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Multispecialty sessions model for comprehensive care and decision-making in cancer patients. 癌症患者综合护理和决策的多专科会议模式。
IF 1.2
ecancermedicalscience Pub Date : 2025-01-22 eCollection Date: 2025-01-01 DOI: 10.3332/ecancer.2025.1830
Kiara S Berumen, Alberto Sánchez-Navarro, Andrea Velázquez, Manuel Solano, Francisco Anaya, Gustavo Rosales, Alexandra Díaz, Johana Jazer, Kathia Zamudio, Susana Suder, Marisol Quintero, Adriana González-Martínez, Luis A García
{"title":"Multispecialty sessions model for comprehensive care and decision-making in cancer patients.","authors":"Kiara S Berumen, Alberto Sánchez-Navarro, Andrea Velázquez, Manuel Solano, Francisco Anaya, Gustavo Rosales, Alexandra Díaz, Johana Jazer, Kathia Zamudio, Susana Suder, Marisol Quintero, Adriana González-Martínez, Luis A García","doi":"10.3332/ecancer.2025.1830","DOIUrl":"10.3332/ecancer.2025.1830","url":null,"abstract":"<p><p>The management of the oncology patient is complex, due to late diagnosis, treatment and costs, affecting the medical, psychological, nutritional and economic areas. The creation of a multispecialty team, with specialists from health and other fields, is the characteristic of the institute. Since 1920, multidisciplinary has evolved and stood out in developed countries; in Mexico and continues to grow. Although it presents challenges, such as lack of time and coordination, its implementation significantly improves the comprehensive approach to patients.</p><p><strong>Methods: </strong>A retrospective study conducted at the Instituto Oncológico Nacional (ION) in Guadalajara, Mexico, was conducted from April 2019 to December 2023, involving multispecialty sessions via Zoom for oncology patients. Information were collected from medical records with specific inclusion criteria, for the creation of a database in Excel and subsequent analysis with the IBM SPSS Statistics 22 tool.</p><p><strong>Results: </strong>93.09% of the patients were placed in a specialised unit, while 6.91% in 'other tumours'. 37.2% of the sessions were held to establish treatment, 32% for diagnosis and 30.8% for both. The breast tumour unit had the most sessions (15%) and the robotic surgery unit had the least sessions (0.8%). 74.9% of the cases required one session and 25.1% required more sessions. An average saving of 5 consultations were generated; 68.8% of the sessions met their objectives and were followed up.</p><p><strong>Conclusion: </strong>Multispecialty virtual sessions in ION generate significant benefits: they reduce waiting times, save resources, improve access to specialised units and a comprehensive approach. Success is due to team coordination, communication between specialists and patients and implementation of decision making. It is recommended to promote this approach to optimise clinical outcomes and quality of life, overcoming logistical barriers and evaluating its long-term impact.</p>","PeriodicalId":11460,"journal":{"name":"ecancermedicalscience","volume":"19 ","pages":"1830"},"PeriodicalIF":1.2,"publicationDate":"2025-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959129/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143771622","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Recurrent dedifferentiated liposarcoma with histological grade progression: a case report. 复发性去分化脂肪肉瘤伴组织学分级进展1例。
IF 1.2
ecancermedicalscience Pub Date : 2025-01-22 eCollection Date: 2025-01-01 DOI: 10.3332/ecancer.2025.1831
Samuel Santiago Parra Giraldo, Rut Amparo Vergara López, Haydee De La Hoz-Herazo, Enrique Carlos Ruiz Pla, Brayan Bayona-Pacheco, Juan Jose Espitia De La Hoz
{"title":"Recurrent dedifferentiated liposarcoma with histological grade progression: a case report.","authors":"Samuel Santiago Parra Giraldo, Rut Amparo Vergara López, Haydee De La Hoz-Herazo, Enrique Carlos Ruiz Pla, Brayan Bayona-Pacheco, Juan Jose Espitia De La Hoz","doi":"10.3332/ecancer.2025.1831","DOIUrl":"10.3332/ecancer.2025.1831","url":null,"abstract":"<p><strong>Introduction: </strong>Dedifferentiated liposarcoma (DDLPS) is a rare mesenchymal neoplasm that accounts for approximately 20% of soft tissue sarcomas in the human body. This case report emphasises a high-grade DDLPS with a retroperitoneal location and its unexpected recurrence in a 72-year-old male patient more than 10 years after the primary tumour. This case is particularly significant because of the anomalous presentation of the tumour recurrence time that is complemented by the unusual histologic features of the initial neoplasm, which raises new questions about the biological behaviour of the disease, the clinical course and the management of this pathology.