{"title":"A Meditation on Normalcy Inspired by Camus’s The Rebel","authors":"E. Kittay","doi":"10.1093/OSO/9780190844608.003.0003","DOIUrl":"https://doi.org/10.1093/OSO/9780190844608.003.0003","url":null,"abstract":"Camus writes:\u0000 Art, at least, teaches us that man cannot be explained by history alone and that he also finds a reason for his existence in the order of nature. For him, the great god Pan is not dead. His most instinctive act of rebellion, while it affirms the value and the dignity common to all men, obstinately claims, so as to satisfy its hunger for unity, an integral part of the reality whose name is beauty. (...","PeriodicalId":137323,"journal":{"name":"Learning from My Daughter","volume":"93 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122029039","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Addendum: Mother’s Choice","authors":"E. Kittay","doi":"10.1093/OSO/9780190844608.003.0007","DOIUrl":"https://doi.org/10.1093/OSO/9780190844608.003.0007","url":null,"abstract":"The conclusion I have argued for in chapter 5 is not that it is either permissible or impermissible to select against disability, only that there are some ways that we ought not to argue in favor of selection against disability. Arguments favoring giving birth to a baby without a disabling impairment because this child will have a better life than a child with the disability are problematic, because in the end they amount to the view that the lives of disabled people are inherently suboptimal. Such claims are unacceptable to most all disabled people and should be unacceptable to all of us whether or not we are disabled....","PeriodicalId":137323,"journal":{"name":"Learning from My Daughter","volume":"33 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124124588","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"On What Matters/Not","authors":"E. Kittay","doi":"10.1093/OSO/9780190844608.003.0001","DOIUrl":"https://doi.org/10.1093/OSO/9780190844608.003.0001","url":null,"abstract":"Intertwining philosophical analysis with personal narrative on parenting a cognitively disabled child, this chapter provides an argument about the moral value of disabled individuals. Through an intimate case study of the author’s daughter Sesha, it argues that the flourishing of disabled persons should be assessed on the basis of those individuals’ own capacities and joys. It challenges the traditional philosophical emphasis on rationality as the defining faculty of human personhood, and indicates how concepts of justice, humanity, and dignity must be refashioned in light of what disability reveals about dependency, autonomy, and the desire for normalcy. Contra views that posit intrinsic rational capacities as central to personhood, this chapter defends a relational model of the self. From this it argues that cognitively disabled individuals require adequate care and resources to realize their capacities, which demands that communities recognize such individuals as worthy of moral parity.","PeriodicalId":137323,"journal":{"name":"Learning from My Daughter","volume":"25 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127277620","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Ethics of Prenatal Testing and Selection","authors":"E. Kittay","doi":"10.1093/OSO/9780190844608.003.0005","DOIUrl":"https://doi.org/10.1093/OSO/9780190844608.003.0005","url":null,"abstract":"This chapter focuses on the moral considerations involved in prenatal testing and selection. It addresses the expressivist objection from some segments of the disability community, which charges that prenatal testing for and selection against the birth of a disabled child perpetuates the view that a disabled life is not worth living. Highlighting important flaws in the expressivist objection, this chapter clarifies several views on the moral permissibility, impermissibility, or obligation to select for or against disabling traits, enhancing traits, or selection tout court. Against the expressivist view, it argues that it is possible to value disabled life, see disabled lives as worth living, and nevertheless engage in prenatal testing or selection. Such reproductive choices do not, on this view, have expressive force. Threaded through the argument is a dialogue between the author and her nondisabled son that considers the force of these moral arguments within a family that includes a disabled child.","PeriodicalId":137323,"journal":{"name":"Learning from My Daughter","volume":"18 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121488009","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Dependency and Disability","authors":"E. Kittay","doi":"10.1093/OSO/9780190844608.003.0008","DOIUrl":"https://doi.org/10.1093/OSO/9780190844608.003.0008","url":null,"abstract":"Against the pervasive stigmatization of dependency, this chapter argues that dependence on others is crucial aspect of human life. In the realm of care, dependency can engender particular forms of relationality and closeness. While acknowledging the harms of imposed dependency on disabled people, Kittay insists that protecting disabled people’s demands for independence ought to go hand in hand with a refusal to stigmatize those disabled persons who cannot benefit from such claims. To this end, the chapter develops a normative concept of care, denoted as CARE, that respects the genuine needs and legitimate wants (the “cares”) of both those receiving and giving care. This care ethics attends to the needs and desires of people with disabilities while honoring the personhood and dignity of all involved in the relationships and work of