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“Why don't they talk to our daughter?”: Eye-tracking AAC and medical communication in Rett syndrome “他们为什么不和我们的女儿谈谈?”: Rett综合征的眼动追踪AAC和医学交流
Language and Health Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.06.002
Usree Bhattacharya , Wisnu A. Pradana , Xing Wei , Bukunmi Ogunsola
{"title":"“Why don't they talk to our daughter?”: Eye-tracking AAC and medical communication in Rett syndrome","authors":"Usree Bhattacharya ,&nbsp;Wisnu A. Pradana ,&nbsp;Xing Wei ,&nbsp;Bukunmi Ogunsola","doi":"10.1016/j.laheal.2023.06.002","DOIUrl":"https://doi.org/10.1016/j.laheal.2023.06.002","url":null,"abstract":"<div><p>This investigation explores medical advocacy for Rett syndrome—a rare neurological disorder causing loss of speech and hand function—through the lens of eye-tracking augmentative and alternative communication (AAC) technology. We gathered data from five individuals with Rett syndrome and their caregivers, encompassing semi-structured virtual interviews, video analyses of AAC device usage, and examination of AAC pageset screenshots. The findings reveal diverse AAC strategies employed to express discomfort or illness and highlight caregivers' pivotal role in processing medical information. Notwishstanding challenges like cost, time limitations in medical contexts, training needs, and the lack of standardized AAC symptom descriptions, eye-tracking AAC technology has the potential to enhance symptom assessment, foster patient autonomy, and facilitate personalized medical care. This study illuminates the transformative power of this AAC technology in medical communication, showcasing its promise in tackling communication challenges and underscoring its capacity to enhance quality of life for those with Rett syndrome and similar health conditions.</p></div>","PeriodicalId":100865,"journal":{"name":"Language and Health","volume":"1 1","pages":"Pages 32-43"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49753635","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Pragmatic impairment and multimodal compensation in older adults with dementia 老年痴呆患者的语用障碍和多模态补偿
Language and Health Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.06.004
Lihe Huang, Yiran Che
{"title":"Pragmatic impairment and multimodal compensation in older adults with dementia","authors":"Lihe Huang,&nbsp;Yiran Che","doi":"10.1016/j.laheal.2023.06.004","DOIUrl":"https://doi.org/10.1016/j.laheal.2023.06.004","url":null,"abstract":"<div><p>Compensation emerges when older adults encounter pragmatic impairment. Though studies are plentiful in pragmatic impairments of patients with aphasia or neurodegenerative diseases, discussions about compensation, especially older adult’s multimodal performance, need further generalization and interpretation. To fill this gap, this paper attempts to sketch the performance of multimodal compensation of Chinese older adults in pragmatic disorders and its corresponding pragmatic functions. Based on different viewing perspectives, this paper distinguishes three types of compensatory performances, i.e. compensation from inter- and intra- personal perspectives, compensation across language levels, and compensation across semiotic systems and modalities, by giving examples from Multimodal Corpus of Gerontic Discourse constructed by the authors’ team and explains how these compensatory performances help to complete communication. Compensatory performances of older adults classified and analyzed in this study can be explained by brain adaptation and compensation hypothesis. Compensatory performances are on account of interconnection among multiple sensory organs and their neural networks. The exploration of performance and mechanism of multimodal compensation of Chinese older adults not only verifies and expands brain adaptation and compensation theories, but also may prompt the communicative efficiency of older adults when encountering pragmatic impairments.</p></div>","PeriodicalId":100865,"journal":{"name":"Language and Health","volume":"1 1","pages":"Pages 44-57"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49767535","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Promoting language and health studies for a better society 促进语言和健康研究,建设更美好的社会
Language and Health Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.07.003
Wen Ma , Louise Cummings
{"title":"Promoting language and health studies for a better society","authors":"Wen Ma ,&nbsp;Louise Cummings","doi":"10.1016/j.laheal.2023.07.003","DOIUrl":"https://doi.org/10.1016/j.laheal.2023.07.003","url":null,"abstract":"","PeriodicalId":100865,"journal":{"name":"Language and Health","volume":"1 1","pages":"Page 1"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49753665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Long COVID: The impact on language and cognition 长冠肺炎:对语言和认知的影响
Language and Health Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.05.001
Louise Cummings
{"title":"Long COVID: The impact on language and cognition","authors":"Louise Cummings","doi":"10.1016/j.laheal.2023.05.001","DOIUrl":"https://doi.org/10.1016/j.laheal.2023.05.001","url":null,"abstract":"<div><p>COVID-19 continues to have profound health and economic consequences around the world. Aside from the large number of deaths from this viral infection, there is a growing population of individuals who have not made a good recovery from their COVID illnesses. These children and adults continue to experience COVID symptoms for months and even years after the onset of their illness. One group of symptoms that can be particularly troubling are language and cognitive difficulties. These difficulties can compromise learning and academic attainment and prevent a return to employment in adults. The author has examined the language skills of 110 adults who reported experiencing Long COVID. Among these individuals, 99 adults reported significant cognitive-linguistic difficulties as part of their ongoing COVID symptoms. This article examines these difficulties in detail. It proposes that these cognition-based language difficulties should be included in the class of cognitive-communication disorders. These disorders are typically assessed and treated by speech-language pathologists who manage communication difficulties in clients with traumatic brain injury, right-hemisphere damage, and neurodegeneration.</p></div>","PeriodicalId":100865,"journal":{"name":"Language and Health","volume":"1 1","pages":"Pages 2-9"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49753845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Metaphorical and multimodal representation of autism in Chinese video public service announcements: Lonely twinkling 中文视频公益广告中自闭症的隐喻与多模态表现:孤独的闪烁