</p><p><strong>Expected results: </strong>The report seeks to highlight the important and unusual aspects of the pathology that can contribute to a better understanding of its evolution, allowing informed clinical decisions to improve the patient's quality of life and prognosis.</p>","PeriodicalId":11460,"journal":{"name":"ecancermedicalscience","volume":"19 ","pages":"1831"},"PeriodicalIF":1.2,"publicationDate":"2025-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959119/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143771672","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pioneering psycho-oncology: A collaborative journey for medical and psychology students at ecancer-Tata Medical Center Kolkata Psycho-oncology Congress 2024. 开创性的心理肿瘤学:2024年加尔各答塔塔医疗中心心理肿瘤学大会癌症医学和心理学学生的合作之旅。
IF 1.2
ecancermedicalscience Pub Date : 2025-01-17 eCollection Date: 2025-01-01 DOI: 10.3332/ecancer.2025.1828
Soumitra Shankar Datta, Heena Sheth, Sharmili Ghosh, Srijan Das, Jigeesha Ghosh, Dishari Choudhury, Arnab Mukherjee, Soumita Ghose, Romy Biswas, Maria Castrillo Gil, Carlos Andres Gamboa Alfaro, Mary Guevara, Danny Burke, Sujit Sarkhel, Jai Ranjan Ram
{"title":"Pioneering psycho-oncology: A collaborative journey for medical and psychology students at <i>e</i>cancer-Tata Medical Center Kolkata Psycho-oncology Congress 2024.","authors":"Soumitra Shankar Datta, Heena Sheth, Sharmili Ghosh, Srijan Das, Jigeesha Ghosh, Dishari Choudhury, Arnab Mukherjee, Soumita Ghose, Romy Biswas, Maria Castrillo Gil, Carlos Andres Gamboa Alfaro, Mary Guevara, Danny Burke, Sujit Sarkhel, Jai Ranjan Ram","doi":"10.3332/ecancer.2025.1828","DOIUrl":"10.3332/ecancer.2025.1828","url":null,"abstract":"<p><p>Psycho-oncology is an upcoming specialisation that encompasses the psychological and social aspects of cancer care. In an integrated psycho-oncology service, consultant psychiatrists and clinical psychologists come together with other professionals to treat comorbid psychiatric disorders of cancer patients and their caregivers. Psycho-oncologists also contribute to improving clinician-patient communication, address staff burnout and conduct translational research. The <i>e</i>cancer-Tata Medical Center Kolkata Psycho-oncology Congress, 2024 was an initiative to encourage multi-disciplinary learning in undergraduate and postgraduate medical and psychology students and early career professionals. Written feedback from 106 participants who comprised 71% (71%, 106/149) of the pre-registered delegates, showed that the overwhelming majority found the overall experience as 'excellent' (75/106, 70.75%) or 'good' (27/106, 25%). The qualitative free-text feedback expressed the desire for longer psycho-oncology conferences 'spread over two days', eagerness to learn about qualitative and quantitative 'research methods' and specific therapeutic techniques used to treat common psychiatric comorbidities in cancer patients. A video providing an overview of the event is available here: https://ecancer.org/en/video/12232-reflections-after-the-ecancer-tata-medical-center-kolkata-psycho-oncology-congress-2024. This event generated a set of educational videos on psycho-oncology that are available online here: https://ecancer.org/en/conference/1551-ecancer-tmc-kolkata-psycho-oncology-congress.</p>","PeriodicalId":11460,"journal":{"name":"ecancermedicalscience","volume":"19 ","pages":"1828"},"PeriodicalIF":1.2,"publicationDate":"2025-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959143/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143771650","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Duration of intervals in the care-seeking pathway of lung cancer in Nepal. 尼泊尔肺癌求诊途径的间隔时间。
IF 1.2
ecancermedicalscience Pub Date : 2025-01-16 eCollection Date: 2025-01-01 DOI: 10.3332/ecancer.2025.1825
Shama Pandey, Bishnu Dutta Paudel, Bibek Acharya, Sandhya Chapagain Acharya, Ambuj Karn, Saugat Poudyal, Manish Poudel, Pradeep Thapa, Jasmine Gurung, Ramila Shilpakar
