International journal of MS care最新文献

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Smoking and Health-Related Quality of Life in Patients With Multiple Sclerosis From Latin America 拉丁美洲多发性硬化症患者的吸烟与健康相关生活质量
International journal of MS care Pub Date : 2024-02-23 DOI: 10.7224/1537-2073.2023-053
E. Carnero Contentti, Juan I. Rojas, S. Giachello, Paula Henestroza, Pablo A Lopez
{"title":"Smoking and Health-Related Quality of Life in Patients With Multiple Sclerosis From Latin America","authors":"E. Carnero Contentti, Juan I. Rojas, S. Giachello, Paula Henestroza, Pablo A Lopez","doi":"10.7224/1537-2073.2023-053","DOIUrl":"https://doi.org/10.7224/1537-2073.2023-053","url":null,"abstract":"\u0000 \u0000 \u0000 Tobacco smoking is an important, modifiable, environmental risk factor for multiple sclerosis (MS) with a relevant impact on health-related quality of life (HRQOL). We aimed to assess the use of tobacco in individuals with MS from Latin America (LATAM), and its impact on HRQOL.\u0000 \u0000 \u0000 \u0000 We conducted a cross-sectional study based on a LATAM web-based survey. Demographics, social and clinical data, information on physical disability, and HRQOL scores were collected using the MS Impact Scale-29 (MSIS-29), the Fatigue Severity Scale (FSS), and the Hospital Anxiety and Depression Scale-Anxiety (HADS-A). Individuals with MS were classified at the time of the survey as follows: never-smokers (ie, patients who reported they had never smoked), past smokers (those who had smoked tobacco but not during the past year), or current smokers. For the analysis, groups were compared.\u0000 \u0000 \u0000 \u0000 425 patients (74.6% female) from 17 LATAM countries were included, mean age 43.6 ± 11 years and median Expanded Disability Status Scale score 2. There were 122 (28.7%) current smokers, 178 (41.9%) past smokers, and 125 (30.4%) never-smokers. Current smokers had significantly higher MSIS-29 physical (physical worsening), FSS (fatigue), and HADS-A (anxiety) scores compared with past and never-smokers after being adjusted for covariables. No significant differences were observed in any of the other analyzed demographic, clinical, and therapeutic variables. Thirty percent of the current and past smokers groups had never had their neurologists discuss smoking cessation with them.\u0000 \u0000 \u0000 \u0000 Individuals with MS who were current smokers had higher fatigue and anxiety scores and worse HRQOL compared with past and never-smokers.\u0000","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"21 6","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140436451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Impact of COVID-19 on Fatigue in Multiple Sclerosis COVID-19 对多发性硬化症患者疲劳的影响
International journal of MS care Pub Date : 2024-02-15 DOI: 10.7224/1537-2073.2023-031
Zade Abou-Rass, Jennie Feldpausch, Prudence Plummer, Nora E. Fritz
{"title":"The Impact of COVID-19 on Fatigue in Multiple Sclerosis","authors":"Zade Abou-Rass, Jennie Feldpausch, Prudence Plummer, Nora E. Fritz","doi":"10.7224/1537-2073.2023-031","DOIUrl":"https://doi.org/10.7224/1537-2073.2023-031","url":null,"abstract":"\u0000 \u0000 \u0000 Although the COVID-19 quarantine required everyone to make lifestyle changes, it may have had especially profound implications for individuals who experience multiple sclerosis (MS)-related fatigue. Individuals with MS who suffer from fatigue are already predisposed to inactivity and social isolation and are at risk of worsening symptoms. The objective of this study was to examine the impact of the COVID-19 national quarantine and related restrictions on the mental, emotional, and physical fatigue in persons with MS in the United States.\u0000 \u0000 \u0000 \u0000 We conducted a survey open to all adults (> 18 years) with MS within the United States. The survey gathered demographic information and asked how the COVID-19 pandemic impacted their physical, mental, and emotional fatigue.\u0000 \u0000 \u0000 \u0000 The survey was completed by 600 individuals, 478 with relapsing MS and 122 with progressive MS. There was a significant 2-way interaction for time by fatigue type; both physical and emotional fatigue significantly increased during the pandemic (P < .01) and remained significantly higher after the pandemic than prior to the pandemic (P < .01). Mental fatigue increased significantly during the pandemic (P < .01) and although it remained higher, on average, after the pandemic, it was not significantly different than prepandemic.\u0000 \u0000 \u0000 \u0000 Individuals with MS experienced increases in physical, mental, and emotional fatigue over the course of the COVID-19 quarantine. Even after the lifting of quarantine restrictions, these levels have not returned to baseline. To adequately address fatigue, it is critical that health care professionals inquire about all types of fatigue in persons with MS.\u0000","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"43 47","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139775734","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Impact of COVID-19 on Fatigue in Multiple Sclerosis COVID-19 对多发性硬化症患者疲劳的影响
