Perceived Stress Scale (PSS), and the PROMIS Emotional Distress-Anxiety-Short Form 4a (PEDA). Parents who completed the survey were invited to participate in semistructured interviews. Integration of findings happened during interpretation.</p><p><strong>Results: </strong>Twenty-two parents completed the survey. Stepwise regression yielded a model including parental perceived stress and AYA age as predictive factors for HCT readiness. Twelve parents participated in semistructured interviews. Emergent themes were uncertainty related to HCT, parent roles during treatment, parent-AYA roles now/future, relationships with providers, and survivors' mental health challenges. Integrating the results found that most themes aligned with either the TRI-P, PSS, or PEDA, while survivors' mental health challenges were not reflected in the TRI-P.</p><p><strong>Conclusion: </strong>Further study, with a larger, less homogenous sample, could illuminate opportunities for potential interventions to increase HCT readiness for parents of AYA survivors.</p>","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":" ","pages":"21565333261438420"},"PeriodicalIF":1.2,"publicationDate":"2026-04-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147623108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Cancer Screening Uptake and Usual Source of Care Among Hispanic Survivors of Adolescent and Young Adult Cancer. 西班牙裔青少年和青年癌症幸存者的癌症筛查吸收和常规护理来源
IF 1.2 4区 医学
Journal of adolescent and young adult oncology Pub Date : 2026-04-01 Epub Date: 2026-03-10 DOI: 10.1177/21565333251361619
Eunju Choi, Amy M Berkman, Clark R Andersen, John M Salsman, Andrea C Betts, Joel Milam, Kimberly A Miller, Susan K Peterson, Qian Lu, Christabel K Cheung, Lauren V Ghazal, J A Livingston, Michelle A T Hildebrandt, Susan K Parsons, David R Freyer, Michael E Roth
{"title":"Cancer Screening Uptake and Usual Source of Care Among Hispanic Survivors of Adolescent and Young Adult Cancer.","authors":"Eunju Choi, Amy M Berkman, Clark R Andersen, John M Salsman, Andrea C Betts, Joel Milam, Kimberly A Miller, Susan K Peterson, Qian Lu, Christabel K Cheung, Lauren V Ghazal, J A Livingston, Michelle A T Hildebrandt, Susan K Parsons, David R Freyer, Michael E Roth","doi":"10.1177/21565333251361619","DOIUrl":"10.1177/21565333251361619","url":null,"abstract":"<p><strong>Purpose: </strong>This study examines cancer screening rates and the usual source of care among Hispanic survivors of adolescent and young adult (AYA, aged 15-39) cancer, a group at increased risk for poor health outcomes, including secondary cancers.</p><p><strong>Methods: </strong>National Health Interview Survey data were analyzed to identify Hispanic survivors of AYA cancer and Hispanic age- and sex-matched non-cancer controls. Breast, cervical, and colorectal screening (ever screened and up-to-date according to the U.S. Preventive Services Task Force recommendations) as well as reporting a usual source of care were compared among survivors and controls eligible for screening using multivariable logistic regressions.</p><p><strong>Results: </strong>Hispanic survivors were significantly more likely than Hispanic controls to report up-to-date cervical (43.8% vs. 25.5%, <i>p</i> < 0.001) and colorectal (43.1% vs. 21.8%, <i>p</i> = 0.002) cancer screenings. Eligible female survivors were also significantly more likely than controls to report ever having been screened for breast (86.9% vs. 60.6%, <i>p</i> < 0.001) and cervical (43.3% vs. 17.2%, <i>p</i> < 0.001) cancers. Additionally, survivors were significantly more likely than controls to report a usual source of care (74.4% vs. 49.9%, <i>p</i> < 0.001).</p><p><strong>Conclusion: </strong>Although Hispanic survivors of AYA cancers were more likely than Hispanic individuals without a history of cancer to report up-to-date cancer screening, screening rates among both groups remain low. Notably, approximately one-quarter of survivors reported lacking a usual source of care, indicating potential gaps in preventive health care access. The findings highlight the need for targeted interventions to improve cancer screening uptake among Hispanic survivors of AYA cancer.</p>","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":" ","pages":"102-114"},"PeriodicalIF":1.2,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12698110/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144717919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effect of Acupuncture and Massage on Pain in Adolescent and Young Adult Patients with Advanced Cancer: Subgroup Analysis of a Randomized Clinical Trial. 针刺和按摩对青少年晚期癌症患者疼痛的影响:一项随机临床试验的亚组分析。