{"title":"Duration of intervals in the care-seeking pathway of lung cancer in Nepal.","authors":"Shama Pandey, Bishnu Dutta Paudel, Bibek Acharya, Sandhya Chapagain Acharya, Ambuj Karn, Saugat Poudyal, Manish Poudel, Pradeep Thapa, Jasmine Gurung, Ramila Shilpakar","doi":"10.3332/ecancer.2025.1825","DOIUrl":"10.3332/ecancer.2025.1825","url":null,"abstract":"<p><strong>Introduction: </strong>Patients with lung cancer in Nepal often present at an advanced stage. The purpose of this study was to determine the access, diagnostic and treatment intervals in patients with lung cancer and to identify factors that may be causing the delays leading to advanced presentation.</p><p><strong>Methods: </strong>This was a descriptive, cross-sectional study conducted in the Department of Clinical Oncology, Bir Hospital from July 2023 to April 2024 after obtaining ethical approval from the Institutional Review Board. Patients with newly diagnosed lung cancer were interviewed and data was collected. Data were presented in the forms of percentages and mean/median. Univariate and multivariate logistic regression analysis was done to assess the association between various factors and different delays.</p><p><strong>Results: </strong>Of the 100 patients included, 56% were men and the mean age was 64.5 ± 10.8 years. 64% of the patients had stage IV disease. The median access, diagnostic and treatment interval were 44.5 days, 45.5 days and 26 days, respectively. Access, diagnostic and treatment delays were seen in 72%, 63% and 42% of the patients, respectively. Receiving empirical anti-tubercular treatment and visiting informal healthcare providers as their first healthcare contact was associated with diagnostic delay whereas smoking was associated with treatment delay.</p><p><strong>Conclusion: </strong>There is a significant delay in the care-seeking pathway of lung cancer in Nepal. Implementing corrective measures to address these could help improve the outcomes for these patients.</p>","PeriodicalId":11460,"journal":{"name":"ecancermedicalscience","volume":"19 ","pages":"1825"},"PeriodicalIF":1.2,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959116/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143771605","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The burden of pancreatic cancer in Latin America and the Caribbean: trends in incidence, mortality and DALYs from 1990 to 2019. 拉丁美洲和加勒比的胰腺癌负担:1990年至2019年发病率、死亡率和伤残调整生命年的趋势
IF 1.2
ecancermedicalscience Pub Date : 2025-01-16 eCollection Date: 2025-01-01 DOI: 10.3332/ecancer.2025.1827
Diego Rodrigues Mendonça E Silva, Max Moura de Oliveira, Gisele Aparecida Fernandes, Maria Paula Curado
{"title":"The burden of pancreatic cancer in Latin America and the Caribbean: trends in incidence, mortality and DALYs from 1990 to 2019.","authors":"Diego Rodrigues Mendonça E Silva, Max Moura de Oliveira, Gisele Aparecida Fernandes, Maria Paula Curado","doi":"10.3332/ecancer.2025.1827","DOIUrl":"10.3332/ecancer.2025.1827","url":null,"abstract":"<p><p>This study analyzed the burden of pancreatic cancer by investigating its incidence, mortality and disability-adjusted life years (DALYs), as well as the proportion of pancreatic cancer deaths attributable to behavioural and metabolic risk factors in Latin America and the Caribbean (LAC) countries.</p><p><strong>Methods: </strong>This study focuses on pancreatic cancer using the Global Burden of Disease 2019 study database. Results were described for 23 LAC countries for 1990-2019, evaluating their age-standardised incidence rates, mortality rates, DALYs, average annual percent change and the fraction of deaths attributable to behavioural and metabolic risk factors.</p><p><strong>Results: </strong>We observed that in LAC, pancreatic cancer incidence rates ranged from 1.2 in Haiti to 15.8/100,000 in Uruguay among men. The highest increase in incidence rate was observed in Trinidad and Tobago: 7.7% per year. The mortality rate was higher in Uruguay and lower in Haiti, for both sexes. The highest rise in the numbers of DALYs in 2019 was observed in Brazil and Mexico. The proportion of pancreatic cancer deaths attributable to smoking was reduced between 1990 and 2019 for both sexes in LAC countries; however, it increased for metabolic risk factors.</p><p><strong>Conclusion: </strong>The increasing trend in pancreatic cancer observed in LAC may be associated with a rise in risk factors such as high fasting plasma glucose and high body mass index in both sexes. This trend will likely have a substantial impact on the healthcare system in the coming decades.</p>","PeriodicalId":11460,"journal":{"name":"ecancermedicalscience","volume":"19 ","pages":"1827"},"PeriodicalIF":1.2,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959134/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143771637","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Breast cancer in Cape Verde: a 24-year retrospective study of clinical presentation, treatment and outcomes at Agostinho Neto University Hospital. 佛得角的乳腺癌:对Agostinho Neto大学医院的临床表现、治疗和结果的24年回顾性研究