International journal of MS care Pub Date : 2024-02-15 DOI: 10.7224/1537-2073.2023-031
Zade Abou-Rass, Jennie Feldpausch, Prudence Plummer, Nora E. Fritz
{"title":"The Impact of COVID-19 on Fatigue in Multiple Sclerosis","authors":"Zade Abou-Rass, Jennie Feldpausch, Prudence Plummer, Nora E. Fritz","doi":"10.7224/1537-2073.2023-031","DOIUrl":"https://doi.org/10.7224/1537-2073.2023-031","url":null,"abstract":"\u0000 \u0000 \u0000 Although the COVID-19 quarantine required everyone to make lifestyle changes, it may have had especially profound implications for individuals who experience multiple sclerosis (MS)-related fatigue. Individuals with MS who suffer from fatigue are already predisposed to inactivity and social isolation and are at risk of worsening symptoms. The objective of this study was to examine the impact of the COVID-19 national quarantine and related restrictions on the mental, emotional, and physical fatigue in persons with MS in the United States.\u0000 \u0000 \u0000 \u0000 We conducted a survey open to all adults (> 18 years) with MS within the United States. The survey gathered demographic information and asked how the COVID-19 pandemic impacted their physical, mental, and emotional fatigue.\u0000 \u0000 \u0000 \u0000 The survey was completed by 600 individuals, 478 with relapsing MS and 122 with progressive MS. There was a significant 2-way interaction for time by fatigue type; both physical and emotional fatigue significantly increased during the pandemic (P < .01) and remained significantly higher after the pandemic than prior to the pandemic (P < .01). Mental fatigue increased significantly during the pandemic (P < .01) and although it remained higher, on average, after the pandemic, it was not significantly different than prepandemic.\u0000 \u0000 \u0000 \u0000 Individuals with MS experienced increases in physical, mental, and emotional fatigue over the course of the COVID-19 quarantine. Even after the lifting of quarantine restrictions, these levels have not returned to baseline. To adequately address fatigue, it is critical that health care professionals inquire about all types of fatigue in persons with MS.\u0000","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"748 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139835258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Use of Traditional and Complementary Medicine Among Patients With Multiple Sclerosis in Morocco 摩洛哥多发性硬化症患者使用传统医学和辅助医学的情况
International journal of MS care Pub Date : 2024-02-05 DOI: 10.7224/1537-2073.2022-116
Rachid Lotfi, Mourad Chikhaoui, Abdessamad Elmourid, F. Chigr
{"title":"The Use of Traditional and Complementary Medicine Among Patients With Multiple Sclerosis in Morocco","authors":"Rachid Lotfi, Mourad Chikhaoui, Abdessamad Elmourid, F. Chigr","doi":"10.7224/1537-2073.2022-116","DOIUrl":"https://doi.org/10.7224/1537-2073.2022-116","url":null,"abstract":"\u0000 \u0000 \u0000 Multiple sclerosis (MS) is an acquired chronic, autoimmune, and neurodegenerative disease of the central nervous system. In addition to conventional MS therapy, patients are interested in traditional and complementary medicine (T&CM). Our study aims to describe the use of T&CM in a cohort of Moroccan patients with MS.\u0000 \u0000 \u0000 \u0000 A quantitative descriptive study was adopted to study this subject. For data collection, we opted for an anonymous questionnaire for 98 patients with MS. We gathered data via an electronic survey, using multivariable analysis to examine the effect of specific factors on T&CM use. Data collection took place from March to June 2022.\u0000 \u0000 \u0000 \u0000 The results show that 52% of patients use T&CM. Of those, 29.6% use cupping, 23.5% recite the Holy Quran, 15.3% use phytotherapy, 13.2% use apitherapy, and 10.2% use acupuncture. In addition, 66.3% of the surveyed respondents stated that alternative medicine positively affects their health. Finally, 49.1% of surveyed patients who use alternative medicine are between 30 and 40 years old. The results also show that the rate of T&CM use is higher in patients with progressive MS (OR = 2.540) and patients without financial access to disease-modifying therapy (OR = 2.100).\u0000 \u0000 \u0000 \u0000 This study invites us to consider societal, cultural, and economic factors when studying the use of T&CM among people with MS. Further research is needed to understand the motivations for using T&CM.\u0000","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"32 8","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139863299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Use of Traditional and Complementary Medicine Among Patients With Multiple Sclerosis in Morocco 摩洛哥多发性硬化症患者使用传统医学和辅助医学的情况