IF 1.2 4区 医学
Journal of adolescent and young adult oncology Pub Date : 2026-04-01 Epub Date: 2026-02-19 DOI: 10.1177/21565333251368891
Han-Wei V Wu, Xiaotong Li, Qing S Li, Raymond E Baser, Katherine S Panageas, Susan Chimonas, William D Tap, Julia Glade Bender, Chaya S Moskowitz, Jun J Mao
{"title":"Effect of Acupuncture and Massage on Pain in Adolescent and Young Adult Patients with Advanced Cancer: Subgroup Analysis of a Randomized Clinical Trial.","authors":"Han-Wei V Wu, Xiaotong Li, Qing S Li, Raymond E Baser, Katherine S Panageas, Susan Chimonas, William D Tap, Julia Glade Bender, Chaya S Moskowitz, Jun J Mao","doi":"10.1177/21565333251368891","DOIUrl":"10.1177/21565333251368891","url":null,"abstract":"<p><strong>Purpose: </strong>Pain management remains challenging for adolescent and young adult (AYA) cancer patients. Acupuncture and massage have been recommended for cancer-related pain management, but no prospective trials have been conducted in AYA patients. We explored the effects of acupuncture and massage on pain in AYAs.</p><p><strong>Methods: </strong>This subgroup analysis focused on AYA patients (aged 18-39 years) enrolled in a randomized controlled trial comparing acupuncture and massage for pain management in advanced cancer. Interventions were delivered weekly for 10 weeks, followed by monthly booster treatments through week 26. The primary outcome was the worst pain score from the Brief Pain Inventory, analyzed using a linear mixed-effects model.</p><p><strong>Results: </strong>Thirty participants met eligibility criteria (13 acupuncture; 17 massage), with a mean age of 31.1 years (standard deviation, 5.8); 57% were female; 67% were White; and 53% had solid tumors. Both groups experienced reduced pain over time. Relative to baseline, patients receiving acupuncture had a mean change of -1.26 points (95% confidence interval [CI], -2.54 to 0.01) at 10 weeks and a mean change of -1.46 points (95% CI, -2.78 to -0.14) at 26 weeks. Patients receiving massage experienced a mean change of -2.81 points (95% CI, -3.92 to -1.70) at week 10 and a mean change of -3.79 points (95% CI, -4.85 to -2.73) at week 26.</p><p><strong>Conclusion: </strong>AYA patients with advanced cancer who received either acupuncture or massage experienced clinically meaningful and sustained reductions in pain. These findings provide a promising foundation for future trials aimed at evaluating integrative pain management strategies in AYAs.</p>","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":" ","pages":"85-93"},"PeriodicalIF":1.2,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13033281/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144846542","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Feedback on Adapting Interventions for AYA Cancer Survivors' and Caregivers' Psychological Distress, Symptom Management, and Health Care Use. 对AYA癌症幸存者和照顾者心理困扰、症状管理和卫生保健使用的适应性干预的反馈。
IF 1.2 4区 医学
Journal of adolescent and young adult oncology Pub Date : 2026-04-01 Epub Date: 2025-12-11 DOI: 10.1177/21565333251369687
Echo L Warner, Jennifer Traslavina Jimenez, Alla Sikorskii, Chris Segrin, Tracy Crane, Terry A Badger
{"title":"Feedback on Adapting Interventions for AYA Cancer Survivors' and Caregivers' Psychological Distress, Symptom Management, and Health Care Use.","authors":"Echo L Warner, Jennifer Traslavina Jimenez, Alla Sikorskii, Chris Segrin, Tracy Crane, Terry A Badger","doi":"10.1177/21565333251369687","DOIUrl":"10.1177/21565333251369687","url":null,"abstract":"<p><strong>Purpose: </strong>Adolescents and young adults (AYAs) experience higher burdens of negative psychological outcomes (e.g., depression, anxiety, and stress) of cancer compared to older survivors and caregivers. We elicited feedback about the adaptation of two randomized controlled trials (RCTs), one using a symptom management and survivorship handbook (SMSH) and another using telephone-based interpersonal counseling, for AYA cancer survivors and caregivers of AYAs.</p><p><strong>Methods: </strong>Following the parent RCT, we conducted a follow-up study using semi-structured telephone interviews to elicit feedback from AYAs (ages 18-39 years at diagnosis) and adult caregivers of AYAs (aged 18+). Participants were asked to share satisfaction with the (1) content, (2) delivery, and (3) general experiences in the study. Interviews were recorded, transcribed, and quality checked. We categorized qualitative feedback through interpretive description.