IF 1.2
ecancermedicalscience Pub Date : 2025-01-16 eCollection Date: 2025-01-01 DOI: 10.3332/ecancer.2025.1826
Pamela Borges, Hirondina Borges Spencer, Stefani Furtado, Victor Costa, Carla Barbosa, Lúcio Lara Santos
{"title":"Breast cancer in Cape Verde: a 24-year retrospective study of clinical presentation, treatment and outcomes at Agostinho Neto University Hospital.","authors":"Pamela Borges, Hirondina Borges Spencer, Stefani Furtado, Victor Costa, Carla Barbosa, Lúcio Lara Santos","doi":"10.3332/ecancer.2025.1826","DOIUrl":"10.3332/ecancer.2025.1826","url":null,"abstract":"<p><strong>Background: </strong>Breast cancer is a significant health concern in Cape Verde, but comprehensive data on its presentation, management and outcomes are limited. This study aims to provide insights into breast cancer patterns in this island nation.</p><p><strong>Methods: </strong>We conducted a retrospective analysis of 586 breast cancer patients treated at Agostinho Neto University Hospital in Praia, Cape Verde, from January 2000 to May 2024. Data on demographics, clinical presentation, diagnostic methods, treatment modalities and survival outcomes were collected and analysed.</p><p><strong>Results: </strong>The study population comprised 578 (98.6%) females and 8 (1.4%) males. The mean age at diagnosis was 52.1 years (SD 13.6) for females and 70 years (SD 16.7) for males. Stage III was the most common presentation (39.4%). Invasive ductal carcinoma was the predominant histological type. Immunohistochemical analysis in 307 patients revealed 69.4% luminal, 26.1% triple-negative and 4.6% HER2-positive subtypes. Treatment primarily involved surgery combined with chemotherapy and/or hormone therapy, with 33.4% receiving radiotherapy. The median follow-up was 36.5 months (range: 1-298 months), and the median survival time was 137.1 months.</p><p><strong>Conclusion: </strong>This study reveals breast cancer patterns in Cape Verde that share similarities with other African nations, including younger age at diagnosis and higher rates of late-stage presentation compared to Western countries. However, encouraging trends in survival outcomes and diagnostic capabilities were observed. These findings highlight the need for improved early detection strategies and expanded access to comprehensive treatment modalities, particularly radiotherapy, in Cape Verde.</p>","PeriodicalId":11460,"journal":{"name":"ecancermedicalscience","volume":"19 ","pages":"1826"},"PeriodicalIF":1.2,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959127/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143771573","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Liver metastasis of retinoblastoma. 视网膜母细胞瘤的肝转移。
IF 1.2
ecancermedicalscience Pub Date : 2025-01-15 eCollection Date: 2025-01-01 DOI: 10.3332/ecancer.2025.1824
Elily D Apumayta, Mario Buitrago, Marco Rioja, Sandra Alarcon, Jhonatanael Salvador, Eloy Ruiz
{"title":"Liver metastasis of retinoblastoma.","authors":"Elily D Apumayta, Mario Buitrago, Marco Rioja, Sandra Alarcon, Jhonatanael Salvador, Eloy Ruiz","doi":"10.3332/ecancer.2025.1824","DOIUrl":"10.3332/ecancer.2025.1824","url":null,"abstract":"<p><strong>Objective: </strong>To outline the clinical manifestations, imaging, management and prognosis of patients with liver metastases of retinoblastoma (RB).</p><p><strong>Methodology: </strong>Retrospective analysis of two cases diagnosed with liver metastasis of RB between 2018 and 2023 at the National Institute of Neoplastic Diseases in Lima, Peru.</p><p><strong>Results: </strong>A total of 2 (0.71%) out of 283 patients had liver metastases from RB, as confirmed by pathology. A 12-month-old female patient with unilateral RB pT1 without risk factors remains under observation after enucleation. After 5 months, she presented with multiple heterogeneous hepatic lesions up to 10 cm in size, with a hypodense center and slightly contrast-enhancing surface. She received chemotherapy and died 7 months later. The second case was a 2-year-old female with unilateral RB, pT3b and G3 with retrolaminar involvement of the optic nerve and choroidal invasion. She received adjuvant chemotherapy. After 21 months, she presented with multiple hypodense lesions with diffuse distribution in hepatic parenchyma, with distinct peripheral enhancement, some of which were confluent. She died without treatment 1 month later.