Language and Health Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.06.006
Molly Xie Pan
{"title":"Metaphorical and multimodal representation of autism in Chinese video public service announcements: Lonely twinkling","authors":"Molly Xie Pan","doi":"10.1016/j.laheal.2023.06.006","DOIUrl":"https://doi.org/10.1016/j.laheal.2023.06.006","url":null,"abstract":"<div><p>Metaphors are prevalent in the discourse of autism. Inappropriate use of metaphors might lead to stigmatization of the autistic group. Nevertheless, the multimodal representation of autism in metaphorical video PSAs remains underexplored, leaving the metaphorical portrayals of autistic community in the PSA discourse unclear. This study addresses the aforementioned issues by investigating the representation of autism in 39 Chinese metaphorical video PSAs. Findings showed that 1) the incidence and clinical characteristics were two clinical aspects of autism multimodally represented in PSAs; 2) symptoms of Difficulties in Social Communication were more frequently presented; 3) metaphorical representations of autism concerned several topics, including the autistic group, the lives of autistic children, treatment of autism, clinical characteristics, autism, and parents of autistic children; 4) the most frequent metaphor <em><span>children with autism are stars/children of stars</span></em> labelled the autistic children as stars, potentially contributing to stigmatization. Practical implications for designing metaphorical video PSAs about autism were provided.</p></div>","PeriodicalId":100865,"journal":{"name":"Language and Health","volume":"1 1","pages":"Pages 67-76"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49753431","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Skin cancer risk assessment and the grammaticalization of the future: The role of epistemic modality when temporally framing health information 皮肤癌风险评估和未来的语法化:认知方式在临时构建健康信息时的作用
Language and Health Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.07.001
Tiziana Jäggi , Sayaka Sato , Pascal M. Gygax
{"title":"Skin cancer risk assessment and the grammaticalization of the future: The role of epistemic modality when temporally framing health information","authors":"Tiziana Jäggi ,&nbsp;Sayaka Sato ,&nbsp;Pascal M. Gygax","doi":"10.1016/j.laheal.2023.07.001","DOIUrl":"https://doi.org/10.1016/j.laheal.2023.07.001","url":null,"abstract":"<div><p>The way the future is grammaticalized in language may influence the way we think about future events. However, recent experimental investigations have led to suspicions that this relationship may not be driven by the future tense alone. Rather than simply considering whether a language uses the future tense to mark the future, it has been suggested that epistemic modality, which marks probability or likelihood, may contribute to this relationship. The notion of probability is applicable to research in health communication, as its goal is to effectively communicate health-relevant (future) outcomes. The aim of this study was to assess the role of grammaticalization of the future and epistemic modality in the context of effective health messages for skin cancer. Concretely, we conducted two experiments where we presented a total of 299 participants from the general population with narratives about fictional characters and their skin cancer risk related to their new job situation. These narratives varied in terms of verb tense and epistemic modality. Participants had to rate the perceived likelihood that the people described in the narratives would develop skin cancer. In Experiment 1 we assessed participants’ cognitive evaluation and in Experiment 2 we assessed participants’ affective evaluation of the likelihood of developing skin cancer. We found a main effect for epistemic modality when information was processed cognitively (Experiment 1) and a main effect for verb tense when information was processed affectively (Experiment 2). Our results indicate that the way we present health information in narratives may affect people’s perception of the likelihood of developing skin cancer. Further, we found evidence that affective evaluation may be connected to superficial information processing.</p></div>","PeriodicalId":100865,"journal":{"name":"Language and Health","volume":"1 1","pages":"Pages 58-66"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49767536","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The changing landscape of healthcare communication in Italy: Perceptions and challenges in language brokering services 意大利医疗保健沟通的变化景观:语言中介服务的感知和挑战
Language and Health Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.07.002
Jekaterina Nikitina , Giulia Montenovo
{"title":"The changing landscape of healthcare communication in Italy: Perceptions and challenges in language brokering services","authors":"Jekaterina Nikitina ,&nbsp;Giulia Montenovo","doi":"10.1016/j.laheal.2023.07.002","DOIUrl":"https://doi.org/10.1016/j.laheal.2023.07.002","url":null,"abstract":"<div><p>This study investigates the evolving landscape of healthcare communication in Italy, focusing on the use of language brokering services <em>sensu latu</em>, including interpreting, cultural and linguistic mediation and other solutions bridging the language gap. With the country experiencing a significant influx of tourists and immigrants in recent years, the need for efficient language services has become crucial to ensure equitable access to healthcare for all individuals. The study examines the perspectives of two key professional groups involved in linguistically mediated medical encounters: language brokers and healthcare professionals. Specially designed questionnaires were administered to each group, and the analysis is conducted within the framework of sociolinguistics, complemented by survey research. The findings highlight various challenges, particularly in the ethical dimension, while emphasizing the potential for collaboration and service quality improvement through mutual adjustments between these professional groups. The results of this study can inform the development of training programmes and regulations that enhance the ability of healthcare professionals and language brokers to address these challenges effectively.</p></div>","PeriodicalId":100865,"journal":{"name":"Language and Health","volume":"1 1","pages":"Pages 77-85"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49753434","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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