International journal of MS care Pub Date : 2024-02-05 DOI: 10.7224/1537-2073.2022-116
Rachid Lotfi, Mourad Chikhaoui, Abdessamad Elmourid, F. Chigr
{"title":"The Use of Traditional and Complementary Medicine Among Patients With Multiple Sclerosis in Morocco","authors":"Rachid Lotfi, Mourad Chikhaoui, Abdessamad Elmourid, F. Chigr","doi":"10.7224/1537-2073.2022-116","DOIUrl":"https://doi.org/10.7224/1537-2073.2022-116","url":null,"abstract":"\u0000 \u0000 \u0000 Multiple sclerosis (MS) is an acquired chronic, autoimmune, and neurodegenerative disease of the central nervous system. In addition to conventional MS therapy, patients are interested in traditional and complementary medicine (T&CM). Our study aims to describe the use of T&CM in a cohort of Moroccan patients with MS.\u0000 \u0000 \u0000 \u0000 A quantitative descriptive study was adopted to study this subject. For data collection, we opted for an anonymous questionnaire for 98 patients with MS. We gathered data via an electronic survey, using multivariable analysis to examine the effect of specific factors on T&CM use. Data collection took place from March to June 2022.\u0000 \u0000 \u0000 \u0000 The results show that 52% of patients use T&CM. Of those, 29.6% use cupping, 23.5% recite the Holy Quran, 15.3% use phytotherapy, 13.2% use apitherapy, and 10.2% use acupuncture. In addition, 66.3% of the surveyed respondents stated that alternative medicine positively affects their health. Finally, 49.1% of surveyed patients who use alternative medicine are between 30 and 40 years old. The results also show that the rate of T&CM use is higher in patients with progressive MS (OR = 2.540) and patients without financial access to disease-modifying therapy (OR = 2.100).\u0000 \u0000 \u0000 \u0000 This study invites us to consider societal, cultural, and economic factors when studying the use of T&CM among people with MS. Further research is needed to understand the motivations for using T&CM.\u0000","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"21 12","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139803615","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hand Grip Strength as a Predictive Tool for Upper Extremity Functionality, Balance, and Quality of Life in Patients With Multiple Sclerosis 手握力是多发性硬化症患者上肢功能、平衡和生活质量的预测工具
International journal of MS care Pub Date : 2024-01-29 DOI: 10.7224/1537-2073.2022-030
M. Seferoğlu, Meliha Kasapoğlu Aksoy, Abdulkadir Tunç
{"title":"Hand Grip Strength as a Predictive Tool for Upper Extremity Functionality, Balance, and Quality of Life in Patients With Multiple Sclerosis","authors":"M. Seferoğlu, Meliha Kasapoğlu Aksoy, Abdulkadir Tunç","doi":"10.7224/1537-2073.2022-030","DOIUrl":"https://doi.org/10.7224/1537-2073.2022-030","url":null,"abstract":"\u0000 \u0000 \u0000 Upper extremity strength and function are rarely assessed in routine multiple sclerosis (MS) care. This study aimed to evaluate hand muscle strength and functionality in individuals with MS and investigate correlations with upper extremity function, cognitive status, health-related quality of life (HRQOL), and balance.\u0000 \u0000 \u0000 \u0000 A cross-sectional study was conducted with 45 consecutive individuals with MS between the ages of 18 and 65. Upper limb motor strength was evaluated using a hand grip strength dynamometer. Upper limb functional capacity was assessed using the Nine-Hole Peg Test (9HPT) and the Duruoz Hand Index (DHI). Balance, coordination, and falls were measured with the Berg Balance Scale (BBS), Falls Efficacy Scale (FES), and the 30-Second Chair Stand Test (30CST). Cognitive function was evaluated using the Montreal Cognitive Assessment instrument and the Symbol Digit Modalities Test. Level of HRQOL was assessed using the self-reported 54-item MS Quality of Life-54 questionnaire.\u0000 \u0000 \u0000 \u0000 Out of the 45 participants (80% women, mean age 36.6 ± 8.6 years), higher hand grip dynamometer measures were strongly correlated with better DHI, 9HPT, BBS, FES, and 30CST scores. In the regression analysis, a 1-unit increase in dynamometer measures led to a 0.383 increase in overall HRQOL score.\u0000 \u0000 \u0000 \u0000 This study demonstrates that increased hand grip strength (HGS) is associated with better hand functionality, balance, and HRQOL in individuals with MS. It provides evidence to support more systematic measurement of HGS in the care of persons with MS.\u0000","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"22 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-01-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140487805","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Awareness and Utilization of Public Physiotherapy Health Care Services to Support People With Multiple Sclerosis: A Health Care Service Audit. 公共物理治疗保健服务对多发性硬化症患者的认识和利用:一项保健服务审计