</p><p><strong>Conclusion: </strong>Hepatic metastasis of RB is rare. In these two cases, they were presented as heterogeneous, predominantly hypodense lesions with mild contrast enhancement on the CT scan. These events were simultaneously associated with recurrence in the central nervous system, even in the absence of risk factors for metastasis and dissemination.</p>","PeriodicalId":11460,"journal":{"name":"ecancermedicalscience","volume":"19 ","pages":"1824"},"PeriodicalIF":1.2,"publicationDate":"2025-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959138/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143771615","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Palliative and end-of-life care initiatives for people dying from cancer in India: a narrative review. 印度针对癌症患者的姑息治疗和临终关怀举措:叙述性回顾。
IF 1.2
ecancermedicalscience Pub Date : 2024-12-12 eCollection Date: 2024-01-01 DOI: 10.3332/ecancer.2024.1822
Naveen Salins, Krithika Rao, Anuja Damani, Sushma Bhatnagar, Srinagesh Simha
{"title":"Palliative and end-of-life care initiatives for people dying from cancer in India: a narrative review.","authors":"Naveen Salins, Krithika Rao, Anuja Damani, Sushma Bhatnagar, Srinagesh Simha","doi":"10.3332/ecancer.2024.1822","DOIUrl":"10.3332/ecancer.2024.1822","url":null,"abstract":"<p><p>India is facing a growing burden of cancer, resulting in high cancer-associated mortality. However, the rise in cancer incidence is disproportionately high compared to access and provision of palliative care. This review aims to identify gaps in Indian cancer palliative care and recognises initiatives instituted to mitigate them. The narrative review was conducted using the four-step method described by Demiris et al., synthesising both empirical and non-empirical literature. A lack of capacity to provide palliative care was identified as a significant barrier. Initiatives such as setting up palliative care services in cancer treatment centres, improving community palliative care access, structured palliative care training to develop specialists, improving opioid availability and creating policies have been helpful. A significant proportion of people in India experience health-related suffering, and developing a tool to identify this suffering proactively would be beneficial. Several cancer centres are testing integrated cancer palliative care models in various cancer subsites. However, these are preliminary works and are yet to be established. People in India face distress due to high health-related costs, and initiatives like hospices and home-based palliative care services with no cost to patients and families provide significant relief. Caregivers experience a considerable burden while caring for their loved ones with life-limiting illnesses, and they are supported through respite palliative care services offered in some parts of India.</p>","PeriodicalId":11460,"journal":{"name":"ecancermedicalscience","volume":"18 ","pages":"1822"},"PeriodicalIF":1.2,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959141/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143763374","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patients' and nurses' perception of the Hospice-On-Wheels service in Kazakhstan: a qualitative study. 哈萨克斯坦病人与护士对轮椅安宁疗护服务的认知:一项质性研究。
IF 1.2
ecancermedicalscience Pub Date : 2024-12-12 eCollection Date: 2024-01-01 DOI: 10.3332/ecancer.2024.1818
Anele Bekturova, Angelika Saryan, Gulnara Kunirova
{"title":"Patients' and nurses' perception of the Hospice-On-Wheels service in Kazakhstan: a qualitative study.","authors":"Anele Bekturova, Angelika Saryan, Gulnara Kunirova","doi":"10.3332/ecancer.2024.1818","DOIUrl":"10.3332/ecancer.2024.1818","url":null,"abstract":"<p><strong>Background: </strong>In Kazakhstan, the Comprehensive Cancer Control Plan has led to the establishment of 214 mobile teams funded by the Ministry of Health to offer in-home palliative care for terminal cancer patients. However, due to a shortage of trained and dedicated personnel, only about 25% of these teams provide high-quality, specialised care in the comfort of patient's homes, with the majority offering only consultative services. Given the country's sparse population, ensuring dedicated care is challenging and many staff members continue as part-time primary care workers. In this landscape, the 'Amazonka' Foundation's Hospice-On-Wheels initiative emerges as the sole NGO non-government organisation (NGO)-based service delivering in-home palliative care of comparable quality. Distinguished by its contract with the Ministry of Labour and Social Protection, Hospice-On-Wheels enjoys greater organisational flexibility and provides a broader spectrum of services, all while maintaining rigorous standards of multidisciplinary care.