</p><p><strong>Results: </strong>There were <i>N</i> = 18 participants 10 women and 8 men; 8 cancer survivors and 10 caregivers. The interviews were 5-20 minutes (average = 10.5 minutes). Participants enjoyed the content and found the information helpful. Participants preferred digital materials for accessing information about cancer symptom management and treatment. Some participants continue to use the information from the SMSH after their participation.</p><p><strong>Conclusions: </strong>AYA cancer survivors and caregivers of AYAs were largely satisfied with the content of the intervention materials. Minor suggestions arose to modify the intervention materials to be more suitable through including digital materials and social connections.</p>","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":" ","pages":"134-142"},"PeriodicalIF":1.2,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144882911","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The UNI-AJA Project: A Feasibility Study Based on Real-World Data in French Adolescents and Young Adults with Cancer. UNI-AJA项目:基于法国青少年和青年癌症患者真实世界数据的可行性研究。
IF 1.2 4区 医学
Journal of adolescent and young adult oncology Pub Date : 2026-04-01 Epub Date: 2026-02-19 DOI: 10.1177/21565333251359614
Emmanuel Desandes, Alizée Diatchenko, Hugo Crochet, Nicolas André, Jean-Yves Blay, Nathalie Gaspar, Lionnel Geoffrois, Sabine Heinrich, Pierre Kubicek, Valérie Laurence, Pierre Leblond, Cyril Lervat, Lise Molimard, Marilyne Poirée, Marion Salomon, Jill Serre, Maud Toulmonde, Pascale Varlet, Thierry Durand, Françoise Ducimetière, Perrine Marec-Berard
{"title":"The UNI-AJA Project: A Feasibility Study Based on Real-World Data in French Adolescents and Young Adults with Cancer.","authors":"Emmanuel Desandes, Alizée Diatchenko, Hugo Crochet, Nicolas André, Jean-Yves Blay, Nathalie Gaspar, Lionnel Geoffrois, Sabine Heinrich, Pierre Kubicek, Valérie Laurence, Pierre Leblond, Cyril Lervat, Lise Molimard, Marilyne Poirée, Marion Salomon, Jill Serre, Maud Toulmonde, Pascale Varlet, Thierry Durand, Françoise Ducimetière, Perrine Marec-Berard","doi":"10.1177/21565333251359614","DOIUrl":"10.1177/21565333251359614","url":null,"abstract":"<p><p>The UNI-AJA project is a French epidemiological study analyzing cancer care pathways and outcomes in adolescents and young adults (AYAs, 15-29 years) from 2009 to 2022. Using data from 10 health institutions and national databases, it will examine treatment types, delays, second cancers, long-term effects, and causes of death. The study will employ deterministic linkage for comprehensive patient tracking. It will assess care evolution, the impact of AYA-specific structures, and treatment consequences. Findings will support improved cancer management and policy decisions in France. This project may lay the foundation for a national clinico-epidemiological database for AYAs with cancer.</p>","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":" ","pages":"143-147"},"PeriodicalIF":1.2,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144637050","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perspectives on Care Plans for Adolescent and Young Adult Survivors of Childhood Cancer: A Qualitative Evaluation of Survivors, Caregivers, and Oncology and Primary Care Practitioners. 儿童癌症的青少年和青年幸存者护理计划的观点:幸存者、护理者、肿瘤和初级保健从业人员的定性评估。
IF 1.2 4区 医学
Journal of adolescent and young adult oncology Pub Date : 2026-04-01 Epub Date: 2026-03-10 DOI: 10.1177/21565333251362113
Katie Darabos, Janet A Deatrick, Courtney Benjamin Wolk, Bridget O'Hagan, Sara King-Dowling, Dava Szalda, Wendy Hobbie, Lamia P Barakat, Christine Hill-Kayser, Lisa A Schwartz
{"title":"Perspectives on Care Plans for Adolescent and Young Adult Survivors of Childhood Cancer: A Qualitative Evaluation of Survivors, Caregivers, and Oncology and Primary Care Practitioners.","authors":"Katie Darabos, Janet A Deatrick, Courtney Benjamin Wolk, Bridget O'Hagan, Sara King-Dowling, Dava Szalda, Wendy Hobbie, Lamia P Barakat, Christine Hill-Kayser, Lisa A Schwartz","doi":"10.1177/21565333251362113","DOIUrl":"10.1177/21565333251362113","url":null,"abstract":"<p><strong>Purpose: </strong>Treatment advances have led to a rapidly growing population of adolescent and young adult (AYA, ages 15-29) survivors of childhood cancer. Despite cure, AYA are physically and psychologically vulnerable due to treatment toxicity, leading 70% to develop second cancers or chronic, often life-threatening, late effects. Self-management is critical for survivorship and includes lifelong follow-up care, health promotion, disease surveillance, and management of late effects. Survivorship care plans (SCPs) are documents to inform survivors and providers of recommendations for management of survivor health and to improve communication among providers. With limited SCP research to date, there are calls for rigorous research to understand SCP implementation.