International journal of MS care Pub Date : 2024-01-01 Epub Date: 2024-01-05 DOI: 10.7224/1537-2073.2022-057
Saduni Jasin-Pathiranage, Lisa B Grech, Charlotte Scroggie, Phoebe Sansom
{"title":"Awareness and Utilization of Public Physiotherapy Health Care Services to Support People With Multiple Sclerosis: A Health Care Service Audit.","authors":"Saduni Jasin-Pathiranage, Lisa B Grech, Charlotte Scroggie, Phoebe Sansom","doi":"10.7224/1537-2073.2022-057","DOIUrl":"10.7224/1537-2073.2022-057","url":null,"abstract":"<p><strong>Background: </strong>To maximize functioning and well-being in people with multiple sclerosis (MS), physiotherapy consultation is recommended at the point of diagnosis and throughout the disease course. We wanted to determine whether patients with MS being managed through a large metropolitan hospital in Australia accessed physiotherapy input as part of their MS management consistent with evidence-based recommendations and to identify patients' self-reported physiotherapy requirements, including symptom management, information needs, and service delivery preferences.</p><p><strong>Methods: </strong>Surveys were sent to 597 MS clinic patients, and 160 responded. Data were analyzed using descriptive methods to derive frequencies and percentages. The survey consisted of 16 questions plus 2 optional questions related to sociodemographics (age and postcode).</p><p><strong>Results: </strong>Of 160 respondents, 142 completed all 14 nonoptional questions. One-third of participants (n = 53) were aware of the hospital MS clinic physiotherapy services, with 21.3% (n = 34) saying that they had accessed these services. Conversely, 40.1% of respondents (n = 61) reported having consulted a private physiotherapist. Combined, 52% of respondents reported seeing a physiotherapist. There was a clear preference (94.7%; n = 144) for access to the MS clinic physiotherapy service. The presence of at least 1 current MS-related physiotherapy problem was reported by 82.2 2% of respondents (n = 125). The top ways to access MS-related information were via a specialist MS website (57.6%) and a mobile app (55.6%).</p><p><strong>Conclusions: </strong>There is an unmet need for physiotherapy, and many participants may have foregone services due to unawareness. Improved awareness and uptake of physiotherapy at the point of diagnosis is needed to maximize functioning and well-being in people with MS.</p>","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":" ","pages":"8-12"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10779714/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49151186","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Behavioral Interventions to Improve Sleep Outcomes in Individuals With Multiple Sclerosis: A Systematic Review. 行为干预改善多发性硬化症患者的睡眠结果:一项系统综述
International journal of MS care Pub Date : 2024-01-01 Epub Date: 2024-01-05 DOI: 10.7224/1537-2073.2022-110
David Turkowitch, Sarah J Donkers, Silvana L Costa, Prasanna Vaduvathiriyan, Joy Williams, Catherine Siengsukon
{"title":"Behavioral Interventions to Improve Sleep Outcomes in Individuals With Multiple Sclerosis: A Systematic Review.","authors":"David Turkowitch, Sarah J Donkers, Silvana L Costa, Prasanna Vaduvathiriyan, Joy Williams, Catherine Siengsukon","doi":"10.7224/1537-2073.2022-110","DOIUrl":"10.7224/1537-2073.2022-110","url":null,"abstract":"<p><strong>Background: </strong>Sleep disturbances are common in individuals with multiple sclerosis. The objective of this systematic review was to determine effective behavioral interventions to improve their sleep.</p><p><strong>Methods: </strong>Literature searches were performed in December 2021 in Ovid MEDLINE, Elsevier Embase, and Web of Science, along with hand searching for grey literature and cited references. Four reviewers independently reviewed titles and abstracts (2 reviewers for each article; n = 830) and the full-text articles (n = 81). Consensus for inclusion was achieved by a fifth reviewer. Thirty-seven articles were eligible for inclusion. Four reviewers extracted relevant data from each study (2 reviewers for each article) using a standard data extraction table. Consensus was achieved for completeness and accuracy of the data extraction table by a fifth reviewer. The same 4 reviewers conducted a quality appraisal of each article to assess the risk of bias and quality of the articles, and consensus was achieved by a fifth reviewer as needed. Descriptive data were used for types of interventions, sleep outcomes, results, and key components across interventions.