</p><p><strong>Aims: </strong>The aims of this study are to assess the effectiveness and sustainability of an NGO-based in-home palliative care service in Kazakhstan and to discuss the qualitative methodology and its characteristics to Kazakhstani nurses, unfamiliar with quality nursing research.</p><p><strong>Methods: </strong>The study commenced with a descriptive phenomenological approach and a service design methodology, later transitioning from phenomenological thematic analysis to content analysis.</p><p><strong>Results: </strong>These rapid research findings highlight the exceptional effectiveness, customer satisfaction and cost-saving advantages of the NGO-based initiative. These benefits extend not only to the government and health authorities but also to patients and their families. The 'Amazonka' service significantly enhances the quality of life for incurable cancer patients through improved palliative care. Consequently, expanding their infrastructure and educational initiatives is essential to promote better palliative care in Kazakhstan, particularly in rural areas.</p><p><strong>Discussion: </strong>The insights from this study can advocate for the home-based palliative care model employed by the 'Amazonka' team, encouraging its adoption by both governmental organisations and NGOs in Kazakhstan and beyond, thus opening new opportunities for local funding in resource-limited conditions.</p>","PeriodicalId":11460,"journal":{"name":"ecancermedicalscience","volume":"18 ","pages":"1818"},"PeriodicalIF":1.2,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959122/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143763376","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Creating the evidence base for palliative care in cancer - models and strategies to build research capacity. 建立癌症缓和治疗的证据基础——建立研究能力的模型和策略。
IF 1.2
ecancermedicalscience Pub Date : 2024-12-12 eCollection Date: 2024-01-01 DOI: 10.3332/ecancer.2024.1819
Eve Namisango, Tonia Onyeka, Nafula Esther, Emmanuel B K Luyirika, Zipporah Ali, Richard A Powell
{"title":"Creating the evidence base for palliative care in cancer - models and strategies to build research capacity.","authors":"Eve Namisango, Tonia Onyeka, Nafula Esther, Emmanuel B K Luyirika, Zipporah Ali, Richard A Powell","doi":"10.3332/ecancer.2024.1819","DOIUrl":"10.3332/ecancer.2024.1819","url":null,"abstract":"<p><strong>Background: </strong>The need for palliative care in cancer is highest in resource-limited settings given the high disease burden, which is projected to double by 2050, and late patient presentation. To stimulate service development and ensure care is aligned to patients' and families' needs, robust evidence is needed. However, Africa continues to be under-represented globally in evidence development, due to lack of a critical research mass and financial and infrastructure challenges. Despite these limitations, the region is witnessing growth in research for palliative care in cancer. This review aimed to identify models, strategies and practices for building capacity for research and creation of an evidence base for palliative care in cancer in Africa.</p><p><strong>Approach: </strong>We reviewed grey and published literature to identify models, strategies and practices for building capacity for research and creation of an evidence base for palliative care in cancer in Africa. The findings were summarised using narrative synthesis.</p><p><strong>Findings: </strong>Models and strategies identified, which are not mutually exclusive, include: community engagement; centres of excellence; knowledge exchange platforms; research networks; practice-based research networks; local collaboration and Global South-to-South partnerships and Global North-to-South partnerships.</p><p><strong>Conclusion: </strong>The evidence base for palliative care in cancer in Africa is growing in Africa and identifiable models can and are steering this growth.</p>","PeriodicalId":11460,"journal":{"name":"ecancermedicalscience","volume":"18 ","pages":"1819"},"PeriodicalIF":1.2,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959124/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143763236","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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