</p><p><strong>Methods: </strong>Qualitative semistructured interviews were conducted to assess perceptions about SCPs, including barriers and facilitators of SCP implementation among 12 purposefully sampled AYAs who received an SCP in the extant trial, 8 caregivers of AYA, 10 oncology providers, and 8 pediatric primary care providers.</p><p><strong>Results: </strong>Overall, SCPs were viewed as generally positive by AYA and caregivers, with caveats about ways to improve them or use them. Oncology providers also generally had a positive view of the SCP, but primary care practitioners found them to be less targeted to their specific needs.</p><p><strong>Conclusion: </strong>Our results helped to clarify critical aspects of implementation that need to be addressed if SCPs are to be successfully implemented into survivorship care for AYA, especially as they transition to adult-oriented health care.</p>","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":" ","pages":"115-123"},"PeriodicalIF":1.2,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12997169/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144731048","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Current Practices in the Use of Anti-Mullerian Hormone for Surveillance of Ovarian Function in Childhood Cancer Survivors: A Report from the Pediatric and Adolescent Committee of the Oncofertility Consortium. 目前使用抗苗勒管激素监测儿童癌症幸存者卵巢功能的实践:一份来自肿瘤生育联合会儿科和青少年委员会的报告。
IF 1.2 4区 医学
Journal of adolescent and young adult oncology Pub Date : 2026-04-01 Epub Date: 2026-03-10 DOI: 10.1177/21565333251359617
Kari Bjornard, Allison Close, Julie Rios, Antoinette Anazodo, Jennifer Levine, Christine Yu, Leena Nahata, Lillian Meacham
{"title":"Current Practices in the Use of Anti-Mullerian Hormone for Surveillance of Ovarian Function in Childhood Cancer Survivors: A Report from the Pediatric and Adolescent Committee of the Oncofertility Consortium.","authors":"Kari Bjornard, Allison Close, Julie Rios, Antoinette Anazodo, Jennifer Levine, Christine Yu, Leena Nahata, Lillian Meacham","doi":"10.1177/21565333251359617","DOIUrl":"10.1177/21565333251359617","url":null,"abstract":"<p><strong>Purpose: </strong>Anti-Mullerian hormone (AMH) is a surrogate measure to assess ovarian reserve in childhood cancer survivors, but consensus is lacking on when to obtain and how to use AMH data.</p><p><strong>Methods: </strong>Pediatric and adolescent committee (PAC) members of the Oncofertility Consortium were invited by email to complete a survey regarding ovarian reserve surveillance and their use of AMH. Responses were collected through REDCap, and results were stratified by specialty: pediatric oncology and endocrinology (PED) or adult/pediatric gynecology and reproductive endocrinology (GYN). Descriptive statistics and Fisher's exact tests were used for analysis using SAS v9.4.</p><p><strong>Results: </strong>Surveys were completed by 48 of 123 eligible PAC members (28 PED, 19 GYN, response rate 39%). The majority (83.3%) reported using AMH as a measure of ovarian reserve, with the earliest timepoint to begin AMH surveillance to be 12-23 months from therapy completion (63%). While most respondents felt the benefits of testing outweighed the limitations (78.7%), commonly reported limitations included variability of results (60.4%) and lack of standardization in use of AMH (52.1%). Differences between PED and GYN respondents included how AMH was used among their clinical practice and the timing of laboratory evaluation.</p><p><strong>Conclusions: </strong>Most respondents indicated they used AMH; however, practices in its application varied depending on specialty backgrounds. Evidence-based clinical practice guidelines would improve the standardization of surveillance and counseling and prevent missed opportunities for fertility preservation in survivorship.</p>","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":" ","pages":"94-101"},"PeriodicalIF":1.2,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144626379","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Children's Oncology Group Survey Exploring Practices and Barriers to Sperm Banking for Post-Pubertal Males with Newly Diagnosed High-Risk Acute Lymphoblastic Leukemia. 一项儿童肿瘤小组调查探讨了青春期后男性新诊断的高风险急性淋巴细胞白血病的做法和精子银行的障碍。