care. Furthermore, it affirms that the rights of many individuals are realized only through caring work.","PeriodicalId":137323,"journal":{"name":"Learning from My Daughter","volume":"66 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123486396","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The New Normal and a Good Life","authors":"E. Kittay","doi":"10.1093/OSO/9780190844608.003.0002","DOIUrl":"https://doi.org/10.1093/OSO/9780190844608.003.0002","url":null,"abstract":"This chapter inquires into the relation between normalcy and the good life. Beginning from a parental desire for a “normal life” for one’s children, it asks in what this desire for normalcy consists, and whether normalcy is necessary for a good life. It argues that the desire for normalcy actually springs from love: one desires to be loved for the unique individual that one is, and normalcy provides a baseline against which one’s singularity can be perceived and appreciated. Attending to the pernicious aspects of normalcy, this chapter argues that the seeming impossibility of having a good life with a significant disability arises from an inadequate conception of normalcy as having a fixed set of norms. It calls for more capacious norms that include and support lives that depart from statistical norms.","PeriodicalId":137323,"journal":{"name":"Learning from My Daughter","volume":"58 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126681302","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Completion of Care—The Normativity of Care","authors":"E. Kittay","doi":"10.1093/OSO/9780190844608.003.0010","DOIUrl":"https://doi.org/10.1093/OSO/9780190844608.003.0010","url":null,"abstract":"CARE, this chapter argues, succeeds normatively, or is “completed,” only when it is received by the cared-for as CARING. On this model, an action will count as CARE if it contributes to the well-being, restoration, or flourishing of a being or a subject. It must also be motivated by concern for the welfare of the cared-for. A carer must thus cultivate a “transparent self,” one receptive to the other’s conception of her own needs and wants. This view emphasizes that CARE is active, distinguishes it from paternalism, and indicates the role of moral luck in caring. CARING, then, is an action, and the act of caring requires that the cared-for take up and receive that action as care. The author ends by asking if there is a duty to take up care (when the cared for is capable) that is offered with competence and in good faith.","PeriodicalId":137323,"journal":{"name":"Learning from My Daughter","volume":"17 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130241984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Afterword: My Daughter’s Body—A Meditation on Soul","authors":"E. Kittay","doi":"10.1093/OSO/9780190844608.003.0012","DOIUrl":"https://doi.org/10.1093/OSO/9780190844608.003.0012","url":null,"abstract":"Sesha pushes my head to her neck. I find those sweet tender places at the crease of her neck, soft and warm. And she gurgles with pleasure. My daughter’s body. Its problems, its mystery, its soul. How very difficult it is to convey all that I experience when I am in her presence, the presence of that lovely, somewhat twisted, wheelchair-user body. It is through my daughter’s body that I come to know her....","PeriodicalId":137323,"journal":{"name":"Learning from My Daughter","volume":"17 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131741662","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Limits of Choice","authors":"E. Kittay","doi":"10.1093/OSO/9780190844608.003.0004","DOIUrl":"https://doi.org/10.1093/OSO/9780190844608.003.0004","url":null,"abstract":"Inquiring into the relation between reproductive decision-making and the unexpected, this chapter claims that reproductive choices around disability bring out inherent paradoxes of choice in the face of uncertainty. Arguing that reproductive decisions around disability, like all reproductive decisions, must be left to the person carrying the child, this chapter also insists that reproductive choices attend to the role of chance and unexpected outcomes.","PeriodicalId":137323,"journal":{"name":"Learning from My Daughter","volume":"24 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114917154","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"An Ethics of Care","authors":"E. Kittay","doi":"10.1093/OSO/9780190844608.003.0009","DOIUrl":"https://doi.org/10.1093/OSO/9780190844608.003.0009","url":null,"abstract":"While care has been marginalized within much of the history of moral philosophy, care ethics insists that caring be understood as a form of moral conduct. Arguing that care is a normative rather than solely descriptive category, this chapter articulates care as a moral practice that, when performed in accordance with its regulative ideals, is morally good. This moral practice is unpacked via the normative concept of CARE, which includes care as labor, disposition, and virtue. This chapter articulates the features of what Kittay names an ETHICS OF CARE through its conceptions of moral agency, moral relations, moral deliberation, the particularity of some moral judgments, the aim of morality, and moral harm. This ETHICS OF CARE addresses the obligations and responsibilities that arise within asymmetrical relationships of situation and power between caregivers and those receiving care.","PeriodicalId":137323,"journal":{"name":"Learning from My Daughter","volume":"65 3-4 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116719679","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
京公网安备 11010802042870号
求助内容：
应助结果提醒方式：