</p><p><strong>Results: </strong>Overall, the cognitive behavioral therapy for insomnia, cognitive behavioral therapy/psychotherapy, and education/self-management support interventions reported positive improvements in sleep outcomes. Quality appraisal scores ranged from low to high, indicating potential for bias.</p><p><strong>Conclusions: </strong>Variability in the intervention type, intervention dose, outcomes used, training/expertise of interventionist, specific sample, and study quality made it difficult to compare and synthesize results. Further research is necessary to demonstrate the efficacy of most of the interventions.</p>","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":" ","pages":"22-29"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10779715/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47152751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
LETTER FROM THE EDITOR. 编辑来信
International journal of MS care Pub Date : 2024-01-01 Epub Date: 2024-01-05 DOI: 10.7224/1537-2073-26.1.vi
M Alissa Willis
{"title":"LETTER FROM THE EDITOR.","authors":"M Alissa Willis","doi":"10.7224/1537-2073-26.1.vi","DOIUrl":"https://doi.org/10.7224/1537-2073-26.1.vi","url":null,"abstract":"","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":"26 1","pages":"vi"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10779711/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139424643","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Role of Clinical Pharmacists in Patient-Centric Comprehensive Multiple Sclerosis Care. 临床药师在以患者为中心的多发性硬化症综合护理中的作用
International journal of MS care Pub Date : 2024-01-01 Epub Date: 2024-01-05 DOI: 10.7224/1537-2073.2022-051
Jacquelyn Bainbridge, Rebecca Barnhart, Ryan Fuller, Van T Hellerslia, Julie Kidd, Steven Merrill, Emily Volger, Jenelle H Montgomery
{"title":"The Role of Clinical Pharmacists in Patient-Centric Comprehensive Multiple Sclerosis Care.","authors":"Jacquelyn Bainbridge, Rebecca Barnhart, Ryan Fuller, Van T Hellerslia, Julie Kidd, Steven Merrill, Emily Volger, Jenelle H Montgomery","doi":"10.7224/1537-2073.2022-051","DOIUrl":"10.7224/1537-2073.2022-051","url":null,"abstract":"<p><strong>Background: </strong>Individuals with multiple sclerosis (MS) may experience a variety of visible and invisible symptoms and, as they age, comorbidities related and unrelated to their MS. This can result in a complex medication regimen that includes disease-modifying therapies, symptom management drugs, and prescriptions for other comorbid disorders.</p><p><strong>Methods: </strong>We reviewed the existing literature to discover how to optimally integrate neurology clinical pharmacists into the MS care team and how clinical pharmacists can directly support both providers and patients through their expertise in pharmacology and medication management.</p><p><strong>Results: </strong>With approaches founded on a shared decision-making process alongside neurology providers, patients, and care partners, clinical pharmacists can help meet the complex challenges of MS care in a variety of ways. Especially within MS clinics, they are well positioned to enhance current neurology practices given their extensive training in comprehensive medication management and their ability to identify nuances in medication management to promote pharmacovigilance and patient-centered care.</p><p><strong>Conclusions: </strong>Neurology clinical pharmacists bring multifaceted medication management and patient counseling and education skills to the MS care team and can support the shared decision-making process by serving as an accessible resource for patients and clinicians. By building trusted partnerships between neurology providers and clinical pharmacists, MS care teams can achieve effective and efficient patient care. Future research should compare clinical and patient-reported outcomes between patients receiving standard care and those receiving multidisciplinary, pharmacist-integrated care.</p>","PeriodicalId":14150,"journal":{"name":"International journal of MS care","volume":" ","pages":"1-7"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10779712/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49224267","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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