IF 1.2 4区 医学
Journal of adolescent and young adult oncology Pub Date : 2026-04-01 Epub Date: 2026-03-10 DOI: 10.1177/21565333251364084
Jessica L Feuerstein, Burton Appel
{"title":"A Children's Oncology Group Survey Exploring Practices and Barriers to Sperm Banking for Post-Pubertal Males with Newly Diagnosed High-Risk Acute Lymphoblastic Leukemia.","authors":"Jessica L Feuerstein, Burton Appel","doi":"10.1177/21565333251364084","DOIUrl":"10.1177/21565333251364084","url":null,"abstract":"<p><p>This study examined sperm banking (SB) practices and barriers for post-pubertal males with high-risk acute lymphoblastic leukemia (ALL) prior to chemotherapy. A cross-sectional survey of 2345 Children's Oncology Group oncologists across the U.S., Canada, Australia, and New Zealand yielded 572 responses. While 78% offer SB, common barriers include timing (70%) and patient health (44%). Most institutions offering SB have a dedicated oncofertility team (57%), and 86% are medium- or large-sized, suggesting greater resource availability. These results extend prior research by identifying actionable barriers and informing targeted interventions to improve access to FP for post-pubertal males with ALL.</p>","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":" ","pages":"148-152"},"PeriodicalIF":1.2,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144731047","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adaptive Psychosocial Outcomes in Cancer Predisposition Syndromes: A Scoping Review. 癌症易感性综合征的适应性社会心理结局:范围综述。
IF 1.2 4区 医学
Journal of adolescent and young adult oncology Pub Date : 2026-04-01 Epub Date: 2026-02-19 DOI: 10.1177/21565333251366387
Joan W Hanania, Kevin K Tsang, Chloe Rotman
{"title":"Adaptive Psychosocial Outcomes in Cancer Predisposition Syndromes: A Scoping Review.","authors":"Joan W Hanania, Kevin K Tsang, Chloe Rotman","doi":"10.1177/21565333251366387","DOIUrl":"10.1177/21565333251366387","url":null,"abstract":"<p><p>An increasing number of cancer predisposition syndromes (CPSs) have been associated with childhood cancer in light of advent advances in genomic medicine. While children and adolescents with CPSs present with compounded medical and psychosocial sequalae across the developmental trajectory, little is known about how adaptive psychosocial outcomes are conceptualized and promoted. Exploring adaptive and modifiable targets in psychological care may potentially promote coping among patients with CPSs and their families. The study undertakes a scoping review to describe, synthesize, characterize, and identify gaps in the literature on adaptive psychosocial outcomes among young people with CPSs and their caregivers. Adhering to PRISMA Extension guidelines and checklist, a systematic search in four databases was most recently conducted in February 2024: (PubMed, EMBASE, CINAHL, and PsycINFO). A total of 642 titles were screened and 36 articles were reviewed at the full-text level. Of those, five met the study inclusion criteria. The majority of articles were descriptive and centered around caregivers of at-risk patients with CPSs. The scoping review describes what is known about adaptive psychosocial outcomes associated with pediatric CPS and underscores the substantial gap in existing literature. Several important findings were identified across studies: significance of undergoing genetic testing, perceived surveillance benefits, positive psychological outcomes, intra-family communication, young people and caregiver psychosocial support. Future research is needed to investigate adaptive psychosocial outcomes associated with CPSs and delineate potential coping mechanisms. Findings may inform the development and dissemination of evidence-based psychological approaches designed to promote coping with pediatric CPSs.</p>","PeriodicalId":14769,"journal":{"name":"Journal of adolescent and young adult oncology","volume":" ","pages":"153-159"},"PeriodicalIF":1.2,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144804132","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Program Delivery and Change in Patient-Reported Outcomes of an Age-Specific Rehabilitation Program for Young Adult Cancer Survivors: A Feasibility Study. 一项针对年轻成年癌症幸存者的年龄特异性康复计划的实施和患者报告结果的变化:可行性研究。
IF 1.2 4区 医学
Journal of adolescent and young adult oncology Pub Date : 2026-04-01 Epub Date: 2025-12-11 DOI: 10.1177/21565333251372461
Maria Aagesen, Marc Sampedro Pilegaard, Kirsten Holstein Ipsen, Dorthe Søsted Jørgesen, May Aasebø Hauken, Karen la Cour
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